Download or read book The Enduring Self in People with Alzheimer s written by Sam Fazio and published by . This book was released on 2008 with total page 175 pages. Available in PDF, EPUB and Kindle. Book excerpt: This enlightening book demonstrates unequivocally that a person's unique self persists throughout the course of the disease. Much can be done in care settings to support a person's sense of identity and enrich the lives of people experiencing the many losses associated with dementia. Drawing from a diverse body of research, the book brings together theories and recommendations from the best thinkers and practitioners in multiple disciplines to illustrate the meaning of self and the importance of providing dementia care that recognizes and supports personhood. The Enduring Self provides a foundation for culture change efforts in community-based and residential care settings, showing administrators and care staff how to reframe communication and interactions to build more meaningful relationships with people with Alzheimer's disease. Includes provocative discussion topics at the end of each chapter and a case study for staff training.
Download or read book Dignity for Deeply Forgetful People written by Stephen G. Post and published by JHU Press. This book was released on 2022-05-31 with total page 289 pages. Available in PDF, EPUB and Kindle. Book excerpt: "A new ethics guideline for caregivers of "deeply forgetful people" and a program on how to communicate and connect based on 30 years of community dialogues through Alzheimer's organizations across the globe"--
Download or read book The Alzheimer s Caregiving Puzzle written by Patricia R. Callone, MA, MRE and published by Demos Medical Publishing. This book was released on 2010-09-29 with total page 217 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the US 5.2 million people live with Alzheimer's disease, it is the sixth-leading cause of death and ten million baby boomers will develop Alzheimer's in their lifetime. Alzheimer's often takes a bigger toll on the caregivers of persons living with Alzheimer's, generally family members, loved-ones and friends. Written by two caregivers with 55 years of experience, the book addresses the challenges caregivers face dealing with the behaviors of those they are caring for. Through the use of diagrams, charts, examples, and stories the book will help caregivers to understand what their loved ones are going through. And what they, as caregivers, are going through as well. Although no one has all the answers to the puzzle of Alzheimer's yet, this book will help people to understand and give better care to persons living with and the people caring for them. The Alzheimer's Caregiving Puzzle shows The basic concepts of Alzheimer's disease and its progression across the brain What loved ones need as the disease progresses Outlines three caregiving styles Charts caregiving stages Five healthy caregiving practices How to give dignified, appropriate and safe care How to be compassionate with others and forgiving of one's self
Download or read book The Self in Understanding and Treating Psychological Disorders written by Michael Kyrios and published by Cambridge University Press. This book was released on 2016-03-10 with total page 255 pages. Available in PDF, EPUB and Kindle. Book excerpt: A unique exploration of how the 'self' influences psychopathology, psychotherapy, emphasizing the need to integrate self-constructs into evidence-based conceptual models.
Download or read book Self Culture and Consciousness written by Sangeetha Menon and published by Springer. This book was released on 2018-02-26 with total page 433 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume brings together the primary challenges for 21st century cognitive sciences and cultural neuroscience in responding to the nature of human identity, self, and evolution of life itself. Through chapters devoted to intricate but focused models, empirical findings, theories, and experiential data, the contributors reflect upon the most exciting possibilities, and debate upon the fundamental aspects of consciousness and self in the context of cultural, philosophical, and multidisciplinary divergences and convergences. Such an understanding and the ensuing insights lie in the cusp of philosophy, neurosciences, psychiatry, and medical humanities. In this volume, the editors and contributors explore the foundations of human thinking and being and discuss both evolutionary/cultural embeddedness, and the self-orientation, of consciousness, keeping in mind questions that bring in the interdisciplinary complexity of issues such as the emergence of consciousness, relation between healing and agency, models of altered self, how cognition impacts the social self, experiential primacy as the hallmark of consciousness, and alternate epistemologies to understand these interdisciplinary puzzles.
