Download or read book Living with Alzheimer s A Journey Observed written by Leigh Smyth, M.D. and published by Lulu.com. This book was released on 2017-09-29 with total page 128 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Alzheimer's disease rewrites the terms of a marriage in this debut memoir... a touching personal account..." - Kirkus Reviews "... a concise and moving treatise that supports and informs caregivers of Alzheimer's patients. This book is required reading for family caretakers, clinicians, and others who simply wonder how to approach such afflictions." - D. Robert Aiello, Ph.D Writing from the vantage point of a spouse and mental health professional who has witnessed and cared for a loved one with Alzheimer's over the course of ten years, the author- a clinical psychiatrist- reveals the personal side of signs and symptoms of the disease beyond memory loss that make up the full developmental syndrome of Alzheimer's, including: distortion of memory erratic likes and dislikes oppositionality hoarding and miming behaviors irritability and mood instability personality changes loss of cognitive resilience judgment issues paranoia common psychological defenses against these progressive losses

Download or read book LIVING WITH ALZHEIMER S DISEASE ONE COUPLE S JOURNEY written by Frances Siegel and published by Lulu.com. This book was released on 2013-02-01 with total page 86 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a guidepost for caregivers and families of Alzheimer's patients, an objective but emotion-filled assessment of how to handle life when the one you love the most begins gradually to lose memories and reason, and medical science cannot restore what is lost or offer any cure. The focus is the case of a prominent scholar with dementia and the impact of the illness on his marriage of 40 years. Frances Siegel kept track of her husband's symptoms, the behaviors that showed a slow but accelerating loss of cognitive function. The author offers her journey of adaptation and adjustment to the changes in their lives. Compassion and love alone become the guides of her existence as she grows in understanding. Readers will be moved and guided by her experiences. The foreword is by the Co-Director of the Neuropsychiatric and Memory Group of Johns Hopkins Hospital.

Download or read book The Dying of the Light written by Arthur Olson and published by Burnstown, Ont. : General Store Publishing House. This book was released on 1992 with total page 156 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Living With Thunder written by Joe Brazeal and published by . This book was released on 2020-04 with total page 452 pages. Available in PDF, EPUB and Kindle. Book excerpt: For the first fifteen years of our marriage, we were the typical couple. All was well. Our three children were stable and for all intents and purposes, we were the average American family. Like weather slowly changing from calm to tornadic, our lives became a living hell on earth. But slowly, slowly, slowly, the love of my life, my wife Kimberly, began to change. We tried to keep our problems within our immediate family but the reality of the insanity devastated us. We couldn't hide from it anymore. First came the headaches, then the medications to ease the pain, and finally a cocktail of medications and alcohol to slow the progression of what I later learned was her brain fragmenting and disintegrating. No one knew; not even me. We treated the symptoms until her behavior became insurmountable and uncontrollable.The brain is a mystery and remains unharnessed. The power is beyond the scope of human imagination. This oddity called dementia or Alzheimer's disease has been with mankind since the beginning. What is known is that there is a breakdown in the brain. Its highways of communication become gridlocked. Essentially, it starves itself. There is no effective treatment and this disease is irreversible.Forty-seven million people worldwide and nearly six million in the United States have been diagnosed. Of those diagnosed in the United States, 200,000 fall into the category of early-onset. Sadly, it is the 6th leading cause of death. One in ten over the age of sixty-five will become lost in their own mind. These numbers are expected to triple by 2050 with cost skyrocketing. We are facing an epidemic as the baby boomer generation age. What used to be attributed as old age, is now considered Alzheimer's in some shape or fashion. Let's not rule out, sometimes folks just forget. The forgetfulness could be attributed to vitamin deficiency or caused by a thyroid imbalance. There are many factors including genetics, diet, exercise, and environment. Like anything else, if you don't use it, you lose it. This is not just an old person's disease. This disease can strike as early as age twenty-seven.The financial, physical, and emotional toll will be astronomical. Although there are no known cures or effective treatments advances are made every day. This book is a journey of hope. You'll discover coping mechanisms not found anywhere else. Know this, you are not alone. Much like an upcoming hurricane of epic proportions, knowledge is power. Having these tools provide preparation for living with thunder and the aftermath. Ignorance is not bliss. There is a God. You are not forgotten. Never give up.

