Download or read book Cystic Fibrosis written by David M. Orenstein and published by Lippincott Williams & Wilkins. This book was released on 2012-03-28 with total page 788 pages. Available in PDF, EPUB and Kindle. Book excerpt: This one-of-a-kind guide offers easy-to-understand explanations, advice, and management options for patients or parents of patients with cystic fibrosis. The book explains the disease process, outlines the fundamentals of diagnosing and screening, and addresses the challenges of treatment for those living with CF. As one reviewer said, this book “is the only complete answer book for everyone living with the disease. It is an indispensable resource for families of children with CF, adolescent and adult patients, and physicians, nurses, respiratory therapists, and social workers involved in the care of CF patients.”
Download or read book Cystic Fibrosis and You written by Y.G. Korneluk and published by McGill-Queen's Press - MQUP. This book was released on 1996-10-15 with total page 65 pages. Available in PDF, EPUB and Kindle. Book excerpt: CF and You offers sensible advice on dealing with CF clinic staff, coping with school physiotherapy, and discussing CF with friends and family. In response to concerns voiced by adolescents with CF, this revised edition tackles issues such as sexuality and personal relationships unique to people with CF. Also included is a section dealing with the transition to adult CF clinic care. This book is designed primarily for teens. However, families, clinicians and others whose lives are touched by CF will benefit from this combination of medical information and personal guidance. This new edition explains recent developments in the understanding and treatment of CF such as the discovery of the CF gene, CF carrier testing, and new respiratory and digestive therapies. Comprehensive and accessible, the volume also includes an expanded glossary of medical terms.
Download or read book Hodson and Geddes Cystic Fibrosis written by Andrew Bush and published by CRC Press. This book was released on 2015-07-24 with total page 675 pages. Available in PDF, EPUB and Kindle. Book excerpt: Hodson and Geddes' Cystic Fibrosis provides everything the respiratory clinician, pulmonologist or health professional treating patients needs in a single manageable volume. This international and authoritative work brings together current knowledge and has become established in previous editions as a leading reference in the field. This fourth edition includes a wealth of new information, figures, useful videos, and a companion eBook. The basic science that underlies the disease and its progression is outlined in detail and put into a clinical context. Diagnostic and clinical aspects are covered in depth, as well as promising advances such as gene therapies and other novel molecular based treatments. Patient monitoring and the importance of multidisciplinary care are also emphasized. This edition: Features accessible sections reflecting the multidisciplinary nature of the cystic fibrosis care team Contains a chapter written by patients and families about their experiences with the disease Includes expanded coverage of clinical areas, including chapters covering sleep, lung mechanics and the work of breathing, upper airway disease, insulin deficiency and diabetes, bone disease, and sexual and reproductive issues Discusses management both in the hospital and at home Includes a new section on monitoring and discusses the use of databases to improve patient care Covers monitoring in different age groups, exercise testing and the outcomes of clinical trials in these areas Includes chapters devoted to nursing, physiotherapy, psychology, and palliative and spiritual care Throughout, the emphasis is on providing an up-to-date and balanced review of both the clinical and basic science aspects of the subject and reflecting the multidisciplinary nature of the cystic fibrosis care team.
Download or read book A Life Course Perspective on Health Trajectories and Transitions written by Claudine Burton-Jeangros and published by Springer. This book was released on 2015-08-11 with total page 215 pages. Available in PDF, EPUB and Kindle. Book excerpt: This open access book examines health trajectories and health transitions at different stages of the life course, including childhood, adulthood and later life. It provides findings that assess the role of biological and social transitions on health status over time. The essays examine a wide range of health issues, including the consequences of military service on body mass index, childhood obesity and cardiovascular health, socio-economic inequalities in preventive health care use, depression and anxiety during the child rearing period, health trajectories and transitions in people with cystic fibrosis and oral health over the life course. The book addresses theoretical, empirical and methodological issues as well as examines different national contexts, which help to identify factors of vulnerability and potential resources that support resilience available for specific groups and/or populations. Health reflects the ability of individuals to adapt to their social environment. This book analyzes health as a dynamic experience. It examines how different aspects of individual health unfold over time as a result of aging but also in relation to changing socioeconomic conditions. It also offers readers potential insights into public policies that affect the health status of a population.
