Download or read book My Two Elaines written by Martin J Schreiber and published by Harper Horizon. This book was released on 2022-06-13 with total page 192 pages. Available in PDF, EPUB and Kindle. Book excerpt: In My Two Elaines, author Marty Schreiber, former governor of Wisconsin, watches his beloved wife, Elaine, gradually transform from the woman he fell in love with in high school, and who diligently supported his political career, to the Elaine who knows she is declining and can’t remember how to cook a meal, and finally to the Elaine who no longer recognizes Marty or their children. One part love story, one part practical advice, this compelling book includes several unique elements: Excerpts from Elaine’s journal, recounting her thoughts, concerns, and frustrations as the disease progresses A recurring feature called “What I Wish I’d Known,” which provides helpful takeaways for caregivers based on Marty’s observations about what he wishes he’d known sooner and done differently A Q&A between Marty and neuropsychologist Dr. Michelle Braun, to equip caregivers with the right questions to ask and empower them to advocate for their loved ones and their own needs Beyond sincere, practical advice, My Two Elaines gives the reader permission to feel the full spectrum of emotions, including humor, even in the face of this relentless illness. And the book speaks to anyone touched by this disease--spouse, child, friend, or family member.

Download or read book My Mother Has Alzheimer s and My Dog Has Tapeworms A Caregiver s Tale written by R Lynn Barnett and published by Lulu.com. This book was released on 2015-08-27 with total page 298 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is about how we dealt with my mom with Alzheimer's. It's written with humor and heart.

Download or read book Staying Connected While Letting Go written by Sandy Braff and published by Rowman & Littlefield. This book was released on 2005-02-07 with total page 273 pages. Available in PDF, EPUB and Kindle. Book excerpt: When you’re living with a loved one who is suffering from Alzheimer’s disease you must be able to survive one emotional upheaval after another. What is most important during this difficult time is that you not only survive the physical demands placed on you as the primary caregiver, but that you learn to cope effectively with the emotional turmoil and preserve the quality of your own life in the process. Caregivers have been known to put their own lives on hold and become entirely devoted to caregiving—making this difficult role even harder, and often compromising their own health. This needn’t happen. The caregivers you will meet in this book, with whom you have much in common, have learned how to deal with the frustration, anger, and grief that come naturally to any person in this role. Through their poignant stories and personal experiences you will find the strength that you need to care for your loved one while remaining emotionally committed as the mutuality of your partnership fades. Loving and nurturing while letting go is the paradox of Alzheimer’s caregiving. You can learn from the caregivers in this book what you need to do to create a satisfying life that meshes with your role as caregiver. You will ultimately be able to make the right decisions and minimize the chaos that can overwhelm you. Within are the tools you need to manage the stressors of your changing and challenging world.

Download or read book Floating in the Deep End How Caregivers Can See Beyond Alzheimer s written by Patti Davis and published by Liveright Publishing. This book was released on 2021-09-28 with total page 185 pages. Available in PDF, EPUB and Kindle. Book excerpt: With the heartfelt prose of a loving daughter, Patti Davis provides a life raft for the caregivers of Alzheimer’s patients. “For the decade of my father’s illness, I felt as if I was floating in the deep end, tossed by waves, carried by currents, but not drowning,” writes Patti Davis in this searingly honest and deeply moving account of the challenges involved in taking care of someone stricken with Alzheimer’s. When her father, the fortieth president of the United States, announced his Alzheimer’s diagnosis in an address to the American public in 1994, the world had not yet begun speaking about this cruel, mysterious disease. Yet overnight, Ronald Reagan and his immediate family became the face of Alzheimer’s, and Davis, once content to keep her family at arm’s length, quickly moved across the country to be present during “the journey that would take [him] into the sunset of [his] life.” Empowered by all she learned from caring for her father—about the nature of the illness, but also about the loss of a parent—Davis founded a support group for the family members and friends of Alzheimer’s patients. Along with a medically trained cofacilitator, she met with hundreds of exhausted and devastated attendees to talk through their pain and confusion. While Davis was aware that her own circumstances were uniquely fortunate, she knew there were universal truths about dementia, and even surprising gifts to be found in a long goodbye. With Floating in the Deep End, Davis draws on a welter of experiences to provide a singular account of battling Alzheimer’s. Eloquently woven with personal anecdotes and helpful advice tailored specifically for the overlooked caregiver, this essential guide covers every potential stage of the disease from the initial diagnosis through the ultimate passing and beyond. Including such tips as how to keep a loved one hygienic, and careful responses for when they drift to a time gone by, Davis always stresses the emotional milestones that come with slow-burning grief. Along the way, Davis shares how her own fractured family came together. With unflinching candor, she recalls when her mother, Nancy, who for decades could not show her children compassion or vulnerability, suddenly broke down in her arms. Davis also offers tender moments in which her father, a fabled movie star whom she always longed to know better, revealed his true self—always kind, even when he couldn’t recognize his own daughter. An inherently wise work that promises to become a classic, Floating in the Deep End ultimately provides hope to struggling families while elegantly illuminating the fragile human condition.

