Download or read book Albinism in Africa written by Jennifer Kromberg and published by Academic Press. This book was released on 2018-01-02 with total page 362 pages. Available in PDF, EPUB and Kindle. Book excerpt: Albinism in Africa: Historical, Geographic, Medical, Genetic, and Psychosocial Aspects provides the first in-depth reference for understanding and treating patients of human albinism in Africa. Leading international contributors examine the historical, geographic, psychosocial, genetic and molecular considerations of importance in effectively and sensitively managing this genetic disorder. Foundational chapters covering the historical and psychosocial aspects of albinism are supplemented by discussions of the pathobiology of the disease, as well as a thorough analysis of the genetics of skin pigmentation, eye pigmentation, hair pigmentation, and incidents of skin cancer involved in the manifestations of this disorder. New prenatal diagnostics and genetic testing methods, genetic risk assessment for individuals, families, and communities, and novel genetic markers that may be used for developing new therapeutics for treating albinism are also discussed in detail. The book provides care management approaches that may be applied to instances of albinism in other regions, along with guiding principles for treating rare genetic disorders and stigmatized patient populations across the globe. - Includes contributions from leading international contributors who examine the historical, geographic, psychosocial, genetic and molecular aspects of importance in sensitively managing albinism in Africa - Discusses recent advances in our understanding of the pathobiology of albinism, while also offering a thorough analysis of the genetics of skin pigmentation, eye pigmentation, hair pigmentation, and rates of skin cancer - Highlights new prenatal diagnostics and genetic testing methods and approaches to genetic risk assessment for individuals, families and communities

Download or read book Albinism in Africa written by Jennifer Kromberg and published by Academic Press. This book was released on 2018-01-04 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Albinism in Africa: Historical, Geographic, Medical, Genetic, and Psychosocial Aspects provides the first in-depth reference for understanding and treating patients of human albinism in Africa. Leading international contributors examine the historical, geographic, psychosocial, genetic and molecular considerations of importance in effectively and sensitively managing this genetic disorder. Foundational chapters covering the historical and psychosocial aspects of albinism are supplemented by discussions of the pathobiology of the disease, as well as a thorough analysis of the genetics of skin pigmentation, eye pigmentation, hair pigmentation, and incidents of skin cancer involved in the manifestations of this disorder. New prenatal diagnostics and genetic testing methods, genetic risk assessment for individuals, families, and communities, and novel genetic markers that may be used for developing new therapeutics for treating albinism are also discussed in detail. The book provides care management approaches that may be applied to instances of albinism in other regions, along with guiding principles for treating rare genetic disorders and stigmatized patient populations across the globe.

Download or read book African Philosophy and the Otherness of Albinism written by Elvis Imafidon and published by Routledge. This book was released on 2018-10-30 with total page 302 pages. Available in PDF, EPUB and Kindle. Book excerpt: Albinism is one of the foremost disability and public health issues in Africa today. It often makes headlines in local, national and international medias and forms the basis for intense advocacy at all levels. This is primarily due to the harmful representations of persons with albinism deeply entrenched in African traditions. These deeply rooted ideologies about albinism in African thought have largely promoted the continuous discrimination, stigmatization, harming, killing, commodification and violation of the human rights of persons with albinism in African places. How has albinism emerged as a thick concept in African traditions? What are these deeply entrenched ideas about the ontology of albinism in African thought? What epistemic injustice has been done to persons with albinism in Africa places? Why do harmful beliefs about albinism still persist in modern African societies? How does the African communalistic ethic justify the harm done against persons with albinism? What is the duty to, and burden of, care for persons with albinism? What peculiar existential challenges do persons with albinism in general and females with albinism in particular face in African societies and how can they be overcome? What can be learnt from the education philosophy of reconstructionism and genetic engineering in improving the wellbeing of persons with albinism? African Philosophy and the Otherness of Albinism: White Skin, Black Race digs deep into these philosophical questions revealing fascinating but latent aspects of how albinism is understood in African places as a necessary step to take in improving the wellbeing and integrity of persons with albinism in Africa today. This book will be of interest to scholars and students of African philosophy, sociology, African studies and disability studies.

