Download or read book The Roller Coaster Ride of Alzheimer S Dementia written by Pavah Kucharek and published by WestBow Press. This book was released on 2018-10-31 with total page 50 pages. Available in PDF, EPUB and Kindle. Book excerpt: Box of Chocolates Mother’s Day was very unusual this year. When I arrived, I greeted my mother with, “Happy Mother’s Day, Mom!” and she said, “Thank you.” I gave her some gifts and a card, and she was very happy and appreciative. After a few minutes, she looked at me and asked, “Who are you?” When I told her I was her daughter, she said, “I didn’t know I had any children.” I told her she had two girls and one boy. She asked where the other two were, and I told her they were always around her somewhere. She then asked, “What is your name?” I said, “My name is Pavah.” She then looked at me very strangely and asked, “Who in the world would give a child a name like that?” Just like a box of chocolates, you never know what you’re going to get!

Download or read book My Roller Coaster Ride with Sallie written by Judy J. Harritan and published by AuthorHouse. This book was released on 2013-07-29 with total page 100 pages. Available in PDF, EPUB and Kindle. Book excerpt: Judys mother Sallie suffered from Alzheimers for many years. Judy wrote this book to share her experiences as Sallies caregiver in an effort to help others cope with a loved ones Alzheimers and to help them enjoy the ride. Excerpt from the book: " While she was still physically with us, she was not the mother I knew before Alzheimers....I had grieved her loss and yet she was not gone....I knew I would miss Sallie when she was gone, but I already missed my mother. I visited, loved, and cared for a nice, old lady who did not know who I was. Sometimes she would say she did not know me, ask who I was, or tell me she had never seen me before. I would tell her my name was Judy and that I was her new visitor. I never tried to convince her that I was her daughter. She did not remember.

Download or read book The Alzheimer s Roller Coaster written by Carolyn Mers and published by . This book was released on 2013-06-24 with total page 222 pages. Available in PDF, EPUB and Kindle. Book excerpt: My story is about the frustrating, stressful, humorous and precious tender moments I have shared with my Mother, as we entered into the Alzheimer's World. Not only am I dealing with my own self-doubts and fears of what I should be doing; I am witnessing the bizarre transformation of a very sweet, kind and gentle lady into a scared, mean and ornery woman, that I barely recognize. Then there are the days of seeing pure joy in her eyes, and a smile on her face, with a child-like innocence. Alzheimer's disease is so much more than being forgetful - it changes a person's very soul.

Download or read book Never Giving Up Never Wanting To written by Barry Tutor and published by Trafford Publishing. This book was released on 2012-10-10 with total page 239 pages. Available in PDF, EPUB and Kindle. Book excerpt: Like most, I knew about Alzheimer’s disease. It causes old people to forget. When my relationship with this disease began, it highlighted how little I knew. Following my widowed mother’s Alzheimer’s diagnosis, I researched this disease to gain insight about my new role as her caregiver and decision maker. What I learned and experienced during her affliction still left me somewhat unprepared for what was yet to come. Sixteen months following my mother’s diagnosis, my dear wife and best friend was diagnosed with early-onset Alzheimer’s. Though now I was familiar with this silent killer, my wife’s diagnosis set into motion many changes and challenges in our lives. Someone is diagnosed with Alzheimer’s every sixty-eight seconds. Currently, Alzheimer’s is the only disease in the top-ten causes of death that is on the increase and has no means of prevention and no possible cure. Given these facts, support for those afflicted relies on increasing levels of caregiving as the disease progresses. Let me explain something about this “old folk’s disease.” Alzheimer’s affects more than just parents and grandparents. It is also the disease of siblings, spouses, and children. Alzheimer’s forces many families to decide between home versus institutional care. An estimated fifteen million caregivers provide some level of care to the Alzheimer’s victims still living at home. No matter what level of care you are providing, the importance of preparation is paramount. Arming yourself with knowledge begins that preparation process. I was unprepared for the roller-coaster ride my life became as the sole caregiver for two Alzheimer’s victims. To meet their varied challenges, I adapted and developed multiple techniques for targeted personalized care. If only I knew then what I know now. By sharing my knowledge and experience, I hope to better prepare you for your caregiving journey.

