Download or read book Ehlers Danlos Syndrome A Multidisciplinary Approach written by J.W.G. Jacobs and published by IOS Press. This book was released on 2018-08-14 with total page 370 pages. Available in PDF, EPUB and Kindle. Book excerpt: Generalized hypermobility has been known since ancient times, and a clinical description of Ehlers-Danlos syndrome (EDS) is said to have first been recorded by Hippocrates in 400 BC. Hypermobility syndromes occur frequently, but the wide spectrum of possible symptoms, coupled with a relative lack of awareness and recognition, are the reason that they are frequently not recognized, or remain undiagnosed. This book is an international, multidisciplinary guide to hypermobility syndromes, and EDS in particular. It aims to create better awareness of hypermobility syndromes among health professionals, including medical specialists, and to be a guide to the management of such syndromes for patients and practitioners. It is intended for use in daily clinical practice rather than as a reference book for research or the latest developments, and has been written to be understandable for any healthcare worker or educated patient without compromise to the scientific content. The book is organized as follows: chapters on classifications and genetics are followed by chapters on individual types, organ (system) manifestations and complications, and finally ethics and therapeutic strategies, with an appendix on surgery and the precautions which should attend it. A special effort has been made to take account of the perspective of the patient; two of the editors have EDS. The book will be of interest to patients with hypermobility syndromes and their families, as well as to all those healthcare practitioners who may encounter such syndromes in the course of their work.
Download or read book A Multidisciplinary Approach to Managing Ehlers Danlos Type III Hypermobility Syndrome written by Isobel Knight and published by Singing Dragon. This book was released on 2013-03-28 with total page 364 pages. Available in PDF, EPUB and Kindle. Book excerpt: The complex effects of Ehlers-Danlos Syndrome (Type 3, Hypermobility), or EDSIII, on a patient's physical and mental wellbeing are extremely challenging for everyone involved, requiring a multidisciplinary care team and enormous dedication from the patient. This book presents an overview of what it means to be a chronic complex patient, examining the wide range of physiological and psychological implications associated with EDSIII and other conditions such as endometriosis and fibromyalgia. It explores the exercise and rehabilitation work involved in managing the condition effectively, considering a diverse range of medical treatments and complementary approaches including physiotherapy, Bowen Technique and Feldenkrais Method(R). There are contributions and insights throughout from experts in the fields of physiotherapy, rheumatology and health psychology, all of whom have extensive experience of working with complex chronic patients. The author links her own symptoms and experiences to those of other EDSIII patients and discusses how she has been able to reach a point where she can successfully manage the condition. This book will be essential reading for professionals working with EDSIII and other complex conditions including medical professionals, physiotherapists, occupational therapists, psychologists, counsellors and complementary therapists, and will be of interest to patients with EDSIII wanting to learn more about effective management of the condition.
Download or read book A Guide to Living with Ehlers Danlos Syndrome Hypermobility Type written by Isobel Knight and published by Singing Dragon. This book was released on 2014-12-21 with total page 314 pages. Available in PDF, EPUB and Kindle. Book excerpt: Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists. New material includes: changes in terminology information on how osteopathy and nutrition can help psychological approaches beyond CBT how to deal with professionals what to expect from support groups and rehabilitation programmes This new edition will be a must for anybody who suffers, or suspects they might be suffering from, Ehlers-Danlos Syndrome (Hypermobility Type) and provides everything needed to enjoy a fulfilling life with this complex condition. It will also be of interest to their families and friends, and professionals working with Hypermobility Type EDS.
Download or read book A Guide to Living with Hypermobility Syndrome written by Isobel Knight and published by Singing Dragon. This book was released on 2011 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt: People with Hypermobility Syndrome (HMS), including Ehlers-Danlos type Hypermobility Syndrome, have a larger range of joint movement than is typical, which can cause pain and fatigue despite an outward appearance of good health. This book is the complete guide to living with and managing HMS, and ultimately enjoying a fulfilling life. The book covers everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis and managing its negative effects. The author, who has HMS herself, looks at how the condition affects children and adolescents, before moving on to explore pain management (including the use of physiotherapy, pilates and a selected range of complementary health therapies), pregnancy, physical and psychological aspects of the condition, and how it widely affects dancers and other performance artists. Wider conditions that encompass Hypermobility Syndrome are also touched upon, including Fibromyalgia and IBS. This book will be a must for anybody who suffers, or suspects they might be suffering from, Hypermobility Syndrome. It will also be of interest to their families and friends, and professionals working with the condition.