Download or read book Golden Boy written by Tara Sullivan and published by G.P. Putnam's Sons. This book was released on 2013 with total page 370 pages. Available in PDF, EPUB and Kindle. Book excerpt: "A Tanzanian albino boy finds himself the ultimate outsider, hunted because of the color of his skin"--

Download or read book Nobody s Magic written by Destiny O. Birdsong and published by Grand Central Publishing. This book was released on 2022-02-08 with total page 327 pages. Available in PDF, EPUB and Kindle. Book excerpt: “The magic here is not the supernatural kind, but rather an attention to the grace of the ordinary. It is the magic of watching these women come into their power.”—New York Times A GMA Buzz Pick! A Most Anticipated Book by Essence · The Millions · Atlantic Journal Constitution · Glamour · Teen Vogue · Bustle · BookPage · Nashville Scene · Ms. Magazine · Parnassus Musing A Best Book of February by Washington Post · Nylon · BookRiot In this glittering triptych novel, Suzette, Maple and Agnes, three Black women with albinism, call Shreveport, Louisiana home. At the bustling crossroads of the American South and Southwest, these three women find themselves at the crossroads of their own lives. Suzette, a pampered twenty-year‑old, has been sheltered from the outside world since a dangerous childhood encounter. Now, a budding romance with a sweet mechanic allows Suzette to seek independence, which unleashes dark reactions in those closest to her. In discovering her autonomy, Suzette is forced to decide what she is willing to sacrifice in order to make her own way in the world. Maple is reeling from the unsolved murder of her free‑spirited mother. She flees the media circus and her judgmental grandmother by shutting herself off from the world in a spare room of the motel where she works. One night, at a party, Maple connects with Chad, someone who may understand her pain more than she realizes, and she discovers that the key to her mother's death may be within her reach. Agnes is far from home, working yet another mind‑numbing job. She attracts the interest of a lonely security guard and army veteran who’s looking for a traditional life for himself and his young son. He’s convinced that she wields a certain “magic,” but Agnes soon unleashes a power within herself that will shock them both and send her on a trip to confront not only her family and her past, but also herself. This novel, told in three parts, is a searing meditation on grief, female strength, and self‑discovery set against a backdrop of complicated social and racial histories. Nobody's Magic is a testament to the power of family—the ones you're born in and the ones you choose. And in these three narratives, among the yearning and loss, each of these women may find a seed of hope for the future.

Download or read book Truevine written by Beth Macy and published by Little, Brown. This book was released on 2016-10-18 with total page 496 pages. Available in PDF, EPUB and Kindle. Book excerpt: The true story of two African-American brothers who were kidnapped and displayed as circus freaks, and whose mother endured a 28-year struggle to get them back. The year was 1899 and the place a sweltering tobacco farm in the Jim Crow South town of Truevine, Virginia. George and Willie Muse were two little boys born to a sharecropper family. One day a white man offered them a piece of candy, setting off events that would take them around the world and change their lives forever. Captured into the circus, the Muse brothers performed for royalty at Buckingham Palace and headlined over a dozen sold-out shows at New York's Madison Square Garden. They were global superstars in a pre-broadcast era. But the very root of their success was in the color of their skin and in the outrageous caricatures they were forced to assume: supposed cannibals, sheep-headed freaks, even "Ambassadors from Mars." Back home, their mother never accepted that they were "gone" and spent 28 years trying to get them back. Through hundreds of interviews and decades of research, Beth Macy expertly explores a central and difficult question: Where were the brothers better off? On the world stage as stars or in poverty at home? Truevine is a compelling narrative rich in historical detail and rife with implications to race relations today.

Download or read book Expanding Perspectives on Human Rights in Africa written by M. Raymond Izarali and published by Routledge. This book was released on 2019-03-14 with total page 323 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book draws attention to emerging issues around the rights of minorities, marginalized groups, and persons in Africa. It explores the gaps between human rights provisions and conditions, showing that although international human rights principles have been embraced in the continent, various minority groups and marginalized persons are denied such rights through criminalization and persecution. African countries have a good record of signing and ratifying international and regional rights instruments but the political will and capacity for enforcing these with respect to minorities remain weak. International contributors to the book provide new perspectives on the rights of marginalized and minority groups in different parts of Africa and the extent to which they are deprived or denied entitlement to the universality and equality articulated in law. The authors show that human rights, while having come of age as a moral ideal, has not been fully entrenched in practice towards groups such as children, indigenous populations, the mentally ill, persons with disabilities, and persons with albinism. This volume is geared toward scholars, students, human rights groups, policy makers, social workers, international organizations, and policy makers in the fields of criminology, security studies, development studies, political science, sociology, children studies, social psychology, international relations, postcolonial studies, and African Studies.

