Download or read book The Moral Challenge of Alzheimer Disease written by Stephen G. Post and published by JHU Press. This book was released on 2002-11-04 with total page 176 pages. Available in PDF, EPUB and Kindle. Book excerpt: Society today, writes Stephen Post, is "hypercognitive": it places inordinate emphasis on people's powers of rational thinking and memory. Thus, Alzheimer disease and other dementias, which over an extended period incrementally rob patients of exactly those functions, raise many dilemmas. How are we to view—and value—persons deprived of what some consider the most important human capacities? In the second edition of The Moral Challenge of Alzheimer Disease, Post updates his highly praised account of the major ethical issues relating to dementia care. With chapters organized to follow the progression from mild to severe and then terminal stages of dementia, Post discusses topics including the experience of dementia, family caregiving, genetic testing for Alzheimer disease, quality of life, and assisted suicide and euthanasia. New to this edition are sections dealing with end-of-life issues (especially artificial nutrition and hydration), the emerging cognitive-enhancing drugs, distributive justice, spirituality, and hospice, as well as a critique of rationalistic definitions of personhood. The last chapter is a new summary of practical solutions useful to family members and professionals.
Download or read book Dignity for Deeply Forgetful People written by Stephen G. Post and published by JHU Press. This book was released on 2022-05-31 with total page 289 pages. Available in PDF, EPUB and Kindle. Book excerpt: "A new ethics guideline for caregivers of "deeply forgetful people" and a program on how to communicate and connect based on 30 years of community dialogues through Alzheimer's organizations across the globe"--
Download or read book The Problem of Alzheimer s written by Jason Karlawish and published by St. Martin's Press. This book was released on 2021-02-23 with total page 269 pages. Available in PDF, EPUB and Kindle. Book excerpt: A definitive and compelling book on one of today's most prevalent illnesses. In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2050. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's traces Alzheimer’s from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems’ failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer’s to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers’ support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center.
Download or read book Cognitive Disability and Its Challenge to Moral Philosophy written by Eva Feder Kittay and published by John Wiley & Sons. This book was released on 2010-05-18 with total page 440 pages. Available in PDF, EPUB and Kindle. Book excerpt: Through a series of essays contributed by clinicians, medicalhistorians, and prominent moral philosophers, CognitiveDisability and Its Challenge to Moral Philosophy addresses theethical, bio-ethical, epistemological, historical, andmeta-philosophical questions raised by cognitive disability Features essays by a prominent clinicians and medicalhistorians of cognitive disability, and prominent contemporaryphilosophers such as Ian Hacking, Martha Nussbaum, and PeterSinger Represents the first collection that brings togetherphilosophical discussions of Alzheimer's disease,intellectual/developmental disabilities, and autism under therubric of cognitive disability Offers insights into categories like Alzheimer's, mentalretardation, and autism, as well as issues such as care,personhood, justice, agency, and responsibility
Download or read book Dementia and Aging written by Robert H. Binstock and published by Johns Hopkins University Press. This book was released on 1992-09-01 with total page 214 pages. Available in PDF, EPUB and Kindle. Book excerpt: Several million Americans are afflicted with Alzheimer's disease or a related dementing disorder. For families, professional caregivers, policy makers, and the patients themselves, the challenges are immense and the economic costs are staggering. In Dementia and Aging Robert H. Binstock, Stephen G. Post, and Peter J. Whitehouse bring together experts in gerontology, geriatrics, psychiatry, neurology, nursing, ethics, philosophy, public policy, and law to examine the ethical, moral, and policy controversies surrounding dementia. The authors first present background information on dementia and related ethical and policy issues. The remainder of the book is divided into three parts. Part One conveys the difficulties experienced by dementia patients and their caregivers. Part Two deals with ethical and moral issues involved in decisions regarding treatment and care, including the highly controversial subject of euthanasia. Part Three lays out societal choices regarding the allocation of resources for treatment, care, and research on dementia.
