Download or read book Dementia Activist written by Helga Rohra and published by Jessica Kingsley Publishers. This book was released on 2016-07-21 with total page 154 pages. Available in PDF, EPUB and Kindle. Book excerpt: What's happening to me?' Successful translator and linguist Helga Rohra was understandably good with words - that is, until she found herself getting in a muddle when she spoke. She started to forget the way home, even though she could remember her address. Her confusing symptoms increased and Helga was diagnosed with dementia at age 50 - but she hasn't let herself be labelled with the usual stereotypes. With entertaining vim Helga shows that her life is still as abundant and self-determined as ever, dismantling the negative stereotypes that often surround a dementia diagnosis. She speaks frankly and with humour about her diagnosis and life with young onset Lewy Body Dementia. She explains the changes in her everyday life and the challenges she faces, and shares practical tips that prove it is possible to live well with dementia. Helga also talks about her activism work, which has made hers one of the key voices internationally in dementia advocacy.

Download or read book On Vanishing written by Lynn Casteel Harper and published by Catapult. This book was released on 2020-04-14 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.

Download or read book What the hell happened to my brain written by Kate Swaffer and published by Jessica Kingsley Publishers. This book was released on 2016-01-21 with total page 394 pages. Available in PDF, EPUB and Kindle. Book excerpt: Kate Swaffer was just 49 years old when she was diagnosed with a form of younger onset dementia. In this book, she offers an all-too-rare first-hand insight into that experience, sounding a clarion call for change in how we ensure a better quality of life for people with dementia. Kate describes vividly her experiences of living with dementia, exploring the effects of memory difficulties, loss of independence, leaving long-term employment, the impact on her teenage sons, and the enormous impact of the dementia diagnosis on her sense of self. Never shying away from difficult issues, she tackles head-on stigma, inadequacies in care and support, and the media's role in perpetuating myths about dementia, suggesting ways in which we can include and empower people with the diagnosis. She also reflects on the ways in which her writing and dementia advocacy work have taken her on a process of self-discovery and enabled her to develop a new and meaningful personal identity. Kate's powerful words will challenge misconceptions about dementia, and open our eyes to new ways of supporting people with the diagnosis. A must read for people with dementia and their families as well as for professionals and carers.

Download or read book Nothing about Us Without Us written by Christine Bryden and published by . This book was released on 2015-09-21 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: Insightful and inspiring presentations by the foremost dementia advocate, compiled here for the first time, provide new ways of understanding dementia and better ways to ensure that the voices of people with dementia are heard.

Download or read book Alzheimer S Through the Alphabet written by Leslie F. Hergert and published by Archway Publishing. This book was released on 2018-03-22 with total page 112 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a vivid story of life with Alzheimersor at least, one story of one family with an unusual sense of humor. Told in an unconventional style (through the alphabet rather than chronologically), Leslie F. Hergert describes the sadness, humor, and challenges of caring for a partner with Alzheimers Disease through its many stages. Each letter of the alphabet provides reflections on some facet of the Alzheimers experience, told with honesty and a wry eye. Leslie spoke at our conference on Dementia and attendees said that her stories were the most powerful part of a very good conference. Her book extends that speech to provide an inside view of living with Alzheimers, a comfort for others living with the disease and an education for outsiders. Nancy Willbanks, Somerville Cambridge Elder Services Ms. Hergert writes candidly and poignantly about her experience caring for her husband with early onset Alzheimers Disease. She touches upon the major cognitive, psychological, and functional changes that occur over the course of the disease, and she provides practical tips to caregivers on how to manage them. She also writes movingly about the multiple emotions she felt as she accompanied her husband on the journey, reminding all of us that there are moments of joy and laughter even among those of loss and grief. I have no doubt that readers will find her words of wisdom helpful. Serena Chao, MD, MSc; Geriatrics Division Chief, Cambridge Health Alliance; Instructor of Medicine, Harvard Medical School

Download or read book Dear Alzheimer s written by Keith Oliver and published by . This book was released on 2019 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Keith Oliver was diagnosed with young onset dementia in 2010, and has since become a leading activist for dementia care, and an international speaker. Telling his story through a diary format, this book gives an unparalleled insight into what day-to-day life with dementia is like, and how he continued to live a full life after diagnosis.

Download or read book Everyday Citizenship and People with Dementia written by Ann-Charlotte Nedlund and published by Liverpool University Press. This book was released on 2019-11-01 with total page 121 pages. Available in PDF, EPUB and Kindle. Book excerpt: An edited volume discussing the underpinning concepts of citizenship, agency, and participation in the context of the everyday lives of people living with a dementia. The editors explain the theoretical underpinning of citizenship before the contributors show the way it can broaden the everyday lives of people with dementia.