Download or read book You Forgot the Sauce written by G. S. Willmott and published by Garry Willmott. This book was released on 2018-10-01 with total page 198 pages. Available in PDF, EPUB and Kindle. Book excerpt: Garry Willmott will donate ten per cent of all royalties from the sales of both the paperback and e-book to an appropriate charity supporting dementia research. Donations will be distributed to the country where the sales originated from. This story brings life the anguish of those people, young and old, suffering the consequences of Alzheimer's disease. It is a story that illuminates many factual aspects of the nature of this illness while fictionally bringing us into the lives of those transformed by its devastating effects. The author has created sympathetic and credible characters whose plights we share as they confront the ways in which this tragic illness affects not only those directly stricken but also their close relatives and friends. The carefully constructed narrative shows vividly how the disease can strike anyone: Rob, a successful young medical researcher with a promising career; his mother, a respected lawyer with a life of achievement, and all those within their immediate orbit are changed utterly by the onset of this disease. There are many subsidiary contemporary elements introduced by the engaging narrative. Gay relationships, for example, are represented positively and respectfully so that we see gay couples living faithful, loving and socially acceptable lives. The author also implies some of the dangers inherent in placing too much faith in the contemporary (and often exploitative) trent to online relationships. There are tragedies and triumphs in this tight and suspenseful narrative. It is an 'emotional roller-coaster', both poignant and uplifting. It is also a compelling read. Two gentlemen were sharing a house together after both their wives had died; both suffered dementia. One of them, Harry, asked his housemate Frank if he wanted anything up at the shops. "Why would I bother Harry? You'll forget by the time you get out the back door." "No, don't be silly, of course I'll remember. I'm feeling good today." "Ok, do you know those ice-creams that have a chocolate flake sticking out of it?" "Yeah!" "Well I want one of them." "Ok, done." "What did I ask for?" "You want one of those ice-creams that have a chocolate flake sticking out of it." "Seeing you remembered that, I want hundreds and thousands sprinkled over the whole lot. Oh forget it, you'll never remember." "I will, I promise." Harry left the house to walk the one kilometre to the shops; three hours later he returned and plonked a brown paper bag down on the kitchen table. "There's your pie." Frank looked inside the bag. "For god's sake, you forgot the sauce!"

Download or read book Watching Her Go written by Ann Childress and published by Ann Childress. This book was released on 2017-09-08 with total page 68 pages. Available in PDF, EPUB and Kindle. Book excerpt: Watching Her Go: The Beauty and Tragedy of Alzheimer's Disease Captured in a Daughter's Poetry is a collection of poems that literally and visually reflect the dark humor and gut-wrenching and raw experiences of the author during the last three years of her mom's life with Alzheimer's disease. It is a snapshot of the roller coaster of emotions shared by so many of those who love someone with this disease, as well as those who are afflicted. The book, which began as a documentation of the author's journey, has turned into an educational and cathartic collection of poems recommended for others.

Download or read book One Foot on the Gas and One on the Brake written by Patti Hareid and published by Christian Faith Publishing, Inc.. This book was released on 2022-11-03 with total page 63 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer's is an equal opportunity disease. No amount of power walking or leafy vegetables or crossword puzzles has proven to prevent it. Just as none of our protests, wishful thinking, or denial keeps it at bay, or changes its trajectory. I'm pretty sure of this because I lost my father to Alzheimer's disease""over and over again. Our family "lived" with the disease for over ten years while my sisters and I did our utmost to accommodate the disease. To lessen its impact on our father who was suffering from the disease, and our mother who preferred not to acknowledge it. There were weeks or months when the disease seemed to plateau and few changes occurred. And then there were weeks when every day revealed some decline""whether subtle or substantial""which we pretty much expected, but for which we were totally unprepared. Knowledge of the disease and its progression was merely academic, and neither comforting nor taken in stride as the disease steadily wreaked its havoc. It's The Process (and yes, it merits capitalization) into which our family was thrust and to which we unwittingly obeyed that I feel compelled to share with others. The Process was a force onto itself that underlay our family trying arrangement after arrangement to protect our parents, respect their wishes, and remain true to ourselves. If I, for one had known from the beginning that doing the right thing for our parents was a process of sound decision-making, information gathering, good intentions, gut instincts, and balancing logic with emotion, I would have suffered far less consternation and self-doubt. Was The Process otherworldly? Or was it the natural outcome of four daughters working together in the best way and for the best reasons to ensure their parents' last years were becoming of the lives they lived? No way to know.