Download or read book The Person with Alzheimer s Disease written by Phyllis Braudy Harris and published by JHU Press. This book was released on 2002-06-06 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: The first book to provide a comprehensive look at what it's like to have dementia and the subjective experience of living with progressive memory loss. Few families are untouched by Alzheimer's disease or a related dementia. Moving accounts of what it is like to care for someone with this disease have already been published, as well as how-to books that offer caregivers advice and information on coping. But this book is the first to provide a comprehensive report of what it is like to have dementia oneself—the subjective experience of living with progressive memory loss. Each chapter discusses a different aspect of having dementia, from the initial assessment and diagnosis through placement in a nursing home. The discussions are grounded in qualitative research and case studies, which convey the variable and personal nature of the experience. They seek to help clinicians, researchers, students, and caregivers (both professionals and family members) understand the experience of dementia, and thereby to promote better caregiving through a person-centered approach. Contributors: Kathleen Kahn-Denis, Judson Retirement Community; Casey Durkin, a psychotherapist in Cleveland, Ohio; Jane Gilliard, Dementia Voice, UK; Phyllis Braudy Harris, John Carroll University; John Keady, University of Wales, UK; John Killick, University of Stirling, UK; Rebecca G. Logsdon, University of Washington; Charlie Murphy, University of Stirling, UK; Alison Phinney, University of British Columbia, Canada; Steven R. Sabat, Georgetown University; Dorothy Seman, Alzheimer's Family Care Center, Chicago; Lisa Snyder, University of California, San Diego; Jane Stansell, Alzheimer's Family Care Center, Chicago; Gloria Sterin, Shaker Heights, Ohio; Jon C. Stuckey, Messiah College; Robyn Yale, Consultant to the Alzheimer's Association, San Francisco; Rosalie Young, Wayne State University School of Medicine.
Download or read book The Moral Status of Persons written by Gerhold K. Becker and published by Rodopi. This book was released on 2000 with total page 270 pages. Available in PDF, EPUB and Kindle. Book excerpt: The advances in molecular biology and genetics, medicine and neurosciences, in ethology and environmental studies have put the concept of the person firmly on the philosophical agenda. Whereas earlier times seemed to have a clear understanding about the moral implications of personhood and its boundaries, today there is little consensus on such matters. Whether a patient in the last stages of Alzheimer's disease is still a person, or whether a human embryo is already a person are highly contentious issues. This book tackles the issue of personhood and its moral implications head-on. The thirteen essays are representative of the major strands in the current bioethical debate and offer new insights into humanity's moral standing, its foundations, and its implications for social interaction. While most of the essays approach the issue by drawing on the rich intellectual tradition of the West, others offer a cross-cultural perspective and make available for ethical consideration the philosophical resources and the wisdom of the East. The contributors to this book are highly recognized philosophers, ethicists, theologians, and professionals in health care and medicine from East Asia (China, Japan), Europe, and North America. The first part of the book probes the foundations of personhood. Examining critically the main theories on personhood in contemporary philosophy, the authors offer alternatives that better respond to contemporary challenges and their implications for bioethics. The focus of the second part is firmly on the Confucian relational concept of the person and on the social constitution of personhood in traditional Japanese culture. While the essays challenge the individualistic features of personhood in the Western tradition, they lay the foundations for a richer concept that holds great promise for the resolution of moral dilemmas in modern medicine and health care. The third part of the book enters into a dialogue with the Christian tradition and draws on its spiritual heritage in the search for answers to the contemporary challenges to human dignity and value. Its focus is on the Catholic social thought and Lutheran theology. The fourth part addresses the moral status of persons in view of specific issues such as the effects of brain injury, gene therapy, and human cloning on personhood. It extends the scope of research beyond human beings and inquires also into the moral status of animals.
Download or read book The Moral Challenge of Alzheimer Disease written by Stephen Garrard Post and published by . This book was released on 2000 with total page 162 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Soul of Care written by Arthur Kleinman and published by Penguin. This book was released on 2019-09-17 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: A moving memoir and an extraordinary love story that shows how an expert physician became a family caregiver and learned why care is so central to all our lives and yet is at risk in today's world. When Dr. Arthur Kleinman, an eminent Harvard psychiatrist and social anthropologist, began caring for his wife, Joan, after she was diagnosed with early-onset Alzheimer's disease, he found just how far the act of caregiving extended beyond the boundaries of medicine. In The Soul of Care: The Moral Education of a Husband and a Doctor, Kleinman delivers a deeply humane and inspiring story of his life in medicine and his marriage to Joan, and he describes the practical, emotional and moral aspects of caretaking. He also writes about the problems our society faces as medical technology advances and the cost of health care soars but caring for patients no longer seems important. Caregiving is long, hard, unglamorous work--at moments joyous, more often tedious, sometimes agonizing, but it is always rich in meaning. In the face of our current political indifference and the challenge to the health care system, he emphasizes how we must ask uncomfortable questions of ourselves, and of our doctors. To give care, to be "present" for someone who needs us, and to feel and show kindness are deep emotional and moral experiences, enactments of our core values. The practice of caregiving teaches us what is most important in life, and reveals the very heart of what it is to be human.
Download or read book Intelligent Assistive Technologies for Dementia written by Fabrice Jotterand and published by Oxford University Press, USA. This book was released on 2019 with total page 321 pages. Available in PDF, EPUB and Kindle. Book excerpt: The increasingly widespread implementation and use of intelligent assistive technologies (IATs) is reshaping dementia care. This volume provides an up-to-date overview of the current state of IATs for dementia care. The new essays collected here examine what IATs will mean for clinical practice and the ethical and regulatory challenges they will pose.
