Download or read book An Examination of Factors Influencing Equitable Access to Dementia Care and Support Programs Among Migrants and Refugees Living with Dementia written by Winnie Sun and published by . This book was released on 2018 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Canada is working on improving the diagnosis and treatment of Canadians with cognitive impairment and promoting living well with dementia. Despite the availability of support network, Canadians living with dementia are identified to commonly experience social isolation and exclusion. This issue is particularly significant among migrants and refugees, for whom access to dementia care and support programs are found to be significantly less than the non-migrated Canadians. The purpose of this critical analysis is to examine the existing literature related to the sociocultural factors that contribute to the access of dementia care and support programs by persons with dementia. Specifically, a literature review was conducted to examine the barriers and facilitating factors that influence equitable access to dementia care and support programs among migrants and refugees. A thematic analysis was conducted to identify the following four major themes: (1) stigma, (2) culturally preferred coping strategies, (3) misconceptions regarding aging and dementia, and (4) language barriers.. This review identifies the need for future research to explore the key barriers faced by migrants and refugees with dementia in accessing timely and appropriate dementia care and support programs, as well as developing equitable programs and culturally sensitive services that adequately address their needs.

Download or read book Redirecting Alzheimer Strategy written by Denis Larrivee and published by BoD – Books on Demand. This book was released on 2019-09-25 with total page 136 pages. Available in PDF, EPUB and Kindle. Book excerpt: It is fair to say that no brain disease occupies more research study today than Alzheimer's disease (AD). Among the many excellent reasons for this circumstance are the bleak prognosis and relentless progression; large cohorts of baby boomers entering an age of greatly increased cognitive risk; and spectacular advances in medical care that have prolonged lifespan. Often unattributed is the success of the research enterprise that has instilled confidence in AD's ultimate defeat. Yet, despite decades of intense research, AD remains poorly understood, an enigma amid a tide of neuroscientific advance. What these inconclusive results apparently call into question is an understanding of cognition that views it from the bottom up - the study of which is eminently suited by the scientific method - and that dispenses with a philosophy of biology concerned with how organismal properties operate, for which cognition is the medium. Culled from AD's new and old research archives, the chapters in this text accordingly lay out an argument for strategically new pathways that wander through cognition's global terrain and that may ultimately offer surer ground for AD treatment.

Download or read book Neurology in Migrants and Refugees written by Mustapha El Alaoui-Faris and published by Springer Nature. This book was released on 2021-10-22 with total page 350 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is the result of reflections and work of the Specialty group on neurology in migrants of the World Federation of Neurology. The volume provides a synthesis of migrants’ health in relation to the sustainable development goals and the 2030 agenda, and an up-to-date overview on neurological diseases among migrants, refugees and ethnic minorities. The book is composed of both general chapters dealing with the history of migration, the relationship between climate change and migration flows, the migration and neurosciences research and the barriers to migrant’s health. Other chapters deal with the migrants' particularities of the common neurological diseases such as cerebrovascular diseases, epilepsy, dementia, movement disorders, multiple sclerosis, headache, functional and mental disorders. In addition, also neurological manifestation of COVID-19 in ethnic minorities and palliative care in migrants are discussed. Neurology in Migrants and Refugees will be useful to neurologists worldwide who can find appropriate knowledge for diagnosis and treatment when facing migrants with neurological disorders which are sometimes difficult to assess in the absence of clinical experience with the migrant population. It will also be very useful for international organizations, policymakers and non-governmental organizations working in the field of health and migration. This book will certainly find an indispensable place in neurological departments libraries and will constitute a basic textbook for teaching neurology taking into account ethnicity, culture and health inequalities in the care of neurological disorders.