Download or read book Elder Rage written by Jacqueline Marcell and published by . This book was released on 2001 with total page 370 pages. Available in PDF, EPUB and Kindle. Book excerpt: Elder Rage, or Take My Father... Please: How to Survive Caring for Aging Parents--is a riveting true story as well as an extensive self-help book, with solutions for effective management, medically and behaviorally, of challenging elders who resist care. Jacqueline Marcell's poignant and often-humorous story of caring for her challenging elderly father and sweet but frail mother, addresses issues like how to get an obstinate elder to: give up driving, accept a caregiver, see a different doctor, take medication, go to adult day care, move to a new residence, etc. Includes: Behavior Modification Guidelines, 25 Q&A's=How Do I Handle My Elderly Loved One Who...?, Long-Term Care Insurance, Ten Warning Signs of Alzheimer's, How is Alzheimer's Diagnosed, Three Stages of Alzheimer's, Startling Statistics, Other Diseases That Act Like Alzheimer's, Jacqueline's Top Ten Recommendations, Hope For The Future, The Search for the Cure, Valuable Resources, Recommended Reading. Internationally known dementia specialist, Rodman Shankle, MS MD, contributes the Addendum: A Physician's Guide to Treating Dementia. Over 50 endorsements include: Hugh Downs, Regis Philbin, Dr. Dean Edell, Duke University Center for Aging, Dr. Nancy Snyderman/ABC News, Leeza Gibbons, Senator John D. Rockefeller IV, Rudy Tanzi/Harvard Medical School, and The Johns Hopkins Memory Clinic. http://www.elderrage.com

Download or read book Surviving Alzheimer s written by PAULA SPENCER. SCOTT and published by . This book was released on 2018-01-11 with total page 402 pages. Available in PDF, EPUB and Kindle. Book excerpt: The book recommended by dementia experts and family caregivers as the most complete, practical guide to Alzheimer's and other dementias-now updated and expanded through end-of-life care. This new edition of Surviving Alzheimer's offers the best, most current thinking on how to help a loved one with memory loss and related symptoms without sacrificing YOU. You'll learn: What's behind odd, frustrating behaviors like repetition, wandering, personality changes, bathing resistance, and aggression-and what you can do How to defuse resentment, guilt, and family friction What to say for better communication and more cooperation Special advice for spouses, out-of-town caregivers, and other specific situations 100s of confidence-raising solutions from top doctors, social workers, dementia specialists, and family caregivers All in a fast, scannable format perfect for busy or overwhelmed dementia helpers.

