Download or read book The Emotional Journey of the Alzheimer s Family written by Robert B. Santulli, MD and published by Dartmouth College Press. This book was released on 2015-03-22 with total page 231 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer's disease is a growing public health crisis. According to the Alzheimer's Association, there are 5.4 million victims of this disease; by 2050, there will be close to 15 million people who suffer from this debilitating disorder of memory, thinking, personality, and functioning. The disease profoundly affects immediate family members, close friends, and neighbors. These people - the Alzheimer's family - undergo tremendous psychological and emotional change as they witness the cruel and relentless progression of the disease in their loved one. Incorporating over thirty years of experience with Alzheimer's patients and their families with current medical knowledge, the authors chart the complex emotional journey of the Alzheimer's family from the onset of the disease through the death of the loved one. They discuss the anger that rises in the face of discordant views of the disease, the defenses that emerge when family members are unwilling to accept a dementia diagnosis, and the common emotions of anxiety, guilt, anger, and shame. They focus especially on grief as the core response to losing a loved one to dementia, and describe the difficult processes of adaptation and acceptance, which lead to personal growth. Final chapters emphasize the importance of establishing a care community and how to understand and cope with personal stress. This volume will be useful to medical professionals and ordinary people close to or caring for a person with dementia.
Download or read book The Emotional Journey of the Alzheimer s Family written by Robert B. Santulli, MD and published by Dartmouth College Press. This book was released on 2015-04-17 with total page 231 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer's disease is a growing public health crisis. According to the Alzheimer's Association, there are 5.4 million victims of this disease; by 2050, there will be close to 15 million people who suffer from this debilitating disorder of memory, thinking, personality, and functioning. The disease profoundly affects immediate family members, close friends, and neighbors. These people - the Alzheimer's family - undergo tremendous psychological and emotional change as they witness the cruel and relentless progression of the disease in their loved one. Incorporating over thirty years of experience with Alzheimer's patients and their families with current medical knowledge, the authors chart the complex emotional journey of the Alzheimer's family from the onset of the disease through the death of the loved one. They discuss the anger that rises in the face of discordant views of the disease, the defenses that emerge when family members are unwilling to accept a dementia diagnosis, and the common emotions of anxiety, guilt, anger, and shame. They focus especially on grief as the core response to losing a loved one to dementia, and describe the difficult processes of adaptation and acceptance, which lead to personal growth. Final chapters emphasize the importance of establishing a care community and how to understand and cope with personal stress. This volume will be useful to medical professionals and ordinary people close to or caring for a person with dementia.
Download or read book A Families Journey with Alzheimer s Disease written by Bob Sh'mal Ellenberg and published by Balboa Press. This book was released on 2019-03-08 with total page 83 pages. Available in PDF, EPUB and Kindle. Book excerpt: The book is about the author and his father who had Alzheimer’s disease. Because of the author’s experience with people with AD, he knew he could care of his father. There was family conflict since the author’s mother did not want her husband to live to far from her. The son showed complete compassion for both this parents, finally agreeing on an assisted living facility. The author discusses the many trips he took to visit his father and his mother who was still living in their condo. The author’s mother was a very conflicted woman who was adamant about all she believed but sadly was, obviously at times, confused. There were many quarrels between the mother and son. After twelve months in assisted living, the author brought his father to his home. The son wanted to do his best once his father was in his home, but having three young children living with him and working full time in a hospital as a social worker, none of it was easy. The author concludes this trying, emotional story with a trip to Denver, Colorado. Before the author leaves, two women friends did a shamanic ritual with him, telling him he has to visit Crestone, Colorado. This visit becomes an unexpected mystical retreat for the author that also proved to have a bonded connection with his father.
Download or read book H O P E for the Alzheimer s Journey written by Carol B. Amos and published by Morgan James Publishing. This book was released on 2018-06-03 with total page 149 pages. Available in PDF, EPUB and Kindle. Book excerpt: “A useful, step-by-step guide for anyone new to caring for those with Alzheimer’s.” —Library Journal H.O.P.E. for the Alzheimer’s Journey equips Alzheimer’s caregivers with knowledge, tools, and advice for their difficult road ahead. Author Carol B. Amos incorporates her own experience—including her family’s email correspondence illustrating how they coped during this particular challenge. Amos also introduces The Caregiving Principle™: a simple approach that provides a deeper understanding of a person with Alzheimer’s disease and a framework for the caregiver’s role. She provides examples of how The Caregiving Principle™ helped her connect with her mother. H.O.P.E. for the Alzheimer’s Journey encourages caregivers to take care for themselves and provides inspiration for a less stressful, more rewarding journey.
Download or read book It s Not That Simple Helping Families Navigate the Alzheimer s Journey written by Pam Ostrowski and published by Alzheimer's Family Consulting. This book was released on 2021-10-12 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book helps to relieve the fear, anxiety and confusion family member experience when a loved one is diagnosed with dementia. This 3-hour read provides detailed help with skills, tips and guidance based on 14 years of dementia experience.