Download or read book Community Perceptions on Access to and Communication Gaps Regarding Dementia specific Health Resources and Services written by Randi G. Bastian and published by . This book was released on 2019 with total page 121 pages. Available in PDF, EPUB and Kindle. Book excerpt: Author's abstract: The people of Appalachia have less access to healthcare resources subsequently leading to deficits in healthcare, health education, and health research. There is a need to address the communication of healthcare resources among populations with low economic status such as the Appalachian communities in Northeast Tennessee. Alzheimer’s disease and related dementias (ADRD) uniquely challenges the healthcare industry while further dividing communities already experiencing hardship in healthcare resources. The Baby Boomer generation is advancing into the age range frequently affected by ADRD, 65 and over. In preparation, healthcare continuum must acknowledge and set out to address dementia-specific care challenges. “Keep something in the shadows, and people are not gonna even realize it is a problem.” This study uniquely supplements current research by exploring how communication influences acceptability, accessibility, affordability, availability (the 4A's) of dementia-specific health resources and services in Northeast Tennessee. The study is a qualitative study utilizing classic grounded theory (CGT). Together with cataloging the number and types of dementia-specific health resources and services existing in Northeast Tennessee, sixteen one-on-one interviews with organization leaders, caregivers, and healthcare providers took place between May 2018 and September 2018. The study revealed that the number of organizations offering dementia-specific resources and services in Northeast Tennessee is abundant. Nevertheless, they remain unaccepted by some and unknown by many because PLWD and their caregivers experience multifaceted barriers, which constrains access to resources and services. Individual-level influences such as denial, control, and perceived stigma encumber on the likelihood of willingness to seek dementia-related assistance. Providers’ and organizations’ readiness to be the patient advocates enhances care delivery. Positive influencing factors and readiness among dementia care organizations and providers serve as the link for patients and their loved ones to the starting point of dementia care navigation, which is the secured point in time when a patient begins seeking resources and services and is guided by a knowledgeable professional to find the best available options to suit his or her individual needs. According to the findings from the study, refining access and improving communication requires awareness, knowing where to start, and working within and across disciplines and stakeholders. Accordingly, a two-pronged approach for addressing the communication gaps from both ends – provider and consumer – is needed. The suggested means of action to address these gaps include a peer health communication intervention, and implementation of a patient navigation care coordination model designed explicitly for ADRD. Further, community organizations offering dementia-specific health resources and services must continue to market themselves to expand their visibility and to increase provider, patient and caregiver awareness about their services while strengthening their relationships with healthcare providers and other clinicians.

Download or read book Meeting the Challenge of Caring for Persons Living with Dementia and Their Care Partners and Caregivers written by National Academies of Sciences Engineering and Medicine and published by . This book was released on 2021-11-23 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Improving Dementia Long Term Care written by Regina A. Shih and published by Rand Corporation. This book was released on 2014-06-23 with total page 65 pages. Available in PDF, EPUB and Kindle. Book excerpt: In 2010, 15 percent of Americans older than age 70 had dementia. By 2050, the number of new dementia cases among those 65 and older is expected to double. This blueprint outlines policy options to help decisionmakers improve dementia long-term services and supports (LTSS) by promoting earlier detection, improving access to LTSS, promoting person- and caregiver-centered care, supporting caregivers, and reducing dementia LTSS costs.

