Download or read book Writing the Self in Illness written by Amala Poli and published by Manipal Universal Press. This book was released on 2019-09-01 with total page 148 pages. Available in PDF, EPUB and Kindle. Book excerpt: Writing the Self in Illness: Reading the Experiential Through the Medical Memoir is MUP’s refreshing venture into the developing fields of Medical and Health Humanities with an aim to consider the necessity of the narrative knowledge as complementary to the contemporary notions of well-being, illness, and healthcare. Is individual happiness contingent on health and well-being? How does one find happiness in the throes of illness? In the present-day scenario, wherein medical practice is largely dominated by evidence-based understanding, diagnostic language, and problem-solving methods, the discipline of Medical Humanities emerges with a reciprocal dialogue between Humanities, Social Sciences, Health, and Medicine. The study of varied experiential narratives – literary works and unmediated accounts of patients and healthcare professionals, is foregrounded in Medical Humanities to amplify knowledge and understanding about the complexity of encounters with illness and their transformational quality in a nuanced manner. Both thought-provoking and informative, this publication brings about the anecdotal form of personal narratives in the light of medical discourses along with the specific cultural context of the narrative. The present publication seeks to be an important reading for students and academics in the field of medical humanities, health professionals or medical practitioners, as well as scholars aspiring to venture into this flourishing field.
Download or read book Good Days Bad Days written by Kathy Charmaz and published by Rutgers University Press. This book was released on 1991 with total page 332 pages. Available in PDF, EPUB and Kindle. Book excerpt: Describing how chronic illness affects one's self-image, friends, and family, this book shares the experiences of people with serious chronic illnesses, and shows how they find the strength to carry on.
Download or read book The Matzah Ball written by Jean Meltzer and published by MIRA. This book was released on 2021-09-28 with total page 404 pages. Available in PDF, EPUB and Kindle. Book excerpt: A MOST ANTICIPATED BOOK SELECTED BY * POPSUGAR * BUSTLE * BUZZFEED * BOOKPAGE * GOODREADS MEMBERS "The Matzah Ball had me laughing out loud...an all-around terrific read."—Debbie Macomber, #1 New York Times bestselling author Oy! to the world Rachel Rubenstein-Goldblatt is a nice Jewish girl with a shameful secret: she loves Christmas. For a decade she’s hidden her career as a Christmas romance novelist from her family. Her talent has made her a bestseller even as her chronic illness has always kept the kind of love she writes about out of reach. But when her diversity-conscious publisher insists she write a Hanukkah romance, her well of inspiration suddenly runs dry. Hanukkah’s not magical. It’s not merry. It’s not Christmas. Desperate not to lose her contract, Rachel’s determined to find her muse at the Matzah Ball, a Jewish music celebration on the last night of Hanukkah, even if it means working with her summer camp archenemy—Jacob Greenberg. Though Rachel and Jacob haven’t seen each other since they were kids, their grudge still glows brighter than a menorah. But as they spend more time together, Rachel finds herself drawn to Hanukkah—and Jacob—in a way she never expected. Maybe this holiday of lights will be the spark she needed to set her heart ablaze. "A luminous celebration of all types of love, threaded with the message that everyone is worthy of it.”—Rachel Lynn Solomon, author of The Ex Talk
Download or read book The Invisible Kingdom written by Meghan O'Rourke and published by Penguin. This book was released on 2023-02-28 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: A NEW YORK TIMES BESTSELLER FINALIST FOR THE 2022 NATIONAL BOOK AWARD FOR NONFICTION Named one of the BEST BOOKS OF 2022 by NPR, The New Yorker, Time, and Vogue “Remarkable.” –Andrew Solomon, The New York Times Book Review "At once a rigorous work of scholarship and a radical act of empathy.”—Esquire "A ray of light into those isolated cocoons of darkness that, at one time or another, may afflict us all.” —The Wall Street Journal "Essential."—The Boston Globe A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and autoimmune diseases A silent epidemic of chronic illnesses afflicts tens of millions of Americans: these are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.