Download or read book Beyond the Great Forgetting written by Patrick Gruener and published by Springer Nature. This book was released on 2022-08-29 with total page 327 pages. Available in PDF, EPUB and Kindle. Book excerpt: Drawing on a selection of carefully curated autobiographical and fictional portrayals of the dementia experience, this book gives voice to some of the most pressing ethical issues that commonly arise in the context of a dementing disorder, and calls attention to various forms of narrative resistance in contemporary American literature on early-onset Alzheimer’s disease (AD). Based on the premise that the current public discourse on AD is largely dominated by an anxiety and fear-promoting conception of the illness, this multilayered inquiry strives to look beyond the widespread horrors of forgetting and loss in AD, and, in doing so, attempts to give a better, more accurate, and more balanced impression of what it means to be living with such a diagnosis.

Download or read book Understanding Young Onset Dementia written by Marjolein de Vugt and published by Routledge. This book was released on 2021-07-22 with total page 127 pages. Available in PDF, EPUB and Kindle. Book excerpt: Understanding Young Onset Dementia provides a state-of-the-art overview of approaches to care and evaluation for people with young onset dementia. It reviews the challenges in providing care and services, outlines new innovations in treatment and explores the impact of the condition to offer guidance about best practice in care. Written by world-leading researchers and experts in the field, this book gives key evidence for best practice and focuses on lived experience of those with young onset dementia. It has a broad focus looking at aspects of care beyond diagnosis and gives a comprehensive summary of the current qualitative and quantitative research in the field of young onset dementia. This international collaboration fills a much-needed gap in the academic market and is vital to guide learning and deliver future innovations. This book will be of great interest for academics, scholars and post graduate students in the field of mental health and dementia research. It will also appeal to neurologists, psychiatrist, geriatricians and psychologists looking to update their knowledge or already working in the field.

Download or read book Talking with Dementia Reconsidered written by Keith Oliver and published by McGraw-Hill Education (UK). This book was released on 2024-05-01 with total page 268 pages. Available in PDF, EPUB and Kindle. Book excerpt: “The voice of lived experience is ever growing and without doubt we should never miss an opportunity like this to listen, capture and learn from it.” Paola Barbarino, CEO, Alzheimer’s Disease International “This latest book will help so many people - those with dementia and their loved ones.” Victoria Derbyshire, British Journalist, Newsreader and Broadcaster “Talking with Dementia Reconsidered is a landmark, which will inspire professionals, researchers and the upcoming cohort of people whose lives are affected by dementia.” Tom Dening, Professor of Dementia Research, School of Medicine, University of Nottingham, UK “I would strongly advise all health and social care professionals to read this and rethink what they “know” about dementia.” Dr Hilda Hayo Chief Admiral Nurse and CEO, Dementia UK This book places people living with a diagnosis of dementia at its core, providing each person with the opportunity to express themselves whilst viewing their lives in relation to the Kitwood flower model. Authored by a person living with dementia, an experienced consultant clinical psychologist and a respected academic, the three combine to amplify and showcase the words of the Fifteen people living with dementia, in an original, authentic and unique way. This book: Gives readers transparent insight into the lives, hopes and fears of a diverse range of people living with various forms of dementia Shows how each petal of the Kitwood flower with love at its centre is a helpful framework for each person to describe their life Links the interviews with issues, frameworks, policy and practice Examines what stakeholders can take from this book to advance dementia care. Talking with Dementia Reconsidered truthfully adds to the growing knowledge base of what life with dementia is really like in an engaging and informative way. It is essential reading for anyone and everyone directly or indirectly affected by dementia through lived experience, studying dementia or working professionally to support those affected. The Reconsidering Dementia Series is an interdisciplinary series published by Open University Press that covers contemporary issues to challenge and engage readers in thinking deeply about the topic. The dementia field has developed rapidly in its scope and practice over the past ten years and books in this series will unpack not only what this means for the student, academic and practitioner, but also for all those affected by dementia. Series Editors: Dr Keith Oliver and Professor Dawn Brooker MBE. Dr Keith Oliver is an Alzheimer's Society Ambassador and Dementia Service User Envoy for Kent and Medway Partnership NHS Trust in the UK. He retired from being a head teacher when diagnosed with Alzheimer’s at age 55. Keith is Series editor for the Reconsidering Dementia Series. Reinhard Guss is Associate Fellow of the British Psychological Society and former Dementia Work Stream Lead for the Faculty of the Psychology of Older People (FPOP). Reinhard is a Consultant Clinical Psychologist and Neuropsychologist working within the National Health Service. Dr Ruth Bartlett is Associate Professor at the University of Southampton, UK, co-director of the University’s Doctoral Training Centre in Dementia Care and Principal Investigator of an interdisciplinary, cross-faculty research project funded by the Alzheimer’s Society.

