Download or read book Tiered Consent and the Tyranny of Choice written by Natalie Ram and published by . This book was released on 2013 with total page 32 pages. Available in PDF, EPUB and Kindle. Book excerpt: Evidence in consumer psychology suggests that abundant choice causes decision makers to experience information overload, make arbitrary choices, refrain from choosing altogether, and experience regret following decision making. These patterns result in systematically lower quality decision making. The potential limitations of expanded choice are directly relevant to informed consent to human tissue research, where tiered consent is a best practice. Tiered consent presents potential tissue providers with a menu of research categories to which they may consent. Applying the results of research in consumer psychology to models for tiered consent, this Article describes how best to achieve the ethical paradigm of informed consent in view of the limitations of human mental processing.
Download or read book Medical Research Ethics Challenges in the 21st Century written by Tomas Zima and published by Springer Nature. This book was released on 2023-01-01 with total page 490 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a current review of Medical Research Ethics on a global basis. The book contains chapters that are historically and philosophically reflective and aimed to promote a discussion about controversial and foundational aspects in the field. An elaborate group of chapters concentrates on key areas of medical research where there are core ethical issues that arise both in theory and practice: genetics, neuroscience, surgery, palliative care, diagnostics, risk and prediction, security, pandemic threats, finances, technology, and public policy.This book is suitable for use from the most basic introductory courses to the highest levels of expertise in multidisciplinary contexts. The insights and research by this group of top scholars in the field of bioethics is an indispensable read for medical students in bioethics seminars and courses as well as for philosophy of bioethics classes in departments of philosophy, nursing faculties, law schools where bioethics is linked to medical law, experts in comparative law and public health, international human rights, and is equally useful for policy planning in pharmaceutical companies.
Download or read book The Immortal Life of Henrietta Lacks written by Rebecca Skloot and published by Crown. This book was released on 2010-02-02 with total page 386 pages. Available in PDF, EPUB and Kindle. Book excerpt: #1 NEW YORK TIMES BESTSELLER • “The story of modern medicine and bioethics—and, indeed, race relations—is refracted beautifully, and movingly.”—Entertainment Weekly NOW A MAJOR MOTION PICTURE FROM HBO® STARRING OPRAH WINFREY AND ROSE BYRNE • ONE OF THE “MOST INFLUENTIAL” (CNN), “DEFINING” (LITHUB), AND “BEST” (THE PHILADELPHIA INQUIRER) BOOKS OF THE DECADE • ONE OF ESSENCE’S 50 MOST IMPACTFUL BLACK BOOKS OF THE PAST 50 YEARS • WINNER OF THE CHICAGO TRIBUNE HEARTLAND PRIZE FOR NONFICTION NAMED ONE OF THE BEST BOOKS OF THE YEAR BY The New York Times Book Review • Entertainment Weekly • O: The Oprah Magazine • NPR • Financial Times • New York • Independent (U.K.) • Times (U.K.) • Publishers Weekly • Library Journal • Kirkus Reviews • Booklist • Globe and Mail Her name was Henrietta Lacks, but scientists know her as HeLa. She was a poor Southern tobacco farmer who worked the same land as her slave ancestors, yet her cells—taken without her knowledge—became one of the most important tools in medicine: The first “immortal” human cells grown in culture, which are still alive today, though she has been dead for more than sixty years. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer, viruses, and the atom bomb’s effects; helped lead to important advances like in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions. Yet Henrietta Lacks remains virtually unknown, buried in an unmarked grave. Henrietta’s family did not learn of her “immortality” until more than twenty years after her death, when scientists investigating HeLa began using her husband and children in research without informed consent. And though the cells had launched a multimillion-dollar industry that sells human biological materials, her family never saw any of the profits. As Rebecca Skloot so brilliantly shows, the story of the Lacks family—past and present—is inextricably connected to the dark history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of. Over the decade it took to uncover this story, Rebecca became enmeshed in the lives of the Lacks family—especially Henrietta’s daughter Deborah. Deborah was consumed with questions: Had scientists cloned her mother? Had they killed her to harvest her cells? And if her mother was so important to medicine, why couldn’t her children afford health insurance? Intimate in feeling, astonishing in scope, and impossible to put down, The Immortal Life of Henrietta Lacks captures the beauty and drama of scientific discovery, as well as its human consequences.