Download or read book Alzheimer s Disease written by Wayne A. Caron and published by . This book was released on 2001-05 with total page 244 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Longest Goodbye A Family s Hope Filled Journey Through Alzheimer s written by Shelly Calcagno and published by Ambassador International. This book was released on 2022-11-15 with total page 91 pages. Available in PDF, EPUB and Kindle. Book excerpt: Are we ever ready to say goodbye? She looked out into the yard sprinkled with spring dandelions. “Yellow flowers,” she said, searching for her words. We knew something wasn’t right. That’s when things began to fall apart for our family, when our longest goodbye journey began—the defining before-and-after moment. And now, looking back, it’s been almost a decade of slow loss and drawn-out grief as we slowly let go of our beautiful mom. In the middle of it all, though, we have learned to look for hope and chase down joy, discovering that, in spite of our pain, there are always gifts to be found, even on the hardest of days. Alzheimer’s disease affects almost fifty million people worldwide. It touches people across every walk of life. So, how do millions of people figure out how to love as they let go? The Longest Goodbye is a collection of stories and moments not just about the clinical side of memory loss–but the emotional heart journey. It is a story that shows how joy and grief are often intertwined and wrapped up together in the glorious mess of life. The Longest Goodbye encourages readers to remember the ones they love while they are still here and to intentionally celebrate and live through the pain and hard days. It’s filled with tears, hope, and bitter-sweet moments all held together by the beautiful love of a mother and daughter holding onto a life filled with memories, while learning to let go and say goodbye.
Download or read book When Someone You Know Is Living in a Dementia Care Community written by Rachael Wonderlin and published by Johns Hopkins University Press. This book was released on 2016-11-01 with total page 220 pages. Available in PDF, EPUB and Kindle. Book excerpt: "When Someone You Know Is Living in a Dementia Care Community is an accessible guide offering answers to such questions as: How do I choose a place for my loved one to live? What can I find out by visiting a candidate memory-care community twice? What do I do if my loved one asks about going home? How can I improve the quality of my visits? What is the best way to handle conflict between residents, or between the resident and staff? How can I cope with my loved one's sundowning? What do I do if my loved one starts a romantic relationship with another resident?An indispensable book for family members and friends of people with dementia, When Someone You Know is Living in a Dementia Care Community touches the heart while explaining how to make a difficult situation better.
Download or read book Before My Eyes written by Diane Currie and published by iUniverse. This book was released on 2010-03 with total page 90 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Imagine the heart-wrenching devastation that is experienced by a family when a parent is diagnosed with Alzheimer's disease! Author Diane Currie shares her candid and personal reflections about her mother's struggle with this disease as she copes with the reality of the present but always honors the memory of her past. Through a series of moving vignettes, she remains connected with her mother in a creative way as the strong bond between them slowly dissolves as the disease progresses. From the first moment of her mother's diagnosis, Currie conveys in a captivating manner the intense feelings of loss and hopelessness one experiences when dealing with this dreadful disease. She is able to protray the subtle changes in her mother's behavior and personality throughout her decline, all in a deeply human way. While Before My Eyes describes one family's touching and painful journey, in essence Currie's reflective account may typify the Alzheimer's experience, while offering support and validation to all those who walk its arduous path"--Page 4 of cover.
Download or read book I Remember Me the Mom Chronicles written by Lori Aden and published by . This book was released on 2021-07 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: "Your mom got lost on her way back from the nail salon today. She ended up 30 minutes south of town and couldn't remember how to get back home." At this point, we knew Mom's memory problems were severe, so our family decided it was time to move my mother and stepfather back home to Texas from California. This book is a compilation of day-to-day experiences written about our family's journey through my mom's Alzheimer's diagnosis. Using humor and raw emotions, I share lessons learned and mistakes made along the way while caregiving for a loved one living with memory issues. I also provide general information about the stages of Alzheimer's from leading sources coupled with a caregiver's point of view. To provide a personal view of my mother's disease progression, I took a unique approach by adding short video clips using QR code technology. Our family made tough decisions and difficult sacrifices to give her the type of care we believed she needed for 5 1⁄2 years. This book is for: caregivers of loved ones with dementia/Alzheimer's, family members and friends who would like to learn how to support the primary caregiver of people with dementia, and people in general who want to understand typical stages of Alzheimer's.
