Download or read book Living at the End of Life written by Karen Whitley Bell and published by Union Square & Co.. This book was released on 2018-01-02 with total page 209 pages. Available in PDF, EPUB and Kindle. Book excerpt: An updated edition of the most respected book on hospice care—for both patients and caregivers. This warm and informative resource on hospice and other end-of-life care options now gets an update. It receives a new preface and revised guidance on elders who need more long-term care and support, recommendations on pain medications, and advice for those living extended lives with treatable, but not curable, diseases. Written by a hospice nurse, Living at the End of Life reassures us that this difficult time also offers an opportunity to explore and rediscover a richer meaning in life. Drawing on her years of experience, Bell has created a comprehensive, insightful guide to every aspect of hospice care and the final stages of life. For people in hospice, as well as their friends and families, this is an indispensable and trustworthy source of comfort and spiritual healing.
Download or read book Life in a Hospice written by Ann Richardson and published by CRC Press. This book was released on 2016-07-06 with total page 170 pages. Available in PDF, EPUB and Kindle. Book excerpt: Highly Commended, BMA Medical Book Awards 2008 This book is about hospices, seen through the eyes of the people who work in them. Their individual voices, perspectives and stories invite readers into the day-to-day complexities of hospice life. There is growing public and professional attention to end of life care and the way dying patients and their families are treated. How can hospices make the process dignified and peaceful as possible? What sort of people dedicate their careers to helping the dying? What difficulties are they up against in providing this care, and what makes it all worthwhile?This inspirational book provides vivid, real-life accounts of hospice life from managers, doctors, nurses, carers and support staff. The thought-provoking narratives provide vital insights into the type of work undertaken in a hospice setting. They examine the differences between hospice and hospital care, and explore the challenges, personal motivations and the many ways hospices strive to meet the needs of patients and their families with sensitivity and respect. "Life in a Hospice" is enlightening reading for all healthcare professionals in palliative care, including volunteer, administrative and support staff. It is also highly recommended for nurses and others in caring roles considering a move into hospice work. Therapists, counsellors and religious leaders will discover poignant and encouraging insights, and people with a family member approaching the end of life will find the book reassuring and informative.
Download or read book Hospice Social Work written by Dona J. Reese and published by Columbia University Press. This book was released on 2013-02-26 with total page 520 pages. Available in PDF, EPUB and Kindle. Book excerpt: The first text to explore the history, characteristics, and challenges of hospice social work, this volume weaves leading research into an underlying framework for practice and care. A longtime practitioner, Dona J. Reese describes the hospice social work role in assessment and intervention with individuals, families, groups, organizations, and the community, while honestly confronting the personal and professional difficulties of such life-changing work. She introduces a well-tested model of psychosocial and spiritual variables that predict hospice client outcomes, and she advances a social work assessment tool to document their occurrence. Operating at the center of national leaders' coordinated efforts to develop and advance professional organizations and guidelines for end-of-life care, Reese reaches out with support and practice information, helping social workers understand their significance in treating the whole person, contributing to the cultural competence of hospice settings, and claiming a definitive place within the hospice team.
Download or read book Values at the End of Life written by Roi Livne and published by . This book was released on 2019 with total page 361 pages. Available in PDF, EPUB and Kindle. Book excerpt: Once defiant of death--or even in denial--many American families and health care professionals are embracing the notion that a life consumed by suffering may not be worth living. Sociologist Roi Livne documents the rise and effectiveness of hospice and palliative care, and the growing acceptance that less treatment may be better near the end of life.
Download or read book The Final Act of Living written by Barbara Karnes and published by . This book was released on 2003 with total page 259 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this full length book with a new preface added, Barbara Karnes shares her insights and experiences gathered over decades of working with people during their final act of living. For both professionals and lay people, this book weaves personal stories with practical care guidelines, including: living with a life threatening illness, signs of the dying process, the stages of grief, living wills, and other end of life issues. The Final Act of Living: Reflections of a Long-Time Hospice Nurse is an end of life book; a resource that reads like a novel, yet has the content of a textbook.Barbara wrote this book following years of being a hospice nurse at the bedside of hundreds of people in the months to moments before death. From the stories and experiences she shares, you will see that death doesn't just happen, there is an unfolding; there is a process to dying. The Final Act of Living is used as:*A resource on end of life for palliative care nurses*A training handbook for hospice nurses and volunteers*A reference book for anyone working with end of life issues: Lay ministers, social workers, counselors, nurses, chaplains*An easy read for anyone interested in dying and grief*A text book in college and university classes, CNA training, social work and LPN/RN classesThis material may be described as an "end of life book" however, as the title states, its content and philosophy is all about The Final Act of Living.