Download or read book I m Still Here written by John Zeisel and published by Penguin. This book was released on 2009 with total page 280 pages. Available in PDF, EPUB and Kindle. Book excerpt: Discusses ways to mentally connect with a person who has been diagnosed with Alzheimer's disease, which includes engaging individuals through the healthier parts of the brain.

Download or read book Learning to Speak Alzheimer s written by Joanne Koenig Coste and published by Houghton Mifflin Harcourt. This book was released on 2004-09-08 with total page 177 pages. Available in PDF, EPUB and Kindle. Book excerpt: A guide to more successful communication for the millions of Americans caring for someone with dementia: “Offers a fresh approach and hope.”—NPR Revolutionizing the way we perceive and live with Alzheimer’s, Joanne Koenig Coste offers a practical approach to the emotional well-being of both patients and caregivers that emphasizes relating to patients in their own reality. Her accessible and comprehensive method, which she calls habilitation, works to enhance communication between care partners and patients and has proven successful with thousands of people living with dementia. Learning to Speak Alzheimer’s also offers hundreds of practical tips, including how to: · cope with the diagnosis and adjust to the disease’s progression · help the patient talk about the illness · face the issue of driving · make meals and bath times as pleasant as possible · adjust room design for the patient’s comfort · deal with wandering, paranoia, and aggression “A fine addition to Alzheimer's and caregiving collections.”—Library Journal (starred review) “Promises to transform not only the lives of patients but those of care providers…This book is a gift.”—Sue Levkoff, coauthor of Aging Well

Download or read book Aging Well written by JEAN. HASELTINE GALIANA (WILLIAM.) and published by Springer. This book was released on 2019-01-01 with total page 218 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This open access book outlines the challenges of supporting the health and wellbeing of older adults around the world and offers examples of solutions designed by stakeholders, healthcare providers, and public, private and nonprofit organizations in the United States. The solutions presented address challenges including: providing person-centered long-term care, making palliative care accessible in all healthcare settings and the home, enabling aging-in-place, financing long-term care, improving care coordination and access to care, delivering hospital-level and emergency care in the home and retirement community settings, merging health and social care, supporting people living with dementia and their caregivers, creating communities and employment opportunities that are accessible and welcoming to those of all ages and abilities, and combating the stigma of aging. The innovative programs of support and care in Aging Well serve as models of excellence that, when put into action, move health spending toward a sustainable path and greatly contribute to the well-being of older adults."--Provided by publisher.

Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

Download or read book Alzheimer s In America written by Maria Shriver and published by Free Press. This book was released on 2011-04-12 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Shriver Report: A Woman’s Nation Takes on Alzheimer’s will be the first comprehensive multi-disciplinary look at these questions at this transformational moment. The Report will digest the current trends in thinking about Alzheimer’s, examine cutting-edge medical research, look at societal impacts, and include a groundbreaking and comprehensive national poll. It will feature original photography and personal essays by men and women – some from the public arena with names you know, some from everyday America – sharing their personal struggles with the disease as patients, caregivers and family members.

Download or read book Four Umbrellas written by June Hutton and published by Dundurn. This book was released on 2020-10-17 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt: A writing couple searches for answers when Alzheimer's causes one of them to lose the place where stories come from — memory. At the age of fifty-three, Tony walks away from a life of journalism and into an unknown future. June is forty-eight, a writer and teacher, and over the following decade watches as her husband changes — in interests, goals, and behaviour — until Tony has a fall, ending the life they had known. A diagnosis is seven years away, yet the signs of Alzheimer’s are all around. A suitcase Tony packs for a trip is jammed with four umbrellas, a visual symbol of cognitive looping. But how far back do these signs go? The couple starts probing the past and finding answers. This is not an old person’s disease.