Download or read book The Ehlers Danlos Syndrome written by Peter Beighton and published by . This book was released on 1970 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ehlers-Danlos Syndrom.
Download or read book Hypermobility Fibromyalgia and Chronic Pain E Book written by Alan J Hakim and published by Elsevier Health Sciences. This book was released on 2010-09-15 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: This groundbreaking new text explains and documents the scientific basis of chronic pain in Joint Hypermobility Syndrome (JHS) and other heritable disorders of connective tissue from the physiological, epidemiological, genetic and clinical viewpoints. It asks the reader to consider the possibility of JHS, identify it clinically, understand its co-morbidities, including interdependencies with Fibromyalgia and Chronic Fatigue Syndrome, while managing the condition appropriately. Hypermobility, Fibromyalgia and Chronic Pain takes a multi-specialty and multidisciplinary approach to understanding JHS and its management, drawing together expertise from a broad group of internationally-recognized authors. The book is split into two sections. Section 1 deals with the clinical manifestations of JHS and Fibromyalgia, their epidemiology and pathophysiology. Section 2 covers clinical management. Here the reader will find chapters covering pharmacotherapeutics, psychotherapy and physical therapies that address the needs of patients from childhood to adulthood. It is hoped that Hypermobility, Fibromyalgia and Chronic Pain will advance knowledge of therapies and provoke further research while stimulating interest and encouraging debate. Comprehensively relates practical therapy to the nature of the underlying pathology Covers in one single text both the scientific and practical management aspect of Joint Hypermobility Syndrome and its allied pathologies Contributions from over 30 leading international experts Multidisciplinary approach will support all health professionals working in this field
Download or read book Issues and Management of Joint Hypermobility written by Brad T. Tinkle and published by Left Paw Press, LLC. This book was released on 2008 with total page 144 pages. Available in PDF, EPUB and Kindle. Book excerpt: A leading expert in connective tissue disorders presents a primer to encourage dialogue between patients and their health care providers in order to create an individualized treatment plan addressing the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobile Syndrome.
Download or read book Hypermobility of Joints written by Rodney Grahame and published by Springer Science & Business Media. This book was released on 2013-03-14 with total page 281 pages. Available in PDF, EPUB and Kindle. Book excerpt: Joint hypermobility, joint laxity or "double-jointedness" is no longer regarded as just a quaint clinical entity, but has gained recognition as a feature common to a heterogeneous group of generalized hereditary connective tissue disorders. This monograph examines the scientific basis, clinical features and treatment of this syndrome. The second edition has been thoroughly updated, with new contributions to cover in depth three areas in which new scientific advances have been made: biochemistry, genetics, and biomechanics. The case histories make fascinating reading, and the comprehensive coverage of the rarer hereditary disorders provides a valuable reference. From the reviews of the first edition: "This little book deals with a somewhat neglected subject and will prove useful in a number of ways." British Journal of Plastic Surgery #1 "This is a delightful book full of stimulating ideas, by three authors who have pooled their thoughts and the results of their studies." Journal of the Royal Society of Medicine #2
Download or read book Joint Hypermobility Handbook written by Brad T. Tinkle and published by Wiley-Blackwell. This book was released on 2010 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: As a followup to his previous best-selling book, "Issues and Management of Joint Hypermobility: A Guide for the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome," Dr. Tinkle has created this handbook with several contributors to expand insights into the understanding and management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome. Dr. Tinkle has received many accolades for his ability to take a complex condition and make it understandable in everyday language: "...provides a wealth of information about the natural history, and physical and medical management... It should be of great value to patients." - The American Journal of Medical Genetics Reader comments... "...a useful tool in helping me obtain the type of care I need to manage my disorder..." "This book is simple but not oversimplified. It is an excellent basic resource, giving a clear, concise, and useful overview for those (like myself) who live with hypermobility." "Super book for EDS! Finally a book that everyone can understand." "...thoroughly explores the problems associated with EDS-HM. It is a relief to realize that it is not just me..." "...a tremendous service for the health care community and the families and friends of those diagnosed or not yet formally diagnosed folks with EDS-HM... joy and clarity in reading the very 'easy to read' text chapters detailing out the impact of EDS-HM..." In addition to the weatlth of positive reviews, Dr. Tinkle's previous book on the same subject was a best seller in several categories: - Genetics - Medical Genetics - Orthopedics - Family and General Practice Brad T. Tinkle, M.D., Ph.D., is a clinical and clinical molecular geneticist at Cincinnati Children's Hospital Medical Center (CCHMC). He specializes in caring for individuals with heritable connective tissue disorders such as Ehlers-Danlos syndromes, Marfan syndrome, osteogenesis imperfecta, and achondroplasia among the many.