Download or read book Self and Identity written by Matthew Tieu and published by Taylor & Francis. This book was released on 2022-10-21 with total page 188 pages. Available in PDF, EPUB and Kindle. Book excerpt: What is a self? What does it mean to have selfhood? What is the relationship between selfhood and identity? These are puzzling questions that philosophers, psychologists, social scientists, and many other researchers often grapple with. Self and Identity is a book that explores and brings together relevant ideas on selfhood and identity, while also helping to clarify some important and long standing scientific and philosophical debates. It will enable readers to understand the difference between selves in humans and other animals, and the different selves that we come to possess from when we are born to when we become old. It also explains how and why the self might break down due to mental illness, thereby providing insight into how we might treat illnesses such as dementia and depression, both of which are conditions that fundamentally affect our selfhood. Taking an important step towards clarifying our understanding of human selfhood and applying it to mental illness, this book will be of great interest to researchers and postgraduate students exploring philosophical questions of selfhood, as well as those examining the connection to clinical disorders.
Download or read book My Bert Has Alzheimer s written by Paula de Ronde and published by FriesenPress. This book was released on 2022-01-26 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: My Bert Has Alzheimer’s is an intimate, detailed account of a wife’s experience with her husband’s dementia. As Paula de Ronde quickly learned, life for two people — patient and caregiver - is thrown into disarray with a diagnosis of Alzheimer’s. Ambushed by the disease, it is a journey into the unknown, but one that features an abundance of love, hope, and support. There is no shying away from the horror of the disease, but its awfulness doesn’t strip from the experience of the powerful companions that accompany those enduring it — namely, love, laughter, and community. Thrust into the caregiver role for her other half who used to be her equal and best buddy, making all kinds of decisions together, Paula now enters a new world of uncertainty and chaos. There is no roadmap. Instead she learns that the disease is as individual as each person who contracts it. Here is a caregiver’s poignant and revealing story of the mental, physical, and emotional stress of caring for the love of her life, her Bert, as he gives over to his neurological disease. The caregiver’s life is far from easy. Yet fueled by love, which never wanes, each step of the way is handled with grace and the help of care partners. Alzheimer’s steals memories but also gives teaching moments. As the disease progresses Paula learns to be more tolerant, patient, compassionate and accepting of human frailties. Alzheimer’s releases an inner strength. She meets each challenge, finds a solution to each issue that arises, then passes on her new-found knowledge to others. She learns the value of having a support group. Alzheimer’s cements the old adage that laughter is the best medicine. Together she and her Bert become stronger than the disease. With humour, compassion, wisdom, and deep feeling, she describes this slice of their conjoined lives. More than a record of the impact of a disease this is, at its essence, also a love story.
Download or read book Alzheimer s in America written by Maria Shriver and published by Simon and Schuster. This book was released on 2010-10-19 with total page 399 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Shriver Report: A Woman’s Nation Takes on Alzheimer’s will be the first comprehensive multi-disciplinary look at these questions at this transformational moment. The Report will digest the current trends in thinking about Alzheimer’s, examine cutting-edge medical research, look at societal impacts, and include a groundbreaking and comprehensive national poll. It will feature original photography and personal essays by men and women – some from the public arena with names you know, some from everyday America – sharing their personal struggles with the disease as patients, caregivers and family members.
Download or read book Remembering Home written by Habib Chaudhury and published by JHU Press. This book was released on 2008-06-23 with total page 139 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This volume advances the goals of affirming the dignity of and reinforcing personhood in adults with debilitating memory loss. Environmental gerontologist Habib Chaudhury draws on research and fieldwork--along with the stories and actions of persons with dementia and their loved ones--to discuss dementia and the concept of self."--Back cover.
