Download or read book Navigating Life with Amyotrophic Lateral Sclerosis written by Mark B. Bromberg and published by Oxford University Press. This book was released on 2017 with total page 281 pages. Available in PDF, EPUB and Kindle. Book excerpt: Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.
Download or read book Advanced Life Support Participant s Manual written by American Red Cross and published by . This book was released on 2021-06-30 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Palliative Care in Amyotrophic Lateral Sclerosis written by David Oliver and published by OUP Oxford. This book was released on 2014-03-20 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: Amytrophic Lateral Sclerosis (ALS or motor neurone disease) is a progressive neurodegenerative disease that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow its progression. Palliative care must therefore be integral to the clinical approach to the disease. Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to bereavement reflects the wide scope of this care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease. Both the multidisciplinary palliative care team and the neurology team are essential in providing a high standard of care and allowing quality of life (both patient and carer) to be maintained. Clear guidelines are provided to address care throughout the disease process. Control of symptoms is covered alongside the psychosocial care of patients and their families. Case studies are used to emphasise the complexity of the care needs and involvement of the patient and family, culminating in discussion of bereavement. Different models of care are explored, and this new edition utilizes the increase in both the evidence-base and available literature on the subject. New topics discussed include complementary therapies, personal and family experiences of ALS, new genetics research, and updated guidelines for patient care, to ensure this new edition remains the essential guide to palliative care in ALS.
Download or read book Alice Neel Uptown written by Hilton Als and published by David Zwirner Books. This book was released on 2017-05-23 with total page 145 pages. Available in PDF, EPUB and Kindle. Book excerpt: Known for her portraits of family, friends, writers, poets, artists, students, singers, salesmen, activists, and more, Alice Neel created forthright, intimate, and, at times, humorous paintings that quietly engaged with political and social issues. In Alice Neel, Uptown, writer and curator Hilton Als brings together a body of paintings and works on paper of African-Americans, Latinos, Asians, and other people of color for the first time. Highlighting the innate diversity of Neel’s approach, the selection looks at those whose portraits are often left out of the art-historical canon and how this extraordinary painter captured them; “what fascinated her was the breadth of humanity that she encountered,” Als writes. The publication, which opens with a foreword by Jeremy Lewison, advisor to The Estate of Alice Neel, explores Neel’s interest in the diversity of uptown New York and the variety of people amongst whom she lived. This group of portraits includes well-known figures such as playwright, actress, and author Alice Childress; the sociologist Horace R. Cayton, Jr.; the community activist Mercedes Arroyo; and the widely published academic Harold Cruse; alongside more anonymous individuals of a nurse, a ballet dancer, a taxi driver, a businessman, and a local kid who ran errands for Neel. In short and illuminating texts on specific works written in his characteristic narrative style, Als writes about the history of each sitter and offers insights into Neel and her work, while adding his own perspective. A contemporary and personal approach to the artist’s oeuvre, Als’s project is “an attempt to honor not only what Neel saw, but the generosity of her seeing.” This catalogue is published on the occasion of the 2017 exhibitions of Neel’s paintings and drawings at David Zwirner, New York, and Victoria Miro, London.
Download or read book Fast Facts Diagnosing Amyotrophic Lateral Sclerosis written by Martin Turner and published by Karger Medical and Scientific Publishers. This book was released on 2019-11-26 with total page 103 pages. Available in PDF, EPUB and Kindle. Book excerpt: A diagnosis of amyotrophic lateral sclerosis (also known as Lou Gehrig's disease or motor neuron disease) is a progressive neurodegenerative disorder that exerts a notorious life-shortening physical toll. Understandably, clinicians are keen to avoid a wrong diagnosis when there are such serious consequences, but any delay in diagnosis can result in unnecessary, and sometimes harmful, interventions, and prevents prompt implementation of much-needed physical and emotional support. Starting from the premise that ALS is not one disease but a syndrome, with a spectrum of upper and lower motor neuron involvement, this highly readable resource examines the causes of diagnostic delay and how to avoid them. With no diagnostic test to confirm the disease, no mandatory investigations and very few plausible 'ALS mimics', the authors take a pragmatic approach to what must always be a clinical diagnosis. With case presentations and teaching points to aid understanding, 'Fast Facts: ALS' will give clinicians the confidence to confirm or exclude a diagnosis of ALS, so that individuals facing this most challenging of conditions can receive rapid multidisciplinary support to maximize the quality of their remaining life. Contents: • Defining the syndrome • Epidemiology and pathophysiology • The first symptoms • Differential diagnosis • Investigations • Emerging diagnostic biomarkers
Download or read book Lou Gehrig Disease Als Or Amyotrophic Lateral Sclerosis Explained Als Symptoms Signs Stages Types Diagnosis Treatment Caregiver Tips Aids And written by Robert Rymore and published by Imb Publishing. This book was released on 2013-08-01 with total page 154 pages. Available in PDF, EPUB and Kindle. Book excerpt: The author, Robert Rymore, had a good friend who was diagnosed with Lou Gehrig Disease. He wanted to be able to help her and decided to buy some books about the disease. To his disappointment there was a lack of good informative books available on the subject. He decided to investigate the subject thoroughly and write a book about it to be able to help others. He decided he would start talking to professionals - doctors, physical therapists, speech therapists and occupational therapists - to learn more. He quickly realized the information he was getting would be extremely valuable for other people with ALS and their loved ones. This book has been a labor of love, one born of necessity and certainly one that aims to help those with ALS, their families, and their friends. ALS symptoms, signs, stages, types, diagnosis, treatment, caregiver tips, aids and what to expect is all covered. Including chapters about financial considerations, famous people with Lou Gehrig Disease and resources. The book is written in an easy to read and understandable style and contains tips for caregivers.
