Download or read book Journey Through Alzheimer s written by Rick M Gardner Ph D and published by Independently Published. This book was released on 2020-02-04 with total page 360 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this deeply moving chronicle of love and loss, cognitive psychologist Rick Gardner recounts his journey alongside his wife, Betty Ann, as she progresses through dementia and eventually Alzheimer's disease. Part love letter to his wife of 50 years, and part science narrative, Journey through Alzheimer's conveys in vivid detail Betty Ann's descent from her first understated symptoms to her subsequent cognitive decline. Gardner describes what happens in the brain when dementia occurs, including the deterioration of the five senses on cognitive functioning, and the effects aging plays in the process. The book is the only first-person account of decline of thinking and cognition into Alzheimer's written by a cognitive psychologist, and readers will appreciate the clarity of Gardner's insights, as well as his compassion and candor. This book will be especially helpful, as well as cathartic, to family and caregivers of those with Alzheimer's, although it is Gardner's tender portrayal of his commitment to the brilliant, vivacious Betty Ann that will remain with readers long after the final page is turned.
Download or read book Before My Eyes written by Diane Currie and published by iUniverse. This book was released on 2010-03 with total page 90 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Imagine the heart-wrenching devastation that is experienced by a family when a parent is diagnosed with Alzheimer's disease! Author Diane Currie shares her candid and personal reflections about her mother's struggle with this disease as she copes with the reality of the present but always honors the memory of her past. Through a series of moving vignettes, she remains connected with her mother in a creative way as the strong bond between them slowly dissolves as the disease progresses. From the first moment of her mother's diagnosis, Currie conveys in a captivating manner the intense feelings of loss and hopelessness one experiences when dealing with this dreadful disease. She is able to protray the subtle changes in her mother's behavior and personality throughout her decline, all in a deeply human way. While Before My Eyes describes one family's touching and painful journey, in essence Currie's reflective account may typify the Alzheimer's experience, while offering support and validation to all those who walk its arduous path"--Page 4 of cover.
Download or read book Five Minutes of Amazing written by Chris Graham and published by Sphere. This book was released on 2016-09-22 with total page 204 pages. Available in PDF, EPUB and Kindle. Book excerpt: This story poses a profound question - do we accept the hand that fate deals us, or do we battle to make the most of the life we have and help others in the process? Chris Graham, just 38 years old but already facing the advanced stages of Alzheimer's disease, has emphatically chosen the latter. Having lived through a troubled childhood, Chris joined the British Army at a young age and found that the life of a soldier provided him with a much-needed sense of stability. However, his world was turned upside down when, at just 34 years of age, he was diagnosed with a form of early onset dementia. This brutal disease had already claimed the life of his father at 42, along with several other members of his family, and tragically had already confined his brother to a nursing home at the age of 43. In his brother's life, Chris could see a terrifying window into his own near future. Chris, though, is an extraordinary human being. Having been handed nothing less than a death sentence, he decided overnight to stand up to this horrendous disease and do something to leave his mark before it was too late. And so it was that last year, Chris embarked on an awareness-raising 16,000-mile solo cycle around North America, armed only with his bike, a sense of humour, and some good old-fashioned British grit. Leaving his ever-supportive wife Vicky and baby son Dexter at home, he took on huge challenges - for instance, the fear that the ability to discern left from right might leave him at any point while navigating an entire continent - and made it home in time for Christmas, determined to spending however long he has left pouring his love and attention into his family life. Five Minutes of Amazing is both the story of Chris' epic journey and of his fight against the disease increasingly being recognised as the defining disease of our generation. Inspiring and heart-rending in equal measure, it's as important as it is moving, and it will touch everyone who reads it.
Download or read book A Journey Through Dementia Alzheimer s Disease written by Geraldine McCall and published by Strategic Book Publishing. This book was released on 2013-03 with total page 283 pages. Available in PDF, EPUB and Kindle. Book excerpt: Nora Scruggs McCall was a deeply religious woman, who never lost her faith that God was always in control, and that everything would work out, as it should. Even as her dementia progressed, she continued working as a volunteer grandmother. She also continued attending church services at Mount Calvary Baptist Church every weeknight and on Sundays. As Nora goes into decline, the task of taking care of her falls to her second eldest daughter Gerry. With power of attorney, Gerry must try and unite her siblings John, Jessie, Jeannie, and Carolyn, in agreeing how to handle their mother's declining health, and eventually how to settle her estate. A Journey Through Dementia/Alzheimer's Disease is Gerry's story as she struggles to take care of her mother and resolve her divided family's conflicts. It is a story that will undoubtedly resonate with anyone who has cared for a family member suffering from Alzheimer's or Dementia.