Download or read book Palliative Care for Advanced Alzheimer s and Dementia written by Gary Martin, PhD and published by Springer Publishing Company. This book was released on 2010-07-23 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: 2010 AJN Book of the Year Award Winner in both Gerontologic Nursing and Hospice and Palliative Care! "This book...provides important information on best practices and appropriate ways to care for a person with Alzheimer's and advanced dementia. Drs. Martin and Sabbagh have assembled a team of experts to help craft recommendations that should ultimately become standards that all professional caregivers adopt." -Michael Reagan Son of former President Ronald Reagan President, Reagan Legacy Foundation This book testifies that caregivers can have a monumental impact on the lives of persons with advanced dementia. Through specialized programming and a renewed effort toward patient-centered care, caregivers can profoundly enrich the quality of life for these persons. Providing guidelines for health care professionals, caregivers, and family members, this book introduces palliative care programs and protocols for the treatment of people with advanced dementia. The book is designed to guide professional caregivers in meeting the needs of patients and their families, providing insight into the philosophy, assessment, planning, implementation, and evaluation measures involved in interdisciplinary palliative care. The chapter authors offer guidelines and standards of care based on contributions from nurses, physical therapists, social workers, dietitions, psychologists, family caregivers and pastors. An exhibit at the end of every chapter clearly articulates the standards of care appropriate for all advanced dementia facilities and health care staff. This book helps caregivers: Enhance the physiological, psychological, social, and spiritual well-being of the patient and the patient's family Anticipate and meet the patient's basic human needs: hunger, thirst, body positioning, hygiene, continence, and management of any pain Ensure that the patient's surroundings are safe, comfortable, and homelike Address health care decisions that will support the patient's right to self-determination until the end of life
Download or read book Alzheimer s Disease Memoirs written by Pramod K Nayar and published by Springer Nature. This book was released on 2021-12-06 with total page 160 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book examines writings by people living with Alzheimer's Disease and their caregivers. Its focus areas include the construction of the self in the face of diminishing linguistic and cognitive abilities, the stigmatization of ageing, the various narrative strategies that these texts (often collaborative) employ, the health activism and advocacy generated via a 'biosociality,' and the ethics of care. It examines the 'disease writing' genre about a condition that ravages the ability to use language. It serves as a "literary" examination of the work done in this area through a critical reading of the memoirs of those with AD and caregivers and a healthy dose of literary theory. The book is a valuable resource for those interested in literary and critical theory and researchers in the field of ageing/dementia studies.
Download or read book The 36 Hour Day written by Nancy L. Mace and published by JHU Press. This book was released on 2021-08-10 with total page 361 pages. Available in PDF, EPUB and Kindle. Book excerpt: The 36-Hour Day is the definitive dementia care guide.
Download or read book The Loss of Self written by Donna Cohen and published by Bantam Doubleday Dell Publishing Group. This book was released on 1987 with total page 560 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Problem of Alzheimer s written by Jason Karlawish and published by St. Martin's Press. This book was released on 2021-02-23 with total page 269 pages. Available in PDF, EPUB and Kindle. Book excerpt: A definitive and compelling book on one of today's most prevalent illnesses. In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2050. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's traces Alzheimer’s from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems’ failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer’s to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers’ support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center.
Download or read book Psychosocial Studies of the Individual s Changing Perspectives in Alzheimer s Disease written by Dick-Muehlke, Cordula and published by IGI Global. This book was released on 2015-08-31 with total page 463 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cognitive impairment, through Alzheimer’s disease or other related forms of dementia, is a serious concern for afflicted individuals and their caregivers. Understanding patients’ mental state and combatting social stigmas are important considerations in caring for cognitively impaired individuals. Psychosocial Studies of the Individual's Changing Perspectives in Alzheimer's Disease describes programs and strategies that professional and family caregivers can implement to engage and improve the quality of life of persons suffering from cognitive impairment. Including real-world cases by international experts and a personal approach to the subject, this book is an important resource for caregivers, researchers, and families living with dementia.
Download or read book Embodied Selfhood microform an Ethnography of Alzheimer s Disease written by Pia Christine Kontos and published by National Library of Canada = Bibliothèque nationale du Canada. This book was released on 2003 with total page 482 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book On Vanishing written by Lynn Casteel Harper and published by Catapult. This book was released on 2020-04-14 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.