Download or read book Fast Facts for the Hospice Nurse written by Patricia Moyle Wright, PhD, MBA, MSN, CRNP, ACNS-BC, CHPN, CNE, FPCN and published by Springer Publishing Company. This book was released on 2017-01-28 with total page 209 pages. Available in PDF, EPUB and Kindle. Book excerpt: An on-the-go reference for hospice nurses and those interested in end-of-life care, this practical guide covers the essential elements in the compassionate and holistic care of terminally ill patients and their families. Nurses care for patients facing end-of-life issues in every practice specialty and, as the U.S. population continues to age, the need for proficiency in end-of-life skills will become increasingly important. Fast Facts for the Hospice Nurse: A Concise Guide to End-of-Life Care is an invaluable resource that provides emotional, administrative, and palliative support, whether in a hospice, long-term care facility, or acute care setting. This vital go-to text clearly and concisely lays out not only how to care for patients facing end-of-life issues, but also how to engage in self-care and cope with occupational stress. Beginning with an overview of hospice care, including its history and philosophy, this book offers a timeline of the growth of the hospice movement in the United States. Subsequent sections include up-to-date information on the clinical responsibilities of the hospice nurse in addressing the physical, psychological, and spiritual needs of terminally ill patients and their families in a culturally sensitive way. This book also outlines the administrative duties of the hospice nurse, including hospice documentation, a review of hospice regulations, and quality management. The closing section focuses on occupational stress in hospice nursing and how to engage in self-care. This text can serve as a useful clinical resource and also as a reference for nurses seeking hospice certification from the Hospice and Palliative Credentialing Center. Key Features Organized within the context of the scope and standards of practice of the Hospice and Palliative Nurses Association. Addresses key points about issues unique to hospice nursing and highlights evidence-based interventions Addresses important Medicare regulations and reimbursement Offers numerous clinical resources to assist with hospice nursing practice Serves as a concise study resource for hospice nursing certification
Download or read book Hospice A Memoir of Life Among the Dying written by Deborah Lee and published by Booklocker.com. This book was released on 2020-10-05 with total page 196 pages. Available in PDF, EPUB and Kindle. Book excerpt: Hospice is an often-misunderstood medical specialty. The reality of the work is complex, poignant, challenging, fulfilling, and even humorous. These essays shine light on the struggles, gratifications, and life lessons from a hospice social worker.
Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 470 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
Download or read book Approaching Death written by Committee on Care at the End of Life and published by National Academies Press. This book was released on 1997-10-30 with total page 457 pages. Available in PDF, EPUB and Kindle. Book excerpt: When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."
Download or read book On Living written by Kerry Egan and published by Penguin. This book was released on 2017-10-24 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: "A poetic and philosophical and brave and uplifting meditation on how important it is to make peace and meaning of our lives while we still have them.” –Elizabeth Gilbert, bestselling author of Eat Pray Love "Illuminating, unflinching and ultimately inspiring... A book to treasure.” –People Magazine A hospice chaplain passes on wisdom on giving meaning to life, from those taking leave of it. As a hospice chaplain, Kerry Egan didn’t offer sermons or prayers, unless they were requested; in fact, she found, the dying rarely want to talk about God, at least not overtly. Instead, she discovered she’d been granted a powerful chance to witness firsthand what she calls the “spiritual work of dying”—the work of finding or making meaning of one’s life, the experiences it’s contained and the people who have touched it, the betrayals, wounds, unfinished business, and unrealized dreams. Instead of talking, she mainly listened: to stories of hope and regret, shame and pride, mystery and revelation and secrets held too long. Most of all, though, she listened as her patients talked about love—love for their children and partners and friends; love they didn’t know how to offer; love they gave unconditionally; love they, sometimes belatedly, learned to grant themselves. This isn’t a book about dying—it’s a book about living. And Egan isn’t just passively bearing witness to these stories. An emergency procedure during the birth of her first child left her physically whole but emotionally and spiritually adrift. Her work as a hospice chaplain healed her, from a brokenness she came to see we all share. Each of her patients taught her something about what matters in the end—how to find courage in the face of fear or the strength to make amends; how to be profoundly compassionate and fiercely empathetic; how to see the world in grays instead of black and white. In this hopeful, moving, and beautiful book, she passes along all their precious and necessary gifts.
Download or read book The Crisis of US Hospice Care written by Harold Braswell and published by Johns Hopkins University Press. This book was released on 2019-11-26 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Exploring the failure of hospice in America to care for patients and families at the end of life. Hospice is the dominant form of end-of-life care in the United States. But while the US hospice system provides many forms of treatment that are beneficial to dying people and their families, it does not encompass what is commonly referred to as long-term care, which includes help with the activities of daily living: feeding, bathing, general safety, and routine hygienic maintenance. Frequently, such care is carried out by an informal network of unpaid caregivers, such as the person's family or loved ones, who are often ill-prepared to offer this type of support. In The Crisis of US Hospice Care, Harold Braswell argues that the stress of providing long-term care typically overwhelms family members and that overdependence on familial caregiving constitutes a crisis of US hospice care that limits the freedom of dying people. Arguing for the need to focus on the time just before death, Braswell examines how the relationship of hospice to familial caregiving evolved. He traces the history of hospice over the past fifty years and describes the choice that people dying with inadequate familial support face between a neglectful home environment and an impersonal nursing home. A nuanced look at the personal and political dimensions that shape long-term, end-of-life care, this historical and ethnographic study demonstrates that the crisis in US hospice care can be alleviated only by establishing the centrality of hospice to American freedom. Providing a model for the transformative work that is required going forward, The Crisis of US Hospice Care illustrates the potential of hospice for facilitating a new way of living our last days and for having the best death possible.