Download or read book Then She Was Born written by Cristiano Gentili and published by . This book was released on 2017 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: 2017 Award Winning B.R.A.G. Medallion Honoree and Awesome Indies Seal of Excellence for Outstanding Independent Literature.Then She Was Born is more than a novel. It's an international human rights awareness campaign supported by eleven Nobel Peace Prize laureates, the Dalai Lama and Pope Francis. Based on an inconceivable reality for many in the world today, Then She Was Born combines the drama and redemption of Khaled Hosseini's The Kite Runner with the spirituality of Paulo Coelho's The Alchemist.A child is born and the joy of her parents turns to horror. The child is different, in a way that will bring bad luck to their superstitious community. The tradition should be for her to be abandoned, but Nkamba, the grandmother, is allowed to care for her.Naming her Adimu, Nkamba raises her as her own. Adimu is constantly marginalized and shunned by the community, although her spirit remains undiminished and full of faith. But when she encounters the wealthy British mine owner Charles Fielding and his wife Sarah, it is the beginning of something which will test them all.As Charles Fielding's fortunes wane, he turns in desperation to a witch doctor whose suggestion leaves him horrified. But as events begin to spiral out of control he succumbs to the suggestions and a group of men are sent on a terrible mission. The final acts, of one man driven by greed and another by power, will have a devastating effect on many lives.Cristiano Gentili's glittering prose and vivid imagery will have you captivated from the first page.

Download or read book Zebra Crossing written by Meg Vandermerwe and published by Simon and Schuster. This book was released on 2014-03-01 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ghost. Ape. Living dead. Young and albino, Chipo has been called many things, but to her mother – Zimbabwe’s most loyal Manchester United supporter – she had always been a gift. On the eve of the World Cup, Chipo and her brother flee to Cape Town, hoping for a better life and to share in the excitement of the greatest sporting event ever to take place in Africa. But the Mother City’s infamous Long Street is a dangerous place for an illegal immigrant and an albino. Soon Chipo is caught up in a get-rich-quick scheme organised by her brother and the terrifying Dr Ongani. Exploiting gamblers’ superstitions about albinism, they plan to make money and get out of the city before rumours of looming xenophobic attacks become a reality. But their scheming has devastating consequences. Set in the underbelly of a pulsating Cape Town, Meg Vandermerwe’s Zebra Crossing is an arresting debut and a bold, lyrical imagining of what it’s like to live in another person’s skin.

Download or read book Cassidy and Allanson s Management of Genetic Syndromes written by John C. Carey and published by John Wiley & Sons. This book was released on 2021-01-27 with total page 1104 pages. Available in PDF, EPUB and Kindle. Book excerpt: MANAGEMENT OF GENETIC SYNDROMES THE MOST RECENT UPDATE TO ONE OF THE MOST ESSENTIAL REFERENCES ON MEDICAL GENETICS Cassidy and Allanson’s Management of Genetic Syndromes, Fourth Edition is the latest version of a classic text in medical genetics. With newly covered disorders and cutting-edge, up-to-date information, this resource remains the most crucial reference on the management of genetic syndromes in the field of medical genetics for students, clinicians, caregivers, and researchers. The fourth edition includes current information on the identification of genetic syndromes (including newly developed diagnostic criteria), the genetic basis (including diagnostic testing), and the routine care and management for more than 60 genetic disorders. Written by experts, each chapter includes sections on: Incidence Diagnostic criteria Etiology, pathogenesis and genetics Diagnostic testing Differential diagnosis Manifestations and Management (by system) The book focuses on genetic syndromes, primarily those involving developmental disabilities and congenital defects. The chapter sections dealing with Manifestations and Management represents the centerpiece of each entry and is unmatched by other genetic syndrome references. Management of Genetic Syndromes is perfect for medical geneticists, genetic counselors, primary care physicians and all healthcare professionals seeking to stay current on the routine care and management of individuals with genetic disorders.

Download or read book The Genetics of African Populations in Health and Disease written by Muntaser E. Ibrahim and published by Cambridge University Press. This book was released on 2019-12-19 with total page 351 pages. Available in PDF, EPUB and Kindle. Book excerpt: A pioneering work that focuses on the unique diversity of African genetics, offering insights into human biology and genetic approaches.