Download or read book UC Irvine Law Review written by and published by . This book was released on 2012 with total page 868 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Special Issue written by and published by . This book was released on 2009 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Symposium written by and published by . This book was released on 2009 with total page 360 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Manufacturing Consent written by Edward S. Herman and published by Pantheon. This book was released on 2011-07-06 with total page 482 pages. Available in PDF, EPUB and Kindle. Book excerpt: A "compelling indictment of the news media's role in covering up errors and deceptions" (The New York Times Book Review) due to the underlying economics of publishing—from famed scholars Edward S. Herman and Noam Chomsky. With a new introduction. In this pathbreaking work, Edward S. Herman and Noam Chomsky show that, contrary to the usual image of the news media as cantankerous, obstinate, and ubiquitous in their search for truth and defense of justice, in their actual practice they defend the economic, social, and political agendas of the privileged groups that dominate domestic society, the state, and the global order. Based on a series of case studies—including the media’s dichotomous treatment of “worthy” versus “unworthy” victims, “legitimizing” and “meaningless” Third World elections, and devastating critiques of media coverage of the U.S. wars against Indochina—Herman and Chomsky draw on decades of criticism and research to propose a Propaganda Model to explain the media’s behavior and performance. Their new introduction updates the Propaganda Model and the earlier case studies, and it discusses several other applications. These include the manner in which the media covered the passage of the North American Free Trade Agreement and subsequent Mexican financial meltdown of 1994-1995, the media’s handling of the protests against the World Trade Organization, World Bank, and International Monetary Fund in 1999 and 2000, and the media’s treatment of the chemical industry and its regulation. What emerges from this work is a powerful assessment of how propagandistic the U.S. mass media are, how they systematically fail to live up to their self-image as providers of the kind of information that people need to make sense of the world, and how we can understand their function in a radically new way.
Download or read book Beyond the HIPAA Privacy Rule written by Institute of Medicine and published by National Academies Press. This book was released on 2009-03-24 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.
Download or read book Relational Autonomy written by Catriona Mackenzie and published by Oxford University Press. This book was released on 2000-01-27 with total page 327 pages. Available in PDF, EPUB and Kindle. Book excerpt: This collection of original essays explores the social and relational dimensions of individual autonomy. Rejecting the feminist charge that autonomy is inherently masculinist, the contributors draw on feminist critiques of autonomy to challenge and enrich contemporary philosophical debates about agency, identity, and moral responsibility. The essays analyze the complex ways in which oppression can impair an agent's capacity for autonomy, and investigate connections, neglected by standard accounts, between autonomy and other aspects of the agent, including self-conception, self-worth, memory, and the imagination.
Download or read book Local Knowledge Matters written by Nugroho, Kharisma and published by Policy Press. This book was released on 2018-07-04 with total page 190 pages. Available in PDF, EPUB and Kindle. Book excerpt: Available Open Access under CC-BY-NC licence. This book explores the critical role that local knowledge plays in public policy processes as well as its role in the co-production of policy relevant knowledge with the scientific and professional communities. The authors consider the mechanisms used by local organisations and the constraints and opportunities they face, exploring what the knowledge-to-policy process means, who is involved and how different communities can engage in the policy process. Ten diverse case studies are used from around Indonesia, addressing issues such as forest management, water resources, maritime resource management and financial services. By making extensive use of quotes from the field, the book allows the reader to ‘hear’ the perspectives and beliefs of community members around local knowledge and its effects on individual and community life.
Download or read book Empirical Bioethics written by Jonathan Ives and published by Cambridge University Press. This book was released on 2016-12-22 with total page 416 pages. Available in PDF, EPUB and Kindle. Book excerpt: Bioethics has long been accepted as an interdisciplinary field. The recent 'empirical turn' in bioethics is, however, creating challenges that move beyond those of simple interdisciplinary collaboration, as researchers grapple with the methodological, empirical and meta-ethical challenges of combining the normative and the empirical, as well as navigating the difficulties that can arise from attempts to transcend traditional disciplinary boundaries. Empirical Bioethics: Theoretical and Practical Perspectives brings together contributions from leading experts in the field which speak to these challenges, providing insight into how they can be understood and suggestions for how they might be overcome. Combining discussions of meta-ethical challenges, examples of different methodologies for integrating empirical and normative research, and reflection on the challenges of conducting and publishing such work, this book will both introduce the novice to the field and challenge the expert.
Download or read book Regions and Powers written by Barry Buzan and published by Cambridge University Press. This book was released on 2003-12-04 with total page 598 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book develops the idea that since decolonisation, regional patterns of security have become more prominent in international politics. The authors combine an operational theory of regional security with an empirical application across the whole of the international system. Individual chapters cover Africa, the Balkans, CIS Europe, East Asia, EU Europe, the Middle East, North America, South America, and South Asia. The main focus is on the post-Cold War period, but the history of each regional security complex is traced back to its beginnings. By relating the regional dynamics of security to current debates about the global power structure, the authors unfold a distinctive interpretation of post-Cold War international security, avoiding both the extreme oversimplifications of the unipolar view, and the extreme deterritorialisations of many globalist visions of a new world disorder. Their framework brings out the radical diversity of security dynamics in different parts of the world.
