Download or read book Voices of the Chronically Ill written by Mary Kalfoss and published by Cambridge Scholars Publishing. This book was released on 2023-08-09 with total page 227 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book describes what it is like to embody chaos and liminality in living with a physical chronic illness and how these experiences are related to the loss and remaking of one’s sense of self. It also encourages readers to listen closely to the figurative language people use in trying to articulate the unspeakable. Focusing upon a wide array of narrative fragments gathered from first-person literary work and research, the author portrays how a conglomerate of sensations, feelings, and thoughts are embodied in the illness experience. The voices present in this text speak of vulnerability, suffering, and brokenness, yet also, endurance and fortitude. The ethics of philosopher Emmanuel Levinas provide the grounds for offering care lovingly. This book makes a significant contribution to helping students, practitioners and carers understand the chaos that is inherent, yet so often silenced, in the illness experience. This text could also be of interest to laypeople who are curious about how subjective illness is experienced, and to those who are ill who may be seeking affirmation for what they are experiencing.
Download or read book Lycanthropy and Other Chronic Illnesses written by Kristen O'Neal and published by National Geographic Books. This book was released on 2022-05-10 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: “Emotional, thoughtful, and a true testament to the power of friendship”—Locus Magazine Teen Wolf meets Emergency Contact in this sharply observed, hilarious, and heartwarming debut young adult novel about friendship, chronic illness, and . . . werewolves. Priya worked hard to pursue her premed dreams at Stanford, but the fallout from undiagnosed Lyme disease sends her back to her childhood home in New Jersey during her sophomore year—and leaves her wondering if she’ll ever be able to return to the way things were. Thankfully she has her online pen pal, Brigid, and the rest of the members of “oof ouch my bones,” a virtual support group that meets on Discord to crack jokes and vent about their own chronic illnesses. When Brigid suddenly goes offline, Priya does something out of character: she steals the family car and drives to Pennsylvania to check on Brigid. Priya isn’t sure what to expect, but it isn’t the horrifying creature that's shut in the basement. With Brigid nowhere to be found, Priya begins to puzzle together an impossible but obvious truth: the creature might be a werewolf—and the werewolf might be Brigid. As Brigid's unique condition worsens, their friendship will be deepened and challenged in unexpected ways, forcing them to reckon with their own ideas of what it means to be normal.
Download or read book Life Disrupted written by Laurie Edwards and published by Bloomsbury Publishing USA. This book was released on 2011-02-01 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: Twenty-seven-year-old Laurie Edwards is one of 125 million Americans who have a chronic illness, in her case a rare genetic respiratory disease. Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived-they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness. Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems. Laurie Edwards also addresses the particular needs of people who have more than one chronic illness or who are among the twenty-five million Americans with a rare disorder. She shares her own story and the experiences of others with chronic illness, as well as advice from life coaches, employment specialists, and health professionals. Reading Life Disrupted is like having a best friend and mentor who truly does know what you're going through.
Download or read book Stricken written by Peggy Munson and published by Routledge. This book was released on 2014-02-04 with total page 297 pages. Available in PDF, EPUB and Kindle. Book excerpt: Develop a better understanding of what CFS/CFIDS sufferers are going through!In the 1980s, a strange emerging epidemic baffled doctors in Incline Village, Nevada. Dismissed by the media as “The Yuppie Flu,” Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) turned out to be neither a faddish disease of the wealthy nor a passing trend, but rather a growing worldwide epidemic of devastating proportions.In the voices of a South African journalist, a former marathon runner, a teenage girl, a public health activist living on the edge of race and gender, a cancer patient neglected by doctors because of disdain for her chronic illness, and a theologian relearning the art of spiritual empathy, the people who share their stories in Stricken: Voices from the Hidden Epidemic of Chronic Fatigue Syndrome defy cultural stereotypes and explore the complex social and political dynamics of this hidden epidemic. Through their distinct points of view, we feel the grief and hope of those stricken with CFIDS and learn of the complex nature of this misunderstood disorder. These are compelling stories about a quiet and baffling epidemic. The first American anthology to contain stories from a diverse range of people with CFIDS, Stricken offers an intimate look at the political and social issues surrounding CFIDS, as told by those who are living through this ordeal. Stricken addresses several issues, such as: why some doctors still do not believe CFIDS is real how the disease is mocked in the media myths about this illness the personal fight for medical or public recognition the skepticism and hope that is felt by the ever-growing number of CFIDS sufferers Stricken confronts fascinating CFIDS issues such as the Kevorkian suicides, accusations of Munchausen Syndrome By Proxy, Gulf War Syndrome, the role of storytelling in a memory-impaired patient movement, and the feasibility of mass activism in a disabled population. With contributions from Pulitzer-prize nominated writer Susan Griffin, renowned health writer and radio host Gary Null, well-known feminist activist Joan Nestle, and award-winning poet and essayist Floyd Skloot, Stricken is an eloquent testament to the heroism, defiance, and diversity of the CFIDS community.