Download or read book Disability in the Global South written by Shaun Grech and published by Springer. This book was released on 2016-11-08 with total page 618 pages. Available in PDF, EPUB and Kindle. Book excerpt: This first-of-its kind volume spans the breadth of disability research and practice specifically focusing on the global South. Established and emerging scholars alongside advocates adopt a critical and interdisciplinary stance to probe, challenge and shift common held social understandings of disability in established discourses, epistemologies and practices, including those in prominent areas such as global health, disability studies and international development. Motivated by decolonizing approaches, contributors carefully weave the lived and embodied experiences of disabled people, families and communities through contextual, cultural, spatial, racial, economic, identity and geopolitical complexities and heterogeneities. Dispatches from Ghana, Lebanon, Sri Lanka, Cambodia, Venezuela among many others spotlight the complex uncertainties of modern geopolitics of coloniality; emergent forms of governance including neoliberal globalization, war and conflicts; the interstices of gender, race, ethnicity, space and religion; structural barriers to redistribution and realization of rights; and processes of disability representation. This handbook examines in rigorous depth, established practices and discourses in disability including those on development, rights, policies and practices, opening a space for critical debate on hegemonic and often unquestioned terrains. Highlights of the coverage include: Critical issues in conceptualizing disability across cultures, time and space The challenges of disability models, metrics and statistics Disability, poverty and livelihoods in urban and rural contexts Disability interstices with migration, race, ethnicity, ge nder and sexuality Disabilit y, religion and customary societies and practice · The UNCRPD, disability rights orientations and instrumentalitie · Redistributive systems including budgeting, cash transfer systems and programming. · Global South–North partnerships: intercultural methodologies in disability research. This much awaited handbook provides students, academics, practitioners and policymakers with an authoritative framework for critical thinking and debate about disability, while pushing theoretical and practical frontiers in unprecedented ways.

Download or read book Akata Witch written by Nnedi Okorafor and published by Penguin. This book was released on 2017-07-11 with total page 386 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Nnedi Okorafor writes glorious futures and fabulous fantasies. Her characters take your heart and squeeze it; her worlds open your mind to new things." -- Neil Gaiman, author of The Graveyard Book and American Gods Affectionately dubbed "the Nigerian Harry Potter," Akata Witch weaves together a heart-pounding tale of magic, mystery, and finding one's place in the world. Perfect for fans of Children of Blood and Bone! Sunny Nwazue lives in Nigeria, but she was born in New York City. Her features are West African, but she's albino. She's a terrific athlete, but can't go out into the sun to play soccer. There seems to be no place where she fits in. And then she discovers something amazing—she is a "free agent" with latent magical power. And she has a lot of catching up to do. Soon she's part of a quartet of magic students, studying the visible and invisible, learning to change reality. But as she’s finding her footing, Sunny and her friends are asked by the magical authorities to help track down a career criminal who knows magic, too. Will their training be enough to help them combat a threat whose powers greatly outnumber theirs? World Fantasy Award-winning author Nnedi Okorafor blends magic and adventure to create a lush world. Her writing has been called “stunning” by The New York Times and her fans include Neil Gaiman, Rick Riordan, John Green, Ursula K. Le Guin, and many more! Raves for Nnedi Okorafor's writing: "There’s more imagination on a page of Nnedi Okorafor’s work than in whole volumes of ordinary fantasy epics." —Ursula K. Le Guin, award-winning author of A Wizard of Earthsea “The most imaginative, gripping, enchanting fantasy novels I have ever read!” —Laurie Halse Anderson, National Book Award finalist and New York Times bestselling author of Speak "I always loved science fiction, but I didn’t feel I was part of it—until I read first Octavia Butler, and now Nnedi Okorafor." —Whoopi Goldberg "Highly original stuff, episode after amazing episode, full of color, life, and death. Nnedi Okorafor's work is wonderful!" —Diana Wynne Jones, award-winning author of The Chronicles of Chrestomanci "Jam-packed with mythological wonders." —Rick Riordan, #1 New York Times bestselling author of the Percy Jackson and the Olympians series "Okorafor's imagination is stunning." —The New York Times Book Review

Download or read book The Troubled Helix written by Theresa Marteau and published by Cambridge University Press. This book was released on 1996 with total page 384 pages. Available in PDF, EPUB and Kindle. Book excerpt: This wide ranging and compelling account surveys the exciting opportunities and difficult problems which arise from the new human genetics. The availability of increasingly sophisticated information on our genetic make-up presents individuals, and society as a whole, with difficult decisions. Although it is hoped that these advances will ultimately lead the way to the effective treatment and screening for all diseases with a genetic component, at present many individuals are 'condemned' to a life sentence, in the knowledge that they have or will develop an incurable genetic disease.