Download or read book Dangerous Diagnostics written by Dorothy Nelkin and published by University of Chicago Press. This book was released on 1994-03 with total page 236 pages. Available in PDF, EPUB and Kindle. Book excerpt: A study of the pervasiveness of diagnostic testing and the potential it offers institutions to classify, categorize and ultimately control individuals. The ethical, social and legal implications of technologies that can lead to new forms of discrimination are also included.
Download or read book The U S Congress written by Donald A. Ritchie and published by Oxford University Press. This book was released on 2016 with total page 169 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the second edition of The U.S. Congress, Donald A. Ritchie, a congressional historian for more than thirty years, takes readers on a fascinating, behind-the-scenes tour of Capitol Hill, pointing out the key players, explaining their behavior, and translating parliamentary language into plain English. No mere civics lesson, this eye-opening book provides an insider's perspective on Congress, matched with a professional historian's analytical insight. After a swift survey of the creation of Congress by the constitutional convention, he begins to unscrew the nuts and pull out the bolts. What is it like to campaign for Congress? To attract large donors? To enter either house with no seniority? He answers these questions and more, explaining committee assignments and committee work, the role of staffers and lobbyists, floor proceedings, parliamentary rules, and coalition building. Ritchie explores the great effort put into constituent service-as representatives and senators respond to requests from groups and individuals-as well as media relations and news coverage. He also explores how the grand concepts we all know from civics class--checks and balances, advise and consent, congressional oversight--work in practice in an age of strong presidents and a muscular Senate minority.
Download or read book Pay for Performance in Health Care written by Jerry Cromwell and published by RTI Press. This book was released on 2011-02-28 with total page 388 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a balanced assessment of pay for performance (P4P), addressing both its promise and its shortcomings. P4P programs have become widespread in health care in just the past decade and have generated a great deal of enthusiasm in health policy circles and among legislators, despite limited evidence of their effectiveness. On a positive note, this movement has developed and tested many new types of health care payment systems and has stimulated much new thinking about how to improve quality of care and reduce the costs of health care. The current interest in P4P echoes earlier enthusiasms in health policy—such as those for capitation and managed care in the 1990s—that failed to live up to their early promise. The fate of P4P is not yet certain, but we can learn a number of lessons from experiences with P4P to date, and ways to improve the designs of P4P programs are becoming apparent. We anticipate that a “second generation” of P4P programs can now be developed that can have greater impact and be better integrated with other interventions to improve the quality of care and reduce costs.
Download or read book The End of Sex and the Future of Human Reproduction written by Henry T. Greely and published by Harvard University Press. This book was released on 2016-05-30 with total page 392 pages. Available in PDF, EPUB and Kindle. Book excerpt: “Will the future confront us with human GMOs? Greely provocatively declares yes, and, while clearly explaining the science, spells out the ethical, political, and practical ramifications.”—Paul Berg, Nobel Laureate and recipient of the National Medal of Science Within twenty, maybe forty, years most people in developed countries will stop having sex for the purpose of reproduction. Instead, prospective parents will be told as much as they wish to know about the genetic makeup of dozens of embryos, and they will pick one or two for implantation, gestation, and birth. And it will be safe, lawful, and free. In this work of prophetic scholarship, Henry T. Greely explains the revolutionary biological technologies that make this future a seeming inevitability and sets out the deep ethical and legal challenges humanity faces as a result. “Readers looking for a more in-depth analysis of human genome modifications and reproductive technologies and their legal and ethical implications should strongly consider picking up Greely’s The End of Sex and the Future of Human Reproduction... [It has] the potential to empower readers to make informed decisions about the implementation of advancements in genetics technologies.” —Dov Greenbaum, Science “[Greely] provides an extraordinarily sophisticated analysis of the practical, political, legal, and ethical implications of the new world of human reproduction. His book is a model of highly informed, rigorous, thought-provoking speculation about an immensely important topic.” —Glenn C. Altschuler, Psychology Today
Download or read book Freedom in the World 2004 written by Aili Piano and published by Rowman & Littlefield. This book was released on 2004 with total page 756 pages. Available in PDF, EPUB and Kindle. Book excerpt: Freedom in the World contains both comparative ratings and written narratives and is now the standard reference work for measuring the progress and decline in political rights and civil liberties on a global basis.