Download or read book But She Still Can Love A Child s Understanding of ALS written by Amalia Flecksteiner and published by . This book was released on 2021-04-08 with total page 28 pages. Available in PDF, EPUB and Kindle. Book excerpt: ALS, or amyotrophic lateral sclerosis, is a progressive neurodegenerative disease that currently has no cure. ALS is a disease that typically involves a gradual onset, with initial symptoms that can be quite varied in different people. One person may struggle with lifting a coffee cup or grasping a pen, while others may begin slurring or losing their speech - ALS affects everyone differently. Regardless, ALS is a disease that always takes - takes someone's ability to help themselves, takes someone's ability to express themselves, and ultimately takes someone from the ones who love them most.Mom was taken from us by this disease too soon. She was a nurse of over 30 years, always taking care of others, to end up being taken care of herself. Though we ultimately lost Mom to ALS, we gained a purpose to bring awareness and support to others who may have or had the same experience with their loved one. Whether it's Mom, Dad, Grandma, Grandpa, or another loved one affected by this disease that always takes, always remember - but they still can love.For more ALS information and resources, visit als.org. A large portion of the proceeds from this book will benefit the ALS Association of Georgia Chapter's 'Walk to Defeat ALS' in honor of Mom, Marina Pascarelli.
Download or read book White Girls written by Hilton Als and published by Penguin. This book was released on 2019-07-09 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This book will change you." --Chicago Tribune White Girls is about, among other things, blackness, queerness, movies, Brooklyn, love (and the loss of love), AIDS, fashion, Basquiat, Capote, philosophy, porn, Eminem, Louise Brooks, and Michael Jackson. Freewheeling and dazzling, tender and true, it is one of the most daring and provocative books of recent years, an invaluable guide to the culture of our time.
Download or read book Amyotrophic Lateral Sclerosis written by Francesco Pagnini and published by Oxford University Press. This book was released on 2018 with total page 301 pages. Available in PDF, EPUB and Kindle. Book excerpt: Amyotrophic lateral sclerosis: Understanding and optimizing quality of life and psychological well-being presents a comprehensive and up-to-date review of the enhancement of the lives of people with amyotrophic lateral sclerosis (ALS) and their caregivers. ALS is a progressive, fatal neurodegenerative disorder. No current medical therapy can reverse or stop its progression, and the promotion of quality of life and psychological well-being is a central component of ALS care. Health care professionals who work in this field should incorporate attention to psychological, emotional, and relational aspects of the disease into their approach to care. This book provides some of the knowledge and direction necessary for optimizing the quality of care for individuals with ALS and their caregivers. Topics discussed include an ALS-centred view of quality of life, depressive features, anxiety, resilience, cognitive impairment, complementary and alternative medicines, and psychological research.
Download or read book Kickin ALS written by Carrey Dewey and published by . This book was released on 2019-10 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Carrey Dewey and her husband, Eric, worked hard to build their dream life: a strong marriage, three incredible kids, and a beautiful home. It all came crashing down when Carrey was diagnosed at age 42 with amyotrophic lateral sclerosis (ALS) - a disease that had no treatment or cure, a disease that is 100 percent fatal. Her doctor told her, "Get your paperwork in order and go make memories." But Carrey, a smart, courageous, and often very funny woman, was determined to do more - to spend what life she had left advocating for ALS research and educating people about the disease.Kickin' ALS is a compilation of Carrey's personal Facebook posts, written from shortly after her diagnosis in June 2014 until just before her death in May 2018. It is a powerful and poignant chronicle of one woman's experience with the disease made famous through the Ice Bucket Challenge.More than 5,000 people in the United States are diagnosed with ALS each year, according to the ALS Association, and it is estimated that at least 16,000 Americans may be living with ALS at any given time.Proceeds from the sale of this book will be donated to organizations supporting ALS research and education, as well as ALS patients and their families.
