Download or read book The Hemophiliac and His World written by Robert Gourdeau and published by . This book was released on 1970 with total page 213 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Hemophiliac and His World written by World Federation of Hemophilia and published by . This book was released on 1970 with total page 213 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Hemophiliac and his world written by and published by . This book was released on 1968 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Hemophiliac and His World written by World Federation of Hemophilia and published by . This book was released on 1970 with total page 213 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Hemophiliac and His World written by World Federation of Hemophilia and published by . This book was released on 1970 with total page 401 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Hemophiliac and His World written by and published by . This book was released on 1970 with total page 213 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Hemophiliac and His World written by World Federation of Hemophilia. Congress and published by . This book was released on 1970 with total page 236 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Blood Saga written by Susan Resnik and published by Univ of California Press. This book was released on 2023-09-01 with total page 306 pages. Available in PDF, EPUB and Kindle. Book excerpt: For thousands of years boys known as "bleeders" faced an early, painful death from hemophilia. Dubbed "the Royal Disease" because of its identification with Queen Victoria, the world's most renowned carrier, hemophilia is a genetic disease whose sufferers had little recourse until the mid-twentieth century. In the first book to chronicle the emergence and transformation of the hemophilia community, Susan Resnik sets her story within our national political landscape—where the disease is also a social, psychological, and economic experience. Blood Saga includes many players and domains: men with hemophilia and their families, medical personnel, science researchers, and the author herself, who was Director of Education of the National Hemophilia Foundation in the early 1980s. At that time the "miracle treatment" of freeze-dried pooled plasma blood products enabled men with hemophilia to lead full, normal lives. Then the AIDS virus infiltrated the treatment system and over fifty percent of the hemophilia community became HIV-positive. But rather than collapsing, this community refocused its priorities, extended its reach, and helped shape blood safety policies to prevent further tragedy. The hemophilia community includes people from every socioeconomic and ethnic group, and Resnik's narrative and use of oral histories never lose touch with those affected by the disease. Her extensive informant interviewing allows much of this social history to be told by participants on all levels: parents, wives, nurses, doctors, government agency directors, health care providers, and many others. Gene insertion therapy now holds the promise of a cure for hemophilia in the near future. Scientific breakthroughs inevitably become intertwined with the industry and academic medical centers that govern the national health care system. And in that system, says Resnik, costs and safety are sometimes contending issues. She makes clear that the lessons learned in Blood Saga apply to all of us.
Download or read book The Hemophiliac and His World L univers de L hermophile written by R. Gourdeau and published by . This book was released on 1970 with total page 213 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Hemophiliac and His World written by Robert Gourdeau and published by . This book was released on 1970 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Textbook of Hemophilia written by Christine A. Lee and published by John Wiley & Sons. This book was released on 2008-04-15 with total page 416 pages. Available in PDF, EPUB and Kindle. Book excerpt: The only up-to-date definitive reference source onhemophilia This book is an invaluable resource that provides an overview ofall aspects of the care of patients with haemophilia. Covering how to assess both bleeding children and adults,Haemophilia A and B, molecular basis of the disease, the role offactors in coagulation, epidemiology, pharmacokinetics, andtreatment of inhibitors. There will also be a section onmusculoskeletal aspects of haemophilia as well as newerdevelopments such as gene therapy and rare bleedingdisorders. Textbook of Hemophilia is ideal for: Trainees and residents in hematology Hematologists in practice Specialists working in thrombosis and hemostasis as well astransfusion medicine Why Buy This Book? The only up-to-date definitive reference source onhemophilia Essential for all those managing hemophilia patients Detailed guidance on assessment, diagnosis, management andtreatment Advice for everyday clinical questions Edited by three of the world’s leading experts onhemophilia
Download or read book Blood on Their Hands written by Eric Weinberg and published by Rutgers University Press. This book was released on 2017-09-15 with total page 449 pages. Available in PDF, EPUB and Kindle. Book excerpt: A few short years after HIV first entered the world blood supply in the late 1970s and early 1980s, over half the hemophiliacs in the United States were infected with the virus. But this was far more than just an unforeseeable public health disaster. Negligent doctors, government regulators, and Big Pharma all had a hand in this devastating epidemic. Blood on Their Hands is an inspiring, firsthand account of the legal battles fought on behalf of hemophiliacs who were unwittingly infected with tainted blood. As part of the team behind the key class action litigation filed by the infected, young New Jersey lawyer Eric Weinberg was faced with a daunting task: to prove the negligence of a powerful, well-connected global industry worth billions. Weinberg and journalist Donna Shaw tell the dramatic story of how idealistic attorneys and their heroic, mortally-ill clients fought to achieve justice and prevent further infections. A stunning exposé of one of the American medical system’s most shameful debacles, Blood on Their Hands is a rousing reminder that, through perseverance, the victims of corporate greed can sometimes achieve great victory.
Download or read book 5e Congr s Montr al 26 28 Ao t 1968 written by Fédération mondiale de l'hémophilie and published by . This book was released on 1970 with total page 213 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Living with Haemophilia written by Peter Jones and published by Oxford University Press, USA. This book was released on 1998 with total page 418 pages. Available in PDF, EPUB and Kindle. Book excerpt: Living With Haemophilia has established itself as the complete guide to haemophilia and related inherited bleeding disorders. Written primarily for affected families, the book also provides a useful and up-to-date guide for doctors, paramedical staff including nurses and physiotherapists, andteachers. It explains the inheritance of haemophilia, bleeding episodes and how to control them, safe treatment including home therapy and prophylaxis and the prospects for a genetic cure. Now available in paperback, this book will continue to be an essential purchase for all those affectedwhether directly or indirectly by haemophilia.
Download or read book Queen Victoria s Gene written by D M Potts and published by The History Press. This book was released on 2011-10-21 with total page 243 pages. Available in PDF, EPUB and Kindle. Book excerpt: Queen Victoria's son, Prince Leopold, died from haemophilia, but no member of the royal family before his generation had suffered from the condition. Medically, there are only two possibilities: either one of Victoria's parents had a 1 in 50,000 random mutation, or Victoria was the illegitimate child of a haemophiliac man. However the haemophilia gene arose, it had a profound effect on history. Two of Victoria's daughters were silent carriers who passed the disease to the Spanish and Russian royal families. The disease played a role in the origin of the Spanish Civil War; and the tsarina's concern over her only son's haemophilia led to the entry of Rasputin into the royal household, contributing directly to the Russian revolution.
Download or read book The Hemophiliac s Motorcycle written by Tom Andrews and published by University of Iowa Press. This book was released on 1994-04 with total page 90 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this second wise and passionate book, Tom Andrews explores illness as a major theme, avoiding sentimentality without being merely confessional. He advances his considerable talent with great strength and forcefulness. The poems ae buoyant with humor and mindful of larger mysteries even as they investigate very personal issues. There is an urgency that is compelling; the work is immersed in the private grief of the speaker without excluding the reader. There is real and hard-won wisdom and intelligence in the poems, offering genuine surprises and delight; their attractive humility is not a pose.
Download or read book congress of the World Federation of Hemophilia written by and published by . This book was released on with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