Download or read book What Doesn t Kill You written by Tessa Miller and published by Henry Holt and Company. This book was released on 2021-02-02 with total page 240 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Should be read by anyone with a body. . . . Relentlessly researched and undeniably smart." —The New York Times Named one of BuzzFeed's "Best Books of 2021" What Doesn't Kill You is the riveting account of a young journalist’s awakening to chronic illness, weaving together personal story and reporting to shed light on living with an ailment forever. Tessa Miller was an ambitious twentysomething writer in New York City when, on a random fall day, her stomach began to seize up. At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a years-long nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better. Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications. Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.
Download or read book Chronically Fabulous Finding Wholeness and Hope Living with Chronic Illness written by Marisa Zeppieri and published by Broadleaf Books. This book was released on 2021-05-04 with total page 209 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Marisa Zeppieri was 22-years-old she found herself face-to-face with a raven-haired elderly woman who had emerged from a crowd and gently taken her hands: God will use these hands to change people's lives.Years later Marisa's once-spirited demeanor was shrouded in anger and bitterness. Triggered first by a near-fatal car accident that sent her 100-lb body flying from a crosswalk and later by a painful Lupus diagnosis, she became stuck in a season of brokenness.But in the seasons that followed, an insatiable emotional, spiritual, and physical hunger took over: She learned how to nourish her broken body with the help of food, herbs, and a gastronomically-gifted Italian grandmother, while also nourishing her broken heart and crushed spirit through a deeper relationship with God.With Chronically Fabulous, Marisa fulfills the old woman's prophecy by offering pure nourishment to those of us living with chronic illness, helping us create wholeness and well-being through a love of food. Here, the founder of LupusChick, a nonprofit supporting those with autoimmune diseases, offers guiding principles, personal stories, and recipes that support whole-life thriving. With the depth, smarts, and spiritual advice beloved by her dedicated followers, Marisa shows us how faith, passion, and persistence can radically change our lives.
Download or read book The Lady s Handbook for Her Mysterious Illness written by Sarah Ramey and published by Anchor. This book was released on 2021-05-11 with total page 434 pages. Available in PDF, EPUB and Kindle. Book excerpt: The darkly funny memoir of Sarah Ramey’s years-long battle with a mysterious illness that doctors thought was all in her head—but wasn’t. In her harrowing, darkly funny, and unforgettable memoir, Sarah Ramey recounts the decade-long saga of how a seemingly minor illness in her senior year of college turned into a prolonged and elusive condition that destroyed her health but that doctors couldn't diagnose or treat. Worse, as they failed to cure her, they hinted that her devastating symptoms were psychological. The Lady's Handbook for Her Mysterious Illness is a memoir with a mission: to help the millions of (mostly) women who suffer from unnamed or misunderstood conditions—autoimmune illnesses, fibromyalgia and chronic fatigue syndrome, chronic Lyme disease, chronic pain, and many more. Ramey's pursuit of a diagnosis and cure for her own mysterious illness becomes a page-turning medical mystery that reveals a new understanding of today's chronic illnesses as ecological in nature, driven by modern changes to the basic foundations of health, from the quality of our sleep, diet, and social connections to the state of our microbiomes. Her book will open eyes, change lives, and, ultimately, change medicine. The Lady's Handbook for Her Mysterious Illness is a revelation and an inspiration for millions of women whose legitimate health complaints are ignored.
Download or read book How to Be Sick written by Toni Bernhard and published by Simon and Schuster. This book was released on 2010-05-10 with total page 217 pages. Available in PDF, EPUB and Kindle. Book excerpt: This life-affirming, instructive, and thoroughly inspiring book is a must-read for anyone who is - or who might one day be - sick. It can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or life-threatening illness. Authentic and graceful, How to be Sick reminds us of our limitless inner freedom, even under high degrees of suffering and pain. The author - who became ill while a university law professor in the prime of her career - tells the reader how she got sick and, to her and her partner's bewilderment, stayed that way. Toni had been a longtime meditator, going on long meditation retreats and spending many hours rigorously practicing, but soon discovered that she simply could no longer engage in those difficult and taxing forms. She had to learn ways to make "being sick" the heart of her spiritual practice - and through truly learning how to be sick, she learned how, even with many physical and energetic limitations, to live a life of equanimity, compassion, and joy. And whether we ourselves are ill or not, we can learn these vital arts from Bernhard's generous wisdom in How to Be Sick.
