Download or read book Case Studies in Palliative and End of Life Care written by Margaret L. Campbell and published by John Wiley & Sons. This book was released on 2012-08-02 with total page 328 pages. Available in PDF, EPUB and Kindle. Book excerpt: Case Studies in Palliative and End-of-Life Care uses a case-based approach to provide students and practitioners with an important learning tool to improve critical thinking skills and encourage discussion toward improving experiences for patients and their families. The book is organized into three sections covering subjects related to communication, symptom management, and family care. Each case is presented in a consistent, logical format for ease of use, highlighting key evidence-based concepts including the case history, care setting, diagnosis and prognosis, assessment, treatment considerations, and family support. A key reference, Case Studies in Palliative and End-of-Life Care is an invaluable resource for clinicians who provide palliative care to patients with life-limiting illnesses and those at the end of life along with their families.
Download or read book Communication in Palliative Care written by Janet Dunphy and published by CRC Press. This book was released on 2020-03-26 with total page 162 pages. Available in PDF, EPUB and Kindle. Book excerpt: Janet's skill in this book lies in her ability to combine theory with narrative and natural science with humanity to create a text that resonates deeply.bringing to light the message that intellectual knowledge is nothing if not accompanied by sensitive delivery and humanity. Mary Kiely in the Foreword This practical thought-provoking guide provides the unemotional clear and accurate advice necessary for communicating with patients in a palliative care setting. Completely up to date this book includes new initiatives born of the End of Life Care Strategy (2008) and details the ethics of key issues in palliative care. Crucially it considers the fine art of communication - the pivotal aspect of being a palliative care expert that is so difficult to quantify and teach. It uses genuine anecdotes and case studies to bring theory to life and assist in everyday application. Communication in Palliative Care is a wide-ranging invaluable resource for palliative care professionals across all clinical settings.
Download or read book Case Studies in Neuropalliative Care written by Maisha T. Robinson and published by . This book was released on 2018-06-28 with total page 187 pages. Available in PDF, EPUB and Kindle. Book excerpt: This guide delivers problem-based scenarios in neuropalliative care; improving quality of life for patients with neurologic diseases.
Download or read book Compassionate Communities written by Klaus Wegleitner and published by Routledge. This book was released on 2015-06-26 with total page 257 pages. Available in PDF, EPUB and Kindle. Book excerpt: Compassionate communities are communities that provide assistance for those in need of end of life care, separate from any official heath service provision that may already be available within the community. This idea was developed in 2005 in Allan Kellehear’s seminal volume- Compassionate Cities: Public Health and End of Life Care. In the ensuing ten years the theoretical aspects of the idea have been continually explored, primarily rehearsing academic concerns rather than practical ones. Compassionate Communities: Case Studies from Britain and Europe provides the first major volume describing and examining compassionate community experiments in end of life care from a highly practical perspective. Focusing on community development initiatives and practice challenges, the book offers practitioners and policy makers from the health and social care sectors practical discussions on the strengths and limitations of such initiatives. Furthermore, not limited to providing practice choices the book also offers an important and timely impetus for other practitioners and policy makers to begin thinking about developing their own possible compassionate communities. An essential read for academic, practitioner, and policy audiences in the fields of public health, community development, health social sciences, aged care, bereavement care, and hospice & palliative care, Compassionate Communities is one of only a handful of available books on end of life care that takes a strong health promotion and community development approach.
Download or read book Neuropalliative Care written by Claire J. Creutzfeldt and published by Springer. This book was released on 2018-10-01 with total page 310 pages. Available in PDF, EPUB and Kindle. Book excerpt: This comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas.
Download or read book Research methods in palliative care written by Julia M Addington-Hall and published by OUP Oxford. This book was released on 2007-06-07 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: Palliative and end of life care are concerned with the physical, social, psychological and spiritual care of people with advanced disease. It currently has a poorly developed research base, but the need to improve this is increasingly recognised. One of the reasons for the lack of research - and the variable quality of the research that is undertaken - is the difficulty of conducting research with very ill and bereaved people. Standard and well-established research methods may need to be adapted to work in this context. This means that existing research methods textbooks may be of limited use to palliative care practitioners seeking to do research for the first time, or to more experienced researchers wanting to apply their knowledge in palliative care settings. This research methods textbook is the first to be written specifically for palliative care. It has been edited by four experienced palliative care academics with acknowledged expertise and international reputations in this field. It encompasses methods used in both clinical and health services research in palliative care, with sections on clinical, epidemiological, survey and qualitative research, as well as a section covering skills needed in any research project. Each chapter provides readers with an up to date overview of the research method in question, an understanding of its applicability to palliative care and of the particular challenges of using it in this setting. It is essential reading for all palliative care researchers.
Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 470 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
Download or read book End of life Care written by Kim K. Kuebler and published by Saunders. This book was released on 2002 with total page 516 pages. Available in PDF, EPUB and Kindle. Book excerpt: Nurses often develop long-term relationships with the patients and families for whom they care; providing quality care until the end of life is absolutely fundamental to nursing. This important book provides the guidelines and tools necessary to provide this care. -- Publisher description.
Download or read book Handbook of Nutrition and Diet in Palliative Care Second Edition written by Victor R. Preedy and published by CRC Press. This book was released on 2019-07-01 with total page 501 pages. Available in PDF, EPUB and Kindle. Book excerpt: Handbook of Nutrition and Diet in Palliative Care, Second Edition, is a comprehensive guide, providing exhaustive information on nutrition and diet in terminal and palliative care. It covers physical, cultural and ethical aspects, bridging the intellectual divide in being suitable for novices and experts alike. Following in the tradition of its predecessor, chapters contain practical methods, techniques, and guidelines along with a section on applications to other areas of palliative care. Each chapter features key facts highlighting important areas, summary points, and ethical issues. FEATURES • Use of cannabinoids in palliative nutrition care • Pain control in palliative care • Communications in palliative/end-of-life care: aspects of bad news • Anorexia in cancer: appetite, physiology, and beyond • Palliative care in severe and enduring eating disorders • Linking food supplementation and palliative care in HIV • Eating-related distress in terminally ill cancer patients and their family members • Palliative care of gastroparesis • Preoperative nutrition assessment and optimization in the cancer patient • Childhood leukemia, malnutrition, and mortality as components of palliative care • End-of-life decisions in persons with neurodevelopmental disorders • Resources: listing web sites, journals, books and organizations
Download or read book Palliative and End of Life Care in Nursing written by Jane Nicol and published by Learning Matters. This book was released on 2017-06-05 with total page 345 pages. Available in PDF, EPUB and Kindle. Book excerpt: With the number of people requiring palliative and end of life care steadily increasing, it is the responsibility of every nurse, regardless of specialism, to know how to provide high quality care to this group of people. Yet caring for those nearing the end of life can throw up complex issues, including handling bereavement, cultural and ethical issues, delivering care in a wide variety of settings, symptom management and also ensuring your own emotional resilience. This book is specifically designed to equip nursing students and non-specialists with the essential knowledge in relation to the care and management of people nearing the end of life.
Download or read book When Children Die written by Institute of Medicine and published by National Academies Press. This book was released on 2003-02-09 with total page 713 pages. Available in PDF, EPUB and Kindle. Book excerpt: The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.
Download or read book Religious Understandings of a Good Death in Hospice Palliative Care written by Harold Coward and published by State University of New York Press. This book was released on 2012-06-13 with total page 354 pages. Available in PDF, EPUB and Kindle. Book excerpt: Winner of the 2012 AJN (American Journal of Nursing) Book of the Year Award in the Hospice and Palliative Care category In the 1960s, English physician and committed Christian Cicely Saunders introduced a new way of treating the terminally ill that she called "hospice care." Emphasizing a holistic and compassionate approach, her model led to the rapid growth of a worldwide hospice movement. Aspects of the early hospice model that stressed attention to the religious dimensions of death and dying, while still recognized and practiced, have developed outside the purview of academic inquiry and consideration. Meanwhile, global migration and multicultural diversification in the West have dramatically altered the profile of contemporary hospice care. In response to these developments, this volume is the first to critically explore how religious understandings of death are manifested and experienced in palliative care settings. Contributors discuss how a "good death" is conceived within the major religious traditions of Christianity, Islam, Hinduism, Judaism, Buddhism, Chinese religion, and Aboriginal spirituality. A variety of real-world examples are presented in case studies of a Buddhist hospice center in Thailand, Ugandan approaches to dying with HIV/AIDS, Punjabi extended-family hospice care, and pediatric palliative care. The work sheds new light on the significance of religious belief and practice at the end of life, at the many forms religious understanding can take, and at the spiritual pain that so often accompanies the physical pain of the dying person.