Download or read book Handbook of African Philosophy of Difference written by Elvis Imafidon and published by Springer. This book was released on 2020-01-29 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook explores essential philosophical questions about the experience of difference and the other in African societies. The contributions go beyond a mere discussion of empirical manifestations. They offer a critical analysis of, among other things, the very nature and essence of difference that makes such manifestations possible. Coverage examines the philosophical basis for the African contexts of gender differences, bodily differences and disability; racial, religious, and cultural differences; xenophobia and xenophilia; and issues of the otherings of non-human beings from human beings. These insightful analyses detail the ontological, epistemological, and moral foundations of difference and alterity in African societies, both traditional and modern. Readers will gain a deeper understanding into such questions as: What value is placed on the other in African societies? What is the ethics and burden of care for those considered different in African societies? What role does language play in the othering of the other in African societies? What is the nature and challenges of the alleged White-Black difference. This exploration offers a vital contribution to the philosophy of difference. It not only shows the importance of place in such theorization. It also contributes significantly to African philosophical discourse. This handbook will interest both undergraduate, postgraduate students, and researchers in such fields as African studies/philosophy, identity, racism and alterity studies in sociology, feminism and LGBT studies.

Download or read book Jai the Albino Cow written by Gloria D. Gonsalves and published by AuthorHouse. This book was released on 2023-11-26 with total page 31 pages. Available in PDF, EPUB and Kindle. Book excerpt: Can an albino cow possess abilities to be admired by other cows? Anjait (Jai) is an Ankole cow who lives with her family in Kole Hills. Jai suffers from albinism. Other cows thought she was cursed. One day, Jai shocked other cows for doing something that no other cow did before. She also surprised them with a magical skill. What is it that Jai did as the first ever female cow? Will her actions and skill help bring love and respect to albino cows? Get your copy now to find out the answers and reveal to your children the importance of showing kindness and respect to everyone, even if they look different. Je, ng'ombe zeruzeru anaweza kuwa na uwezo wa kustaajabiwa na ng'ombe wengine? Anjait (Jai) alikuwa ni ng’ombe wa Kitutsi anayeishi na familia yake kwenye Vilima vya Kole. Jai alikuwa ni zeruzeru. Ng’ombe wengine walifikiri ana laana. Siku moja aliwashangaza ng’ombe wenzie kwa kufanya kitu kwa mara ya kwanza. Aliwapa mshangao zaidi kwa uwezo wake wa kimiujiza. Ni kitu gani alifanya Jai kwa mara kwanza na kushangaza ng’ombe wengine? Je, matendo na uwezo wake yanaweza leta upendo na heshima kwa ng’ombe zeruzeru? Jipatie nakala yako ili kupata majibu na uwafundishe watoto wako umuhimu wa kuonesha upendo na heshima kwa kila mtu hata kama mwonekano wao ni tofauti.

Download or read book The Next Generation of Scientists in Africa written by Beaudry, Catherine and published by African Minds. This book was released on 2018-11-23 with total page 218 pages. Available in PDF, EPUB and Kindle. Book excerpt: Young scientists are a powerful resource for change and sustainable development, as they drive innovation and knowledge creation. However, comparable findings on young scientists in various countries, especially in Africa and developing regions, are generally sparse. Therefore, empirical knowledge on the state of early-career scientists is critical in order to address current challenges faced by those scientists in Africa. This book reports on the main findings of a three-and-a-half-year international project in order to assist its readers in better understanding the African research system in general, and more specifically its young scientists. The first part of the book provides background on the state of science in Africa, and bibliometric findings concerning Africa’s scientific production and networks, for the period 2005 to 2015. The second part of the book combines the findings of a large-scale, quantitative survey and more than 200 qualitative interviews to provide a detailed profile of young scientists and the barriers they face in terms of five aspects of their careers: research output; funding; mobility; collaboration; and mentoring. In each case, field and gender differences are also taken into account. The last part of the book comprises conclusions and recommendations to relevant policy- and decision-makers on desirable changes to current research systems in Africa.