Download or read book My Heart Can t Even Believe It written by Amy Silverman and published by . This book was released on 2016-03-01 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: All parent stories about raising a child with Down syndrome are special and unique, but in the hands of a good writer, they can have the power to reach, change, and resonate far beyond family and friends. And that is the case with My Heart Can't Even Believe It, by journalist, blogger, and NPR contributor Amy Silverman. Amy bravely looks at her life, before and after her daughter Sophie was born, and reflects on her transformation from "a spoiled, self-centered brat," who used words like retard and switched lines at the Safeway to avoid a bagger with special needs, into the mother of a kid with Down syndrome and all that her new identity entails. She describes her evolution as gradual, one built by processing her fears and facing questions both big and small about Sophie, Down syndrome, and her place in the world. Funny, touching, and honest, this wonderful book looks at a daughter and her power to change minds and fill hearts with love so deep.

Download or read book Loving Andrew written by Romy Wyllie and published by Createspace Independent Publishing Platform. This book was released on 2012-10-26 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "A mother recounts how the birth of Andrew with Down syndrome, and the loss to cancer of a second baby, start a family's journey through the maze of parenthood. With the support of his loving family, Andrew mastered the skills of life and became a contributing member of society."--

Download or read book Down Syndrome Parenting 101 written by Natalie Hale and published by . This book was released on 2022-06 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: GUIDANCE FOR PARENTS OF CHILDREN WITH DOWN SYNDROME

Download or read book Up written by Ashley Asti and published by . This book was released on 2020-08-19 with total page 196 pages. Available in PDF, EPUB and Kindle. Book excerpt: A nourishing little book that will touch your heart and lift you up. "I am blessed to call myself one of the lucky few," Ashley writes, referring to those whose lives and families have been touched by Down syndrome. "I don't have a sibling or a child or an aunt with Down syndrome...I've been brought into the Down syndrome community by friendship." An unexpected friendship led Ashley into the Down syndrome community and into the world of a nonprofit serving families of new babies with Down syndrome. This has "moved me, changed me, helped me bloom," Ashley writes. And, so, she has put together this book, this "love letter," a collection of six stories that feature the lives of people with Down syndrome and those who love them. But these are not just Down syndrome stories. They are human stories, stories of life lived in different shades, with fullness, with heart, through tragedy and back up, again. Shared with love, may these stories leave you feeling nourished, connected, and a little more up.

Download or read book Fasten Your Seatbelt written by Brian Skotko and published by Special Needs Collection. This book was released on 2009 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Even the closest brothers and sisters don't always get along or understand each other. Add a disability like Down syndrome to the mix, and that sibling relationship gets even more complicated, especially for teenagers. Fasten Your Seatbelt is the first book written exclusively for teens with a brother or sister with Down syndrome. In an easy-to-read, question & answer format, it tackles a broad range of their most common issues and concerns. Nearly 100 questions--all posed by teen siblings--are grouped into the following categories: Facts and stats about Down syndrome How people with Down syndrome learn Handling parent and family conflicts Dealing with your sibling's frustrating behaviors Managing uncomfortable situations Sorting out your feelings Becoming an advocate What the future holds for you and your sibling Finding local and national resources Thoughtful, knowledgeable answers are provided by Brian Skotko, the brother of a young woman with Down syndrome, and Sue Levine, a social worker focused on sibling issues for the past 30 years. Fasten Your Seatbelt gives teens the green light to explore their own feelings and questions about their sibling with Down syndrome and how their relationship may change in the future. Wondering whats on their minds? Here are a few sample questions from the book: Why does my brother always have temper tantrums? How can one extra chromosome make someone so different? Can my sister with Down syndrome marry someday? Will my brother be able to live on his own as an adult?

Download or read book Life with a Superhero written by Kathryn U. Hulings and published by University of North Texas Press. This book was released on 2013 with total page 270 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Mayborn Graduate Institute of Journalism."

Download or read book Bloom written by Kelle Hampton and published by William Morrow Paperbacks. This book was released on 2013-04-02 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: “In her tender and genuinely beautiful memoir, Kelle Hampton encourages us to not simply accept the unexpected circumstances of our lives, but to embrace them like the things we wished for all along.” —Matthew Logelin, New York Times bestselling author of Two Kisses for Maddy Bloom is an inspiring and heartfelt memoir that celebrates the beauty found in the unexpected, the strength of a mother’s love, and, ultimately, the amazing power of perspective. The author of the popular blog Enjoying the Small Things—named The Bump’s Best Special Needs Blog and The Blog You’ve Learned the Most From in the 2010 BlogLuxe Awards—Kelle Hampton interweaves lyrical prose and stunning four-color photography as she recounts the unforgettable story of the first year in the life of her daughter Nella, who has Down syndrome. Poignant, eye-opening, and heart-soaring, Hampton’s Bloom is ultimately about embracing life and really living it.