Download or read book Textbook of Palliative Care written by Roderick Duncan MacLeod and published by Springer. This book was released on 2025-05-29 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This second edition provides the most up-to-date information on all aspects of palliative care including recent developments (including COVID-19), global policies, service provision, symptom management, professional aspects, organization of services, palliative care for specific populations, palliative care emergencies, ethical issues in palliative care, research in palliative care, public health approaches and financial aspects of care. This new Textbook of Palliative Care remains a unique, comprehensive, clinically relevant and state-of-the art book, aimed at advancing palliative care as a science, a clinical practice and as an art. Palliative care has been part of healthcare for over fifty years but we still needs to be explained. Healthcare education and training has been slow to recognize the vital importance of ensuring that all practitioners have a good understanding of what is involved in the care of people with serious or advanced illnesses and theirfamilies. However, the science of palliative care is advancing and this new edition will contribute to a better understanding of this specialty. This new edition offers 20 new chapters out of over 120, written by experts in their given fields provide up-to-date information on a wide range of topics of relevance to those providing care towards the end of life no matter what the disease may be. We present a global perspective on contemporary and classic issues in palliative care with authors from a wide range of disciplines involved in this essential aspect of care. The Textbook includes sections addressing aspects such as symptom management and care provision, organization of care in different settings, care in specific disease groups, palliative care emergencies, ethics, public health approaches and research in palliative care. This new Textbook will be of value to practitioners in all disciplines and professions where the care of people approaching death is important, specialists as well as non-specialists, in any setting where people with serious advanced illnesses are residing. It is also an important resource for researchers, policy-and decision-makers at national or regional levels. Neither the science nor the art of palliative care will stand still so the Editors and contributors from all over the world aim to keep this Textbook updated so that the reader can find new evidence and approaches to care.
Download or read book Values at the End of Life written by Roi Livne and published by Harvard University Press. This book was released on 2019-06-10 with total page 361 pages. Available in PDF, EPUB and Kindle. Book excerpt: This insightful study examines the deeply personal and heart-wrenching tensions among financial considerations, emotional attachments, and moral arguments that motivate end-of-life decisions. America’s health care system was built on the principle that life should be prolonged whenever possible, regardless of the costs. This commitment has often meant that patients spend their last days suffering from heroic interventions that extend their life by only weeks or months. Increasingly, this approach to end-of-life care is coming under scrutiny, from a moral as well as a financial perspective. Sociologist Roi Livne documents the rise and effectiveness of hospice and palliative care, and growing acceptance of the idea that a life consumed by suffering may not be worth living. Values at the End of Life combines an in-depth historical analysis with an extensive study conducted in three hospitals, where Livne observed terminally ill patients, their families, and caregivers negotiating treatment. Livne describes the ambivalent, conflicted moments when people articulate and act on their moral intuitions about dying. Interviews with medical staff allowed him to isolate the strategies clinicians use to help families understand their options. As Livne discovered, clinicians are advancing the idea that invasive, expensive hospital procedures often compound a patient’s suffering. Affluent, educated families were more readily persuaded by this moral calculus than those of less means. Once defiant of death—or even in denial—many American families and professionals in the health care system are beginning to embrace the notion that less treatment in the end may be better treatment.
Download or read book Community Palliative Care and COVID 19 written by Tania Blackmore and published by Class Professional Publishing. This book was released on 2020-11-18 with total page 88 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook is an essential guide to caring for the community palliative care patient in relation to COVID-19, when the patient’s preferred place of care is at home or the hospice. It will guide you through appropriate care procedures and protocols in managing end-of-life patients who show symptoms of COVID-19. Key features include: Difficult conversations and communication skills Symptom management Advance care planning Caring for stable patients with palliative needs and those who are at end-of-life Supporting the family and friends of the patient Your own well-being as a healthcare professional Supported by applicable case studies from a range of community care settings, this guide will be relevant to anyone affected by the challenges of COVID-19 when managing end-of-life patients or caring for older people, including paramedics, nurses and palliative care providers.
Download or read book Geriatric Emergency Medicine written by Joseph H. Kahn and published by Cambridge University Press. This book was released on 2014-01-16 with total page 383 pages. Available in PDF, EPUB and Kindle. Book excerpt: This comprehensive volume provides a practical framework for evaluation, management and disposition of this growing vulnerable patient population.
Download or read book Improving Palliative Care for Cancer written by National Research Council and published by National Academies Press. This book was released on 2001-10-19 with total page 344 pages. Available in PDF, EPUB and Kindle. Book excerpt: In our society's aggressive pursuit of cures for cancer, we have neglected symptom control and comfort care. Less than one percent of the National Cancer Institute's budget is spent on any aspect of palliative care research or education, despite the half million people who die of cancer each year and the larger number living with cancer and its symptoms. Improving Palliative Care for Cancer examines the barriersâ€"scientific, policy, and socialâ€"that keep those in need from getting good palliative care. It goes on to recommend public- and private-sector actions that would lead to the development of more effective palliative interventions; better information about currently used interventions; and greater knowledge about, and access to, palliative care for all those with cancer who would benefit from it.