Download or read book Dementia and Social Inclusion written by Anthea Innes and published by Jessica Kingsley Publishers. This book was released on 2004-08-05 with total page 290 pages. Available in PDF, EPUB and Kindle. Book excerpt: There has been a considerable and welcome growth of publications about dementia care and Jessica Kingsley Publishers has certainly played a very useful part in this growth... we need more not less of this quality of work and writing if society is to include those with dementia as full citizens.' - Christian Council on Ageing 'The editors are to be congratulated on assembling a collection of contributions which make this book a milestone in the literature on dementia research and practice... [They] have collected papers on extraordinarily diverse issues and from a very diverse set of authors. Each of the chapters can be seen as an invaluable introduction to the topic area as well as addressing the main theme of the book. It is a milestone book because it manages to provide a snapshot of dementia studies at this moment in time and will, in my view, be widely quoted by policy makers, practice developers, researchers and trainers for the next few years... In such a treasure trove of approaches and issues it is hard to pick out the most striking... I would recommend this book: all readers of the journal will find chapters that they can use to improve dementia care.' - Journal of Dementia Care 'What makes this particularly notable is that Innes, Archibald and Murphy have harnessed such individual voices to address so cogently. Together they address the core issues, all too often neglected or marginalized, in dementia research and care. Sexuality, communication, risk taking, ethnicity, incontinence and practices within remote rural communities are all subjects that draw threads from the very fabric of our society, and it is indicative of how wide the spectrum has broadened that these historically dispirit strands can be tackled constructively.' - Signpost 'A diverse range of subjects are covered in a series of papers written by numerous professionals of standing from various disciplines... The subjects covered include ethnicity, spirituality, sexuality, dying with dementia (palliative care), faecal incontinence and risk-taking. There is a section addressing aspects of communicating with people with dementia and another covering the medical aspects of dementia that have not had much focus in recent years, such as hypertension and diabetes. Finally, there is a social science perspective, including discussing ways that people with dementia can be involved in the research process. I found the book easy to read and it is well written and clearly presented. Covering marginalized areas of practice, it offers food for thought for the reader and is a welcome addition to current literature'. - British Journal of Occupational Therapy 'This book provides invaluable research results and innovative thinking which professionals studying gerontology and dementia care will find very useful throughout their careers.' - London Centre for Dementia Care Newsletter 'The contributors to this volume examine the barriers to the consideration of social inclusion in the field of dementia studies and argue for the necessity of acknowledging the personhood of all individuals with dementia. The papers discuss the sexuality of people with dementia, communication and risk taking, and dementia care in remote rural communities, among other topics. The volume ends with suggestions for more inclusive values, service development, theory and research'. - Book News 'The book, commendably, tries to look at marginalized issues within dementia, such as death and dying, sexuality and faecal incontinence.' - Mental Health Today 'This is a book for the connoisseur. I wish I had contributed a paper. I wish I had read it even earlier. It will be appreciated by many people, from many backgrounds. This is the study of dementia and dementia-care grown to a new maturity. Chapters are original research papers, communicating new findings and analyses, set in the context of previous knowledge, well reviewed... Thanks to the editors and authors for this little gift. Let's be sure it is read widely.' - David Jolley, director of Dementiaplus Examining important issues in dementia research and care that are often neglected or marginalized, the contributors to this book provide fresh perspectives on current practice. The authors put dementia care into a socio-cultural framework, highlighting the impact of social change on dementia care over the last two decades and challenging current stereotypes. The contributors address the implications of power relationships between carers and people with dementia and discuss a broad spectrum of issues, including: * the sexuality of people with dementia * communication and risk taking * people with dementia from minority ethnic groups * faecal incontinence * dementia care and practice in remote rural communities. Taking an in-depth look at dementia research and service development, this book makes essential reading for practitioners, researchers and students working in the field of dementia care.

Download or read book OECD Health Policy Studies Care Needed Improving the Lives of People with Dementia written by OECD and published by OECD Publishing. This book was released on 2018-06-12 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: This report presents newly collected data on the quality of dementia care in OECD countries. By providing the most up-to-date and comprehensive cross-country assessment of dementia care, it can help countries to improve their care systems today, and better prepare for the challenges of tomorrow.

Download or read book Ethnicity and the Dementias written by Gwen Yeo and published by . This book was released on 2018-09-03 with total page 414 pages. Available in PDF, EPUB and Kindle. Book excerpt: In recent years, the literature on the topic of ethnic and racial issues in Alzheimer's disease and other dementias has increased dramatically. At the same time, the need for cultural competence in all of geriatric care, including dementia care, is increasingly being acknowledged. Dementia is a large societal problem affecting all communities, regardless of race or ethnicity, and understanding dementia for specific groups is tremendously important for both clinical knowledge and for health planning as a nation. This third edition of Ethnicity and the Dementias offers invaluable background information in this area, while also examining how those suffering from dementia and their family members respond or adapt to the challenges that follow. Thoroughly updated and revised throughout, the book features contributions from leading clinicians and researchers in the field, with particular attention given to genetic and cultural factors related to dementia, effective prevention and treatment strategies, and issues in caregiving and family support. Chapters offer specific recommendations for dementia care in eleven ethnic/racial groups, as well as suggestions for working effectively with LGBTQ families. Providing a truly comprehensive resource on ethnicity and dementia, and including reflections on emerging trends and the future of caregiving, this new edition is ideal reading for clinicians, educators, researchers, policy makers, and families, in search of the most current ethnogeriatric findings.

Download or read book Oxford Textbook of Social Psychiatry written by Dinesh Bhugra and published by Oxford University Press. This book was released on 2022-07-21 with total page 833 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Oxford Textbook of Social Psychiatry serves as a comprehensive reference to the historical, theoretical, and practical aspects of social psychiatry, and its role in the management of psychiatric disorders. Written and edited by leading experts and rising stars in the field of social psychiatry, this textbook provides an authoritative and global look at social psychiatry, covering a wealth of topics and up-to-date research in 79 chapters. Divided into eight sections, this resource covers an overview of the history and development of social psychiatry, as well as the social world of families, culture, and identity, focusing on key issues such as globalisation, pandemics, trauma, spirituality, and gender. Clinical conditions and special vulnerable groups are also explored, with topics such as the mental health of prisoners, somatisation, and eating disorders. Case studies of specific geographical locations provide a critical overview of global mental health today and the challenges faced in different setting, such as low- and middle-income countries.