Download or read book Up Not Down Syndrome written by Nancy M. Schwartz and published by Modern History Press. This book was released on 2020-04-01 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: Up, Not Down Syndrome is a love letter and a map. Experience how it feels to think your life is over after having an unlovable baby. At first the loss seems impossible to overcome. Alex becomes the author's greatest teacher. Love is stronger than fear. Everyone has gifts. The book consists of three parts: the story, the lessons Alex taught the writer and Alex's perspective. Up, Not Down Syndrome is a promise to stay positive, no matter what: up, not down. Nancy's journey gets to the core of what it is to be human: * Explore what it feels like to think life, as you know it, is over. * Discover the fierce love, joy and peace a baby diagnosed with Trisomy 21 (Down syndrome) brings. * Learn the lessons this child taught his mom. * Understand the gift this baby brings to our world. * Realize the depth of the love this family has for the child. "A beautiful, honest account of not just accepting--but embracing--the unknown. Nancy shows us the blessing of an unexpected gift and the enormity of love." --Sara Byala, Ph.D. "This is a wonderful book to remind you that the joy of love is possible in unexpected places when you open your heart to it." --Barbara Taylor Bowman, Irving B. Harris Professor of Child Development "A moving and wise story of how a family navigates through hope, loss, learning and, most of all, love." --Rabbi David Wolpe, author of David: The Divided Heart "The truth and beauty of Nancy Schwartz's words tell an ongoing story of love, learning and the power of acceptance. All can learn from this family's boundless hope and from their source of joy and strength: Alex." --April Beard, Music Educator and Cellist Learn more at www.UpNotDownBook.com From Modern History Press www.ModernHistoryPress.com

Download or read book I m Down with You written by Jagatjoti S. Khalsa and published by Other Person Is You. This book was released on 2010-09 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "I'm Down with You" is a photographic journey that tells a story, visually and in words, about the incredible people met along the path in the Down syndrome community. The book shows us all something deep within our hearts through the presentation of this community of amazing people. With the gift of an extra chromosome, they are in fact not be "disabled" but "abled", they ability to love without hierarchy, have a strong self-esteem and to impact everyone they touch with an uplift found too rarely in our world these days. We need to have new heros and reminders that we can overcome adversity and love without fear or restriction and to be reminded of our potential. Within the Down syndrome community, there are not words, but actions – the action of grace, love, dwelling in the present and trust. We have a new heros, they just may not have been in the form we all expected. The book contains over 110 portraits and families photo's along with essays by Betsy Goodwin, NDSS Founder; Sharon Stone, Actor and Activist; Anthony Shriver, CEO and Founder of Best Buddies; John Mcginley, Actor and National Spokesperson for Buddy Walk; and Jagatjoti Khalsa, photographer and creator of I'm Down with You.

Download or read book The Down Syndrome Diary written by Jamie Freeman and published by Independently Published. This book was released on 2021-03-17 with total page 250 pages. Available in PDF, EPUB and Kindle. Book excerpt: If ever a book had a soul, it would be the one you're reading about right now. In 2013, when her son was just six months old, a new mama walked into a bookstore and bought a beautiful, leather-bound journal. Inside she proceeded to pour her soul out and tell her story. What story? The story of what it's truly like to have a child with Down syndrome...the story she wished she could have read the day she found out she would be part of that club. She then packed up the journal and sent it off to her friend many miles away in northern Ontario, Canada. Social media outlets had brought them together, and the sharing of this tangible journal began to bring them even closer. The spirit of the book began to grow as the diary embarked on a journey through twenty-six homes in four different countries finally making its way back into the hands of that original mama.As the stories were told and the torch was passed, The Down Syndrome Diary was born. A journal filled with words, pictures, tears, and even a few wine stains became the greatest gift someone could receive upon hearing that their child has Down syndrome. Opening these pages will give you a glance into the amazing work of art that journal became.Enjoy!

Download or read book You Are Enough A Book About Inclusion written by Margaret O'Hair and published by Scholastic Inc.. This book was released on 2021-03-02 with total page 40 pages. Available in PDF, EPUB and Kindle. Book excerpt: A beautiful and inclusive picture book all about celebrating being yourself from Down syndrome advocate and viral sensation Sofia Sanchez! It can be hard to be different -- whether because of how you look, where you live, or what you can or can't do. But wouldn't it be boring if we were all the same? Being different is great! Being different is what makes you YOU. This inclusive and empowering picture book from Sofia Sanchez -- an 11-year-old model and actress with Down syndrome -- reminds readers how important it is to embrace your differences, be confident, and be proud of who you are. Imagine all of the wonderful things you can do if you don't let anyone stop you! You are enough just how you are. Sofia is unique, but her message is universal: We all belong. So each spread will feature beautiful, full-color illustrations of a full cast of kid characters with all kinds of backgrounds, experiences, and abilities. This book will also include back matter with a brief bio of Sofia and her journey so far, as well as additional information about Down syndrome and how we can all be more accepting, more inclusive, and more kind.