Download or read book Chicken Soup for the Soul Living with Alzheimer s Other Dementias written by Amy Newmark and published by Simon and Schuster. This book was released on 2014-04-22 with total page 368 pages. Available in PDF, EPUB and Kindle. Book excerpt: Collects personal accounts from Alzheimer's patients and family members on their individual struggles, providing inspiring and uplifting tales of strength, treatment, and compassion. --

Download or read book Voices Of Alzheimer s written by Elisabeth Peterson and published by Da Capo Lifelong Books. This book was released on 2009-04-20 with total page 298 pages. Available in PDF, EPUB and Kindle. Book excerpt: Betsy Peterson spent fourteen years caring for her husband who was suffering from dementia, an experience that put her in touch with others inside the struggle to have or to care for someone with the disease. A combination of contributions from patients, their families, friends, and caregivers, Voices of Alzheimer's gathers the poignant stories, funny quotes, and priceless encouragement that Peterson heard and that helped her along the way. Capturing the many dimensions of the Alzheimer experience-the challenges, the struggles, the humor, and even the rewards-aVoices presents a varied, and realistic, look at what it's like to be affected by the disease. With compassion, humor, and grace, it offers the simple advice, wisdom, and understanding of others who have traveled the same uncertain path.

Download or read book Waiting for the Morning written by Brenda Parris Sibley and published by iUniverse. This book was released on 2001 with total page 214 pages. Available in PDF, EPUB and Kindle. Book excerpt: From the creator of the award-winning Web site, "A Year to Remember with My Mother and Alzheimer's Disease", this book brings together Brenda Parris Sibley's poetry, her caregiving journal, and cherished photographs from family albums through the years. Waiting for the Morning, the title which comes from one of her poems, is a memorial to Jessie Lee Parris, a victim of Alzheimer's, and provides helpful information for coping with caregiving, including a bibliography of suggested books for both adults and children, and a webliography of recommended Web sites by organizations, professionals, caregivers, and early-onset Alzheimer's patients.

Download or read book The Songaminute Man written by Simon McDermott and published by Harlequin. This book was released on 2018-09-01 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: A powerful and emotional memoir about family and memory from the father-son singing sensation whose heartwarming carpool karaoke video took social media by storm. At first, Simon’s beloved father, Ted, suffered sudden bad moods and forgetfulness. Then the diagnosis: Alzheimer’s. Ted was disappearing from the family, but Simon wanted to hold on to him. While music could bring him back temporarily—the video of the two of them singing along to Ted’s favorite song was a hit around the world—Ted could no longer tell his story. This is that story. The Songaminute Man is the heartbreaking, poignant tale of vanishing family memories, a celebration of Ted’s life and a moving account of caring for a truly loved father.

Download or read book Hell No I Don t Remember I Have Alzheimer s written by Beth Withers Banning and published by Xlibris Corporation. This book was released on 2021-08-30 with total page 379 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Hell No I Don't Remember, I Have Alzheimer's!" were the very words spoken by one of our loved ones when asked if they remembered. Dementia and Alzheimer's are inordinate diseases that steal away the thoughts, memories, and perspectives of those impacted. They are villains that corrode the filters of one's mind leaving them open for more decay. Four authors have collaborated to share their experiences about the reality of caring for loved ones who have dementia/Alzheimer’s. If you are struggling with this disease as a caregiver, you will undoubtedly identify with many of the same experiences. It is our hope that our shared stories give you solace in knowing others are walking this journey with you. You are not alone. Perhaps you can find a respite in each chapter and take away valuable information.