Download or read book Pain Woman Takes Your Keys and Other Essays from a Nervous System written by Sonya Huber and published by U of Nebraska Press. This book was released on 2017 with total page 206 pages. Available in PDF, EPUB and Kindle. Book excerpt: Rate your pain on a scale of one to ten. What about on a scale of spicy to citrus? Is it more like a lava lamp or a mosaic? Pain, though a universal element of human experience, is dimly understood and sometimes barely managed. Pain Woman Takes Your Keys, and Other Essays from a Nervous System is a collection of literary and experimental essays about living with chronic pain. Sonya Huber moves away from a linear narrative to step through the doorway into pain itself, into that strange, unbounded reality. Although the essays are personal in nature, this collection is not a record of the author's specific condition but an exploration that transcends pain's airless and constraining world and focuses on its edges from wild and widely ranging angles. Huber addresses the nature and experience of invisible disability, including the challenges of gender bias in our health care system, the search for effective treatment options, and the difficulty of articulating chronic pain. She makes pain a lens of inquiry and lyricism, finds its humor and complexity, describes its irascible character, and explores its temperature, taste, and even its beauty.
Download or read book I m Telling the Truth but I m Lying written by Bassey Ikpi and published by HarperCollins. This book was released on 2019-08-20 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: INSTANT NEW YORK TIMES BESTSELLER! In I’m Telling the Truth, but I’m Lying Bassey Ikpi explores her life—as a Nigerian-American immigrant, a black woman, a slam poet, a mother, a daughter, an artist—through the lens of her mental health and diagnosis of bipolar II and anxiety. Her remarkable memoir in essays implodes our preconceptions of the mind and normalcy as Bassey bares her own truths and lies for us all to behold with radical honesty and brutal intimacy. A The Root Favorite Books of the Year • A Good Housekeeping Best 60 Books of the Year • A YNaija 10 Notable Books of the Year • A GOOP 10 New Favorite Books • A Cup of Jo 5 Big Books of Fall • A Bitch Magazine Most Anticipated Books of 2019 • A Bustle 21 New Memoirs That Will Inspire, Motivate, and Captivate You • A Publishers Weekly Spring Preview Selection • An Electric Lit 48 Books by Women and Nonbinary Authors of Color to Read in 2019 • A Bookish Best Nonfiction of Summer Selection "We will not think or talk about mental health or normalcy the same after reading this momentous art object moonlighting as a colossal collection of essays.” —Kiese Laymon, author of Heavy From her early childhood in Nigeria through her adolescence in Oklahoma, Bassey Ikpi lived with a tumult of emotions, cycling between extreme euphoria and deep depression—sometimes within the course of a single day. By the time she was in her early twenties, Bassey was a spoken word artist and traveling with HBO's Def Poetry Jam, channeling her life into art. But beneath the façade of the confident performer, Bassey's mental health was in a precipitous decline, culminating in a breakdown that resulted in hospitalization and a diagnosis of Bipolar II. In I'm Telling the Truth, But I'm Lying, Bassey Ikpi breaks open our understanding of mental health by giving us intimate access to her own. Exploring shame, confusion, medication, and family in the process, Bassey looks at how mental health impacts every aspect of our lives—how we appear to others, and more importantly to ourselves—and challenges our preconception about what it means to be "normal." Viscerally raw and honest, the result is an exploration of the stories we tell ourselves to make sense of who we are—and the ways, as honest as we try to be, each of these stories can also be a lie.