Download or read book Care Needed written by OECD and published by Org. for Economic Cooperation & Development. This book was released on 2018 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Across the OECD, nearly 19 million people are living with dementia. Millions of family members and friends provide care and support to loved ones with dementia throughout their lives. Globally, dementia costs over USD 1 trillion per year and represents one of the leading causes of disability for elderly adults. These numbers will continue to rise as populations age. Until a cure or disease-modifying treatment for dementia is developed, the progress of the disease cannot be stopped. This report presents the most up-to-date and comprehensive cross-country assessment of the state of dementia care in OECD countries. In recent years, OECD countries have enhanced their efforts to provide high-quality dementia care during diagnosis, early and advanced dementia, but improving measurement is necessary for enhancements in care quality and outcomes for people with dementia. The report advises a set of policies that can help countries to improve diagnosis, strengthen access to care services, improve the quality of care, and support the families and carers of people living with dementia. Measuring and comparing the services that are delivered to people with dementia and the outcomes they achieve is a crucial part of improving dementia care. Most health systems have very poor data on dementia care and countries should work to strengthen the measurement of quality and outcomes of dementia care.

Download or read book A Critical Examination of Access to Young Onset Dementia Diagnostic and Support Services written by Sheila Novek and published by . This book was released on 2021 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: People living with young onset dementia and their families have high needs for support, but experience difficulties accessing services. This dissertation critically examines access to diagnostic and support services for people with young onset dementia drawing on in-depth interviews with those living with the condition, family members and providers. In addition, this research aims to advance understanding of inclusive approaches to dementia research through a review of the literature on safe research practices and reflections on the research process. To develop a framework for including participants with young onset dementia, the first study in this dissertation critically reviewed approaches to promote the participation of people with dementia in qualitative research. This review identified a range of issues that impact safety such as: language, gatekeepers, the research relationship, communication, dealing with distress, knowledge dissemination, and researcher skills. In addition to contributing to the literature on inclusive methods, findings from this review informed the design of the ensuing qualitative study involving participants with young onset dementia. Next, I conducted an empirical, qualitative inquiry into access to diagnostic and support services for people with young onset dementia in Winnipeg, Manitoba. In-depth, semi-structured interviews were conducted with six people living with young onset dementia, 14 family members and 16 health and service providers. Findings were analyzed using inductive thematic analysis and using the candidacy framework as a conceptual lens. Participants' accounts revealed complex barriers that constrained access to services and generated ongoing challenges for families. Age restrictions and eligibility criteria geared towards older adults systematically excluded younger individuals with dementia, creating barriers to care. Developing dementia at an early age also affected how participants identified with services and how they, in turn, were perceived by providers. Access was further constrained by contextual factors such as fragmentation, resource limitations and the underrepresentation of young onset and rare dementias. Together, these findings highlight the need for coordinated, family-centred services alongside the broader representation of young onset and rare dementias in research, policy and practice.