Download or read book Letting the Light In written by Karen Lawrence and published by Independently Published. This book was released on 2021-10-15 with total page 160 pages. Available in PDF, EPUB and Kindle. Book excerpt: How does it feel to discover that there is something wrong with your baby? Karen thought she had the perfect family. She had everything organised and under control. But when her seventh child, Martha, was born with Down Syndrome, Karen's world was shaken to its core. This memoir tells the story of Martha's early months and years. Karen shares her tears, her struggles, and her joy as she slowly came to accept the many unexpected gifts Martha brought her. Karen's Christian faith, her family, and her very sense of identity were all shaken by the arrival of her baby with Down Syndrome. Martha needed life-saving heart surgery in her first year. Karen questioned everything she had previously taken for granted. The journey was not easy. But it was life changing. 'Before Martha, my life was carefully sealed up against the strange, the difficult, and the imperfect. I was like a dull pot or a closely shuttered window. Martha cracked me apart and let the light in. I will be forever grateful.'

Download or read book A Miracle Named Mark written by Greg Hublar and published by . This book was released on 2021-02-21 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is about the life of my brother, Mark J. Hublar, who was born with Down Syndrome on September 1, 1964. Through our parents faith, Mark escaped a fate that most of his contemporaries did not. That being a life lived in an institution. Mark went on to graduate from special education classes in high school and later graduated college with a degree in public speaking. Mark now travels the country as a self-advocate speaking up for the rights of those with disabilities. This book gives the reader a glimpse into Mark's incredible journey from birth to present day.

Download or read book Teaching Children with Down Syndrome about Their Bodies Boundaries and Sexuality written by Terri Couwenhoven and published by . This book was released on 2007 with total page 331 pages. Available in PDF, EPUB and Kindle. Book excerpt: Parents of children with Down syndrome and other intellectual disabilities are accustomed to paying close attention to their child's physical, cognitive, and emotional development. This proactive approach should also include their child's sexual development, which for many parents may not seem as obvious or urgent, especially to those with young children. Drawing on her unique background as both a sexual educator and mother of a child with Down syndrome, the author blends factual information and practical ideas for teaching children with Down syndrome about their bodies, puberty, and sexuality. This book gives parents the confidence to speak comfortably about these sometimes difficult subjects. In an easy-to-read, non-clinical style, the book covers relevant issues and concerns for children of all ages, such as: Labelling & explaining private body parts; Identifying & expressing emotions; Respecting personal space; Teaching self-care & hygiene; Understanding norms of privacy; Understanding gender identity; Showing appropriate levels of affection. It also covers later issues that affect teenagers and young adults, including: Anticipating and understanding puberty; Dealing with periods, bras for girls; Experiencing erections, wet dreams for boys; Relating to the opposite sex; Sharing parental values about sexuality; Explaining sexual relationships; Preventing sexual abuse; Understanding how Down syndrome affects puberty & fertility rates. Each chapter highlights important points with key messages, teaching activities, parental pauses, and anecdotes, all of which prompt readers to stop and consider concepts or values associated with a particular topic. The final chapter covers the special concerns of parents who are now teaching teenaged or adult children about sexuality for the first time. It concludes with extensive appendices containing invaluable teaching materials and illustrations of body parts and functions.

Download or read book Chaya s Angels written by Elaine Feuer and published by . This book was released on 2018-11-25 with total page 132 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Chaya Ben Baruch gave birth to her sixth child, a son with Down syndrome, she led her family on a spiritual journey, moving from Alaska to Israel and adopting more children with special needs, on the way. The reader will learn detailed and vital information about raising these beautiful souls: the joys and demands, along with unconditional parental love, that allows these children to thrive and to glow. Whether Chaya is watching her son with Downs marry her adopted daughter with Downs, or fighting for the rights of all special needs children, life is never dull. Chaya even found time to donate a kidney, leaving everyone to wonder, "What's next?" Ghandi wrote: "A nation's greatness is measured by how it treats its weakest." Join Chaya and her family on their enchanting odyssey. The world needs this heart-rending story, more than ever!

Download or read book Almost Twins written by Anna Penland and published by . This book was released on 2021-08-28 with total page 36 pages. Available in PDF, EPUB and Kindle. Book excerpt: From the moment Anna and Anna met at Auburn University, they realized they had so much in common, they HAD to call each other "twin." Many people celebrate that people are all the same, but the twins respectfully disagree- which is why this duo dubbed themselves as the Almost Twins. This "almost" signifies the beautiful difference in not only someone with Down syndrome and their typical peers but each and every one of us. We all have something unique to celebrate. Take a look around- maybe you have an almost twin too! Visit our website at www.thealmosttwins.com to learn more about our story and for helpful materials on how to celebrate our differences. Come join the Almost Twins on their friendship journey! Discover why the Annas are stronger together, and how they help and encourage each other every day. From ordering at a restaurant to planning a party, the Almost Twins are up for any challenge

Download or read book My Life with Down Syndrome written by Mari C. Schuh and published by My Life with . . .. This book was released on 2020-08 with total page 24 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Meet Peter. He loves the drums and gym. He also has Down syndrome. Peter is real and so are his experiences. Learn about his life in this illustrated narrative nonfiction picture book for elementary students"--