Download or read book Chinese Medicine and the Management of Hypermobile Ehlers Danlos Syndrome written by Paula Bruno and published by Singing Dragon. This book was released on 2023-09-21 with total page 290 pages. Available in PDF, EPUB and Kindle. Book excerpt: Hypermobility syndromes are more common, complex and varied than most practitioners realise. Every hypermobile patient is unique, and therefore challenging to treat using a pre-set paradigm or protocol. The hEDS population can be underserved by Western medicine and there is much that Chinese medicine can do for this community. This book is one of the first of its kind - a Chinese Medicine text focusing specifically on hypermobile Ehlers-Danlos Syndrome. Presenting existing bio-medical narratives before providing an in-depth exploration of the Chinese Medicine paradigms, this guide gives an overview of comprehensive treatment scenarios and addresses issues faced by EDS patients including pain management, psycho-emotional challenges, disruption of gut health, and chronic inflammation, including post-Lyme syndrome.
Download or read book Hypermobility Without Tears written by Jeannie Di Bon and published by Independently Published. This book was released on 2019-05-09 with total page 144 pages. Available in PDF, EPUB and Kindle. Book excerpt: Hypermobility Without Tears is a step-by-step guide to help people with hypermobility and Ehler-Danlos Syndrome (EDS) learn how to move pain-free and effortlessly. A movement therapist and hypermobility specialist with over a decade of education, research, client practice and Pilates teaching, Jeannie is an expert in the field of movement. Her own experience of hypermobile EDS, leaves her uniquely qualified to guide people with hypermobility and EDS back to movement and a 'no pain, no strain' lifestyle. Having suffered through years of misdiagnosis and pain, Jeannie truly understands the 'hypermobile body' and her book offers empathetic guidance on how to listen to the body and learn to move without pain. Hypermobility Without Tears is arranged into six sections based on Jeannie's key principles of pain-free movement for the hypermobile body: breath, relaxation, proprioception, stability, balance and posture.
Download or read book The Trifecta Passport Tools for Mast Cell Activation Syndrome Postural Orthostatic Tachycardia Syndrome and Ehlers Danlos Syndrome written by Amber Walker and published by Amber Walker. This book was released on 2021-01-27 with total page 503 pages. Available in PDF, EPUB and Kindle. Book excerpt: The “trifecta” refers to three conditions that commonly occur together: mast cell activation syndrome (MCAS), postural orthostatic tachycardia syndrome (POTS) and the hypermobile type of Ehlers-Danlos syndrome (hEDS). These three conditions are gradually becoming more recognized in the mainstream medical world as more and more patients find themselves struggling with debilitating and often mysterious symptoms. However, recognizing these conditions is only the first step on the healing journey. With the right approach and toolbox, patients can reverse many of these symptoms to find lasting vitality. Written by a Doctor of Physical Therapy who has additional certifications in functional medicine and nutrition and extensive experience in working with these conditions, this book serves as patient guide that empowers individuals to put all of the puzzle pieces together as part of an individualized healing plan. Part One (3 chapters) is an overview of the three trifecta conditions, and Part Two (9 chapters) outlines the important pillars of an essential plan to address any (or all) of these conditions holistically. The book wraps up with a chapter of patient case stories. Accompanying the purchase of this book is access to a free 20-page PDF document that serves as a customizable workbook for readers to use as they read along. The Trifecta Passport dives into topics such as nervous system regulation, mold and other biotoxins, nutrition, exercise, detoxification, mental/emotional health and trauma, structural/musculoskeletal issues and the many underlying root issues (related to hormones, bacterial/viral load, gut health, etc.) that can trigger or exacerbate these conditions. This resource unpacks many different tools and practical treatment options that should be on the radar of patients living with these (and other) chronic conditions. When faced with these labels, it can be overwhelming to weed through all the resources out there to figure out how to move forward with a comprehensive and personalized road map. By helping readers put it all together in an organized manner, this book is a great resource for any patient with chronic illness as well as the caregivers and doctors who support them.