Download or read book Journey Through Alzheimer s written by B. Geraldine Meggait and published by Trafford Publishing. This book was released on 2005-01-12 with total page 119 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caregivers would benefit from this read. This is a moving, inspirational personal journey into Alzheimers disease. Gerry has incorporated many techniques with a gentle loving approach to address complications arising from crippling disease. Her diary excerpts are real and honest. This book is not only emotional, truthful and educational; it expresses the bond and undying love between mother and daugher. Caregivers must read it. It is a powerful book. Twyla R. Proud. R.N. From the author: My title refers to the journey Mother and I took into the world of Alzheimers. As I listen to others talk about their experiences, they also refer to it as a journey. In many ways that word accurately describes the experience. When you start out on a journey, you often meet many obstaclestwists and turns in the roadmany joyful and some not so happy events occur. Much the same happens when you care for someone with Alzheimers. The road ahead is unknownsometimes scary with many bumps, twists and turns, and sometimes precious and breathtakingly wonderful. I hope somehow that because of this book your experience may be less scary and much more precious.
Download or read book The Busy Caregiver s Guide to Advanced Alzheimer Disease written by Jennifer R. Stelter and published by JHU Press. This book was released on 2021-10-19 with total page 193 pages. Available in PDF, EPUB and Kindle. Book excerpt: "The Dementia Connection Model is a recipe to connect families in a way that produces positive interactions and preserves their loved one's level of functioning for as long as possible. The model brings together three concepts in dementia care of what is happening to the person with Alzheimer disease and, more importantly, why these things are happening as the person's condition progresses and how to intervene successfully"--
Download or read book The Emotional Journey of the Alzheimer s Family written by Robert B. Santulli, MD and published by Dartmouth College Press. This book was released on 2015-03-22 with total page 231 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer's disease is a growing public health crisis. According to the Alzheimer's Association, there are 5.4 million victims of this disease; by 2050, there will be close to 15 million people who suffer from this debilitating disorder of memory, thinking, personality, and functioning. The disease profoundly affects immediate family members, close friends, and neighbors. These people - the Alzheimer's family - undergo tremendous psychological and emotional change as they witness the cruel and relentless progression of the disease in their loved one. Incorporating over thirty years of experience with Alzheimer's patients and their families with current medical knowledge, the authors chart the complex emotional journey of the Alzheimer's family from the onset of the disease through the death of the loved one. They discuss the anger that rises in the face of discordant views of the disease, the defenses that emerge when family members are unwilling to accept a dementia diagnosis, and the common emotions of anxiety, guilt, anger, and shame. They focus especially on grief as the core response to losing a loved one to dementia, and describe the difficult processes of adaptation and acceptance, which lead to personal growth. Final chapters emphasize the importance of establishing a care community and how to understand and cope with personal stress. This volume will be useful to medical professionals and ordinary people close to or caring for a person with dementia.
Download or read book Forgetting the Memories written by Steinberg and published by AuthorHouse. This book was released on 2010 with total page 122 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer's is a devastating disease, robbing its victims of so much of themselves before the end. For caregivers facing this disease, a diagnosis of Alzheimer's disease can sound like the ultimate tragedy, the disease that will rob us of our loved one by inches. It doesn't have to be. While Alzheimer's and related dementias are serious and not easily understood diseases, a new guide can help families negotiate the difficult scientific, emotional, and practical issues of dealing with the disease. In a moving and easy to read format, Dr. Steinberg has laid out a true caregiver's guide to dealing with Alzheimer's disease, from the first signs to the final stages. Incorporating science, real-life case studies from his practice and from his extensive experience as a nationally recognized seminar speaker, as well as from his personal journey coping with his mother's illness, Dr. Steinberg leads the reader through a learning and healing process. In a candid and personal sharing of his experience, Dr. Steinberg helps the reader clearly understand what to expect, when to ask for help, how to cope with the changes and the inevitable pressures within the family, and how to continue to love as a loved one's disease threatens family stability and well-being. With his profound knowledge of the disease, its treatment and manifestations, and his great love and tenderness as the son of an Alzheimer's patient, Dr. Steinberg has created a truly memorable work.
