Download or read book Dementia from the Inside written by Jennifer Bute and published by SPCK. This book was released on 2018-11-15 with total page 131 pages. Available in PDF, EPUB and Kindle. Book excerpt: ‘Many assume that living with dementia is one long term steady decline. Jennifer’s insightful book debunks that myth.’ – Jeremy Hughes, Chief Executive, Alzheimer's Society Jennifer Bute was a highly qualified senior doctor in a large clinical practice, whose patients included those with dementia. Then she began to notice symptoms in herself. She was finally given a diagnosis of Young Onset Dementia in 2009. After resigning as a GP, she resolved to explore what could be done to slow the progress of dementia. The aim of this practical book is to help people who are living with dementia and to give hope to those who are with them on the dementia journey. Jennifer believes that her dementia is an opportunity as well as a challenge. Her important insights are that the person ‘inside’ remains and can be reached, even when masked by the condition, and that spirituality rises as cognition becomes limited. ‘The observant physician shines through in Dr Bute's book, while her practical advice reveals the resourcefulness of an inventor. Alzheimer’s disease has surely met one of its toughest ever adversaries!’ – Peter Garrard, Professor of Neurology, University of London

Download or read book Inside the Dementia Epidemic written by Martha Stettinius and published by Dundee-Lakemont Press. This book was released on 2012-07-23 with total page 400 pages. Available in PDF, EPUB and Kindle. Book excerpt: One in 8 people over age 65 has Alzheimer's disease, and nearly fifty percent of those over age 85. With the passion of a committed daughter and the fervor of a tireless reporter, Martha Stettinius weaves a compelling story of her long journey caregiving for her demented mother with a broad exploration of the causes of dementia, means of treating it, and hopes for preventing it. Her greatest gift to readers is that of optimism that caregiving can deepen love, that dementia can be fought, and that families can be strengthened. Her book is appealing, enlightening, and inspiring. Includes appendices on dementia research; source notes; resources for caregivers; and an index.

Download or read book Alzheimer s from the Inside Out written by Richard Taylor and published by . This book was released on 2007 with total page 292 pages. Available in PDF, EPUB and Kindle. Book excerpt: Receiving a diagnosis of Alzheimer's disease profoundly alters lives and creates endless uncertainty about the future. How does a person cope with such a life-changing discovery? What are the hopes and fears of someone living with this disease? How does he want to be treated? How does he feel as the disease alters his brain, his relationships, and ultimately himself? Richard Taylor provides illuminating responses to these and many other questions in this collection of provocative essays. Diagnosed with Alzheimer's disease at age 61, the former psychologist courageously shares an account of his slow transformation and deterioration and the growing division between his world and the world of others. With poignant clarity, candor, and even occasional humor, more than 80 brief essays address difficult issues faced by those with Alzheimer's disease, including the loss of independence and personhood unwanted personality shifts communication difficulties changes in relationships with loved ones and friends the declining ability to perform familiar tasks This rare, insightful exploration into the world of individuals with Alzheimer's disease is a captivating read for anyone affected personally or professionally by the devastating disease. Individuals with early-stage Alzheimer's disease will take comfort in the voice of a fellow traveler experiencing similar challenges, frustrations, and triumphs. Family and professional caregivers will be enlightened by Taylor's revealing words, gaining a better understanding of an unfathomable world and how best to care for someone living in it.

Download or read book On Pluto Inside the Mind of Alzheimer s written by Greg O'Brien and published by Good Night books. This book was released on 2018-02-27 with total page 309 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is a book about living with Alzheimer’s, not dying with it. It is a book about hope, faith, and humor—a prescription far more powerful than the conventional medication available today to fight this disease. Alzheimer’s is the sixth leading cause of death in the US—and the only one of these diseases on the rise. More than 5 million Americans have been diagnosed with Alzheimer’s or a related dementia; about 35 million people worldwide. Greg O’Brien, an award-winning investigative reporter, has been diagnosed with early-onset Alzheimer's and is one of those faceless numbers. Acting on long-term memory and skill coupled with well-developed journalistic grit, O’Brien decided to tackle the disease and his imminent decline by writing frankly about the journey. O’Brien is a master storyteller. His story is naked, wrenching, and soul searching for a generation and their loved ones about to cross the threshold of this death in slow motion. On Pluto: Inside the Mind of Alzheimer’s is a trail-blazing roadmap for a generation—both a “how to” for fighting a disease, and a “how not” to give up!

