Download or read book Advance Care Planning in End of Life Care written by Keri Thomas and published by Oxford University Press. This book was released on 2018 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: ACP is an essential part of end of life care with patients improving their chances of 'a good death' by creating plans with their families and carers. This new edition gives a comprehensive overview of ACP, explores a wide range of issues and practicalities in providing end of life care, and offers a worldwide perspective.
Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 470 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
Download or read book Advance Care Planning written by Leah Rogne, Ph.D. and published by Springer Publishing Company. This book was released on 2013-07-29 with total page 402 pages. Available in PDF, EPUB and Kindle. Book excerpt: Print+CourseSmart
Download or read book Advance Planning for Quality Care at End of Life written by and published by . This book was released on 2013 with total page 44 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Deciding to Engage in Advance Care Planning written by Karen Joy Vander Laan and published by . This book was released on 2007 with total page 462 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Sick To Death and Not Going to Take It Anymore written by Joanne Lynn and published by Univ of California Press. This book was released on 2004-10-11 with total page 244 pages. Available in PDF, EPUB and Kindle. Book excerpt: Just a few generations ago, serious illness, like hazardous weather, arrived with little warning, and people either lived through it or died. In this important, convincing, and long-overdue call for health care reform, Joanne Lynn demonstrates that our current health system, like our concepts of health and disease, developed at a time when life was mostly short, serious illnesses and disabilities were common at every age, and dying was quick. Today, most Americans live a long life, with the disabilities and discomforts of progressive chronic illness appearing only during the final chapters of their life stories. Sick to Death and Not Going to Take It Anymore! maintains that health care and community services are not set up to meet the needs of the large number of people who face a prolonged period of progressive illness and disability before death. Lynn offers what she calls an "owner's manual for the health care system," which lays out facts, concepts, strategies, and action plans for genuine reform and gives the reader new ways to interpret information creatively, imagine innovative possibilities, and take steps to implement them.
Download or read book Advance Care Planning written by Leah Rogne, PhD and published by Springer Publishing Company. This book was released on 2013-07-29 with total page 401 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This is a very substantive book that encompasses the various aspects of advance care planning, both prior to and after a diagnosis of a life-limiting disease. The realistic case studies help readers understand the complexities of decision-making by the individual and the family."--Doody's Medical Reviews While advance directives hold a great deal of promise for ensuring self-determination and quality of life near its end, the majority of Americans face life-threatening illness without having completed effective advance care planning.. This volume recounts the history of advance directives, chronicling the evolution of an approach that initially focused on completing forms, to one that now emphasizes more comprehensive strategies for facilitating conversations about end-of-life care and planning for dying and death. It provides helpful strategies for initiating and guiding discussions among providers, patients, and their loved ones, easing the burdens of uncertainty, and improving the efficacy of surrogate decision making near the end of life. Scholars and practitioners from a variety of disciplines provide a well-rounded view of the history and challenges of advance directives. Authors include palliative care physicians, nurses, social workers, grief counselors, educators, lawyers, psychologists, sociologists, and medical ethicists. The book shares successful strategies on how effective advance care planning can provide smoother transitions at the end of life and ensure better quality of living before death. It incorporates effective multidisciplinary, relationship-based models of advance care planning along with multidisciplinary perspectives to help caregiving professionals initiate conversations and disseminate relevant information to patients and their loved ones and advocates. Case studies illustrate the importance of, challenges with, and prospects for advance directives and advance care planning. The book addresses common barriers to advance care planning and offers ways to overcome them, as well as detailing public health, legal, and comprehensive community planning approaches to change how our current American society deals with dying, death, and end-of-life care. Key Features: Introduces a multidisciplinary, pragmatic approach to advance care planning Addresses strategies to reform advance care planning Presents case studies illustrating the importance, benefits, and challenges of advance directives Features successful initiatives in advance care planning and new directions that shift community practice related to dying, death, and end-of-life care. Includes the contributions of physicians, grief counselors, medical ethicists, social workers, psychologists, medical ethicists, lawyers, nurses, educators, and others
Download or read book Compassionate Communities written by Klaus Wegleitner and published by Routledge. This book was released on 2015-06-26 with total page 257 pages. Available in PDF, EPUB and Kindle. Book excerpt: Compassionate communities are communities that provide assistance for those in need of end of life care, separate from any official heath service provision that may already be available within the community. This idea was developed in 2005 in Allan Kellehear’s seminal volume- Compassionate Cities: Public Health and End of Life Care. In the ensuing ten years the theoretical aspects of the idea have been continually explored, primarily rehearsing academic concerns rather than practical ones. Compassionate Communities: Case Studies from Britain and Europe provides the first major volume describing and examining compassionate community experiments in end of life care from a highly practical perspective. Focusing on community development initiatives and practice challenges, the book offers practitioners and policy makers from the health and social care sectors practical discussions on the strengths and limitations of such initiatives. Furthermore, not limited to providing practice choices the book also offers an important and timely impetus for other practitioners and policy makers to begin thinking about developing their own possible compassionate communities. An essential read for academic, practitioner, and policy audiences in the fields of public health, community development, health social sciences, aged care, bereavement care, and hospice & palliative care, Compassionate Communities is one of only a handful of available books on end of life care that takes a strong health promotion and community development approach.