Download or read book Amyotrophic Lateral Sclerosis written by Hiroshi Mitsumoto and published by F. A. Davis Company. This book was released on 1998 with total page 520 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume provides comprehensive background for understanding amyotrophic lateral sclerosis (ALS) and a critical review of research. It points out the distinguishing characteristics of the disease and testing procedures for reliable diagnosis.
Download or read book The Ice Bucket Challenge written by Casey Sherman and published by University Press of New England. This book was released on 2017-09-05 with total page 186 pages. Available in PDF, EPUB and Kindle. Book excerpt: While everyone knows of the Ice Bucket Challenge, the viral craze that swept the nation in summer 2014, too few know the truly inspirational story behind it. Pete Frates was a man at war with his own body. A man whose love for others was unshakable. A man who refused to fight alone, and in so doing mobilized a global army to combat one of the most devastating diseases on earth: ALS, or Lou Gehrig's disease. When disease crippled Frates, the former Boston College baseball star turned tragedy into inspiration. Pete's story is a testament to the power of love, the steadfastness of family, the generosity of strangers, and the compassion of crowds. Half of the authors' proceeds will go to the Frates family.
Download or read book ALS Skills Review written by American Academy of Orthopaedic Surgeons (AAOS), and published by Jones & Bartlett Publishers. This book was released on 2008-12-23 with total page 539 pages. Available in PDF, EPUB and Kindle. Book excerpt: ALS Skills Review provides detailed step-by-step instruction for every psychomotor skill presented in the Paramedic National Standard Curriculum. This resource teaches ALS students and providers how to perform each skill correctly and offers helpful information, tips, and pointers designed to facilitate progression through practical examinations or real-life emergencies. For each skill, you will find: -- Performance objectives, indications, contraindications, complications, and an equipment list -- Written step-by-step instructions to properly perform the skill with photos to demonstrate critical steps -- Helpful tips including Safety, Special Populations, and In the Field
Download or read book Final Season written by Tim Green and published by HarperCollins. This book was released on 2021-09-14 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: **INSTANT #1 NEW YORK TIMES BESTSELLER** From New York Times bestselling author and former NFL player Tim Green comes a gripping, deeply personal standalone football novel about a star middle school quarterback faced with a life-changing decision after his dad is diagnosed with ALS. Perfect for fans of Mike Lupica! With two all-star college football players for brothers and a former Atlanta Falcons defensive lineman for a father, it is only natural for sixth-grade quarterback Benjamin Redd to follow in their footsteps. However, after his dad receives a heartbreaking ALS diagnosis—connected to all those hard hits and tackles he took on the field—Ben’s mom becomes more determined than ever to get Ben to quit football. Ben isn’t playing just for himself though. This might be his dad’s last chance to coach. And his teammates need a quarterback that can lead them to the championships. But as Ben watches the heavy toll ALS takes on his dad’s body, he begins to question if this should be his final season after all.
Download or read book ALS Saved My Life Until It Didn t written by Dr. Jenni Kleinman Berebitsky and published by . This book was released on 2018-03-18 with total page 278 pages. Available in PDF, EPUB and Kindle. Book excerpt: The author shares her insights and perspectives on living with ALS, or Lou Gehrig's disease, sharing both her thoughts on life and happiness as well as practical ideas for daily living with this progressive neuromuscular disease.
Download or read book The Tale of an ALS Reversal written by McFinn Lovere and published by . This book was released on 2021-12-03 with total page 182 pages. Available in PDF, EPUB and Kindle. Book excerpt: The time has come to tell my ALS reversal story. I have been silent long enough. In 2006 I was diagnosed with ALS and given 18 months to get my affairs in order. My physical condition deteriorated rapidly, until wheelchair-bound, I was only able to move my head and two fingers. My story is one of heartache, despair, the wish to end my life, and the Supernatural Gift of recovery. This book chronicles my journey and recovery as a rare ALS reversal. I feel I am in a unique position to offer solace and the understanding that only comes from enduring this disease. My Reversal taught me to never give up HOPE
Download or read book Molecular Epidemiology written by Paul A. Schulte and published by Academic Press. This book was released on 2012-12-02 with total page 609 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book will serve as a primer for both laboratory and field scientists who are shaping the emerging field of molecular epidemiology. Molecular epidemiology utilizes the same paradigm as traditional epidemiology but uses biological markers to identify exposure, disease or susceptibility. Schulte and Perera present the epidemiologic methods pertinent to biological markers. The book is also designed to enumerate the considerations necessary for valid field research and provide a resource on the salient and subtle features of biological indicators.