Download or read book Ten Thousand Joys Ten Thousand Sorrows written by Olivia Ames Hoblitzelle and published by Penguin. This book was released on 2010-09-30 with total page 354 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Ten Thousand Sorrows & Ten Thousand Joys offers a vision of lives well-led, and of love in the thick of crisis and loss. Beyond inspiring."-Daniel Goleman, author of Emotional Intelligence "This beautiful book is unlike any other personal account of living with Alzheimer's disease that I have ever read . . . it offers patients and families practical insights into how they can live their lives more fully amidst the heartbreak of a mind-robbing illness."- Paul Raia, Director of Patient Care and Family Support, Alzheimer's Association, Massachusetts Chapter "A story of courage, love, and growing wisdom in the face of Alzheimer's."-Joseph Goldstein, author of One Dharma, Founder / Director of Insight Meditation Society In this profound and courageous memoir, Olivia Ames Hoblitzelle describes how her husband's Alzheimer's diagnosis at the age of seventy-two challenged them to live the spiritual teachings they had embraced during the course of their life together. Following a midlife career shift, Harrison Hobliztelle, or Hob as he was called, a former professor of comparative literature at Barnard, Columbia, and Brandeis University, became a family therapist and was ordained a Dharmacharya (senior teacher) by Thich Nhat Hanh. Hob comes to life in these pages as an incredibly funny and brilliant man who never stopped enjoying a good philosophical conversation-even as his mind, quite literally, slipped away from him. And yet when they first heard the diagnosis, Olivia and Hob's initial reaction was to cling desperately to the life they had had. But everything had changed, and they knew that the only answer was to greet this last phase of Hob's life consciously and lovingly. Ten Thousand Joys & Ten Thousand Sorrows provides a wise and compassionate vision for maintaining hope and grace in the face of life's greatest challenges. (This memoir was originally self-published as The Majesty of Your Loving.)
Download or read book The 36 Hour Day written by Nancy L. Mace and published by JHU Press. This book was released on 2021-08-10 with total page 361 pages. Available in PDF, EPUB and Kindle. Book excerpt: The 36-Hour Day is the definitive dementia care guide.
Download or read book Unforgettable Journey written by Anne P. Hill and published by iUniverse. This book was released on 2010-07-29 with total page 117 pages. Available in PDF, EPUB and Kindle. Book excerpt: "There are many books written about Alzheimer's disease. The concise nature and easy readability of this book will make it an effective tool for family members with a parent who has dementia. The upbeat nature and 'Tips' section at the end of each chapter helps the book read in much the same way that a supportive conversation with a friend would be to the reader. I heartily recommend this book to the adult children of my patients with Alzheimer's disease."-Kevin R. Smith, MD, assistant professor of psychiatry, director of Geriatric Psychiatry Clinic, Oregon Health & Sciences University, Portland For adult children of parents struggling with Alzheimer's disease, finding useful tips and suggestions for dealing with everyday challenges can be difficult. "Unforgettable Journey: Tips to Survive Your Parent's Alzheimer's Disease" provides an easy-to-read, concise compellation of author Anne P. Hill's experiences coping with her mother's illness. Hill details the specific methods she used to understand and manage the daily trials of caring for her mother. Broken down into small chapters, Hill focuses on each step of the Alzheimer's journey and offers a compassionate, intimate, and insightful glimpse into the life of those who suffer from Alzheimer's-both patient and caretaker. ------ Illustrations by Jane Zwinger An audio book of Unforgettable Journey: Tips to Survive Your Parents Alzheimers Disease is available from the author at http://www.luminsong.com/unforgettable/>
Download or read book H O P E for the Alzheimer s Journey written by Carol B. Amos and published by Morgan James Publishing. This book was released on 2018-06-03 with total page 149 pages. Available in PDF, EPUB and Kindle. Book excerpt: “A useful, step-by-step guide for anyone new to caring for those with Alzheimer’s.” —Library Journal H.O.P.E. for the Alzheimer’s Journey equips Alzheimer’s caregivers with knowledge, tools, and advice for their difficult road ahead. Author Carol B. Amos incorporates her own experience—including her family’s email correspondence illustrating how they coped during this particular challenge. Amos also introduces The Caregiving Principle™: a simple approach that provides a deeper understanding of a person with Alzheimer’s disease and a framework for the caregiver’s role. She provides examples of how The Caregiving Principle™ helped her connect with her mother. H.O.P.E. for the Alzheimer’s Journey encourages caregivers to take care for themselves and provides inspiration for a less stressful, more rewarding journey.