Download or read book Animal Experimentation written by Kathrin Herrmann and published by . This book was released on 2019 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Animal Experimentation: Working Towards a Paradigm Change critically appraises current animal use in science and discusses ways in which we can contribute to a paradigm change towards human-biology based approaches.
Download or read book Caring for a Person with Alzheimer s Disease Your Easy to Use Guide from the National Institute on Aging Revised January 2019 written by National Institute on Aging and published by Lulu.com. This book was released on 2019-04-13 with total page 106 pages. Available in PDF, EPUB and Kindle. Book excerpt: The guide tells you how to: Understand how AD changes a person Learn how to cope with these changes Help family and friends understand AD Plan for the future Make your home safe for the person with AD Manage everyday activities like eating, bathing, dressing, and grooming Take care of yourself Get help with caregiving Find out about helpful resources, such as websites, support groups, government agencies, and adult day care programs Choose a full-time care facility for the person with AD if needed Learn about common behavior and medical problems of people with AD and some medicines that may help Cope with late-stage AD
Download or read book Ethical Issues in Dementia Care written by Julian C. Hughes and published by Jessica Kingsley Publishers. This book was released on 2006-09-15 with total page 146 pages. Available in PDF, EPUB and Kindle. Book excerpt: Bradford Dementia Group Good Practice Guides There are always difficult day to day decisions to be faced when caring for a person with dementia - from knowing how to deal with wandering to end of life decisions. Many of these decisions are underpinned by value judgments about right and wrong and reflect a particular view of dementia. This book considers these ethical decisions in the context of relationships, treatment, safety and quality of life, offering practical guidance and advice. It draws on the experiences of family carers as well as on existing research and emphasizes the importance of empathy and the need to acknowledge different perspectives in order to reach the best decision for the person with dementia. In particular the authors discuss the way that decision makers are themselves changed by the decisions they make, and the impact of this on the decision-making process. This book should be read by all those who work caring for people with dementia.
Download or read book Speaking Our Minds written by Lisa Snyder and published by . This book was released on 1999 with total page 266 pages. Available in PDF, EPUB and Kindle. Book excerpt: Four million people have been diagnosed with Alzheimer's disease in the United States, yet most live in silent shadows, their stories untold. Here seven individuals of various ages and backgrounds express their thoughts and feelings about what it is like to have Alzheimer's disease, to live with it day to day, and to cope with its impact on their lives. What emerges is a powerful and compassionate portrait of people forced to define themselves in new ways, not just by what has been lost, but also by what endures.
Download or read book Forget Memory written by Anne Davis Basting and published by JHU Press. This book was released on 2009-07-01 with total page 220 pages. Available in PDF, EPUB and Kindle. Book excerpt: Memory loss can be one of the most terrifying aspects of a diagnosis of dementia. Yet the fear and dread of losing our memory make the experience of the disease worse than it needs to be, according to cultural critic and playwright Anne Davis Basting. She says, Forget memory. Basting emphasizes the importance of activities that focus on the present to improve the lives of persons with Alzheimer's disease and other dementias. Based on ten years of practice and research in the field, Basting’s study includes specific examples of innovative programs that stimulate growth, humor, and emotional connection; translates into accessible language a wide range of provocative academic works on memory; and addresses how advances in medical research and clinical practice are already pushing radical changes in care for persons with dementia. Bold, optimistic, and innovative, Basting's cultural critique of dementia care offers a vision for how we can change the way we think about and care for people with memory loss.
Download or read book Death and Dignity written by Timothy E. Quill and published by W. W. Norton & Company. This book was released on 1994 with total page 260 pages. Available in PDF, EPUB and Kindle. Book excerpt: Encourages patients to become active participants in the process of fighting disease, and includes guidelines for medically-assisted suicide.
Download or read book Preventing Cognitive Decline and Dementia written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2017-10-05 with total page 181 pages. Available in PDF, EPUB and Kindle. Book excerpt: Societies around the world are concerned about dementia and the other forms of cognitive impairment that affect many older adults. We now know that brain changes typically begin years before people show symptoms, which suggests a window of opportunity to prevent or delay the onset of these conditions. Emerging evidence that the prevalence of dementia is declining in high-income countries offers hope that public health interventions will be effective in preventing or delaying cognitive impairments. Until recently, the research and clinical communities have focused primarily on understanding and treating these conditions after they have developed. Thus, the evidence base on how to prevent or delay these conditions has been limited at best, despite the many claims of success made in popular media and advertising. Today, however, a growing body of prevention research is emerging. Preventing Cognitive Decline and Dementia: A Way Forward assesses the current state of knowledge on interventions to prevent cognitive decline and dementia, and informs future research in this area. This report provides recommendations of appropriate content for inclusion in public health messages from the National Institute on Aging.
