Download or read book Living Healthy with Prader Willi Syndrome written by Paul Donahue, Jr. and published by . This book was released on 2018-04-23 with total page 78 pages. Available in PDF, EPUB and Kindle. Book excerpt: A complete resource for planning nutritious, delicious meals for individuals with PWS. Feature articles include "Recipes" for Success (Cooking for Someone with PWS; Nutrition and Cookbook Evolution; Guiding the PWS Journey; Dysphagia and Gastroparesis; Tasty and Healthy Tips and Substitutions; Customizing Fitness Routines for Individuals with PWS; Holiday Meal Preparation and Recipes; Sample 7-Day Menu with Calorie Counts. Recipes include Breakfast; Soups, Salads & Sauces; Meals and Meal Sides; Tasty Treats for Special Occasions. Publication by Latham Centers, Inc., a non-profit organization on Cape Cod serving children and adults with complex special needs including Prader-Willi syndrome.
Download or read book Management of Prader Willi Syndrome written by Merlin Butler and published by Springer Science & Business Media. This book was released on 2006-10-11 with total page 569 pages. Available in PDF, EPUB and Kindle. Book excerpt: Management of Prader-Willi Syndrome brings together the contributions of professionals with considerable expertise in diagnosis and management of PWS. Clinical, social, family, and community issues are explored and management strategies identified. The text presents historical, medical, and genetic information to orient the reader. The major portion deals with pragmatic guidelines, rather than research and diagnosis, and is directed to health and educational specialists in academic, clinical, and community settings. This manual is endorsed by The Prader-Willi Syndrome Association, which is recognized world-wide.
Download or read book Management of Prader Willi Syndrome written by Merlin G. Butler and published by Springer Nature. This book was released on 2022-10-10 with total page 539 pages. Available in PDF, EPUB and Kindle. Book excerpt: Now in a fully revised and updated fourth edition, this book remains the most comprehensive resource on Prader-Willi syndrome (PWS) available on the market. There have been significant changes in the diagnosis, clinical care and treatment of PWS since the previous edition was published in 2006, and more thorough information on understanding the cause and diagnosis of the condition, along with clinical presentation and findings with natural history data now available. The book is divided into three thematic sections. Part One discusses the genetics, diagnosis, research and overview of PWS, including current laboratory testing. The medical physiology and treatment of PWS comprise Part Two, covering the GI system, obesity as well as the use of growth hormone. Part Three, the largest section, presents a wide-ranging, multidisciplinary management approach to PWS, attending to the many manifestations of the condition. Topics here include neurodevelopmental aspects, speech and language disorders, motor issues, psychological and behavioral management, educational and transitional considerations, vocational training and residential care, and advocacy for both school discipline and sexuality. Syndrome-specific growth charts, benefits eligibility information and additional resources are included in helpful appendices. Timely and well-crafted, this latest edition of Management of Prader-Willi Syndrome remains the gold standard for clinicians and health care providers working with patients diagnosed with this rare obesity-related genetic disorder.
Download or read book Prader Willi Syndrome written by John Hernandez-Storr and published by . This book was released on 2016-03-10 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: On March 28, 1971, Fausta Deterling gave birth to a boy. Curtis was floppy and had little appetite. When he was five months old, a doctor told his parents that Curtis had something called Prader-Willi syndrome. He told them Curtis would develop a huge appetite as a toddler, would become quite obese, would not be 100 percent mentally, and would not live past his twenties. There was no cure or treatment, the doctor said. Fausta and her husband, Gene, did not accept this. They banded with other parents, and with a handful of professionals, to try to make better lives for their children.The small number of professionals interested in Prader-Willi syndrome made some gains, although the syndrome remained obscure. But in the 1980s Prader-Willi syndrome became the focus of a worldwide genetic mystery. And the resolution of that mystery would change the textbooks.
Download or read book Nordic Nutrition Recommendations 2004 written by Nordic Council of Ministers and published by Nordic Council of Ministers. This book was released on 2005 with total page 440 pages. Available in PDF, EPUB and Kindle. Book excerpt: Nordiska näringsrekommendationer (NNR 2004). Boken innehåller hela den vetenskapliga bakgrunden till de nordiska näringsrekommendationerna. Dokumentationen är granskad och uppdaterad. Kapitel om fysisk aktivitet och livsmedelsbaserade rekommendationer har lagts till.