Download or read book Palliative Care Initiative Advance Care Planning Quality Improvement Pilot written by Wilma Carrier and published by . This book was released on 2017 with total page 49 pages. Available in PDF, EPUB and Kindle. Book excerpt: Background : A long term care facility (LTCF) was instituting a creative care model with an emphasis on palliative care. A lack of advance care planning including completion of advance directives was an identified barrier for the new care model. Code status was considered an advance directive prior to the pilot. -- Method : A mixed method interventional design was used. The social service staff and chaplain were trained in Caring Conversations (Center for Practical Bioethics, n.d.) as a tool to address end of life care with LTCF residents. The number of completed advanced directives were assessed three months pre and post-training via retrospective chart review. The chaplain’s and social services staffs’ knowledge of advance care planning pre and post Caring Conversations educational sessions was assessed via informal surveys. -- Results : This project sought to determine if the initiation of advanced care planning conversations increased the number of completed advance directives for individuals in a LTCF setting after the chaplain and social service staff participated in the Caring Conversations educational intervention. Retrospective chart reviews were conducted on 125 residents, over 50% of whom were females over the age of 80 who had been living in the facility 3 or more years. There was a significant increase (30%, p
Download or read book The Challenges and Opportunities of Advance Care Planning written by National Academies of Sciences Engineering and Medicine and published by . This book was released on 2022-01-20 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Advance Care Planning(ACP)has long been a staple of caring for people with serious illness. Over its history, it has been defined in different ways. Clinicians, researchers, patients, and the public have developed a variety of perspectives about the many aspects of ACP, ranging from the definition to the timing, goals, outcomes, and value of ACP. To better understand the challenges and opportunities for ACP, acknowledge and highlight divergent viewpoints, and examine what is empirically known and not known about ACP and its outcomes, the National Academies of Sciences, Engineering, and Medicine's Roundtable on Quality Care for People with Serious Illness hosted a virtual public workshop, Advance Care Planning: Challenges and Opportunities, on October 26 and November 2, 2020. The workshop explored the paradox of ACP, its evidence base, ways to think differently about ACP, and various approaches to making it more effective.This Proceedings of a Workshop summarizes the presentations and discussions from that workshop.
Download or read book Approaching Death written by Committee on Care at the End of Life and published by National Academies Press. This book was released on 1997-10-30 with total page 457 pages. Available in PDF, EPUB and Kindle. Book excerpt: When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."
Download or read book Advance Care Planning in End of Life Care written by Keri Thomas and published by Oxford University Press, USA. This book was released on 2011 with total page 325 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is the first UK-based guide to Advance Care Planning, and provides practical advice on how this can be implemented by all professionals involved in end of life care, including GPs and specialists outside palliative care who are increasingly treating patients at the end of life.
Download or read book The Conversation written by Angelo E. Volandes and published by Bloomsbury Publishing USA. This book was released on 2015-01-13 with total page 241 pages. Available in PDF, EPUB and Kindle. Book excerpt: "There is an unspoken dark side of American medicine--keeping patients alive at all costs. Two thirds of Americans die in healthcare institutions tethered to machines and tubes, even though research indicates that most prefer to die at home in comfort, surrounded by loved ones. The question How do you want to live? must be posed to the seriously ill because they deserve to choose. If doctors explain options--including the choice to forego countless medical interventions that are often of little benefit--then patients can tell doctors how they wish to spend the remainder of their lives. A doctor's heroic efforts to prolong a life can instead prolong that patient's death, and these traumatic measures also bankrupt the healthcare system. One third of the Medicare budget is spent on the last six months of life, often on technological interventions that are not helpful and inflict more suffering. Through the stories of six patients and six very different end-of-life experiences, Volandes explores the trajectory of events and treatments that occur with and without this essential conversation. He argues for a radical re-envisioning of the patient-doctor relationship--including videos to spark discussions--and offers ways for patients and their families to talk about this difficult issue to ensure that patients will be at the center and in charge of their medical care"--Provided by publisher.
Download or read book Advance Planning for Quality Care at End of Life written by and published by . This book was released on 2014 with total page 4 pages. Available in PDF, EPUB and Kindle. Book excerpt: NSW patients and families are being better supported in making decisions about how they want to spend their final days. A new action plan means that patients and their treating clinicians have access to improved information on end of life decisions and the law. Patients will also be supported in having sensitive conversations with their families and carers about their wishes. Collaboration across government agencies and between government and non- government services will mean that patients access more consistent advice, care and support. Online resources, improved training and the implementation of new policies and guidance for health professionals are key features of the plan.
Download or read book When Children Die written by Institute of Medicine and published by National Academies Press. This book was released on 2003-02-09 with total page 713 pages. Available in PDF, EPUB and Kindle. Book excerpt: The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.
Download or read book Health Promoting Palliative Care written by Allan Kellehear and published by Oxford University Press, USA. This book was released on 1999 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Health promotion has traditionally focused on illness prevention, targeting the fit and well. But what about those who live with life-threatening or terminal illness? Health -Promoting Palliative Care proposes a model of care that goes beyond simply providing care in the final stages of lifeand draws on critical and participatory principles from both palliative care and health promotion. Emphasising early intervention and a social approach to the problems and experiences of dying, it encourages service providers, family members, and the dying themselves to seek ways to promoteemotional, social, and spiritual well-being, as well as physical health. The book begins by looking at the ways in which health promotion can be introduced to palliative care. It goes on to outline the goals and practice principles of a health promoting palliative care. Later chapters addresspractice strategies relevant to health and death education, social supports, interpersonal reorientation, and environmental and policy development. Health Promoting Palliative Care is a valuable, practical, and accessible resource for practitioners working alone or in health care institutions, forstudents of the health sciences, social work, or pastoral care, and for those working in policy areas.
Download or read book Living Well at the End of Life written by Joanne Lynn and published by RAND Corporation. This book was released on 2003 with total page 32 pages. Available in PDF, EPUB and Kindle. Book excerpt: Self-care deficits and a slowly dwindling course to death, which usually results from frailty or dementia. Effective and reliable care for persons coming to the end of life will require changes in the organization and financing of care to match these trajectories, as well as compassionate and skillful clinicians. (Available from the publisher or libraries holding the journal.).