Download or read book Diary of a Caregiver written by Rex T. Young and published by Xlibris Corporation. This book was released on 2018-02-28 with total page 233 pages. Available in PDF, EPUB and Kindle. Book excerpt: In 2009, my wife of over fifty-eight years was diagnosed with dementia with Alzheimers symptoms. My caregiving responsibilities began before that time and continued until her death in January 2018. She was provided care in her own home. As time went by, the caregiver duties became more and more demanding. It was truly twenty-four hours each day and seven days each week. My sweetheart was referred to the hospice program as a patient beginning in 2013 with a life expectancy of six months or less. At the time of her passing, she had been a hospice patient for four years, eleven months, and five days. The Diary of a Caregiver begins with her entry into the hospice program and continues until her death. Caregiving can be very frustrating at times as one never knows what to expect or when to expect it. The Diary of a Caregiver identifies many of the problems and frustrations associated with care of a dementia patient. It also identifies different techniques and solutions to some of those problems. It should be of interest to anyone who is involved in caregiving, especially those who are just beginning.

Download or read book Alzheimer S Through the Alphabet written by Leslie F. Hergert and published by Archway Publishing. This book was released on 2018-03-22 with total page 96 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a vivid story of life with Alzheimersor at least, one story of one family with an unusual sense of humor. Told in an unconventional style (through the alphabet rather than chronologically), Leslie F. Hergert describes the sadness, humor, and challenges of caring for a partner with Alzheimers Disease through its many stages. Each letter of the alphabet provides reflections on some facet of the Alzheimers experience, told with honesty and a wry eye. Leslie spoke at our conference on Dementia and attendees said that her stories were the most powerful part of a very good conference. Her book extends that speech to provide an inside view of living with Alzheimers, a comfort for others living with the disease and an education for outsiders. Nancy Willbanks, Somerville Cambridge Elder Services Ms. Hergert writes candidly and poignantly about her experience caring for her husband with early onset Alzheimers Disease. She touches upon the major cognitive, psychological, and functional changes that occur over the course of the disease, and she provides practical tips to caregivers on how to manage them. She also writes movingly about the multiple emotions she felt as she accompanied her husband on the journey, reminding all of us that there are moments of joy and laughter even among those of loss and grief. I have no doubt that readers will find her words of wisdom helpful. Serena Chao, MD, MSc; Geriatrics Division Chief, Cambridge Health Alliance; Instructor of Medicine, Harvard Medical School

Download or read book Who Will Care For Us written by Paul Osterman and published by Russell Sage Foundation. This book was released on 2017-09-06 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: The number of elderly and disabled adults who require assistance with day-to-day activities is expected to double over the next twenty-five years. As a result, direct care workers such as home care aides and certified nursing assistants (CNAs) will become essential to many more families. Yet these workers tend to be low-paid, poorly trained, and receive little respect. Is such a workforce capable of addressing the needs of our aging population? In Who Will Care for Us? economist Paul Osterman assesses the challenges facing the long-term care industry. He presents an innovative policy agenda that reconceives direct care workers’ work roles and would improve both the quality of their jobs and the quality of elder care. Using national surveys, administrative data, and nearly 120 original interviews with workers, employers, advocates, and policymakers, Osterman finds that direct care workers are marginalized and often invisible in the health care system. While doctors and families alike agree that good home care aides and CNAs are crucial to the well-being of their patients, the workers report poverty-level wages, erratic schedules, exclusion from care teams, and frequent incidences of physical injury on the job. Direct care workers are also highly constrained by policies that specify what they are allowed to do on the job, and in some states are even prevented from simple tasks such as administering eye drops. Osterman concludes that broadening the scope of care workers’ duties will simultaneously boost the quality of care for patients and lead to better jobs and higher wages. He proposes integrating home care aides and CNAs into larger medical teams and training them as “health coaches” who educate patients on concerns such as managing chronic conditions and transitioning out of hospitals. Osterman shows that restructuring direct care workers’ jobs, and providing the appropriate training, could lower health spending in the long term by reducing unnecessary emergency room and hospital visits, limiting the use of nursing homes, and lowering the rate of turnover among care workers. As the Baby Boom generation ages, Who Will Care for Us? demonstrates the importance of restructuring the long-term care industry and establishing a new relationship between direct care workers, patients, and the medical system.