Download or read book Illness as Narrative written by Ann Jurečič and published by University of Pittsburgh Pre. This book was released on 2012-03-12 with total page 194 pages. Available in PDF, EPUB and Kindle. Book excerpt: For most of literary history, personal confessions about illness were considered too intimate to share publicly. By the mid-twentieth century, however, a series of events set the stage for the emergence of the illness narrative. The increase of chronic disease, the transformation of medicine into big business, the women's health movement, the AIDS/HIV pandemic, the advent of inexpensive paperbacks, and the rise of self-publishing all contributed to the proliferation of narratives about encounters with medicine and mortality. While the illness narrative is now a staple of the publishing industry, the genre itself has posed a problem for literary studies. What is the role of criticism in relation to personal accounts of suffering? Can these narratives be judged on aesthetic grounds? Are they a collective expression of the lost intimacy of the patient-doctor relationship? Is their function thus instrumental—to elicit the reader's empathy? To answer these questions, Ann Jurecic turns to major works on pain and suffering by Susan Sontag, Elaine Scarry, and Eve Sedgwick and reads these alongside illness narratives by Jean-Dominique Bauby, Reynolds Price, and Anne Fadiman, among others. In the process, she defines the subgenres of risk and pain narratives and explores a range of critical responses guided, alternately, by narrative empathy, the hermeneutics of suspicion, and the practice of reparative reading. Illness as Narrative seeks to draw wider attention to this form of life writing and to argue for new approaches to both literary criticism and teaching narrative. Jurecic calls for a practice that's both compassionate and critical. She asks that we consider why writers compose stories of illness, how readers receive them, and how both use these narratives to make meaning of human fragility and mortality.
Download or read book Through the Shadowlands written by Julie Rehmeyer and published by Rodale. This book was released on 2017-05-23 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: Julie Rehmeyer felt like she was going to the desert to die. Julie fully expected to be breathing at the end of the trip―but driving into Death Valley felt like giving up, surrendering. She’d spent years battling a mysterious illness so extreme that she often couldn’t turn over in her bed. The top specialists in the world were powerless to help, and research on her disease, chronic fatigue syndrome, was at a near standstill. Having exhausted the plausible ideas, Julie turned to an implausible one. Going against both her instincts and her training as a science journalist and mathematician, she followed the advice of strangers she’d met on the Internet. Their theory―that mold in her home and possessions was making her sick―struck her as wacky pseudoscience. But they had recovered from chronic fatigue syndrome as severe as hers. To test the theory that toxic mold was making her sick, Julie drove into the desert alone, leaving behind everything she owned. She wasn’t even certain she was well enough to take care of herself once she was there. She felt stripped not only of the life she’d known, but any future she could imagine. With only her scientific savvy, investigative journalism skills, and dog, Frances, to rely on, Julie carved out her own path to wellness―and uncovered how shocking scientific neglect and misconduct had forced her and millions of others to go it alone. In stunning prose, she describes how her illness transformed her understanding of science, medicine, and spirituality. Through the Shadowlands brings scientific authority to a misunderstood disease and spins an incredible and compelling story of tenacity, resourcefulness, acceptance, and love.
Download or read book On Being Ill written by Virginia Woolf and published by Wesleyan University Press. This book was released on 2012-11-06 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: Virginia Woolf’s daring essay on how illness transforms our perception, plus an essay by Woolf’s mother from the caregiver’s perspective: “Revelatory.” —Booklist This new publication of “On Being Ill” with “Notes from Sick Rooms” presents Virginia Woolf and her mother, Julia Stephen, in textual conversation for the first time in literary history. In the poignant and humorous essay “On Being Ill,” Woolf observes that though illness is part of every human being’s experience, it is not celebrated as a subject of great literature in the way that love and war are embraced by writers and readers. We must, Woolf says, invent a new language to describe pain. Illness, she observes, enhances our perceptions and reduces self-consciousness; it is “the great confessional.” Woolf discusses the taboos associated with illness, and she explores how it changes our relationship to the world around us. “Notes from Sick Rooms,” meanwhile, addresses illness from the caregiver’s perspective. With clarity, humor, and pathos, Julia Stephen offers concrete information that remains useful to nurses and caregivers today. This edition also includes an introduction to “Notes from Sick Rooms” by Mark Hussey, founding editor of Woolf Studies Annual, and a poignant afterword by Rita Charon, MD, founder of the field of Narrative Medicine. In addition, Hermione Lee’s brilliant introduction to “On Being