Download or read book Postural Tachycardia Syndrome written by Nicholas Gall and published by Springer Nature. This book was released on 2020-10-21 with total page 316 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book describes the varying clinical manifestations of postural tachycardia syndrome (PoTS) and provides a robust yet practical set of clinical tools for those managing patients suffering with this syndrome. Guidance is provided by a range of disciplines relevant to PoTS including general and specialist assessments, associated conditions, diagnostic considerations, therapy and service models. Postural Tachycardia Syndrome: A Concise and Practical Guide to Management and Associated Conditions presents the scientific background and practical information for the busy medical professional, illustrating key features with care-based materials to help them manage this condition, which can be a challenge for patients and clinicians alike.
Download or read book Gout written by Rodney Grahame and published by Class Publishing Ltd. This book was released on 2003 with total page 169 pages. Available in PDF, EPUB and Kindle. Book excerpt: Practical advice on dealing with the condition.
Download or read book Atlas of Genodermatoses written by Ruggero Caputo and published by CRC Press. This book was released on 2005-12-12 with total page 448 pages. Available in PDF, EPUB and Kindle. Book excerpt: A lavishly illustrated guide to almost 200 inherited diseases of the skin, hair, and nails. Each entry includes synonyms, age of onset, clinical findings, complications, course, laboratory findings, diagnosis, therapy, and key references, adding up to far more than just a collection of photographs. In addition to being a clinical primer, this is also a work of scientific research and contains the first printed description of two new syndromes. The fast-moving world of genetic research means that the latest genetic correlations, included here, render previous texts out of date. All specialists in Dermatology and Pediatrics should find this an invaluable front-line resource in the clinic.
Download or read book Mast Cells United A Holistic Approach to Mast Cell Activation Syndrome written by Amber Walker and published by Amber Walker. This book was released on 2019-03-16 with total page 542 pages. Available in PDF, EPUB and Kindle. Book excerpt: At 542 pages and referencing over 1200 academic articles, this book is the longest and most thorough resource on mast cell activation syndrome (MCAS) to date. Allergies and anaphylaxis are on the rise, alongside gastrointestinal problems, skin issues, fatigue, orthopedic pain, neurological symptoms, and just about everything in between. Patients are coming out of the woodwork with chronic, debilitating, often invisible illness. Recent research estimates that 14%-17% of the population may have mast cell activation disease. Much of the medical community has never heard of the condition, and existing mainstream treatment tends to focus predominantly on pharmacological management. However, once a patient has reached a stable baseline, there are a number of other individualized approaches that can guide patients to successfully address the underlying root issues. This book includes: 1) an in-depth overview of mast cell activation disease, with a focus on mast cell activation syndrome (MCAS); 2) a patient story describing life with MCAS; 3) a detailed literature review and current hypotheses for disease origins; 4) a practical guide of clinical considerations for diagnosis; 5) a chapter devoted to comorbid conditions, including Ehlers-Danlos syndrome, POTS, Lyme disease and much more; 6) several chapters devoted to mainstream and natural treatment options, dietary considerations, and strategies for holistic healing; 7) content from dozens of interviews with prominent MCAS experts, including specialists in allergy/immunology, hematology, functional medicine, naturopathy, psychology, nutrition, gastroenterology, physical therapy, clinical research, and more! Whether a patient, medical practitioner, or family member/friend, this book empowers readers and provides patients with concrete steps to move forward in the diagnosis and comprehensive treatment of mast cell activation syndrome.
Download or read book Progress in Heritable Soft Connective Tissue Diseases written by Jaroslava Halper and published by Springer Science & Business Media. This book was released on 2014-01-18 with total page 246 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume is a reference handbook focusing on diseases like Marfan syndrome, Ehlers-Danlos syndrome, Loeys-Dietz syndrome and other heritable soft connective tissue diseases. The book presents detailed information for both basic scientists and for clinicians seeing patients. It is also a stepping stone for new investigations and studies that goes beyond the facts about the composition and biochemistry of the connective tissue and extracellular matrix, as the authors connect individual components to specific aspects of various soft tissue disorders and to the actual or potential treatment of them. Progress in Heritable Soft Connective Tissue Diseases features very prominent physicians and scientists as contributors who bring their most recent discoveries to the benefit of readers. Their expertise will help clinicians with proper diagnosis of sometimes elusive and uncommon heritable diseases of soft connective tissues. This book also offers an update on the pathophysiology of these diseases, including an emphasis on unifying aspects such as connections between embryonic development of the different types of connective tissues and systems, and the role of TGF-beta in development and physiology of soft tissues. This new set of data explains, at least in part, why many of these disorders are interconnected, though the primary pathophysiological events, such as gene mutations, may be different for each disorder.
