Download or read book Rare Diseases and Orphan Products written by Institute of Medicine and published by National Academies Press. This book was released on 2011-04-03 with total page 442 pages. Available in PDF, EPUB and Kindle. Book excerpt: Rare diseases collectively affect millions of Americans of all ages, but developing drugs and medical devices to prevent, diagnose, and treat these conditions is challenging. The Institute of Medicine (IOM) recommends implementing an integrated national strategy to promote rare diseases research and product development.
Download or read book The Complete Family Guide to Dementia written by Thomas F. Harrison and published by Guilford Publications. This book was released on 2022-08-10 with total page 255 pages. Available in PDF, EPUB and Kindle. Book excerpt: If you are facing the unique challenges of caring for a parent with dementia, you are not alone. What do you do when your loved one so plainly needs assistance, but is confused, angry, or resistant to your help? Where can you find the vital information you need, when you need it? Journalist Thomas Harrison and leading geriatric psychiatrist Brent Forester show that you don’t have to be a medical expert to be a good care provider in this authoritative guide. They explain the basics of dementia and offer effective strategies for coping with the medical, emotional, and financial toll. With the right skills, you can navigate changing family roles, communicate better with your parent, keep him or her safe, and manage difficult behaviors. Learn how to "care smarter, not harder"--and help your loved one maintain the best possible quality of life. Winner (Second Place)--American Journal of Nursing Book of the Year Award, Consumer Health Category Winner (Third Place)--Foreword INDIES Book of the Year Award, Family & Relationships Category
Download or read book The Family Guide to Preventing and Treating 100 Infectious Illnesses written by Phyllis Stoffman and published by Turner Publishing Company. This book was released on 1995-07-26 with total page 451 pages. Available in PDF, EPUB and Kindle. Book excerpt: Quick, friendly, and easy-to-use, this indispensable addition to every family medical bookshelf answers all your questions about 100 increasingly common infections--from Lyme disease, flu, and strep to ear infections, chicken pox, meningitis, and TB. The book explains symptoms, incubation periods, home nursing care, necessary treatment, and how to protect your family from illness. You can look up any infection by its common or medical name, the age of the patient, or the circumstances under which it is transmitted. This comprehensive, detailed reference will give you: * Facts on over-the-counter drugs and effective home remedies * Advice on why and when your children need immunizations * Information on the important differences in treating infants, children, and adults with the same infections * Guidance on caring for family members with chronic illnesses who catch an infectious disease * Phone numbers to call regarding specific diseases and their prevention * Recommendations for protection during international travel and adoptions "The facts you need to prevent infections and care for those who have them." --Ronald Gold, M.D., M.P.H.
Download or read book Registries for Evaluating Patient Outcomes written by Agency for Healthcare Research and Quality/AHRQ and published by Government Printing Office. This book was released on 2014-04-01 with total page 385 pages. Available in PDF, EPUB and Kindle. Book excerpt: This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
Download or read book The Family Guide to Surviving Stroke and Communication Disorders written by Dennis C. Tanner and published by Jones & Bartlett Learning. This book was released on 2008 with total page 331 pages. Available in PDF, EPUB and Kindle. Book excerpt: A comprehensive guide for families of stroke survivors, speech pathologists and rehabilitation specialists, and counselors who respond to the needs of stroke survivors and their families, this edition engages all readers on a journey toward understanding, healing, and persevering after a stroke and uses non-technical terms, case studies, questions and answers, and examples.
Download or read book Rare Diseases in the Age of Health 2 0 written by Rajeev K. Bali and published by Springer Science & Business Media. This book was released on 2013-10-21 with total page 307 pages. Available in PDF, EPUB and Kindle. Book excerpt: This text focuses on various factors associated with orphan diseases and the influence and role of health information technologies. Orphan diseases have not been adopted by the pharmaceutical industry because they provide little financial incentive to treat or prevent it. It is estimated that 6,000-7,000 orphan diseases exist today; as medical knowledge continues to expand, this number is likely to become much greater. The book highlights the opportunities and challenges in this increasingly important area. The book explores new avenues which are opened by information technologies and Health 2.0, and highlights also economic opportunities of orphan disease medicine. The editors of this new book have international experience and competencies in the key areas of patient empowerment, healthcare and clinical knowledge management, healthcare inequalities and disparities, rare diseases and patient advocacy.
Download or read book Physicians Guide to Rare Diseases written by Jess G. Thoene and published by Dowden Publishing. This book was released on 1995 with total page 1056 pages. Available in PDF, EPUB and Kindle. Book excerpt: This classic reference, now with almost 900 disease descriptions, is edited by nationally known pediatrician Jess G. Thoene, M.D. & provides a quick, organized approach to identifying puzzling & unusual symptoms, giving patients the opportunity for early diagnosis & treatment. Special features include: * A full color atlas of visual clues, cross referenced to disease listings. * Thirteen separate specialty sections with an expert overview to introduce each section. Eminent clinicians from the outstanding research centers in rare diseases give you the current status of research & practical approaches to diagnosis & therapy of the rare diseases in that specialty. * Full reference to more than 250 orphan drugs. Each drug is cross referenced to the appropriate disease description. * Clear language for the Layperson. Though written for physicians, the descriptions of diseases, symptoms & treatments are clear & understandable for patients, educators & others outside the medical profession. Each disease description provides symptomatology, etiology, affected population & a comparison of related disorders. Each disease description contains a list of other resources to consult: voluntary agencies, units of the National Institutes of Health, research centers around the country, etc. Addresses & phone numbers are provided in a central reference. Library Journal: "...PHYSICIAN'S GUIDE...is recommended for medical collections & public libraries with consumer health collections."