Download or read book Inside Alzheimer s written by Nancy D. Pearce and published by . This book was released on 2011 with total page 328 pages. Available in PDF, EPUB and Kindle. Book excerpt: Tells how dozens of persons with dementia and their sharing of wisdom, humor and life's teachings led the author to the six basic principles of connection: Intend a Connection, Free Yourself of Judgment, Love, Open to Receive Love, Silence and Thankfulness. Original.

Download or read book On Vanishing written by Lynn Casteel Harper and published by Catapult. This book was released on 2020-04-14 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.

Download or read book A Look Inside Alzheimer s written by Marjorie N. Allen and published by Demos Medical Publishing. This book was released on 2012-09-18 with total page 158 pages. Available in PDF, EPUB and Kindle. Book excerpt: A Look Inside Alzheimer's is a captivating read for friends, families and loved ones affected by this mind-robbing disease. Individuals with early-stage Alzheimer's disease will take comfort in the voice of a fellow traveler experiencing similar challenges, frustrations, and triumphs. Family and professional caregivers will be enlightened by this book and gain a better understanding of this unfathomable world and how best to care for someone living in it. Susan and PJ, share their accounts of their own transformation and deterioration with early-onset Alzheimer's Disease and Marjorie shares her perspective as the wife of a person living with Alzheimer's Disease. The book addresses the complexity and emotions surrounding issues such as the loss of independence, unwanted personality shifts, struggle to communicate, and more. The three life-stories intertwined along with boxed quotes from professionals in the field make this book special. "

Download or read book Unforgotten written by Bianca Brijnath and published by Berghahn Books. This book was released on 2014-07-01 with total page 239 pages. Available in PDF, EPUB and Kindle. Book excerpt: As life expectancy increases in India, the number of people living with dementia will also rise. Yet little is known about how people in India cope with dementia, how relationships and identities change through illness and loss. In addressing this question, this book offers a rich ethnographic account of how middle-class families in urban India care for their relatives with dementia. From the husband who wakes up at 3 am to feed his wife ice-cream to the daughters who gave up employment for seven years to care for their mother with dementia, this book illuminates the local idioms on dementia and aging, the personal experience of care-giving, the functioning of stigma in daily life, and the social and cultural barriers in accessing support.

Download or read book The Problem of Alzheimer s written by Jason Karlawish and published by St. Martin's Press. This book was released on 2021-02-23 with total page 269 pages. Available in PDF, EPUB and Kindle. Book excerpt: A definitive and compelling book on one of today's most prevalent illnesses. In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2050. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's traces Alzheimer’s from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems’ failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer’s to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers’ support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center.

Download or read book Four Umbrellas written by June Hutton and published by Dundurn. This book was released on 2020-10-17 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt: A writing couple searches for answers when Alzheimer's causes one of them to lose the place where stories come from — memory. At the age of fifty-three, Tony walks away from a life of journalism and into an unknown future. June is forty-eight, a writer and teacher, and over the following decade watches as her husband changes — in interests, goals, and behaviour — until Tony has a fall, ending the life they had known. A diagnosis is seven years away, yet the signs of Alzheimer’s are all around. A suitcase Tony packs for a trip is jammed with four umbrellas, a visual symbol of cognitive looping. But how far back do these signs go? The couple starts probing the past and finding answers. This is not an old person’s disease.

Download or read book Pervasive Computing Paradigms for Mental Health written by Pietro Cipresso and published by Springer. This book was released on 2019-07-10 with total page 276 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book constitutes the refereed proceedings of the 9th International Conference on Pervasive Computing Paradigms for Mental Health, MindCare 2019, held in Buenos Aires, Argentina, in April 2019. The 22 papers presented were carefully reviewed and selected from 38 submissions and present new paradigms in mental healthcare, in parallel with compelling questions about how it is possible to promote and structure these changes to improve physical well-being.

Download or read book How Do I Know You written by Barbara Karnes and published by . This book was released on 2016-09 with total page 21 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caring for someone with dementia presents different challenges than caring for others with health care issues.People with dementia don't "play by the rules" that signify approaching death from disease or old age. This booklet outlines the issues and progress that a person with dementia will probably follow.The aim of this booklet is to provide information regarding approaching end of life to those people, family and significant others, who are making decisions for and caring for someone with dementia. It would be given to the family upon admission to the Palliative Care program or to any family that is having to address the eating and not eating dilemma.Like it's companions, Gone From My Sight and The Eleventh Hour, How Do I Know You? is short, written in large print, and the information is conveyed in a simple, direct yet gentle manner.