Download or read book Jan s Story written by Barry Rex Petersen and published by Behler Publications. This book was released on 2010 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: CBS News correspondent Barry Petersen tells the tender story of his wife's battle with Early Onset Alzheimer's.

Download or read book The Alzheimer s Alphabet A Comprehensive Guide to Essential Terms for Families written by Nathan Richardson and published by Raghava Appikatla. This book was released on 2024-10-24 with total page 185 pages. Available in PDF, EPUB and Kindle. Book excerpt: Navigating the world of Alzheimer's disease can feel overwhelming, a labyrinth of unfamiliar terms and complex medical concepts. This book acts as your personal guide, offering a clear and concise explanation of essential terminology related to Alzheimer's. Think of it as an alphabet for understanding the disease, one letter at a time. From "amyloid plaques" and "cholinesterase inhibitors" to "sundowning" and "vascular dementia," this comprehensive resource defines key terms in a way that is easy to comprehend. It explores the different stages of Alzheimer's, discusses the role of genetics and environmental factors, and delves into the emotional and practical aspects of caring for someone with the disease. Written with sensitivity and empathy, this book is not just a dictionary but a tool for empowerment. It equips families with the knowledge they need to make informed decisions, advocate for their loved ones, and navigate the challenges of this complex condition. By understanding the vocabulary of Alzheimer's, you can begin to understand the disease itself, paving the way for better communication, informed care, and a stronger sense of control during a difficult journey.

Download or read book Be With written by Mike Barnes and published by Biblioasis. This book was released on 2018-09-18 with total page 75 pages. Available in PDF, EPUB and Kindle. Book excerpt: SHORTLISTED FOR THE TORONTO BOOK AWARD AS SEEN ON GLOBAL NEWS TV'S THE MORNING SHOW A CBC CANADIAN BOOK TO READ FOR MENTAL HEALTH WEEK Drawing on the author’s seven years of caring for his mother through Alzheimer’s, Be With: Letters to a Caregiver is what its title promises: four dispatches to an anonymous long-term caregiver. In brief passages that cast fresh light on what it means to live with dementia, Barnes shares trials, insights, solace—and, ultimately, inspiration. Meant to be a companion in waiting rooms, on bus routes, or while a loved one naps, Be With is a dippable source of clarity for harried readers who might only have time for a few lines or paragraphs. Mike Barnes writes with sensitivity and grace about fellowship, responsibility, and joyful relatedness—what it means to simply be with the people that we love.

Download or read book ABC s of Alzheimers Disease written by Bruce Bauer and published by Covenant Books, Inc.. This book was released on 2019-05-23 with total page 196 pages. Available in PDF, EPUB and Kindle. Book excerpt: ABCs of Alzheimer's Disease: a Shared Reality by Me and My Shadow is a story of Bruce and Ethel's Alzheimer's disease (AD) journey, along with a history of AD from autopsies to PET scan research, including technology and genetic discoveries. The book is a realistic, short, comprehensive, evidence-based, description of Alzheimer's disease (AD). It describes AD research, including clinical trials, a simplified understanding of the brain, and the experiences of patient/caregiver persistence and journey as well as hope for the future research possibilities through worldwide basic science, biology, genetic, mathematics, and technology evolution and discoveries. In addition, it identifies AD issues, uncertainties, and author's comments, along with "outside the box" ideas for governance to provide leadership for the coming Alzheimer's disease tsunami. With the future facing an AD tsunami and potential shortage of care personnel, the book provides potential for education and/or training for candidate patients, caregivers, primary care doctors, nurses, physician assistants, license nurse practitioners, certified nurse assistant, institutional care personnel, in-home health personnel, hospital personnel, educators, and politicians. In addition, this book could be a supplement document for geriatric schooling as well as an enlightening and educating source for political leaders (all three branches of government) and their staffs. The book describes a stage by stage behavior symptoms tied to cognitive measures and Alzheimer Association warning signs, along with suggestions for caregiver, relative to patient's state of decline. The book addresses why clinical trials have been failing and why hope for delay and prevention may be forthcoming as well as the 2011 paradigm shift and current presymptomatic candidacy. Clinical trials adventures, along with a suggestion to eliminate the placebo cohort group are described. So, what does the future hold for Alzheimer's disease-hope, promises, delay, prevention, or cure? These are all wants. What is reality? Moving research targets are being addressed and pursued with evolving knowledge and tools. This evolution will probably make current targets obsolete in twenty years. For reality, you be the judge after reading this book. "Out the box" ideas are provided that require governance action for confronting the coming AD tsunami and associated diversity care.