Download or read book Management of Prader Willi Syndrome written by Louise R. Greenswag and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 293 pages. Available in PDF, EPUB and Kindle. Book excerpt: Management of Prader-Willi Syndrome is the first book to provide a comprehensive source of knowledge about Prader-Willi Syndrome and to offer common-sense guidelines for management. It consists of contributions from professionals in many health and allied disciplines who have worked with this special population. The book focuses on clinical, social, familial, and community issues related to care. It is directed to health, education, and other specialists in academic, clinical, and community settings. Management of Prader-Willi Syndrome describes strategies for management which are appropriate to an interdisciplinary approach.
Download or read book Prader Willi Syndrome written by Jackie Waters and published by Routledge. This book was released on 2014-03-05 with total page 113 pages. Available in PDF, EPUB and Kindle. Book excerpt: An examination of the cognitive, medical and psychological aspects of educating a child with Prader-Willi Syndrome. Practical advice is given for every part of the schooling process, from classroom management to helping the child with difficult lessons such as maths. The section on further education discusses the ethical issues concerned with learning skills for independent living and the potential for future employment.
Download or read book USDA s Food Guide Pyramid written by and published by . This book was released on 1992 with total page 30 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Encyclopedia of Molecular Mechanisms of Disease written by Florian Lang and published by Springer Science & Business Media. This book was released on 2009-03-19 with total page 2348 pages. Available in PDF, EPUB and Kindle. Book excerpt: This comprehensive encyclopedia supplies the reader with concise information on the molecular pathophysiology of disease. Entries include defined diseases (such as Parkinson's disease) as well as pathophysiological entities (such as tremor). The 1,200 essays are brilliantly structured to allow rapid retrieval of the desired information. For more detailed reading, each entry is followed by up to five references. Individual entries are written by leading experts in the respective area of research to ensure state-of-the-art descriptions of the mechanisms involved. It is an invaluable companion for clinicians and scientists in all medical disciplines.
Download or read book Health Promotion for People with Intellectual and Developmental Disabilities written by Laurence Taggart and published by McGraw-Hill Education (UK). This book was released on 2014-01-16 with total page 250 pages. Available in PDF, EPUB and Kindle. Book excerpt: People with learning disabilities are affected by significantly more health problems than the general population and are much more likely to have significant health risks. Yet evidence suggests they are not receiving the same level of health education and health promotion opportunities as other members of society. This important, interdisciplinary book is aimed at increasing professional awareness of the importance of health promotion activities for people with intellectual and developmental disabilities. Written by an international board of experts, it is a thorough and comprehensive guide for students, professionals and carers. The book considers a variety of challenges faced by those with intellectual disabilities, from physical illnesses such as diabetes, epilepsy and sexual health issues, through to issues such as addiction, mental health and ageing. Contributors: Jim Blair, Penny Blake, Malin Broberg, Michael Brown, Eddie Chaplin, Bob Davies, Gillian Eastgate, Paul Fleming, Dora Fisher, Linda Goddard, Tamar Heller, John Heng, Thanos Karatzias, Mike Kerr, Nick Lennox, Tadhg MacIntyre, Beth Marks, Jane McCarthy,Judith Moyle,Karen Nankervis,Ruth Northway, Joseph O'Grady, Renee Proulx, Janet Robertson, Cathy Ross, Jasmina Sisirak, Eamonn Slevin, David S Stewart, William F. Sullivan, Beverley Temple, Hana Válková , Henny van Schrojenstein Lantman-de Valk. "I highly recommend this book to anyone working directly with people with an intellectual disability as well as professionals, academics and students who strive to promote issues and improve the lives of people with intellectual disabilities and their families." Agnes Lunny OBE, Chief Executive of Positive Futures, Northern Ireland "The editors and authors have done practitioners a great favour in bringing together in one volume a comprehensive account of how children and adults with intellectual disabilities can be supported to lead healthier lives." Roy McConkey, Professor of Developmental Disabilities, University of Ulster, Northern Ireland "This timely and important book synthesises current knowledge about health promotion interventions for people with intellectual disabilities. Written by leading researchers and practitioners, it should be on the bookshelves of everyone concerned with addressing the stark inequalities in health experienced by people with intellectual disabilities around the world." Eric Emerson, Professor of Disability Population Health, University of Sydney, Australia and Emeritus Professor of Disability and Health Research, Lancaster University, UK "This book is current and different from other textbooks I have used before. The book is pitched at a very easy to understand level and any healthcare professional or student working with people with intellectual and developmental disabilities can use it. The content is very up to date and relevant. The use of comprehensive authors with differing backgrounds demonstrates the textbook has a wide range of expertise and knowledge packed into it that makes the book very relevant learning disabilities practice. I will definitely be recommending this textbook to undergraduate nursing students in Learning Disabilities." Dorothy Kupara – Lecturer in Learning Disabilities Nursing, University of West London.