Download or read book Voices of the Food Revolution written by Robbins, John and published by Conari Press. This book was released on 2013-05-01 with total page 290 pages. Available in PDF, EPUB and Kindle. Book excerpt: Did you know that: More than 80% of the foods you eat in restaurants and buy at supermarkets contain genetically engineered ingredients, and that these ingredients have been linked to toxic and allergic reactions in people; sickness, sterility, and fatalities in livestock; and damage to virtually every organ studied in lab animals?If you don't count French fries, ketchup or pizza as vegetables, more than half of Americans eat no vegetables at all?Cows raised for meat are impacting our climate more than cars?It’s possible to be a positive food revolutionary without sounding like a self-righteous nag? Join John and Ocean Robbins for 21 intimate, game-changing conversations with some of the world’s leading “food revolutionaries”: scientists, doctors, teachers, farmers, economists, activists, and nutritionists working on food issues today. Introduced and with commentary by John Robbins and his son Ocean, the book features luminaries such as: Dean Ornish, MD, on his years-in-the-making breakthrough with Medicare (his program for healing heart disease is now covered)Kathy Freston on making incremental, manageable changes to how we eatT. Colin Campbell, PhD, (author of the famed China Study) with the latest research on animal protein and human healthJoel Fuhrman, MD (author of the bestselling Eat to Live), on achieving excellent health through dietCaldwell Esselstyn, MD, of the Cleveland Clinic on wiping out heart disease by changing what we eatVandana Shiva, PhD, on GMOs and Big AgRory Freedman on how to stop eating misery and start looking fabulousRaj Patel on building a saner global food policy Each contributor discusses his or her work in depth, but together they make one rallying cry: for a healthy, sustainable, humane, and delicious revolution in how we and the world are fed. Over twenty-five years ago John Robbins started a revolution. This book is proof of how far we’ve come, a fascinating look behind the scenes of the multi-faceted food movement, and a call to join in the work of ensuring our health and food future.
Download or read book Hear My Voice written by Heather Dean and published by Rowman & Littlefield. This book was released on 2019-12-16 with total page 113 pages. Available in PDF, EPUB and Kindle. Book excerpt: Today’s educators face challenges unparalleled by previous generations of teachers. A typical classroom is comprised of students from diverse backgrounds, varying languages and unique backgrounds. In order for educators to meet the needs of the individual students within their classes, they must have a grasp on the challenges facing their students. Currently in education, the focus is on marginalized students and the impact their circumstances have on their ability to learn. This book is designed to make the various hardships encountered by many students more personal in order to give teachers insight into the very real needs of today’s students. Educators are familiar with the data regarding students; however, it is through the individual story of students that teachers are reminded of their vital role in nurturing and educating the students that fill their desks each year. This book will pair student narratives with brain research to provide valuable insights to K-12 educators and university professors.
Download or read book The Wounded Storyteller written by Arthur W. Frank and published by University of Chicago Press. This book was released on 2013-10-18 with total page 280 pages. Available in PDF, EPUB and Kindle. Book excerpt: Updated second edition: “A bold and imaginative book which moves our thinking about narratives of illness in new directions.” —Sociology of Heath and Illness Since it was first published in 1995, The Wounded Storyteller has occupied a unique place in the body of work on illness. A collective portrait of a so-called “remission society” of those who suffer from illness or disability, as well as a cogent analysis of their stories within a larger framework of narrative theory, Arthur W. Frank’s book has reached a large and diverse readership including the ill, medical professionals, and scholars of literary theory. Drawing on the work of such authors as Oliver Sacks, Anatole Broyard, Norman Cousins, and Audre Lorde, as well as from people he met during the years he spent among different illness groups, Frank recounts a stirring collection of illness stories, ranging from the well-known—Gilda Radner’s battle with ovarian cancer—to the private testimonials of people with cancer, chronic fatigue syndrome, and disabilities. Their stories are more than accounts of personal suffering: They abound with moral choices and point to a social ethic. In this new edition Frank adds a preface describing the personal and cultural times when the first edition was written. His new afterword extends the book’s argument significantly, discussing storytelling and experience, other modes of illness narration, and a version of hope that is both realistic and aspirational. Reflecting on his own life during the creation of the first edition and the conclusions of the book itself, he reminds us of the power of storytelling as way to understand our own suffering. “Arthur W. Frank’s second edition of The Wounded Storyteller provides instructions for use of this now-classic text in the study of illness narratives.” —Rita Charon, author of Narrative Medicine “Frank sees the value of illness narratives not so much in solving clinical conundrums as in addressing the question of how to live a good life.” —Christianity Today
Download or read book A Patient s Voice written by Jr. Gilbert Barr and published by iUniverse. This book was released on 2009 with total page 258 pages. Available in PDF, EPUB and Kindle. Book excerpt: Living with cancer, diabetes, heart problems, sarcoidosis, and other chronic health conditions is rough on the patient and those "others" in his/her life. Maneuvering within today's medical environments can make living with illnesses even rougher. A Patient's Voice helps ease the physical demands and mental emotions of a person by utilizing the author's 20 plus years of experience, both personal and professional, living with those chronic health conditions - and more - along with his understanding of the health care system. Rather it is building relationships with your medical family, the importance of caregivers, understanding the insurance requirements of health care, or coping with the day to day struggles of life as a patient, by way of his health stories, A Patient's Voice has something for everyone - written exclusively from a patient's perspective and personal experiences. Everyone will have health issues at some time in your life. A Patient's Voice will inspire and give valuable insight, as only an experienced patient can, so your current, and future, medical experiences will be positive and successful.