Download or read book How Not to Study a Disease written by Karl Herrup and published by MIT Press. This book was released on 2023-03-07 with total page 269 pages. Available in PDF, EPUB and Kindle. Book excerpt: An authority on Alzheimer's disease offers a history of past failures and a roadmap that points us in a new direction in our journey to a cure. For decades, some of our best and brightest medical scientists have dedicated themselves to finding a cure for Alzheimer's disease. What happened? Where is the cure? The biggest breakthroughs occurred twenty-five years ago, with little progress since. In How Not to Study a Disease, neurobiologist Karl Herrup explains why the Alzheimer's discoveries of the 1990s didn't bear fruit and maps a direction for future research. Herrup describes the research, explains what's taking so long, and offers an approach for resetting future research. Herrup offers a unique insider's perspective, describing the red flags that science ignored in the rush to find a cure. He is unsparing in calling out the stubbornness, greed, and bad advice that has hamstrung the field, but his final message is a largely optimistic one. Herrup presents a new and sweeping vision of the field that includes a redefinition of the disease and a fresh conceptualization of aging and dementia that asks us to imagine the brain as a series of interconnected "neighborhoods." He calls for changes in virtually every aspect of the Alzheimer's disease research effort, from the drug development process, to the mechanisms of support for basic research, to the often-overlooked role of the scientific media, and more. With How Not to Study a Disease, Herrup provides a roadmap that points us in a new direction in our journey to a cure for Alzheimer's.
Download or read book LIVING WITH ALZHEIMER S DISEASE ONE COUPLE S JOURNEY written by Frances Siegel and published by Lulu.com. This book was released on 2013-02-01 with total page 86 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a guidepost for caregivers and families of Alzheimer's patients, an objective but emotion-filled assessment of how to handle life when the one you love the most begins gradually to lose memories and reason, and medical science cannot restore what is lost or offer any cure. The focus is the case of a prominent scholar with dementia and the impact of the illness on his marriage of 40 years. Frances Siegel kept track of her husband's symptoms, the behaviors that showed a slow but accelerating loss of cognitive function. The author offers her journey of adaptation and adjustment to the changes in their lives. Compassion and love alone become the guides of her existence as she grows in understanding. Readers will be moved and guided by her experiences. The foreword is by the Co-Director of the Neuropsychiatric and Memory Group of Johns Hopkins Hospital.
Download or read book The Majesty of Your Loving written by Olivia Ames Hoblitzelle and published by The Majesty of Your Loving. This book was released on 2008 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Olivia and Hob received his diagnosis of Alzheimer's, the enormity of that prospect propelled them to make a pact with one another: they would navigate the illness - consciously and lovingly - to the end.The Majesty of Your Loving: A Couple's Journey Through Alzheimer'sis their courageous story. Given this couple's rich background in psychology, Buddhist meditation, and the wisdom traditions, they were able to handle the pain and promise of the illness with unusual thoughtfulness. The author not only writes about the inspirations and spiritual perspectives that sustained them, but gives an intimate account of how they faced loss, crisis, and eventually death. This book has a distinctively positive and uplifting tone, revealing that ultimately their experience was about growing in wisdom and deepening in love. An indispensable guide for anyone dealing with loss, each chapter includes a self-help section with reflections, suggestions, and seed thoughts. This memoir, unique for the its inclusive spiritual orientation, provides both hope and practical approaches to anyone dealing with mental loss or diminishment of any kind.
Download or read book Where Two Worlds Touch written by Jade C. Angelica and published by Unitarian Universalist Association of Congregations. This book was released on 2014 with total page 362 pages. Available in PDF, EPUB and Kindle. Book excerpt: Jade Angelica shares the wisdom and hope she gleaned from caring for her mother and from many years working closely with Alzheimer's patients and caregivers. Challenging the predominant belief that people with Alzheimer's no longer have purpose, potential, or the capacity for meaningful relationship, Where Two Worlds Touch is both a spiritual memoir and a pastoral guide for those who love someone with Alzheimer's. Readers will find here the reassuring words of a friend who has been there and can give advice on preserving connection, finding hope, self-care, and staying open to the possibility of grace.
Download or read book Ten Thousand Joys Ten Thousand Sorrows written by Olivia Ames Hoblitzelle and published by . This book was released on 2010 with total page 332 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This beautiful book is unlike any other personal account of living with Alzheimer's disease that I have ever read ... it offers patients and families practical insights into how they can live their lives more fully amidst the heartbreak of a mind-robbing illness."--Paul Raia, Director of Patient Care and Family Support, Alzheimer's Association, Massachusetts Chapter.
