Download or read book Families and Their Children with Down s Syndrome written by Elizabeth A. Byrne and published by Psychology Press. This book was released on 1988 with total page 168 pages. Available in PDF, EPUB and Kindle. Book excerpt: The authors present research based on interviews with families in the Manchester Down's Syndrome Cohort given to professionals involved in the welfare of children with Down's Syndrome or in the provision of community care and support for their families.
Download or read book Down Syndrome From Understanding the Neurobiology to Therapy written by and published by Elsevier. This book was released on 2012-10-16 with total page 273 pages. Available in PDF, EPUB and Kindle. Book excerpt: Down syndrome (DS) is the most common example of neurogenetic aneuploid disorder leading to mental retardation. In most cases, DS results from an extra copy of chromosome 21 (HSA21) producing deregulated gene expression in brain that gives raise to subnormal intellectual functioning. The topic of this volume is of broad interest for the neuroscience community, because it tackles the concept of neurogenomics, that is, how the genome as a whole contributes to a neurodevelopmental cognitive disorders, such as DS, and thus to the development, structure and function of the nervous system. This volume of Progress in Brain Research discusses comparative genomics, gene expression atlases of the brain, network genetics, engineered mouse models and applications to human and mouse behavioral and cognitive phenotypes. It brings together scientists of diverse backgrounds, by facilitating the integration of research directed at different levels of biological organization, and by highlighting translational research and the application of the existing scientific knowledge to develop improved DS treatments and cures. Leading authors review the state-of-the-art in their field of investigation and provide their views and perspectives for future research Chapters are extensively referenced to provide readers with a comprehensive list of resources on the topics covered All chapters include comprehensive background information and are written in a clear form that is also accessible to the non-specialist
Download or read book Families Child Downs Syndrome written by Elizabeth Byrne and published by Routledge. This book was released on 2002-01-08 with total page 168 pages. Available in PDF, EPUB and Kindle. Book excerpt: First published in 1988. Routledge is an imprint of Taylor & Francis, an informa company.
Download or read book Children with Down Syndrome written by Dante Cicchetti and published by Cambridge University Press. This book was released on 1990-03-30 with total page 492 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume offers a state-of-art review of what is known about young children with Down syndrome from a developmental perspective. The underlying theme of the book is that children with Down syndrome, despite their constitutional anomalies and their additional medical and biological problems, can be understood from a normative developmental framework. Interventions guided by developmental principles in the biological, educational and psychological realms are more likely to result in informed knowledge about how best to help children with Down syndrome and their families. Children with Down Syndrome will appeal to researchers, theoreticians, educators, and clinicians in a range of disciplines, as well as to parents, social policymakers, and other advocates for the best interests of children with Down syndrome.
Download or read book Families Child Downs Syndrome written by Elizabeth Byrne and published by Routledge. This book was released on 2002-01-08 with total page 168 pages. Available in PDF, EPUB and Kindle. Book excerpt: First published in 1988. Routledge is an imprint of Taylor & Francis, an informa company.
Download or read book Choosing Down Syndrome written by Chris Kaposy and published by MIT Press. This book was released on 2022-08-09 with total page 237 pages. Available in PDF, EPUB and Kindle. Book excerpt: An argument that more people should have children with Down syndrome, written from a pro-choice, disability-positive perspective. The rate at which parents choose to terminate a pregnancy when prenatal tests indicate that the fetus has Down syndrome is between 60 and 90 percent. In Choosing Down Syndrome, Chris Kaposy offers a carefully reasoned ethical argument in favor of choosing to have such a child. Arguing from a pro-choice, disability-positive perspective, Kaposy makes the case that there is a common social bias against cognitive disability that influences decisions about prenatal testing and terminating pregnancies, and that more people should resist this bias by having children with Down syndrome. Drawing on accounts by parents of children with Down syndrome, and arguing for their objectivity, Kaposy finds that these parents see themselves and their families as having benefitted from having a child with Down syndrome. To counter those who might characterize these accounts as based on self-deception or expressing adaptive preference, Kaposy cites supporting evidence, including divorce rates and observational studies showing that families including children with Down syndrome typically function well. Himself the father of a child with Down syndrome, Kaposy argues that cognitive disability associated with Down syndrome does not lead to diminished well-being. He argues further that parental expectations are influenced by neoliberal ideologies that unduly focus on the supposed diminished economic potential of a person with Down syndrome. Kaposy does not advocate restricting access to abortion or prenatal testing for Down syndrome, and he does not argue that it is ethically mandatory in all cases to give birth to a child with Down syndrome. People should be free to make important decisions based on their values. Kaposy's argument shows that it may be consistent with their values to welcome a child with Down syndrome into the family.
Download or read book Down Syndrome Across the Life Span written by Monica Cuskelly and published by John Wiley & Sons. This book was released on 2008-04-30 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book promotes a positive message for people with Down syndrome across the world. Living with Down Syndrome is a positive experience for the majority of children and adults with Down syndrome, and for their families. Of course there are difficulties to be faced, but quality of life, from infancy to old age, is determined more by the quality of healthcare, education and social inclusion offered to individuals, than by the developmental difficulties that are associated with Down syndrome. The aim of this book is to bring the latest information on research and good practice to families, practitioners and policy makers in order improve the services available to individuals with Down syndrome in all countries.
Download or read book Can I tell you about Down Syndrome written by Elizabeth Elliott and published by Jessica Kingsley Publishers. This book was released on 2015-10-21 with total page 50 pages. Available in PDF, EPUB and Kindle. Book excerpt: Meet David - a boy with Down syndrome. David invites readers to learn about Down syndrome from his perspective, helping them to understand what Down syndrome is and how it affects his daily life. He explains that he sometimes needs extra help at home and school and suggests ways that those around him can help him to feel supported. This illustrated book is ideal for young people aged 7 upwards, as well as parents, friends, teachers, social workers and other professionals working with children with Down syndrome. It is also an excellent starting point for family and classroom discussions.