Download or read book Floating in the Deep End How Caregivers Can See Beyond Alzheimer s written by Patti Davis and published by Liveright Publishing. This book was released on 2021-09-28 with total page 185 pages. Available in PDF, EPUB and Kindle. Book excerpt: With the heartfelt prose of a loving daughter, Patti Davis provides a life raft for the caregivers of Alzheimer’s patients. “For the decade of my father’s illness, I felt as if I was floating in the deep end, tossed by waves, carried by currents, but not drowning,” writes Patti Davis in this searingly honest and deeply moving account of the challenges involved in taking care of someone stricken with Alzheimer’s. When her father, the fortieth president of the United States, announced his Alzheimer’s diagnosis in an address to the American public in 1994, the world had not yet begun speaking about this cruel, mysterious disease. Yet overnight, Ronald Reagan and his immediate family became the face of Alzheimer’s, and Davis, once content to keep her family at arm’s length, quickly moved across the country to be present during “the journey that would take [him] into the sunset of [his] life.” Empowered by all she learned from caring for her father—about the nature of the illness, but also about the loss of a parent—Davis founded a support group for the family members and friends of Alzheimer’s patients. Along with a medically trained cofacilitator, she met with hundreds of exhausted and devastated attendees to talk through their pain and confusion. While Davis was aware that her own circumstances were uniquely fortunate, she knew there were universal truths about dementia, and even surprising gifts to be found in a long goodbye. With Floating in the Deep End, Davis draws on a welter of experiences to provide a singular account of battling Alzheimer’s. Eloquently woven with personal anecdotes and helpful advice tailored specifically for the overlooked caregiver, this essential guide covers every potential stage of the disease from the initial diagnosis through the ultimate passing and beyond. Including such tips as how to keep a loved one hygienic, and careful responses for when they drift to a time gone by, Davis always stresses the emotional milestones that come with slow-burning grief. Along the way, Davis shares how her own fractured family came together. With unflinching candor, she recalls when her mother, Nancy, who for decades could not show her children compassion or vulnerability, suddenly broke down in her arms. Davis also offers tender moments in which her father, a fabled movie star whom she always longed to know better, revealed his true self—always kind, even when he couldn’t recognize his own daughter. An inherently wise work that promises to become a classic, Floating in the Deep End ultimately provides hope to struggling families while elegantly illuminating the fragile human condition.

Download or read book Dementia Sucks written by Tracey S. Lawrence and published by Post Hill Press. This book was released on 2018-05-15 with total page 355 pages. Available in PDF, EPUB and Kindle. Book excerpt: “Not buying it, huh?” My mother acknowledged her assertion that the woman she pointed out at the rehab center as being her dead husband was a bit of a stretch. But this was the kind of conversation I had with Mom as her cognitive abilities declined and her psychosis fully bloomed. The true, heart-wrenching, and yet hilarious stories at the center of Dementia Sucks were borne of a journal and blog that author Tracey Lawrence kept as her mother transformed from classic Jewish mother, to mildly forgetful Floridian grandma, to geriatric delinquent removed by police for knife-play at a rehabilitation facility. Really. Tracey’s journey takes her from being an established graphic artist in northern New Jersey through bouts of full-time, hands-on caregiving of both her aging parents. She discusses many of the common challenges families face, and provides a humorous and highly educational perspective on her emotionally charged ride through geriatric illnesses, doctors, hospitals, insurance, facilities, family dynamics, and much more. Anyone who has family members they care about will want to read this book. Whether dementia visits or not, some aspect of Tracey’s caregiving journey will likely resonate with, amuse, and enlighten you. The trick to surviving loss after loss is to find the humor in it all and avoid punching anyone, least of all yourself. This irreverent look shows you the way.