Download or read book Cystic Fibrosis and You written by Yolanda G. Korneluk and published by McGill-Queen's Press - MQUP. This book was released on 1996-06 with total page 68 pages. Available in PDF, EPUB and Kindle. Book excerpt: Developed with the help of adolescents with cystic fibrosis (CF) and CF health care providers, the second edition of CF and You: A Guide for Adolescents provides valuable medical and practical information about personal concerns of teens with CF.
Download or read book Salt in My Soul written by Mallory Smith and published by Random House. This book was released on 2019-03-12 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.
Download or read book Cystic Fibrosis written by Stephanie Duggins Davis and published by Springer Nature. This book was released on 2020-05-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a comprehensive overview of the multisystem disease, cystic fibrosis, for both pediatric and adult patients. Written by experts in the field, the text outlines the progressive nature of CF as well as the impact of this autosomal recessive disease on the respiratory, gastrointestinal, endocrine, rheumatologic, and renal systems, as well as the patient’s mental health. The book begins with a chapter describing the history of cystic fibrosis and how the face of this life-shortening disease has changed over the past several decades. The following chapters elucidate the pathophysiology of how cystic fibrosis impacts each organ system. Current management and therapeutics are detailed with step-by-step guidelines for clinicians. This book is unique in that it highlights the entire person, not just the respiratory system, with detailed inclusion of the patient perspectives throughout, informing practice standards and considerations. This is an ideal guide for pediatric and adult physicians who care for patients with cystic fibrosis, as well as respiratory therapists, physical therapists, nurses, nutritionists, and pharmacists who care for these patients.
Download or read book CF and You a Guide for Adolescents written by Korneluk, Y. G. (Yolanda Gloria) and published by . This book was released on 1996 with total page 54 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Cystic Fibrosis and You written by Emilie Sasso and published by Publishamerica Incorporated. This book was released on 2008-09-01 with total page 24 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is all about having a positive attitude in life and accomplishing your dreams. My hope in writing this book is to give encouragement to children and teens with cystic fibrosis. My sisters Bonnie and Kate accomplished everything in this book and more with CF. Never let cystic fibrosis hold you back from living life to the fullest.
Download or read book The CF Warrior Project written by Andy C. Lipman and published by Booklogix. This book was released on 2019-05-15 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Andy's book will provide hope for those who so desperately need it. These stories of strength and determination are inspiration to keep fighting in our own lives." --Celine Dion "These are tales of warriors who have beaten the odds by making their dreams come true. These are stories that will give you hope. And by buying this book, you will bring us closer to a cure. That is my dream." --Lewis Black "After spending time with cystic fibrosis warriors throughout the country, I've quickly realized they are the toughest and most resilient people I have ever met. The outlook CF warriors have on life is one that everyone should strive to have." --Colton Underwood "These are the stories of CF warriors who refused to succumb to a distressful prognosis, and instead thrived through the power of belief." --Megan Fox
Download or read book Cystic Fibrosis and You written by Cystic Fibrosis Trust and published by . This book was released on 1996 with total page 12 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Cystic Fibrosis Health Guide written by Anais Sanford and published by Independently Published. This book was released on 2021-08-16 with total page 76 pages. Available in PDF, EPUB and Kindle. Book excerpt: CYSTIC FIBROSIS HEALTH GUIDE: The Comprehensive Guide On Everything You Need To Know About Cystic Fibrosis Symptoms, Causes, Diagnoses, Treatment And Management - Effective Guide for Patients and Families As a genetic disorder, Cystic Fibrosis (CF) impacts the lungs, liver, pancreas, kidneys and intestines. This condition causes frequent lung infections that result in mucus coughing and breathing difficulties. Aside from poor growth, one may experience a sinus infection, clubbing of the toes and fingers, or fatty stool. Most cystic fibrosis cases are caused by mutations of the gene code for the cystic fibrosis transmembrane conductance regulator (CFTR). Cystic fibrosis has been explained in this book in such a way as to provide in-depth knowledge. Throughout this book, we address the most important aspects of this genetic disorder. For those readers who are studying cystic fibrosis, the case studies contained in this book will provide a good foundation for developing a comprehensive understanding. Simply click the "BUY NOW" button to get your copy!