Download or read book A Deeper Perspective on Alzheimer s and other Dementias written by Megan Carnarius and published by Simon and Schuster. This book was released on 2015-02-23 with total page 366 pages. Available in PDF, EPUB and Kindle. Book excerpt: Soul-searing, life-testing situations have what some call “fall-out blessings.” The book is about understanding some of the deeper lessons we are exposed to through caring for individuals with Alzheimer’s and other types of dementia. We all want a cure. But in the meantime, while this illness is still with us, how can we create a quality of life for each person in each stage of the disease? How can we look deeper into situations that, at first glance, look hopeless and destructive in order to find opportunities for insight, inspiration, and great understanding of ourselves and those we love? How can we allow the full measure of the experience to unfold and be felt with as much of ourselves as we can bring to bear? This book will help people caring for those going through the difficult dementia journey find a way, through the tumultuous waves, to remain awake and open to the blessing of a journey that opens the heart, nurtures compassion, and ultimately enables each of us to be better human beings. It is also for those brave individuals living with memory loss illnesses, so that they be supported and allowed to live their experience fully in their own unique way, to express themselves, to love and be loved, and to be sheltered from harm—that with each stage of the progression, those around the person with dementia find ways to emphasize the loved one’s remaining strengths rather than spotlight their weaknesses. A person with dementia has a whole and well spirit and, in the broadest sense, their brain is a vehicle of self-expression; it does not define their essence. Finally, this book addresses head on the final stage of the disease, when the brain has exhausted all its compensatory ability and the individual is no longer able to take part in regular day-to-day life. At this advanced stage of the disease process, people with dementia are in a deep, internal state that caregivers generally cannot access and share. It can be a very disheartening time. This internal state separates the person with dementia from those around them; however, rather than thinking of it as a prison wall separating the person with dementia from the caregiver, it may be more helpful to think of the person having retreated into a cloistered existence for a while, affording them the time needed by the soul to attend to deeper aspect of the self on a spiritual level. This phase also allows those around the person to honor the vessel, or body, that has housed the loved in in this life and prepare to let them go. When ready the individual will know the time to leave, and if allowed, will let go. Coming from a rich professional background in caring, Megan Carnarius clearly outlines the different stages of dementia and highlights many practical aspects of dementia care, suggesting accessible tools for family and professionals alike. She also addresses the more subtle, spiritual dimensions of this illness with much compassion and understanding, offering new insights into areas that have not been explored in other books on the disease.

Download or read book Reducing the Impact of Dementia in America written by National Academies of Sciences Engineering and Medicine and published by . This book was released on 2022-04-26 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.

Download or read book Chicken Soup for the Soul Living with Alzheimer s Other Dementias written by Amy Newmark and published by Simon and Schuster. This book was released on 2014-04-22 with total page 368 pages. Available in PDF, EPUB and Kindle. Book excerpt: Collects personal accounts from Alzheimer's patients and family members on their individual struggles, providing inspiring and uplifting tales of strength, treatment, and compassion. --

Download or read book I Thought It Was Just Me but it Isn t written by Brené Brown and published by Avery. This book was released on 2008 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: First published in 2007 with the title: I thought it was just me: women reclaiming power and courage in a culture of shame.

Download or read book Still Alice written by Lisa Genova and published by Simon and Schuster. This book was released on 2010-08-05 with total page 376 pages. Available in PDF, EPUB and Kindle. Book excerpt: A moving story of a woman with early onset Alzheimer's disease, now a major Academy Award-winning film starring Julianne Moore and Kristen Stewart. Alice Howland is proud of the life she worked so hard to build. At fifty, she's a cognitive psychology professor at Harvard and a renowned expert in linguistics, with a successful husband and three grown children. When she begins to grow forgetful and disoriented, she dismisses it for as long as she can until a tragic diagnosis changes her life - and her relationship with her family and the world around her - for ever. Unable to care for herself, Alice struggles to find meaning and purpose as her concept of self gradually slips away. But Alice is a remarkable woman, and her family learn more about her and each other in their quest to hold on to the Alice they know. Her memory hanging by a frayed thread, she is living in the moment, living for each day. But she is still Alice. 'Remarkable … illuminating … highly relevant today' Daily Mail 'The most accurate account of what it feels like to be inside the mind of an Alzheimer's patient I've ever read. Beautifully written and very illuminating' Rosie Boycot 'Utterly brilliant' Chrissy Iley

Download or read book Come Back Early Today written by Marie Marley and published by . This book was released on 2011 with total page 260 pages. Available in PDF, EPUB and Kindle. Book excerpt: "'In the world of Alzheimer's memoirs, a rarity-- not, strictly speaking, a 'happy ending,' but a different tale from the usual bleak, grinding, downward spiral into unalloyed misery'"--Cover p. 4.

Download or read book Dementia written by World Health Organization and published by . This book was released on 2012 with total page 102 pages. Available in PDF, EPUB and Kindle. Book excerpt: The report “Dementia: a public health priority” has been jointly developed by WHO and Alzheimer's Disease International. The purpose of this report is to raise awareness of dementia as a public health priority, to articulate a public health approach and to advocate for action at international and national levels.