Download or read book Professional Guide to Diseases written by Lippincott ... and published by Lww. This book was released on 2015-04-24 with total page 1296 pages. Available in PDF, EPUB and Kindle. Book excerpt: Organized around disease clusters, this comprehensive guide to disease information, ranging from causes, signs and symptoms, and diagnosis through treatment and special considerations, has been updated with the latest in original research and practice guidelines and designed to provide a brief yet comprehensive overview of a large array of disease processes. --from publisher description.
Download or read book Physicians Guide to Rare Diseases written by and published by . This book was released on 1995 with total page 1054 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Family Guide to Mental Illness and the Law written by Linda Tashbook and published by . This book was released on 2019 with total page 505 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family Guide to Mental Illness and the Law offers the nuts-and-bolts legal information and problem-solving steps families need. This accessible resource explains how common legal issues uniquely impact people with various forms of mental illness and what family members can do to help.
Download or read book Genodermatoses written by Joel L. Spitz and published by Lippincott Williams & Wilkins. This book was released on 2005 with total page 468 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Aimed at dermatologists, pediatricians and family physicians, this resource can be used for both board preparation and clinical practice. Each syndrome is presented in easy-to-read, two-page spreads that include full body diagrams and clinical photographs. The material is summarized in bulleted text that lists the patterns of inheritance, prenatal diagnosis, incidence, age of presentation, pathogenesis, key features, differential diagnosis, lab findings, management and prognosis. Clinical pearls are interspersed through the text. This second edition updates previous chapters and includes new syndromes, such as PHACE, AEC, EEC, Griscelli and Birt-Hogg-Dube. Annotation : 2004 Book News, Inc., Portland, OR (booknews.com)"--[source inconnue].
Download or read book Extraordinary A Book for Children with Rare Diseases Mandarin written by Evren And Kara Ayik and published by Kara Ayik. This book was released on 2022-03-03 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: 是什么让罕见病儿童非同寻常？ 聆听罕见病儿童埃夫伦自我成长的心路历程，探索问题答案！ 本书由母子联手创作，基于罕见病患者面临的挑战与机遇，就身份、包容与自我认知展开适合孩子的讨论。书中的经验全部是小作者作为超罕见病患者一路长大的亲身经历，旨在为小读者理解个人身份和罕见病对个人身份的正面影响提供指南。家庭成员和护理人员也可以积极参与孩子的探索过程，根据孩子的成长需求制定读书计划。 本书插图由获奖童书插画家伊恩-戴尔绘制。《非同寻常的你！》旨在通过其由衷的文字和敏感又真实的插画鼓舞、激励所有患有罕见病的孩子活出最美好的一生。 What makes a child with a rare disease extraordinary? Explore the answer to this question while sharing a conversation with Evren about what he has learned while growing up with his own rare disease. Written collaboratively by mother and son, this book opens up a child-friendly discussion about identity, inclusion, and self-concept in light of the challenges and silver linings of living with a rare disease. The gentle lessons draw on the co-author's first-hand experience of growing up with an ultra-rare disease and offer young readers a framework for understanding personal identity and how their rare diseases can help shape it in positive ways. Family members and caregivers are invited to share in this conversation and to customize the reading according to each young reader's developmental needs. Accompanied by sensitive yet realistic illustrations created by award-winning artist and children's book illustrator Ian Dale, the heartfelt messages introduced in Extraordinary! are intended to uplift and encourage any children living with rare diseases to live their very best lives.
Download or read book Anesthesia and Uncommon Diseases written by Lee A. Fleisher and published by Elsevier Health Sciences. This book was released on 2012-06-01 with total page 663 pages. Available in PDF, EPUB and Kindle. Book excerpt: Your awareness of uncommon diseases and possible complications is vital to successful anesthetic patient management. Anesthesia and Uncommon Diseases, 6th Edition, brings you up to date with new information on less commonly seen diseases and conditions, including the latest evidence and management guidelines. This unique medical reference book is essential for a complete understanding of today's best options and potential difficulties in anesthesia. Improve your ability to successfully manage every patient, including those with rare diseases or conditions. Avoid complications with unique coverage of an important aspect of anesthetic management. Access the complete contents and illustrations online at www.expertconsult.com - fully searchable! Stay current with all-new chapters on adult congenital heart disease, rheumatic diseases, and the cancer patient, plus many more revisions throughout. Get outstanding visual guidance with hundreds of illustrations, now in full color.
Download or read book NGS Technologies of Rare Diseases Diagnosis written by María L. Couce and published by Frontiers Media SA. This book was released on 2022-12-05 with total page 257 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Catalog Supplement written by Food and Nutrition Information Center (U.S.) and published by . This book was released on 1973 with total page 488 pages. Available in PDF, EPUB and Kindle. Book excerpt: Includes bibliography and indexes / subject, personal author, corporate author, title, and media index.
Download or read book Food and Nutrition Information and Educational Materials Center catalog written by Food and Nutrition Information Center (U.S.). and published by . This book was released on 1976 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Gazette of the Union Golden Rule and Odd Fellows Family Companion written by and published by . This book was released on 1847 with total page 426 pages. Available in PDF, EPUB and Kindle. Book excerpt:
