Download or read book Dazzle written by Ehlers-Danlos Tees and published by Createspace Independent Publishing Platform. This book was released on 2018-06 with total page 250 pages. Available in PDF, EPUB and Kindle. Book excerpt: Keep track of your journey as an Ehlers-Danlos Syndrome warrior with this dot grid journal. Use this Ehlers-Danlos book however you want! Track your pain levels, doctor's appointments, good days, etc. Decorate it with stickers and your own art! This journal is anything you want it to be.

Download or read book Daughter Of A Ehlers Danlos Syndrome Warrior written by Mike James Hapiner and published by . This book was released on 2020-02-19 with total page 112 pages. Available in PDF, EPUB and Kindle. Book excerpt: Your loved one is a Ehlers Danlos Syndrome warrior and looking for a notebook to lift your spirits? 6" x 9" notebook 110 (front and back) blank lined pages

Download or read book Breathe and Fight on Ehlers Danlos Syndrome Warrior written by Eds Journals and published by . This book was released on 2019-10-28 with total page 122 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ehlers Danlos Syndrome Notebook Blank Lined line with lines 6x9 120 Pages Checklist Record Book EDS Awareness Take Notes Gift Planner Paper Men Women Kids Ehlers Danlos Syndrome Christmas Gift

Download or read book Ehlers Danlos Warrior written by Ehlers Danlos Journals and published by . This book was released on 2019-10-16 with total page 122 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ehlers Danlos Syndrome Notebook Blank Line EDS Ehlers Danlos Journal Lined with Lines 6x9 120 Pages Checklist Record Book Take Notes Gift Planner Paper Men Women Kids Christmas Gift for Ehlers Danlos Syndrome Awareness

Download or read book Ehlers Danlos Syndrome Warrior written by Joann Jones Awareness and published by . This book was released on 2019-09-05 with total page 102 pages. Available in PDF, EPUB and Kindle. Book excerpt: Each pad measures 6 x 9 inches 100 Lined White Pages of high quality paper (50 sheets) Nice wide ruled lines for easy writing Premium Matte Paperback Cover Perfect for gel pen, ink or pencils

Download or read book Ehlers Danlos Syndrome written by Matthews James and published by . This book was released on 2020-04-09 with total page 120 pages. Available in PDF, EPUB and Kindle. Book excerpt: This journal is a perfect gift for friends and family, male or female. Other features of this notebook are: - 120 pages - 6x9 inches - matte cover This book is convenient for writing. It has the perfect size to carry anywhere for journaling and note taking.

Download or read book Ehlers Danlos Warrior written by Ehlers Danlos Journals and published by . This book was released on 2019-10-17 with total page 122 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ehlers Danlos Syndrome Notebook Blank Dot Grid EDS Journal dotted with dots 6x9 120 Pages Checklist Record Book Take Notes Gift Planner Paper Men Women Kids Christmas Gift for Ehlers Danlos Syndrome

Download or read book Ehlers Danlos Warrior Unbreakable written by Joann Jones Awareness and published by . This book was released on 2019-09-05 with total page 102 pages. Available in PDF, EPUB and Kindle. Book excerpt: Each pad measures 6 x 9 inches 100 Lined White Pages of high quality paper (50 sheets) Nice wide ruled lines for easy writing Premium Matte Paperback Cover Perfect for gel pen, ink or pencils

Download or read book Composition Notebook written by Fritz Noack and published by . This book was released on 2019-11-05 with total page 102 pages. Available in PDF, EPUB and Kindle. Book excerpt: Are you looking for a fun gift for someone close to you? This is a perfect blank, lined notebook for men, women, and children. Great for taking down notes, reminders, and crafting to-do lists. Also a great creativity gift for decoration or for a notebook for school or office! This notebook is an excellent accessory for your desk at home or at the office. It's the perfect travel size to fit in a laptop bag or backpack. Use it on the go and you will keep all of your notes and reminders in organized in one place. Professionally designed this 6x9 notebook provides the medium for you to detail your thoughts. Buy your notebook today and begin to fill the pre-lined pages with your heart's desire. Your new notebook includes: Fresh white paper 100 pages 6x9 inch format Paper color: White We have even more wonderful titles that you'll enjoy! Be sure to click on the author name for other great notebook ideas.

Download or read book Composition Notebook written by Fritz Noack and published by . This book was released on 2019-10-31 with total page 102 pages. Available in PDF, EPUB and Kindle. Book excerpt: Are you looking for a fun gift for someone close to you? This is a perfect blank, lined notebook for men, women, and children. Great for taking down notes, reminders, and crafting to-do lists. Also a great creativity gift for decoration or for a notebook for school or office! This notebook is an excellent accessory for your desk at home or at the office. It's the perfect travel size to fit in a laptop bag or backpack. Use it on the go and you will keep all of your notes and reminders in organized in one place. Professionally designed this 6x9 notebook provides the medium for you to detail your thoughts. Buy your notebook today and begin to fill the pre-lined pages with your heart's desire. Your new notebook includes: Fresh white paper 100 pages 6x9 inch format Paper color: White We have even more wonderful titles that you'll enjoy! Be sure to click on the author name for other great notebook ideas.

Download or read book Composition Notebook written by Fritz Noack and published by . This book was released on 2019-11-05 with total page 102 pages. Available in PDF, EPUB and Kindle. Book excerpt: Are you looking for a fun gift for someone close to you? This is a perfect blank, lined notebook for men, women, and children. Great for taking down notes, reminders, and crafting to-do lists. Also a great creativity gift for decoration or for a notebook for school or office! This notebook is an excellent accessory for your desk at home or at the office. It's the perfect travel size to fit in a laptop bag or backpack. Use it on the go and you will keep all of your notes and reminders in organized in one place. Professionally designed this 6x9 notebook provides the medium for you to detail your thoughts. Buy your notebook today and begin to fill the pre-lined pages with your heart's desire. Your new notebook includes: Fresh white paper 100 pages 6x9 inch format Paper color: White We have even more wonderful titles that you'll enjoy! Be sure to click on the author name for other great notebook ideas.

Download or read book Notebook Planner Ehlers Danlos Syndrome Zebra Warrior written by Oscar Ortiz-Cortes and published by . This book was released on 2020-12-06 with total page 114 pages. Available in PDF, EPUB and Kindle. Book excerpt: Notebook Planner Ehlers Danlos Syndrome Zebra Warrior . This Notebook Planner Ehlers Danlos Syndrome Zebra Warrior is customized handmade. This Notebook Planner Ehlers Danlos Syndrome Zebra Warrior gift idea for any literature junkie you know, librarians, students, teachers, members of a book club . If you are looking for book related gifts for thanksgiving, birthday, graduation, christmas, anniversary.

Download or read book Vascular Ehlers Danlos Syndrome the Journey Begins written by M. J. Smith and published by Createspace Independent Publishing Platform. This book was released on 2016-08-25 with total page 208 pages. Available in PDF, EPUB and Kindle. Book excerpt: In one single moment, everything can change. What lurks inside the deepest depths of David Malarky threatens his entire existence.... Vascular Ehlers-Danlos Syndrome: The Journey Begins charts the story of David Malarky as he uncovers a truth that has gone undetected in his family for generations. An unknown monster with the power to take a life in the blink of an eye. As David unmasks the savage beast within, he must come to terms with the consequences of being diagnosed with a rare genetic disorder. With little help and little hope, he must overcome and fight back in the challenge to stay alive. The journey begins.....

Download or read book Graceful Strength written by Zoë Jorna-Jackson and published by . This book was released on 2024-05 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Graceful Strength: Living Resiliently with Ehlers-Danlos Syndrome" is a powerful and insightful book designed to guide individuals through the complexities of living with Ehlers-Danlos Syndrome (EDS), a group of hereditary disorders affecting connective tissues. The book serves as a beacon of understanding, strength, and resilience, offering a path to navigate EDS's often challenging and misunderstood journey.Written collaboratively by those who know EDS intimately-patients themselves and specialists in the field-this book bridges the gap between personal experience and professional guidance. "Graceful Strength" dives deep into the multifaceted aspects of EDS, providing a detailed look at its symptoms, management strategies, and underlying genetics. It acknowledges the physical challenges and the emotional and psychological battles individuals face daily.Readers will find comprehensive sections on self-advocacy and healthcare communication, critical components for anyone navigating chronic illness. The book emphasizes the importance of building a collaborative relationship with healthcare providers and equips readers with the tools to articulate their healthcare needs and preferences effectively. It also offers practical advice for dealing with common issues such as medical gaslighting, appointment preparation, and understanding insurance processes.Its patient-centered approach sets "Graceful Strength" apart, ensuring the content is relatable, empathetic, and empowering. The narrative weaves together personal anecdotes with expert advice, creating a rich tapestry of support and wisdom. Each page aims to empower readers to find their voice, advocate for their care, and build a life filled with dignity and grace despite the challenges of EDS.Beyond just a guide, "Graceful Strength" is a companion for those affected by EDS, providing comfort and community. It acknowledges the strength it takes to live with a chronic condition and celebrates the resilience of the human spirit. For anyone touched by EDS-whether newly diagnosed, a long-term warrior, a family member, or a healthcare professional-this book offers a valuable perspective, practical strategies, and a profound understanding of living resiliently with Ehlers-Danlos Syndrome.