Download or read book Top Five Regrets of the Dying written by Bronnie Ware and published by Hay House, Inc. This book was released on 2019-08-13 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: Revised edition of the best-selling memoir that has been read by over a million people worldwide with translations in 29 languages. After too many years of unfulfilling work, Bronnie Ware began searching for a job with heart. Despite having no formal qualifications or previous experience in the field, she found herself working in palliative care. During the time she spent tending to those who were dying, Bronnie's life was transformed. Later, she wrote an Internet blog post, outlining the most common regrets that the people she had cared for had expressed. The post gained so much momentum that it was viewed by more than three million readers worldwide in its first year. At the request of many, Bronnie subsequently wrote a book, The Top Five Regrets of the Dying, to share her story. Bronnie has had a colourful and diverse life. By applying the lessons of those nearing their death to her own life, she developed an understanding that it is possible for everyone, if we make the right choices, to die with peace of mind. In this revised edition of the best-selling memoir that has been read by over a million people worldwide, with translations in 29 languages, Bronnie expresses how significant these regrets are and how we can positively address these issues while we still have the time. The Top Five Regrets of the Dying gives hope for a better world. It is a courageous, life-changing book that will leave you feeling more compassionate and inspired to live the life you are truly here to live.
Download or read book My Friend I Care written by Barbara Karnes and published by . This book was released on 1991-01-01 with total page 14 pages. Available in PDF, EPUB and Kindle. Book excerpt: "My Friend, I Care addresses the normalcy of grieving while offering suggestions for moving forward into living. It is often used as a sympathy card. It offers an expression of caring while giving support and guidance"--Publisher description.
Download or read book Textbook of Palliative Care written by Roderick Duncan MacLeod and published by Springer. This book was released on 2025-05-29 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This second edition provides the most up-to-date information on all aspects of palliative care including recent developments (including COVID-19), global policies, service provision, symptom management, professional aspects, organization of services, palliative care for specific populations, palliative care emergencies, ethical issues in palliative care, research in palliative care, public health approaches and financial aspects of care. This new Textbook of Palliative Care remains a unique, comprehensive, clinically relevant and state-of-the art book, aimed at advancing palliative care as a science, a clinical practice and as an art. Palliative care has been part of healthcare for over fifty years but we still needs to be explained. Healthcare education and training has been slow to recognize the vital importance of ensuring that all practitioners have a good understanding of what is involved in the care of people with serious or advanced illnesses and theirfamilies. However, the science of palliative care is advancing and this new edition will contribute to a better understanding of this specialty. This new edition offers 20 new chapters out of over 120, written by experts in their given fields provide up-to-date information on a wide range of topics of relevance to those providing care towards the end of life no matter what the disease may be. We present a global perspective on contemporary and classic issues in palliative care with authors from a wide range of disciplines involved in this essential aspect of care. The Textbook includes sections addressing aspects such as symptom management and care provision, organization of care in different settings, care in specific disease groups, palliative care emergencies, ethics, public health approaches and research in palliative care. This new Textbook will be of value to practitioners in all disciplines and professions where the care of people approaching death is important, specialists as well as non-specialists, in any setting where people with serious advanced illnesses are residing. It is also an important resource for researchers, policy-and decision-makers at national or regional levels. Neither the science nor the art of palliative care will stand still so the Editors and contributors from all over the world aim to keep this Textbook updated so that the reader can find new evidence and approaches to care.
Download or read book Watch with Me written by Dame Cicely Saunders and published by . This book was released on 2003 with total page 50 pages. Available in PDF, EPUB and Kindle. Book excerpt: "A Collection of essays and reflections, Cicely Saunders explores a deep and enduring preoccupation: the relationship between personal biography, the spiritual life and an ethics of care." --Cover.
Download or read book A Time to Live written by Barbara Karnes and published by . This book was released on 1996-01-01 with total page 14 pages. Available in PDF, EPUB and Kindle. Book excerpt: "A Time To Live is a booklet for anyone faced with the unpredictability of their future due to a life threatening illness. It offers guidance for living and explains comfort control, nutrition and sleep as they relate to a serious illnesses"--Publisher description.
Download or read book Hospice and Palliative Care Handbook written by T. M. Marrelli and published by SIGMA Theta Tau International. This book was released on 2018 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