Download or read book Doing Relationship Centred Dementia Care written by David I. J. Reid and published by Jessica Kingsley Publishers. This book was released on 2021-02-18 with total page 225 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sharing and evaluating a series of relationship-centred approaches to dementia care, this book enables practitioners to have hands-on involvement in improving the quality of this care. Fostering a critical approach to our understanding of how we do relationship-centred dementia care, Reid shows how experiences of living with dementia, family awareness of dementia, professional knowledge of providing dementia care, and the health, social care and housing system are linked, and how good dementia care arises from the relationships between these groups. The book encourages thinking about the stigma attached to dementia, and how a focus on living well with dementia helps shape policies about people with dementia, with their voices included. Practical steps for carrying out relationship-centred dementia care are also explained, with examples of common obstacles and how to overcome them.

Download or read book Dementia Friendly Communities written by Susan McFadden and published by Jessica Kingsley Publishers. This book was released on 2020-11-19 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt: Creating dementia-friendly communities can give people with dementia the chance to continue meaningful lives with reciprocal personal relationships. Underpinning successful dementia-friendly communities is an awareness of people with dementia as active citizens and the importance of supporting engagement in community life. This book offers an overview of the dementia-friendly communities movement, showing the many benefits of this approach. It describes community initiatives from across the globe, such as Dementia Friends, memory cafes, and creative engagement with the arts through organizations like TimeSlips. This compassionate book tells another story about dementia, away from negative stereotypes. This alternative approach claims people can retain a sense of dignity, hold onto hope, sustain meaningful relationships, and live with a sense of purpose with support from their communities.

Download or read book Dementia and Literature written by Tess Maginess and published by Routledge. This book was released on 2017-08-09 with total page 339 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dementia is an urgent global concern, often termed a widespread ‘problem’, ‘tragedy’ or ‘burden’ and a subject best addressed by health and social policy and practice. However, creative writers can offer powerful and imaginative insights into the experience of dementia across cultures and over time. This cross-disciplinary volume explores how engaging with dementia through its myriad literary representations can help to deepen and humanise attitudes to people living with the condition. Offering and interrogating a wide array of perspectives about how dementia might be ‘imagined’, this book allows us to see how different ways of being can inflect one another. By drawing on the ‘lived’ experience of the individual unique person and their loved ones, literature can contribute to a deeper and more compassionate and more liberating attitude to a phenomenon that is both natural and unnatural. Novels, plays and stories reveal a rich panoply of responses ranging from the tragic to the comic, allowing us to understand that people with dementia often offer us models of humour, courage and resilience, and carers can also embody a range of responses from rigidity to compassion. Dementia and Literature problematises the subject of dementia, encouraging us all to question our own hegemonies critically and creatively. Drawing on literary studies, cultural studies, education, clinical psychology, psychiatry, nursing and gerontology, this book is a fascinating contribution to the emerging area of the medical and health humanities. The book will be of interest to those living with dementia and their caregivers as well as to the academic community and policy makers.

Download or read book The Family Experience of Dementia written by Gary Morris and published by Jessica Kingsley Publishers. This book was released on 2020-12-21 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dementia not only affects the person presented with the diagnosis, but their family and friends too. This book provides practitioners with strategies to support the whole family and understand their dementia journey both pre- and post-diagnosis. This is facilitated through a series of activities and reflective prompts. There is also a dedicated chapter offering structured exercises for health and social care practitioners and students. The book introduces the Lawrence family, where Peter has been diagnosed with dementia, and provides perspectives from each family member, allowing practitioners to become acquainted with the lived experience of everyone involved. The reflective questions allow readers to become actively engaged to maximise their knowledge and understanding, and to better contextualize what the dementia experience feels like for family and friends. With its focus on the all-important lived experience of the whole family during the diagnostic process and beyond, this is essential reading for any practitioner working with people with dementia.