Download or read book Chicken Soup for the Soul Living with Alzheimer s Other Dementias written by Amy Newmark and published by Simon and Schuster. This book was released on 2014-04-22 with total page 368 pages. Available in PDF, EPUB and Kindle. Book excerpt: Collects personal accounts from Alzheimer's patients and family members on their individual struggles, providing inspiring and uplifting tales of strength, treatment, and compassion. --

Download or read book Inside the Dementia Epidemic written by Martha Stettinius and published by Dundee-Lakemont Press. This book was released on 2012 with total page 373 pages. Available in PDF, EPUB and Kindle. Book excerpt: The unflinching and hopeful story of one woman's journey into family caregiving, and a vivid overview of the challenges of Alzheimer's care. With the passion of a committed daughter and the fervor of a tireless reporter, Martha Stettinius weaves this compelling story of caregiving for her demented mother with a broad exploration of the causes of Alzheimer's disease, means of treating it, and hopes for preventing it. She shares the lessons she's learned over seven years of caregiving at home, in assisted living, a rehabilitation center, a "memory care" facility for people living with dementia, and a nursing home--lessons not just about how to navigate the system, but how caregiving helped the author to grow closer to her mother, and to learn to nurture her mother's spirit through the most advanced stages of dementia.

Download or read book Learning to Speak Alzheimer s written by Joanne Koenig Coste and published by Houghton Mifflin Harcourt. This book was released on 2004-09-08 with total page 177 pages. Available in PDF, EPUB and Kindle. Book excerpt: A guide to more successful communication for the millions of Americans caring for someone with dementia: “Offers a fresh approach and hope.”—NPR Revolutionizing the way we perceive and live with Alzheimer’s, Joanne Koenig Coste offers a practical approach to the emotional well-being of both patients and caregivers that emphasizes relating to patients in their own reality. Her accessible and comprehensive method, which she calls habilitation, works to enhance communication between care partners and patients and has proven successful with thousands of people living with dementia. Learning to Speak Alzheimer’s also offers hundreds of practical tips, including how to: · cope with the diagnosis and adjust to the disease’s progression · help the patient talk about the illness · face the issue of driving · make meals and bath times as pleasant as possible · adjust room design for the patient’s comfort · deal with wandering, paranoia, and aggression “A fine addition to Alzheimer's and caregiving collections.”—Library Journal (starred review) “Promises to transform not only the lives of patients but those of care providers…This book is a gift.”—Sue Levkoff, coauthor of Aging Well

Download or read book When a Family Member Has Dementia written by Susan M. McCurry and published by Bloomsbury Publishing USA. This book was released on 2006-01-30 with total page 184 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caring for a person with dementia is a difficult and often- overwhelming task. In addition to the inevitable decline in memory and physical function, most persons with dementia develop one or more troublesome behavior problems, such as depression, fearfulness, sleep disturbances, paranoia, or physical aggression at some point in their disease. Behavioral challenges in dementia are highly idiosyncratic. No two patients are alike, and interventions that work well with one person are often ineffective with another. Caregivers often become stuck: either unable to figure out how best to help their loved one, or unable to consistently implement positive practices they know would improve their situation. This book offers caregivers a set of practical and flexible tools to enable them become more resilient in the face of difficulty and change. McCurry teaches caregivers how to take advantage of their own creativity and inner resources to develop strategies that will work in their unique situations. She presents her set of five core principles and then brings them to life through vignettes. Anyone who lives, works, or comes in contact with a person who has dementia will benefit from this volume.

Download or read book Dancing with Dementia written by Christine Bryden and published by Jessica Kingsley Publishers. This book was released on 2005 with total page 204 pages. Available in PDF, EPUB and Kindle. Book excerpt: Christine Bryden was a top civil servant and single mother of three children when she was diagnosed with dementia at the age of 46. Dancing with Dementia is a vivid account of her experiences of living with dementia, exploring the effects of memory problems, loss of independence, difficulties in communication and the exhaustion of coping with simple tasks. She describes how, with the support of her husband Paul, she continues to lead an active life nevertheless, and explains how professionals and carers can help. This book is a thoughtful exploration of how dementia challenges our ideas of personal identity and of the process of self-discovery it can bring about.