Download or read book Cystic Fibrosis written by David M. Orenstein and published by Lippincott Williams & Wilkins. This book was released on 2004 with total page 504 pages. Available in PDF, EPUB and Kindle. Book excerpt: Explains the how and why behind the disease process, outlines the fundamentals of diagnosis and screening, and addresses the challenges of treatment for those living with CF.
Download or read book Cystic fibrosis handbook written by Cystic Fibrosis Victoria Inc and published by . This book was released on 2008 with total page 142 pages. Available in PDF, EPUB and Kindle. Book excerpt: Explains the genetics of cystic fibrosis, diagnosis, current treatments, new research and psychosocial care of children with cystic fibrosis.
Download or read book Cystic Fibrosis written by Wayne Kepron and published by . This book was released on 2004 with total page 204 pages. Available in PDF, EPUB and Kindle. Book excerpt: Explores the symptoms, diagnosis, and treatment of cystic fibrosis; reviews ongoing research; and discusses how to live with the incurable genetic disease that is often called "65 Roses."
Download or read book Cystic Fibrosis written by David M. Orenstein and published by Lippincott Williams & Wilkins. This book was released on 1997 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Intended for patients and their families, this volume explains the effects of cystic fybrosis on major organ systems, describes the methods of diagnosis and treatment and offers practical suggestions for the patient's adaption to the disease.
Download or read book It s Just Our New Normal written by Grace McKenzie and published by Independently Published. This book was released on 2018 with total page 170 pages. Available in PDF, EPUB and Kindle. Book excerpt: When you were five days old, you had a routine heel prick test and we thought nothing of it. A couple of busy weeks later, I received an unexpected phone call. We were to attend the hospital for further investigations into the heel prick test result. That phone call brought with it some devastating news. You - our precious baby, our baby that we had waited so long for - had cystic fibrosis. Cystic Fibrosis. Daddy and I didn't even know that we were carriers of the faulty gene, in fact we knew very little about the condition at all. Our beautiful, perfect little son! What had we done to you?Reeling from the shock and grief, we struggled at first to accept this new reality. Nothing made sense anymore, everything had changed. With so much to take on board, so much to learn and understand in a short space of time, we felt completely overwhelmed. Until we realised that not everything had changed. In fact, nothing much had changed at all. You were still our wonderful, amazing, funny, charming, loving, smiling, happy, uplifting little boy. Now we just had to learn how to deal with this diagnosis and protect your health as you grew up. This is the story of our journey together as a family so far. Our journey through the grieving process and out the other side to acceptance and the embracing of life itself. Along the way we have learnt so much about cystic fibrosis; we have learnt how it affects those with the condition, their life's challenges and their potential life expectancy. But we have chosen to focus our energies on the positives, and on hope. Hope in the scientists and researchers who are working hard on more targeted treatments for CF. Hope for a cure. Hope for your future.But, above all of that, we focus on you. You are the centre of our universe and in everything we do, we think of you first. Through you, our eyes are now open to the fact that all living things will die. We are mortal. We will die. Every last one of us. And no-one knows when. Of course we already knew that, but now we embrace it and we feel liberated. We are aware. We are no longer sleepwalking through our own lives. It is a good thing; a positive thing. And this is a positive story. Even bad news has a silver lining, and you are our silver lining. We will have a wonderful journey together, whatever it may bring. Life is a game, let's enjoy it!We could never have been prepared for this diagnosis to happen to us, but know this: we love you with all our hearts and we would not change you for the world. Of course, if we could take CF away from you, we would. But we can't. Let's hope and pray that the scientists can. And in the meantime, we will live life to the fullest and take nothing for granted, because life is precious and we have been gifted that fresh awareness through you. You are only two years old, yet you have already taught us so much. You are teaching us fresh approaches to, and perspectives on, life. Take chances! Experience everything! Don't be so serious - laugh and laugh hard. It's Just Our New Normal is the story of how we are blossoming as a family; taking the best care of you that we can and then putting cystic fibrosis to the back of our minds so that we can enjoy our day together. I hope that anyone facing a similar diagnosis may find some comfort in my words. We don't know what the future holds, but we have today. And today is good. All proceeds from the sale of this book will be donated to the Cystic Fibrosis Trust and The Butterfly Trust.