Download or read book Factors that Influence Quality of Life from the Perspective of People with Dementia written by Hannah Marie O'Rourke and published by . This book was released on 2014 with total page 217 pages. Available in PDF, EPUB and Kindle. Book excerpt: Background: The prevalence of dementia, a progressive and incurable condition that affects memory and daily function, is increasing worldwide. The perspective of people with dementia can be captured to better understand which factors impact quality of life for this particular population. Such factors can then be used to guide future research to improve quality of life for people with dementia, even as troubling symptoms like memory loss progress. Purpose: The purpose of this dissertation is to identify factors that influence quality of life from the perspective of people with dementia. Methods: The dissertation consists of four related and sequential papers: (1) a conceptual paper to assess the extent to which the perspective of people with dementia has been included to assess and conceptualize quality of life in the quantitative dementia-specific literature, (2) a systematic literature review and metasynthesis of qualitative evidence to identify factors that influence quality of life according to people with dementia, (3) a methods paper describing how metasyntheses findings were applied to design a quantitative study, and (4) a cross-sectional, quantitative, correlational study to test the association between perceived conflict and sadness (a proposed influencing factor and outcome of poor quality of life, respectively). Findings and Conclusions: Two important limitations of previous research to understand quality of life from the perspective of people with dementia were identified. First, existing quantitative literature was inconsistent with a subjective definition of quality of life because researchers neglected to conceptualize quality of life from the perspective of people with dementia. Second, the body of existing qualitative research had not been considered collectively, nor had it informed quantitative research. In this dissertation, these limitations were addressed by applying knowledge from the body of qualitative research as a whole to design a quantitative study that was consistent with a subjective definition of quality of life. The findings demonstrated that people with dementia could contribute meaningfully to advance knowledge about factors that impact quality of life in this population. The four factors that influenced quality of life from the perspective of people with dementia included Relationships, Sense of Place, Wellness Perspective, and Agency in Life Today. Further exploration of the Relationships factor generated evidence in support of the proposed association between conflict and sadness, and highlighted that conflict with family and friends may have a particularly negative impact on people with moderate and severe dementia living in long-term care. The factors identified in this dissertation were each complex, but potentially modifiable and useful to generate further research questions and hypotheses that reflect the priorities of people with dementia. Given these four factors, the roles and responsibilities of health care providers may need to be re-considered in order to optimize quality of life for people with dementia.

Download or read book Dementia Care written by Lois B. Taft and published by . This book was released on 1994 with total page 324 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Refugee Entrepreneurship written by Sibylle Heilbrunn and published by Springer. This book was released on 2018-09-12 with total page 291 pages. Available in PDF, EPUB and Kindle. Book excerpt: Through a global series of case studies, this pioneering book delves into refugee entrepreneurship - a major economic, political and social issue emerging as a top priority. Stories from Australia, Germany, Pakistan and many other countries, highlight the obstacles facing refugees as they try to integrate and set up businesses in their new countries. Engaging contributions set the stage for a cross-analysis of the particularities and limitations faced by refugee entrepreneurs, culminating in an extended discussion about the future implications of refugee entrepreneurship for theory, policy and practice. This interdisciplinary book explores the motivations and drivers of refugee entrepreneurship, making it an insightful read not only for those engaged in entrepreneurship, but also for those interested in migration studies from a variety of academic disciplines.

Download or read book Dementia Culture and Ethnicity written by Julia Botsford and published by Jessica Kingsley Publishers. This book was released on 2015-04-21 with total page 330 pages. Available in PDF, EPUB and Kindle. Book excerpt: With contributions from experienced dementia practitioners and care researchers, this book examines the impact of culture and ethnicity on the experience of dementia and on the provision of support and services, both in general terms and in relation to specific minority ethnic communities. Drawing together evidence-based research and expert practitioners' experiences, this book highlights the ways that dementia care services will need to develop in order to ensure that provision is culturally appropriate for an increasingly diverse older population. The book examines cultural issues in terms of assessment and engagement with people with dementia, challenges for care homes, and issues for supporting families from diverse ethnic backgrounds in relation to planning end of life care and bereavement. First-hand accounts of living with dementia from a range of cultural and ethnic backgrounds give unique perspectives into different attitudes to dementia and dementia care. The contributors also examine recent policy and strategy on dementia care and the implications for working with culture and ethnicity. This comprehensive and timely book is essential reading for dementia care practitioners, researchers and policy makers.

Download or read book Equity Social Determinants and Public Health Programmes written by World Health Organization and published by World Health Organization. This book was released on 2010 with total page 302 pages. Available in PDF, EPUB and Kindle. Book excerpt: 1. Introduction and methods of work.-- 2. Alcohol: equity and social determinants.-- 3. Cardiovascular disease: equity and social determinants.-- 4. Health and nutrition of children: equity and social determinants.-- 5. Diabetes: equity and social determinants.-- 6. Food safety: equity and social determinants.-- 7. Mental disorders: equity and social determinants.-- 8. Neglected tropical diseases: equity and social determinants.-- 9. Oral health: equity and social determinants.-- 10. Unintended pregnancy and pregnancy outcome: equity and social determinants.-- 11. Tobacco use: equity and social determinants.-- 12. Tuberculosis: the role of risk factors and social determinants.-- 13. Violence and unintentional injury: equity and social determinants.-- 14. Synergy for equity.