Download or read book Alzheimer s Disease written by Alia Bucciarelli and published by Mercury Learning and Information. This book was released on 2015-07-22 with total page 108 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer’s disease affects the brain and destroys memory and thinking skills over time. As many as five million adults in the U.S. have Alzheimer’s disease today, and that number will continue to grow as the population ages. Alzheimer’s Disease provides straight-forward answers to common questions about the disease. Using a question–answer format, the book is designed to give caregivers, family members, and friends of people with Alzheimer’s disease easy access to the practical information they need to understand the symptoms, its treatment, and how to preserve quality of life. Although Alzheimer’s disease was identified more than 100 years ago, it is only within the last 30 years that research into the disease has gained momentum. Much is left to discover, including the exact biological changes that cause it and how to reverse, slow, or prevent it. Features: •Questions and answers about the medical definition/descriptions of Alzheimer’s disease; the source/causes; details of symptoms; available treatments, etc. •Covers symptoms, diagnosis, drug and non-drug treatments, care giving, social issues, and more •Resources including Web sites, articles, blogs, etc. from NIH, CDC, YouTube, FDA, and more •Includes a companion disc with articles, animations, color figures from the book, Web links, etc. eBook Customers: Companion files are available for downloading with order number/proof of purchase by writing to the publisher at [email protected].

Download or read book Reducing the Impact of Dementia in America written by National Academies of Sciences Engineering and Medicine and published by . This book was released on 2022-04-26 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.

Download or read book Mayo Clinic on Alzheimer s Disease and Other Dementias written by Jonathan Graff-Radford and published by Rosetta Books. This book was released on 2020-10-06 with total page 487 pages. Available in PDF, EPUB and Kindle. Book excerpt: A reference on preventing, treating, and coping with dementia, from “one of the most reliable, respected health resources that Americans have” (Publishers Weekly). This book from the world-renowned Mayo Clinic offers an update on what experts know about Alzheimer’s and related dementias, including the latest research into treatment and prevention, ways to live well with dementia, and recommendations for caregivers. While Alzheimer’s disease is the most common type of dementia, many related types also affect adults worldwide, causing loss of memory, reason, judgment, and other cognitive functions. Although the diseases that cause dementia have long been considered unrelenting and incurable, recent advances offer hope. This book includes information about: • What to expect of typical aging and what are the earliest signs of abnormal aging • Memory loss and other forms of cognitive impairment that may lead to dementia • Characteristic features of Alzheimer’s disease and related dementias, including frontotemporal degeneration, Lewy body dementia, and vascular cognitive impairment • The latest research on Alzheimer’s disease and related dementias • Caring for and supporting someone living with dementia Are there ways you can lower your risk? Can dementia be prevented? Can you live well with dementia? If so, how? You’ll find answers to these important questions and more in this book.

Download or read book I m Still Here written by John Zeisel and published by Penguin. This book was released on 2009 with total page 280 pages. Available in PDF, EPUB and Kindle. Book excerpt: Discusses ways to mentally connect with a person who has been diagnosed with Alzheimer's disease, which includes engaging individuals through the healthier parts of the brain.