Download or read book Dementia as Social Experience written by Gaynor Macdonald and published by Routledge. This book was released on 2018-07-26 with total page 329 pages. Available in PDF, EPUB and Kindle. Book excerpt: A diagnosis of dementia changes the ways people engage with each other – for those living with dementia, as well their families, caregivers, friends, health professionals, neighbours, shopkeepers and the community. Medical understandings, necessary as they are, provide no insights into how we may all live good lives with dementia. This innovative volume brings together an interdisciplinary group of researchers and practitioners to focus on dementia as lived experience. It foregrounds dementia’s social, moral, political and economic dimensions, investigating the challenges of reframing the dementia experience for all involved. Part I critiques the stigmas, the negativity, language and fears often associated with a dementia diagnosis, challenging debilitating representations and examining ways to tackle these. Part II examines proactive practices that can support better long-term outcomes for those living with dementia. Part III looks at the relational aspects of dementia care, acknowledging and going beyond the notion of person-centred care. Collectively, these contributions highlight the social and relational change required to enhance life for those with dementia and those who care for them. Engaging in a critical conversation around personhood and social value, this book examines the wider social contexts within which dementia care takes place. It calls for social change, and looks for inspiration to the growing movement for relational care and the caring society. Dementia as Social Experience is important reading for all those people who, in various ways, are living with dementia, as well as for those working in this area as clinicians, researcher and carers.
Download or read book Forgetting Items written by Baptiste Brossard and published by Indiana University Press. This book was released on 2019-07-31 with total page 122 pages. Available in PDF, EPUB and Kindle. Book excerpt: A book that’s “in the upper echelons of social dementia research . . . an entertaining and revelatory contribution to the field” (Symbolic Interaction). Alzheimer’s disease has not only profound medical consequences for the individual experiencing it but a life-changing impact on those around them. From the moment a person is suspected to be suffering from Alzheimer’s or another form of dementia, the interactions they encounter progressively change. Forgetting Items focuses on that social experience of Alzheimer’s, delineating the ways disease symptoms manifest and are understood through the interactions between patients and the people around them. Mapping out those interactions takes readers through the offices of geriatricians, into patients’ narratives and interviews with caregivers, down the corridors of nursing homes, and into the discourses shaping public policies and media coverage. Revealing the everyday experience of Alzheimer’s helps us better understand the depth of its impact and points us toward more knowledgeable, holistic ways to help treat the disease. “Considers the social aspect of dementia by considering how symptoms are expressed by the individual and understood/interpreted by those close to them. The author’s goal is to help us understand common experiences associated with dementia and ways to interpret those experiences through the lens of sociology.” —ISCHP (International Society of Critical Health Psychology)
Download or read book Reducing the Impact of Dementia in America written by National Academies of Sciences Engineering and Medicine and published by . This book was released on 2022-04-26 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.
Download or read book When I m 64 written by National Research Council and published by National Academies Press. This book was released on 2006-02-13 with total page 280 pages. Available in PDF, EPUB and Kindle. Book excerpt: By 2030 there will be about 70 million people in the United States who are older than 64. Approximately 26 percent of these will be racial and ethnic minorities. Overall, the older population will be more diverse and better educated than their earlier cohorts. The range of late-life outcomes is very dramatic with old age being a significantly different experience for financially secure and well-educated people than for poor and uneducated people. The early mission of behavioral science research focused on identifying problems of older adults, such as isolation, caregiving, and dementia. Today, the field of gerontology is more interdisciplinary. When I'm 64 examines how individual and social behavior play a role in understanding diverse outcomes in old age. It also explores the implications of an aging workforce on the economy. The book recommends that the National Institute on Aging focus its research support in social, personality, and life-span psychology in four areas: motivation and behavioral change; socioemotional influences on decision-making; the influence of social engagement on cognition; and the effects of stereotypes on self and others. When I'm 64 is a useful resource for policymakers, researchers and medical professionals.
Download or read book Dementia and Social Work Practice written by Carole B. Cox, PhD and published by Springer Publishing Company. This book was released on 2007-04-15 with total page 457 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Practical coverage of driving, day care, support groups, and respite is particularly welcome. This is a good book to have available, not just for social work faculty and students, but also for those in the health sciences, psychology, and sociology. It will be a useful resource for professionals coping with the increasing problems for family and community that an aging population and the epidemic of Alzheimer's disease bring with them....Recommended. Lower-level undergraduate through professionals/practitioners."--Choice Beyond the immediate and devastating effects dementia can have on individuals and their quality of life are the strains that are placed on the families, caregivers, and communities that support them. Social workers are in a unique position to address all these issues at the same time that they provide care for individuals with dementia. To facilitate the entrance of social workers into this area of care, Carol B. Cox has edited a volume of expert articles on the biological, psychological, and social aspects of dementia. . Readers will learn the latest assessment instruments, as well as how to distinguish between Alzheimer's and non-Alzheimer's dementias. Intervention strategies for every stage of dementia are presented. The effects of culture and diversity on the treatment of persons with dementia are examined, including examples of successful programs from several countries. The benefits and drawbacks of adult day services, community care, and residential care are discussed. Finally, a discussion of the legal, financial, and psychological stresses faced by caregivers of those with dementia rounds out this much needed text.