Download or read book Chronic Illness written by Ilene Morof Lubkin and published by Jones & Bartlett Publishers. This book was released on 2013 with total page 738 pages. Available in PDF, EPUB and Kindle. Book excerpt: The newest edition of best-selling Chronic Illness continues to focus on the various aspects of chronic illness that influence both patients and their families. Topics include the sociological, psychological, ethical, organizational, and financial factors, as well as individual and system outcomes. This book is designed to teach students about the whole client or patient versus the physical status of the client with chronic illness. The study questions at the end of each chapter and the case studies help the students apply the information to real life. Evidence-based practice references are included in almost every chapter.
Download or read book Chronic Illness Chronicles Stories of Resilience and Hope written by Bev Hill and published by Richards Education. This book was released on with total page 113 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Chronic Illness Chronicles: Stories of Resilience and Hope" is an uplifting and comprehensive guide for individuals navigating the challenges of chronic illness. This book combines inspiring personal stories with practical advice, coping strategies, and holistic approaches to help readers manage their conditions and live fulfilling lives. From understanding the complexities of chronic illness to finding hope and inspiration, this book offers a wealth of information and support. Whether you are newly diagnosed or have been living with a chronic condition for years, "Chronic Illness Chronicles" provides the tools and encouragement needed to thrive in the face of adversity.
Download or read book Chronic Illness written by S. Kay Toombs and published by Indiana University Press. This book was released on 1995-07-22 with total page 250 pages. Available in PDF, EPUB and Kindle. Book excerpt: "…excellent…" -- Choices - Choice on Dying Newsletter "Toombs, Barnard, and Carson have organized and edited a valuable series of papers that provide a rare perspective on the impact of chronic illness. Beginning with the person who is experiencing the chronic condition, they are able to weave an important blend of personal, social, and policy themes." -- Choice "This volume of collected essays is a solid contribution to the medical humanities literature on chronic illness... the contributors have produced a cohesive, systematic, and sensitive examination of issues in chronic illness and disability." -- Medical Humanities Review "Although it may seem to be intended largely for health care providers, this thought-provoking volume has much that will interest a wider lay audience." -- Medical and Health Annual An often moving exploration of the human, moral, and policy aspects of a health issue that affects each of us. Through first-person accounts and the perspectives of literature, medicine, philosophy, and religion, this book explores what it means to live with chronic illness and the implications of this experience for social policy, health care, bioethics, and the professions.
Download or read book Voices of Mental Health written by Martin Halliwell and published by Rutgers University Press. This book was released on 2017-10-02 with total page 339 pages. Available in PDF, EPUB and Kindle. Book excerpt: This dynamic and richly layered account of mental health in the late twentieth century interweaves three important stories: the rising political prominence of mental health in the United States since 1970; the shifting medical diagnostics of mental health at a time when health activists, advocacy groups, and public figures were all speaking out about the needs and rights of patients; and the concept of voice in literature, film, memoir, journalism, and medical case study that connects the health experiences of individuals to shared stories. Together, these three dimensions bring into conversation a diverse cast of late-century writers, filmmakers, actors, physicians, politicians, policy-makers, and social critics. In doing so, Martin Halliwell’s Voices of Mental Health breaks new ground in deepening our understanding of the place, politics, and trajectory of mental health from the moon landing to the millennium.
Download or read book Work and Unseen Chronic Illness written by Margaret Vickers and published by Routledge. This book was released on 2002-09-09 with total page 303 pages. Available in PDF, EPUB and Kindle. Book excerpt: In an increasingly ageing society, medicine, hygiene and nutrition have reduced the impact of acute and life-threatening illnesses. However, whilst we are living longer, the chance of developing or contracting a chronic illness is increasing. There are a growing number of working adults affected by chronic health conditions that may be largely invisible to those around them. In this book, the author explores the 'silent' problem of unseen illness at work. The author employs qualitative research methods to challenge the idea that if you look well, you must be well. While demonstrating the effectiveness of this controversial methodology, she uses it to expose the voices of a group of marginalized workplace actors who have hitherto remained unheard. Stories from people with cancer, multiple sclerosis, endometriosis and other illnesses are interspersed with the author's reflections about life and work with illness that others cannot see. These stories reflect a passage of trauma and marginalization, but also foreground themes of survival.