Download or read book Down s Syndrome written by Janet H. Carr and published by Cambridge University Press. This book was released on 1995-11-24 with total page 228 pages. Available in PDF, EPUB and Kindle. Book excerpt: The most common, most easily recognised and probably the most researched single condition causing learning disability - Down's syndrome. Based on extensive interviews and questionnaires focusing on fundamental issues of development and upbringing, Dr Carr has followed the lives of a population-based cohort of Down's syndrome subjects from birth to early adulthood. This volume details particularly the development of study groups between the ages 11 and 21 years with a longitudinal perspective reference to earlier years as appropriate. A wide range of factors are investigated from behaviour, discipline and independence through to effects on the family and the provision of help from services. The collection of this unique data spanning the first 21 years of life enables Dr Carr to offer discussion and advice which will be of international relevance and an invaluable reference for all those concerned with the care, health and well-being of Down's syndrome individuals and their families.
Download or read book Teaching Children with Down Syndrome about Their Bodies Boundaries and Sexuality written by Terri Couwenhoven and published by . This book was released on 2007 with total page 331 pages. Available in PDF, EPUB and Kindle. Book excerpt: Parents of children with Down syndrome and other intellectual disabilities are accustomed to paying close attention to their child's physical, cognitive, and emotional development. This proactive approach should also include their child's sexual development, which for many parents may not seem as obvious or urgent, especially to those with young children. Drawing on her unique background as both a sexual educator and mother of a child with Down syndrome, the author blends factual information and practical ideas for teaching children with Down syndrome about their bodies, puberty, and sexuality. This book gives parents the confidence to speak comfortably about these sometimes difficult subjects. In an easy-to-read, non-clinical style, the book covers relevant issues and concerns for children of all ages, such as: Labelling & explaining private body parts; Identifying & expressing emotions; Respecting personal space; Teaching self-care & hygiene; Understanding norms of privacy; Understanding gender identity; Showing appropriate levels of affection. It also covers later issues that affect teenagers and young adults, including: Anticipating and understanding puberty; Dealing with periods, bras for girls; Experiencing erections, wet dreams for boys; Relating to the opposite sex; Sharing parental values about sexuality; Explaining sexual relationships; Preventing sexual abuse; Understanding how Down syndrome affects puberty & fertility rates. Each chapter highlights important points with key messages, teaching activities, parental pauses, and anecdotes, all of which prompt readers to stop and consider concepts or values associated with a particular topic. The final chapter covers the special concerns of parents who are now teaching teenaged or adult children about sexuality for the first time. It concludes with extensive appendices containing invaluable teaching materials and illustrations of body parts and functions.
Download or read book Facts about Down Syndrome written by and published by . This book was released on 1984 with total page 20 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Issues for Families with Children with Down Syndrome written by Sue Buckley and published by DSE Enterprises. This book was released on 2002 with total page 46 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Young Children with Down s Syndrome written by Janet H. Carr and published by Institute for Research Into Mental and Multiple Handicap. This book was released on 1975 with total page 192 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Testing Women Testing the Fetus written by Rayna Rapp and published by Routledge. This book was released on 2004-11-23 with total page 377 pages. Available in PDF, EPUB and Kindle. Book excerpt: Rich with the voices and stories of participants, these touching, firsthand accounts examine how women of diverse racial, ethnic, class and religious backgrounds perceive prenatal testing, the most prevalent and routinized of the new reproducing technologies. Based on the author's decade of research and her own personal experiences with amniocentesis, Testing Women, Testing the Fetus explores the "geneticization" of family life in all its complexity and diversity.
Download or read book 31 Days of Down Syndrome written by Cheryl Patterson and published by Dorrance Publishing. This book was released on 2021-03-04 with total page 74 pages. Available in PDF, EPUB and Kindle. Book excerpt: 31 Days of Down Syndrome: A Handbook for Special Families By: Cheryl and Ray Patterson Having someone in your family with special needs can be a challenge for some. With this book full of tips on how to cope with these needs and how to deal with other’s reaction, this firsthand experienced family will guide you on your journey, specifically those with Down Syndrome. This experience, a sudden change in life, can be emotionally over-whelming, draining, and the most fulfilling moment a family can experience. The Patterson family provides real world experience of what is yet to come and help those realize that this is the more heart-warming event of their lives.
Download or read book Winners and Losers written by Frances McGinnity and published by . This book was released on 2016-04 with total page 79 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Children With Down Syndrome written by U.s. Government Accountability Office and published by . This book was released on 2017-08-17 with total page 48 pages. Available in PDF, EPUB and Kindle. Book excerpt: "On October 8, 2008, the Prenatally and Postnatally Diagnosed Conditions Awareness Act was signed into law, requiring GAO to submit a report concerning the effectiveness of current health care and family support programs for the families of children with disabilities. In this report, GAO focused on Down syndrome because it is a medical condition that is associated with disabilities and occurs frequently enough to yield a sufficient population size for an analysis.GAO examined (1) what is known about the extent to which children with Down syndrome receive medical care during early childhood and(2) what resources families of children with Down syndrome receive through their health care providers and what barriers families face to using these resources.GAO analyzed fee-for-service claims data from a very large private health insurance company, for the claims representing its experience with one of the largest national employers, and Medicaid claims data from seven states with high Medicaid enrollment and low percentages of enrollees in Medicaid managed care. GAO also interviewed specialists at six prominent Down syndrome clinics and 12 advocacy groups to examine what resources families receive and to identify barriers they face. GAO also analyzed data from the Health..."