Download or read book A Caregiver s Guide to Lewy Body Dementia written by Helen Buell Whitworth, MS, BSN and published by Springer Publishing Company. This book was released on 2020-11-15 with total page 352 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Jim and Helen Whitworth have done an outstanding job not only of collecting a comprehensive compendium on all aspects of LBD, but they also have provided a personal touch with a moving compilation of anecdotes, stories, and quotes. I commend them for their efforts and will most certainly recommend this book as required reading for all my LBD patients and their families." -James E. Galvin, MD, MPH, Director, Comprehensive Center for Brain Health, Chief of Cognitive Aging for Palm Beach and Broward Counties, University of Miami Miller School of Medicine A Caregiver's Guide to Lewy Body Dementia is the first book to present a thorough picture of what Lewy body dementia really is. Combining current strategies for managing symptoms and behaviors with personal examples that connect to readers' own experiences, this is the ideal book for caregivers, family members, and friends of individuals seeking to understand the disease and provide support to their loved ones. Written in easy-to-read language, the chapters incorporate handy facts and tips throughout, definitions of key terms, and practical wisdom to help caregivers navigate the day-to-day. Links to online resources, support groups, and associations are collected at the end of the book for further reference. As a complete guide to Lewy body dementia, this revised and updated second edition includes coverage of recent research developments and topic areas of growing interest, including: Updated information on the latest drug and treatment options Brand new chapter on the psychology of dementia, explaining the ways dementia changes the brain and how caregivers can continue to relate to their loved ones Discussions of the various causes for dementia-related behaviors and responsive dementia care techniques for caregivers to follow Expanded section on alternative therapies in a new chapter dedicated to managing stress

Download or read book Alzheimer s from the Inside Out written by Richard Taylor and published by . This book was released on 2007 with total page 292 pages. Available in PDF, EPUB and Kindle. Book excerpt: Receiving a diagnosis of Alzheimer's disease profoundly alters lives and creates endless uncertainty about the future. How does a person cope with such a life-changing discovery? What are the hopes and fears of someone living with this disease? How does he want to be treated? How does he feel as the disease alters his brain, his relationships, and ultimately himself? Richard Taylor provides illuminating responses to these and many other questions in this collection of provocative essays. Diagnosed with Alzheimer's disease at age 61, the former psychologist courageously shares an account of his slow transformation and deterioration and the growing division between his world and the world of others. With poignant clarity, candor, and even occasional humor, more than 80 brief essays address difficult issues faced by those with Alzheimer's disease, including the loss of independence and personhood unwanted personality shifts communication difficulties changes in relationships with loved ones and friends the declining ability to perform familiar tasks This rare, insightful exploration into the world of individuals with Alzheimer's disease is a captivating read for anyone affected personally or professionally by the devastating disease. Individuals with early-stage Alzheimer's disease will take comfort in the voice of a fellow traveler experiencing similar challenges, frustrations, and triumphs. Family and professional caregivers will be enlightened by Taylor's revealing words, gaining a better understanding of an unfathomable world and how best to care for someone living in it.

Download or read book Losing Me While Losing You written by Jeanette A. Auger and published by Fernwood Publishing. This book was released on 2021-09-21T00:00:00Z with total page 218 pages. Available in PDF, EPUB and Kindle. Book excerpt: Losing Me, While Losing You is a long-needed resource to those providing care for people living with dementia — and for those providing care to the caregivers. In this book, caregivers speak from their own experiences of caring for loved ones with dementia; they cover when they first noticed behavioural changes, what they did and how their roles changed when they received the diagnosis, how the experiences changed their perceptions of themselves, especially in cases where important ones no longer recognized them or their, often long-standing, relationships. The caregivers also talked about what resources, if any, were available to support them through the caregiving journey and what recommendations they would make to government policymakers and to others in similar situations. This book is unique in that it documents the personal lived experience of loss which family, friends and caregivers go through as their roles, expectations and images of self are changed throughout the caregiving process.