Ill” offers a superb overview of Woolf’s life and writing. “Woolf’s inquiry into illness and its impact on the mind is paired with her mother’s observations about caring for the body. Julia Stephen . . . had no professional training but took to heart Florence Nightingale’s precept that every woman is a nurse and emulated Nightingale’s best-selling Notes on Nursing with her own “Notes from Sick Rooms.” In this long-overlooked, precise, and piquant little manual, Stephen is compassionate and ironic, observing that everyone deserves to be tenderly nursed while addressing the small evil of crumbs in bed. This unprecedented literary reunion of mother and daughter is stunning on many fronts, but physician and literary scholar Rita Charon focuses on the essentials in her astute afterword, writing that Woolf’s perspective as a patient and Stephen’s as a nurse together illuminate the goal of care—to listen, to recognize, to imagine, to honor.” —Booklist “Woolf and Stephen will certainly change the way readers think of illness.” —Publishers Weekly
Download or read book The Wounded Storyteller written by Arthur W. Frank and published by University of Chicago Press. This book was released on 2013-10-18 with total page 280 pages. Available in PDF, EPUB and Kindle. Book excerpt: Updated second edition: “A bold and imaginative book which moves our thinking about narratives of illness in new directions.” —Sociology of Heath and Illness Since it was first published in 1995, The Wounded Storyteller has occupied a unique place in the body of work on illness. A collective portrait of a so-called “remission society” of those who suffer from illness or disability, as well as a cogent analysis of their stories within a larger framework of narrative theory, Arthur W. Frank’s book has reached a large and diverse readership including the ill, medical professionals, and scholars of literary theory. Drawing on the work of such authors as Oliver Sacks, Anatole Broyard, Norman Cousins, and Audre Lorde, as well as from people he met during the years he spent among different illness groups, Frank recounts a stirring collection of illness stories, ranging from the well-known—Gilda Radner’s battle with ovarian cancer—to the private testimonials of people with cancer, chronic fatigue syndrome, and disabilities. Their stories are more than accounts of personal suffering: They abound with moral choices and point to a social ethic. In this new edition Frank adds a preface describing the personal and cultural times when the first edition was written. His new afterword extends the book’s argument significantly, discussing storytelling and experience, other modes of illness narration, and a version of hope that is both realistic and aspirational. Reflecting on his own life during the creation of the first edition and the conclusions of the book itself, he reminds us of the power of storytelling as way to understand our own suffering. “Arthur W. Frank’s second edition of The Wounded Storyteller provides instructions for use of this now-classic text in the study of illness narratives.” —Rita Charon, author of Narrative Medicine “Frank sees the value of illness narratives not so much in solving clinical conundrums as in addressing the question of how to live a good life.” —Christianity Today
Download or read book Life Disrupted written by Laurie Edwards and published by Bloomsbury Publishing USA. This book was released on 2011-02-01 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: Twenty-seven-year-old Laurie Edwards is one of 125 million Americans who have a chronic illness, in her case a rare genetic respiratory disease. Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived-they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness. Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems. Laurie Edwards also addresses the particular needs of people who have more than one chronic illness or who are among the twenty-five million Americans with a rare disorder. She shares her own story and the experiences of others with chronic illness, as well as advice from life coaches, employment specialists, and health professionals. Reading Life Disrupted is like having a best friend and mentor who truly does know what you're going through.
Download or read book So Sad Today written by Melissa Broder and published by Grand Central Publishing. This book was released on 2016-03-15 with total page 147 pages. Available in PDF, EPUB and Kindle. Book excerpt: From acclaimed poet and creator of the popular twitter account @SoSadToday comes the darkly funny and brutally honest collection of essays that Roxane Gay called "sad and uncomfortable and their own kind of gorgeous." Melissa Broder always struggled with anxiety. In the fall of 2012, she went through a harrowing cycle of panic attacks and dread that wouldn't abate for months. So she began @sosadtoday, an anonymous Twitter feed that allowed her to express her darkest feelings, and which quickly gained a dedicated following. In So Sad Today, Broder delves deeper into the existential themes she explores on Twitter, grappling with sex, death, love low self-esteem, addiction, and the drama of waiting for the universe to text you back. With insights as sharp as her humor, Broder explores--in prose that is both ballsy and beautiful, aggressively colloquial and achingly poetic--questions most of us are afraid to even acknowledge, let alone answer, in order to discover what it really means to be a person in this modern world.