Download or read book Prader Willi Syndrome written by Joyce Whittington and published by Cambridge University Press. This book was released on 2004-04-22 with total page 236 pages. Available in PDF, EPUB and Kindle. Book excerpt: Prader-Willi syndrome (PWS) is associated with an assortment of physical, behavioural and cognitive abnormalities which create a broad range of care needs. Information about the syndrome is spread across a variety of disciplines. In this book the authors seek to identify and provide the latest findings about how best to manage the complex medical, nutritional, psychological, educational, social and therapeutic needs of people with PWS. Their approach is an integrated one, centred on the PWS phenotype. Both authors have been involved in the Cambridge PWS study, which is the largest and most rounded of the cohort studies of PWS anywhere in the world. The unique data it provides is the basis of this book.
Download or read book Life Cycle Nutrition written by Sari Edelstein and published by Jones & Bartlett Publishers. This book was released on 2014-02-25 with total page 591 pages. Available in PDF, EPUB and Kindle. Book excerpt: Revised and updated with the latest epidemiologic research, the Second Edition of Life Cycle Nutrition: An Evidence-Based Approach explores nutritional foundations and the growth, development and normal functioning of individuals through each stage of life. With subjects as diverse as media influences on eating, skipping breakfast, fruit juice consumption, and clinical nutrition, this text gives students current knowledge, helps them evaluate emerging knowledge, and prepares them to uncover new knowledge for the public, their clients, and themselves.The Second Edition takes a topical, multi-disciplinary approach to the physiological, biochemical, sociological, and developmental factors that affect nutrient requirements and recommendations at the various stages of the life cycle. The issues surrounding topics such as chronic disease in adults are discussed throughout the adult stage. This approach makes it easier for students to relate nutrition concepts and epidemiologic research to the stages of life.
Download or read book Behavioural Phenotypes written by Gregory O'Brien and published by Cambridge University Press. This book was released on 1995 with total page 236 pages. Available in PDF, EPUB and Kindle. Book excerpt: Increasing interest over recent years in the study of the influences of environment and genetic factors on behavioural disorder has come from a wide range of disciplines. These studies have subsequently been focused through the foundation of the Society for the Study of Behavioural Phenotypes, which forms the basis for assimilating new information and coordinating future research in this field. This volume from founder members of the society presents a distillation of thinking and reviews appropriate measurement schedules. Including research findings, explanation of concepts, genetic scientific techniques and methodological issues, this work will be welcomed by those with an interest in behavioural disorder at every level.
Download or read book Psychological Therapies for Adults with Intellectual Disabilities written by John L. Taylor and published by John Wiley & Sons. This book was released on 2013-02-11 with total page 306 pages. Available in PDF, EPUB and Kindle. Book excerpt: Psychological Therapies for Adults with Intellectual Disabilities brings together contributions from leading proponents of psychological therapies for people with intellectual disabilities, which offer key information on the nature and prevalence of psychological and mental health problems, the delivery of treatment approaches, and the effectiveness of treatment. Offers a detailed guide to available therapies for adults with intellectual disabilities Includes case illustrations to demonstrate therapies in action Provides up-to-date coverage of current research in the field Puts forward a consideration of the wider contexts for psychological therapy including the relationship with social deprivation, general health, and the cost effectiveness of treatment Places individual interventions in the context of the person’s immediate social network including families and carers Includes contributions from leading proponents from around the world
Download or read book PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR PRADER WILLI SYNDROME written by Edenilson Brandl and published by Edenilson Brandl. This book was released on with total page 1467 pages. Available in PDF, EPUB and Kindle. Book excerpt: The journey of writing this book, Psychological Support by Cognitive Behavioral Therapy for Prader-Willi Syndrome, was driven by a desire to provide a comprehensive resource for caregivers, therapists, and individuals navigating the unique challenges associated with Prader-Willi Syndrome (PWS). PWS is a complex genetic disorder that not only affects the physical health of individuals but also brings significant psychological and emotional challenges. As such, a multi-faceted approach is necessary to provide effective support, which is why Cognitive Behavioral Therapy (CBT) is the focus of this book. CBT has proven to be a powerful tool in managing various psychological and emotional difficulties, offering a structured yet flexible framework that can be adapted to individual needs. This book aims to bridge the gap between the specialized knowledge required to manage the genetic aspects of PWS and the psychological tools necessary to enhance the quality of life for those affected by it. By integrating insights from genetics, epigenetics, and behavioral psychology, the book provides a holistic approach that respects the biological, emotional, and social dimensions of the syndrome. The structure of this book reflects a balance between theory and practice, introducing the fundamentals of genetics and the unique biological characteristics of PWS, followed by detailed guidance on using CBT techniques to address the emotional and behavioral challenges associated with the syndrome. This guide is designed to be accessible for both professionals and family members, providing practical tools and strategies that can be immediately applied. Additionally, this book places emphasis on the importance of understanding and accepting the emotional and mental journey of individuals with PWS. It encourages a compassionate approach, acknowledging the psychological pain and stress that come with managing a lifelong genetic disorder. Pain management, coping strategies, and personalized therapeutic approaches are explored extensively to provide a complete picture of how CBT can aid in improving both mental health and daily functioning. In writing this book, I hope to contribute to a better understanding of Prader-Willi Syndrome and the impact of tailored psychological support. My aim is to empower those living with PWS, their families, and the professionals who work with them by offering evidence-based tools that can foster resilience, enhance self-worth, and promote healthier coping mechanisms. This is not just a manual on therapy; it is a guide for building a stronger, more supportive community around those affected by Prader-Willi Syndrome. It is my hope that this book will serve as a beacon of hope, encouragement, and practical guidance for all readers, leading to a future where individuals with PWS can thrive, not just survive, in their unique journey.