Download or read book Design for People Living with Dementia written by Paul A. Rodgers and published by Routledge. This book was released on 2022-05-05 with total page 371 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book presents the latest research that shows how design thinking, making, and acting contribute to the co-designing and development of products, spaces, and services with people living with dementia. We know that there is currently no cure for the 130+ kinds of dementia that millions of people live with all over the world, but the designed interventions such as the products, spaces, and services described in this book can address stigma, isolation, loss of confidence, and raise awareness and greater understanding of dementia. This book showcases a range of innovative and creative design interventions that have been developed to break the cycle of well-established opinions, strategies, mindsets, and ways of doing that tend to remain unchallenged in the health and social care of people living with dementia. The book will be of interest to scholars working in product design, service design, experience design, architecture, design research, information design, user-centred design, and design for health.
Download or read book Telling Tales About Dementia written by Lucy Whitman and published by Jessica Kingsley Publishers. This book was released on 2009-09-15 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: How does it feel when someone you love develops dementia? How do you cope with the shock, the stress and the grief? Can you be sure that you and your family will receive the support you need? In Telling Tales About Dementia, thirty carers from different backgrounds and in different circumstances share their experiences of caring for a parent, partner or friend with dementia. They speak from the heart about love and loss: 'I still find it hard to believe that Alzheimer's has happened to us,' writes one contributor, 'as if we were sent the wrong script.' The stories told here vividly reflect the tragedy of dementia, the gravity of loss, and instances of unsatisfactory diagnosis, treatment and care. But they contain hope and optimism too: clear indications that the quality of people's lives can be enhanced by sensitive support services, by improved understanding of the impact of dementia, by recognising the importance of valuing us all as human beings, and by embracing and sustaining the connections between us. This unique collection of personal accounts will be an engaging read for anyone affected by dementia in a personal or professional context, including relatives of people with dementia, social workers, medical practitioners and care staff.
Download or read book Dementia written by Alan Chapman and published by Jessica Kingsley Publishers. This book was released on 1993 with total page 178 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book explores the new skills needed in multidisciplinary work. These include counselling, creative use of the past, groupwork, empowerment, family therapy, care management, and network analysis. The book is intended to build on what readers already know, while exploring new dimensions of work in the field.
Download or read book The Simplicity of Dementia written by Huub Buijssen and published by Jessica Kingsley Publishers. This book was released on 2005-02-15 with total page 178 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book offers an accessible and sympathetic introduction for relatives, carers and professionals looking after or training to work with people with dementia. Drawing on the two `laws of dementia', the author explains the causes of communication problems, mood disturbances and `deviant' behaviours, with particular emphasis on how these are experienced by dementia sufferers themselves. Case examples demonstrate the typical symptoms and progression of dementia, and clear guidance is provided on how to support dementia sufferers at every stage and help them deal with the challenges posed by their condition. Relatives and carers will find this book a source of essential information and encouragement to deal confidently with the difficulties posed by the condition both for people with dementia and those around them.
Download or read book Broadening the dementia debate written by Bartlett, Ruth and published by Policy Press. This book was released on 2010-06-01 with total page 169 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dementia has been widely debated from the perspectives of biomedicine and social psychology. This book broadens the debate to consider the experiences of men and women with dementia from a sociopolitical perspective. It brings to the fore the concept of social citizenship, exploring what it means within the context of dementia and using it to re-examine the issue of rights, status(es), and participation. Most importantly, the book offers fresh and practical insights into how a citizenship framework can be applied in practice. It will be of interest to health and social care professionals, policy makers, academics and researchers and people with dementia and family carers may find it revitalising.