Download or read book Music and Dementia written by Amee Baird and published by Oxford University Press. This book was released on 2019-08-21 with total page 352 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dementia is the most significant health issue facing our aging population. With no cure to date, there is an urgent need for the development of interventions that can alleviate symptoms of dementia and ensure optimal well-being for people with dementia and their caregivers. There is accumulating evidence that music is a highly effective, non-pharmacological treatment for various symptoms of dementia at all stages of disease progression. In its various forms, music (as a medium for formal therapy or an informal activity) engages widespread brain regions, and in doing so, can promote numerous benefits, including triggering memories, enhancing relationships, affirming a sense of self, facilitating communication, reducing agitation, and alleviating depression and anxiety. This book outlines the current research and understanding of the use of music for people with dementia, from internationally renowned experts in music therapy, music psychology, and clinical neuropsychology.

Download or read book Dementia and Ethics Reconsidered written by Julian Hughes and published by McGraw-Hill Education (UK). This book was released on 2023-05-30 with total page 312 pages. Available in PDF, EPUB and Kindle. Book excerpt: “In this masterful book, Julian Hughes makes a convincing case that many acts in clinical and care practice are ethical matters. Hughes takes us gently through a jungle of philosophical ideas and explores a series of ethical issues in dementia care, such as diagnosis, covert medication and end of life care. His humanity shines through as he favours a values-based approach to care, and concludes by declaring (in the spirit of Tom Kitwood) that the person must be placed first in order to do what is right and good for people living with dementia. A must-have volume for practitioners, social scientists and enlightened general readers.” Tom Dening, Professor of Dementia Research, School of Medicine, University of Nottingham, UK “This book is totally brilliant. The outstanding author Dr. Julian Hughes must now be considered the foremost ethicist of his generation when it comes to caring for individuals with dementia … This is now the book that everyone who cares about dementia and ethics must read, discuss, and implement. It is a huge contribution.” Stephen G. Post PhD, Director, Center for Medical Humanities, Compassionate Care & Bioethics Stony Brook University School of Medicine, USA “This book should be an essential read for all of us who support and navigate the ethical issues relating to people with dementia and their families.” Paul Edwards, Director of Clinical Services, Dementia UK Ethical issues are involved in every decision that is made in connection with someone living with dementia – from decisions about care and treatment to decisions about research and funding. This book encourages the reader to reconsider ethics in dementia care with the use of ‘patterns of practice’, an innovative idea developed by the author. The book highlights the importance of understanding the person’s narrative, of good communication, high quality care, and expert interpretation of the meaning of situations for people living with dementia. This book: • Reviews ethical theories and approaches in connection with dementia care • Considers issues such as such as stigma, quality of life, personhood, and citizenship in relation to dementia • Looks at issues relevant to research ethics • Presents case vignettes to highlight a complete spectrum of ethical issues that arise in dementia care • Is accessibly written for multiple audiences – from people living with dementia to practitioners Dementia and Ethics Reconsidered is a comprehensive account of thought and practice in relation to ethical issues that arise in the context of dementia care, which seeks to show how ethical thinking can be put into practice and prove relevant to day-to-day experience. The Reconsidering Dementia Series is an interdisciplinary series published by Open University Press that covers contemporary issues to challenge and engage readers in thinking deeply about the topic. The dementia fi eld has developed rapidly in its scope and practice over the past ten years and books in this series will unpack not only what this means for the student, academic and practitioner, but also for all those affected by dementia. Series Editors: Dr Keith Oliver and Professor Dawn Brooker MBE. Julian C. Hughes was a consultant in old age psychiatry. Having trained in both philosophy and medicine, he was appointed honorary professor of philosophy of ageing at Newcastle University, UK and subsequently professor of old age psychiatry at the University of Bristol, UK. He was deputy chair of the Nuffield Council on Bioethics, UK.

Download or read book Critical Dementia Studies written by Richard Ward and published by Taylor & Francis. This book was released on 2023-03-15 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book puts the critical into dementia studies. It makes a timely and novel contribution to the field, offering a thought-provoking critique of current thinking and debate on dementia. Collectively the contributions gathered together in this text make a powerful case for a more politically engaged and critical treatment of dementia and the systems and structures that currently govern and frame it. The book is inter-disciplinary and draws together leading dementia scholars alongside dementia activists from around the world. It frames dementia as first and foremost a political category. The book advances both theoretical and methodological thinking in the field as well as sharing learning from empirical research. Outlining the limits to existing efforts to frame and theorise the condition, it proposes a new critical movement for the field of dementia studies and practice. The book will be of direct interest to researchers and scholars in the field of dementia studies and wider fields of health, disability and care. It will provide a novel resource for students and practitioners in the fields of dementia, health care and social care. The book also has implications for dementia policymaking, commissioning and community development. The Open Access version of this book, available at http://www.taylorfrancis.com, has been made available under a Creative Commons Attribution-Non Commercial-No Derivatives 4.0 license.