Download or read book Surviving and Thriving with an Invisible Chronic Illness written by Ilana Jacqueline and published by New Harbinger Publications. This book was released on 2018-03-01 with total page 178 pages. Available in PDF, EPUB and Kindle. Book excerpt: “An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care. Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.
Download or read book The Collected Schizophrenias written by Esmé Weijun Wang and published by Penguin UK. This book was released on 2019-06-27 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'Dazzling ... in her kaleidoscopic essays, memoir has been shattered into sliding and overlapping pieces ... mind-expanding' The New York Times Book Review Esmé Weijun Wang was officially diagnosed with schizoaffective disorder in 2013, although the hallucinations and psychotic episodes had started years before that. In the midst of a high functioning life at Yale, Stanford and the literary world, she would find herself floored by an overwhelming terror that 'spread like blood', or convinced that she was dead, or that her friends were robots, or spiders were eating holes in her brain. What happens when your whole conception of yourself is turned upside down? When you're aware of what is occurring to you, but unable to do anything about it? Written with immediacy and unflinching honesty, this visceral and moving book is Wang's story, as she steps both inside and outside of her condition to bring it to light. Following her own diagnosis and the many manifestations of schizophrenia in her life, she ranges over everything from how we label mental illness to her own use of fashion and make-up to present herself as high-functioning, from the failures of the higher education system to how factors such as PTSD and Lyme disease compounded her experiences. Wang's analytical, intelligent eye, honed as a former lab researcher at Stanford, allows her to balance research with haunting personal narrative. The Collected Schizophrenias cuts right to the core and provides unique insight into a condition long misdiagnosed and much misunderstood.
Download or read book The Wounded Self written by Nina Schmidt and published by Boydell & Brewer. This book was released on 2018 with total page 248 pages. Available in PDF, EPUB and Kindle. Book excerpt: Takes the recent wave of German autobiographical writing on illness and disability seriously as literature, demonstrating the value of a literary disability studies approach.
Download or read book Writing Out the Storm written by Barbara Abercrombie and published by St. Martin's Griffin. This book was released on 2002-10-09 with total page 160 pages. Available in PDF, EPUB and Kindle. Book excerpt: This powerful and deeply inspirational handbook is for anyone coping with serious illness or injury-be it theirs or that of a loved one-who wants and needs to help themselves through the healing process. Offering her own experience with breast cancer, as well as stories from other authors who have suffered from illnesses or severe injuries-from Stephen King to Lance Armstrong-Abercrombie encourages readers to write what is in their hearts and to benefit from the power of shared experience. Using writing as therapy, Writing Out the Storm is a book about healing the soul.
Download or read book The Australian written by Emma Smith-Stevens and published by . This book was released on 2017 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: In her humorous and emotionally resonant debut, Emma Smith-Stevens follows the exploits and evolution of a young man--known only as the Australian--over the course of a dozen years, from his time in Melbourne, posing as Superman for tourist photos, to his life in New York, where he spends years unemployed before stumbling into fame and fortune. Recently married to a woman he barely knows and struggling to forge a relationship with his newborn son, the Australian returns to his home city to tend to his dying mother and unlock the mystery surrounding his estranged, deceased father. His journey leads him to the Dreaming Tracks--sacred landmarks acrossAustralia--to sites inspired by his father's Australian Outdoor Geographic magazines, and beyond. A poignant and at times satirical meditation on masculinity, fatherhood, isolation, New York City, fame, and loss, The Australian examines the way we come to know each other, and ultimately ourselves.