Download or read book The Role of Nutrition in Integral Health and Quality of Life written by Jesús Alberto García-García and published by CRC Press. This book was released on 2024-02-13 with total page 532 pages. Available in PDF, EPUB and Kindle. Book excerpt: Achieving integral health is a challenge that necessitates a diversified approach from different disciplines to achieve a coordinated impact on people’s health. Food and nutrition form an essentail part of this approach. This new book explores some important advances in the role of nutrition in integral health and quality of life, laying special emphasis on the challenges that humans face in this era of sedentary lifestyles, diseases associated with food consumption, and social, economic, environmental, and cultural crises. The volume discusses interdisciplinary approaches to nutrition, focusing on nutrition for children, the impact of nutrition on chronic noncommunicable diseases and gastrointestinal disorders, the nutritional profile of fermented foods and their health benefits, microstructured particles as bioactive compound carriers, and more. The book also offers an analysis of obesity and its dimensions, covering childhood obesity risks and challenges at home and at school, quality of life in adult patients with diabetes, the role of genetics and epigenetics in obesity, and more. The impact of nutrition on oral and dental health is also addressed in the book.
Download or read book Management of Genetic Syndromes written by Suzanne B. Cassidy and published by John Wiley & Sons. This book was released on 2011-09-20 with total page 1678 pages. Available in PDF, EPUB and Kindle. Book excerpt: The bestselling guide to the medical management of common genetic syndromes —now fully revised and expanded A review in the American Journal of Medical Genetics heralded the first edition of Management of Genetic Syndromes as an "unparalleled collection of knowledge." Since publication of the first edition, improvements in the molecular diagnostic testing of genetic conditions have greatly facilitated the identification of affected individuals. This thorough revision of the critically acclaimed bestseller offers original insights into the medical management of sixty common genetic syndromes seen in children and adults, and incorporates new research findings and the latest advances in diagnosis and treatment of these disorders. Expanded to cover five new syndromes, this comprehensive new edition also features updates of chapters from the previous editions. Each chapter is written by an expert with extensive direct professional experience with that disorder and incorporates thoroughly updated material on new genetic findings, consensus diagnostic criteria, and management strategies. Edited by two of the field's most highly esteemed experts, this landmark volume provides: A precise reference of the physical manifestations of common genetic syndromes, clearly written for professionals and families Extensive updates, particularly in sections on diagnostic criteria and diagnostic testing, pathogenesis, and management A tried-and-tested, user-friendly format, with each chapter including information on incidence, etiology and pathogenesis, diagnostic criteria and testing, and differential diagnosis Up-to-date and well-written summaries of the manifestations followed by comprehensive management guidelines, with specific advice on evaluation and treatment for each system affected, including references to original studies and reviews A list of family support organizations and resources for professionals and families Management of Genetic Syndromes, Third Edition is a premier source to guide family physicians, pediatricians, internists, medical geneticists, and genetic counselors in the clinical evaluation and treatment of syndromes. It is also the reference of choice for ancillary health professionals, educators, and families of affected individuals looking to understand appropriate guidelines for the management of these disorders. From a review of the first edition: "An unparalleled collection of knowledge . . . unique, offering a gold mine of information." —American Journal of Medical Genetics