Download or read book Symptomatic written by Clair A. Francomano and published by Elsevier. This book was released on 2023-12-15 with total page 662 pages. Available in PDF, EPUB and Kindle. Book excerpt: Symptomatic: The Symptom-Based Handbook for Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders offers a novel approach structured around the panoply of 75 symptoms with which a person with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) may present to a clinician. The content is arranged intuitively from head to feet, with each chapter integrating clinical case studies with a concise discussion and two important diagnostic tools: a simplified algorithm for diagnosing and treating each symptom and differential diagnoses and alternative explanations for their symptoms. This is a handbook that combines the expertise of some 70 leading clinicians, representing more than 30 specialties. This book is suited for clinicians who need a concise and straight-forward presentation of the various and complex symptoms they confront in their clinical practice. It brings forth a field of knowledge emerging from interdisciplinary collaboration despite the pressures of specialization that bridges gaps in understanding between the several dozen disciplines implicated in EDS and HSD. • A comprehensive compendium of the symptoms of EDS and HSD to aid clinicians and patients • Symptom-based chapters for ease of making a diagnosis • A case report, differential diagnosis, discussion, and diagnostic and treatment algorithm for each symptom

Download or read book The Chronic Warrior Chronicles Complete Season One Episodes 1 5 written by Angela Thompson and published by Quiet Waters Press. This book was released on 2024-05-19 with total page 269 pages. Available in PDF, EPUB and Kindle. Book excerpt: Heroes? In these bodies? You've got to be kidding! All Brady Owen wants from this highly experimental research program is a chance at normalcy, away from the crushing migraines that dominate his life. So when he wakes in the lab with the ability to hear distant sounds, see through walls, and sense microscopic particles with his fingers, his fractured world tips on its axis. Brady's temporary enhancements land him among a ragtag band of young chronic illness warriors for whom the treatments have had similar effects. But how can a guy be a hero when some days he can't even lift his head from the pillow? And why would God give him a gift that's not even his to control? This collection contains all five episodes from season one: On the Brink, Uncommon Sense, Team Up, Car Alarm, and Savior Complex.

Download or read book Management of Genetic Syndromes written by Suzanne B. Cassidy and published by John Wiley & Sons. This book was released on 2010-04-05 with total page 541 pages. Available in PDF, EPUB and Kindle. Book excerpt: The bestselling guide to the medical management of common genetic syndromes —now fully revised and expanded A review in the American Journal of Medical Genetics heralded the first edition of Management of Genetic Syndromes as an "unparalleled collection of knowledge." Since publication of the first edition, improvements in the molecular diagnostic testing of genetic conditions have greatly facilitated the identification of affected individuals. This thorough revision of the critically acclaimed bestseller offers original insights into the medical management of sixty common genetic syndromes seen in children and adults, and incorporates new research findings and the latest advances in diagnosis and treatment of these disorders. Expanded to cover five new syndromes, this comprehensive new edition also features updates of chapters from the previous editions. Each chapter is written by an expert with extensive direct professional experience with that disorder and incorporates thoroughly updated material on new genetic findings, consensus diagnostic criteria, and management strategies. Edited by two of the field's most highly esteemed experts, this landmark volume provides: A precise reference of the physical manifestations of common genetic syndromes, clearly written for professionals and families Extensive updates, particularly in sections on diagnostic criteria and diagnostic testing, pathogenesis, and management A tried-and-tested, user-friendly format, with each chapter including information on incidence, etiology and pathogenesis, diagnostic criteria and testing, and differential diagnosis Up-to-date and well-written summaries of the manifestations followed by comprehensive management guidelines, with specific advice on evaluation and treatment for each system affected, including references to original studies and reviews A list of family support organizations and resources for professionals and families Management of Genetic Syndromes, Third Edition is a premier source to guide family physicians, pediatricians, internists, medical geneticists, and genetic counselors in the clinical evaluation and treatment of syndromes. It is also the reference of choice for ancillary health professionals, educators, and families of affected individuals looking to understand appropriate guidelines for the management of these disorders. From a review of the first edition: "An unparalleled collection of knowledge . . . unique, offering a gold mine of information." —American Journal of Medical Genetics