Download or read book Social Research Methods in Dementia Studies written by John Keady and published by Routledge. This book was released on 2017-10-06 with total page 399 pages. Available in PDF, EPUB and Kindle. Book excerpt: Traditionally, the most preferred social research methods in dementia studies have been interviews, focus groups and non-participant observations. Most of these methods have been used for a long time by researchers in other social research fields, but their application to the field of dementia studies is a relatively new phenomenon. A ground-breaking book, Social Research Methods in Dementia Studies shows researchers how to adapt their methods of data collection to address the individual needs of someone who is living with dementia. With an editorial team that includes Ann Johnson, a trained nurse and person living with dementia, this enlightening volume mainly draws its contents from two interdisciplinary social research teams in dementia, namely the Center for Dementia Research [CEDER] at Linköping University in Norrköping, Sweden and the Dementia and Ageing Research Team [DART] at The University of Manchester in Manchester, UK. Case examples are shared in each of the main chapters to help ground the social research method(s) in a real-life context and provide direction as to how learning can be applied to other settings. Chapters also contain key references and recommended reading. This volume will appeal to undergraduate and postgraduate students, as well as postdoctoral researchers, interested in fields such as: Research Methods, Qualitative Methods and Dementia Studies.
Download or read book Dementia and Place written by Richard Ward and published by Policy Press. This book was released on 2021-09-24 with total page 238 pages. Available in PDF, EPUB and Kindle. Book excerpt: Giving voice to the lived experiences of people with dementia across the globe, including Australia, Canada, Sweden and the UK, this critical and evidence-based collection engages with the realities of life for people living with dementia at home and within their neighbourhoods. This insightful text addresses the fundamental social aspects of environment, including place attachment, belonging and connectivity. The chapters reveal the potential and expose the challenges for practitioners and researchers as dementia care shifts to a neighbourhood setting. The unique ‘neighbourhood-centred’ perspective provides an innovative guide for policy and practice and calls for a new place-based culture of care and support in the neighbourhood.
Download or read book Ageing Dementia and the Social Mind written by Paul Higgs and published by John Wiley & Sons. This book was released on 2017-09-05 with total page 168 pages. Available in PDF, EPUB and Kindle. Book excerpt: A groundbreaking exploration of the sociology of dementia — with contributions from distinguished international scholars and practitioners. Organised around the four themes of personhood, care, social representations and social differentiation Provides a critical look at dementia and demonstrates how sociology and other disciplines can help us understand its social context as well as the challenges it poses Contributing authors explore the social terrain, responding in part, to Paul Higgs’ and Chris Gilleard’s highly influential work on ageing Breaks new ground in giving specific attention to the social and cultural dimensions of responses to dementia
Download or read book Living a good life with Dementia written by Liz Leach Murphy and published by Critical Publishing. This book was released on 2021-12-06 with total page 248 pages. Available in PDF, EPUB and Kindle. Book excerpt: A practical guide to helping those living with dementia live their best life in a way that makes sense to them. Essential reading for anyone working with people living with dementia, this book explains the concept of Self-Directed Support and Care for people living with dementia and links the various Person Centred approaches within dementia care with Person Centred Planning and Community based approaches. As the content unfolds, the concept of the Dementia Care Triad (people living with dementia, unpaid carers and professional carers) is explored and developed further to include the layer of community. The links between the health and social care legal context, guidance documents and national dementia strategies are presented with good, actionable practice, approaches, tools and informed advice to achieve Person Centred dementia care and support, with an emphasis on communities Living a Good Life with Dementia will help professionals and carers gain knowledge and insight to be able to develop creative ideas for the care and support they want to have in place.
Download or read book Person centred Dementia Care written by Dawn Brooker and published by Jessica Kingsley Publishers. This book was released on 2007 with total page 163 pages. Available in PDF, EPUB and Kindle. Book excerpt: Explaining the four key areas of person-centred care for people with dementia, Dawn Brooker provides a fresh definition to the important ideas that underpin the implementation and practice of dealing with this issue.
Download or read book Unforgotten written by Bianca Brijnath and published by Berghahn Books. This book was released on 2014-07-01 with total page 239 pages. Available in PDF, EPUB and Kindle. Book excerpt: As life expectancy increases in India, the number of people living with dementia will also rise. Yet little is known about how people in India cope with dementia, how relationships and identities change through illness and loss. In addressing this question, this book offers a rich ethnographic account of how middle-class families in urban India care for their relatives with dementia. From the husband who wakes up at 3 am to feed his wife ice-cream to the daughters who gave up employment for seven years to care for their mother with dementia, this book illuminates the local idioms on dementia and aging, the personal experience of care-giving, the functioning of stigma in daily life, and the social and cultural barriers in accessing support.
Download or read book The Social Construction of Dementia written by Nancy Harding and published by Macmillan. This book was released on 1997 with total page 192 pages. Available in PDF, EPUB and Kindle. Book excerpt: This text outlines the limited knowledge base about dementia and covers the effects which that has on the design of services for people with dementia. The authors have researched designs and methods for assessing the impact of services upon service receivers, including family carers.