Download or read book Healing Your Grieving Heart When Someone You Care About Has Alzheimer s written by Alan D. Wolfelt and published by Companion Press. This book was released on 2011-11-01 with total page 129 pages. Available in PDF, EPUB and Kindle. Book excerpt: Navigating the challenging journey that families and friends of Alzheimer’s patients must endure, this heartfelt guide reveals how their struggle is as complex and drawn out as the illness itself. Confronting their natural but difficult process of grieving and mourning, the study covers the inevitable feelings of shock, sadness, anger, guilt, and relief, illustrating the initial reactions people commonly feel from the moment of the dementia’s onset. Healthy and productive ways to acknowledge and express these feelings are suggested along with 100 tips and activities that fulfill the emotional, spiritual, cognitive, physical, and social needs of those who care about someone afflicted with this debilitating disease. Special consideration is also shown for caregivers, whose grief is often complicated by the demanding physical attention that patients require.
Download or read book Creating Moments of Joy Along the Alzheimer s Journey written by Jolene Brackey and published by Purdue University Press. This book was released on 2016-11-15 with total page 298 pages. Available in PDF, EPUB and Kindle. Book excerpt: The beloved best seller has been revised and expanded for the fifth edition. Jolene Brackey has a vision: that we will soon look beyond the challenges of Alzheimer's disease to focus more of our energies on creating moments of joy. When people have short-term memory loss, their lives are made up of moments. We are not able to create perfectly wonderful days for people with dementia or Alzheimer's, but we can create perfectly wonderful moments, moments that put a smile on their faces and a twinkle in their eyes. Five minutes later, they will not remember what we did or said, but the feeling that we left them with will linger. The new edition of Creating Moments of Joy is filled with more practical advice sprinkled with hope, encouragement, new stories, and generous helpings of humor. In this volume, Brackey reveals that our greatest teacher is having cared for and loved someone with Alzheimer's and that often what we have most to learn about is ourselves.
Download or read book Alzheimer Helping Your Loved One in the Alzheimer s Journey written by Lianne Koppang and published by . This book was released on 2021-07-05 with total page 138 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caring for someone with Alzheimer's disease or another type of dementia can be a long, stressful, and intensely emotional journey. As there is currently no cure for Alzheimer's or dementia, it is often your caregiving and support that makes the biggest difference to your loved one's quality of life. That is a remarkable gift. If your loved one has been diagnosed with Alzheimer's, be prepared for anything -- it can be a shocking disease. This book walks you through what can happen and prepares you for the challenges you may face on this four- to eight-year journey. It provides practical tips, coping tools for caring for those with Alzheimer's, and conversation starters for those difficult talks you may have with your loved one and family members. What is more, reading this book will help you learn how to communicate with Alzheimer's sufferers, handle disagreements so they result in positive outcomes, and understand the stages and behaviors of Alzheimer's disease. You are able to know a way to look at this journey a bit differently, not as a list of challenges, but as a way to expand your heart and transform the way you treat others.
Download or read book Living with Alzheimer s A Journey Observed written by Leigh Smyth, M.D. and published by Lulu.com. This book was released on 2017-09-29 with total page 128 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Alzheimer's disease rewrites the terms of a marriage in this debut memoir... a touching personal account..." - Kirkus Reviews "... a concise and moving treatise that supports and informs caregivers of Alzheimer's patients. This book is required reading for family caretakers, clinicians, and others who simply wonder how to approach such afflictions." - D. Robert Aiello, Ph.D Writing from the vantage point of a spouse and mental health professional who has witnessed and cared for a loved one with Alzheimer's over the course of ten years, the author- a clinical psychiatrist- reveals the personal side of signs and symptoms of the disease beyond memory loss that make up the full developmental syndrome of Alzheimer's, including: distortion of memory erratic likes and dislikes oppositionality hoarding and miming behaviors irritability and mood instability personality changes loss of cognitive resilience judgment issues paranoia common psychological defenses against these progressive losses
Download or read book Alzheimer Helping Your Loved One in the Alzheimer s Journey written by Mitchell Lykke and published by . This book was released on 2022-01-05 with total page 121 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caring for someone with Alzheimer's disease or another type of dementia can be a long, stressful, and intensely emotional journey. As there is currently no cure for Alzheimer's or dementia, it is often your caregiving and support that makes the biggest difference to your loved one's quality of life. That is a remarkable gift. If your loved one has been diagnosed with Alzheimer's, be prepared for anything -- it can be a shocking disease. This book walks you through what can happen and prepares you for the challenges you may face on this four- to eight-year journey. It provides practical tips, coping tools for caring for those with Alzheimer's, and conversation starters for those difficult talks you may have with your loved one and family members. What is more, reading this book will help you learn how to communicate with Alzheimer's sufferers, handle disagreements so they result in positive outcomes, and understand the stages and behaviors of Alzheimer's disease. You are able to know a way to look at this journey a bit differently, not as a list of challenges, but as a way to expand your heart and transform the way you treat others.
Download or read book Pathways written by Kae Hammond and published by Kae Hammond. This book was released on 2012-04-10 with total page 225 pages. Available in PDF, EPUB and Kindle. Book excerpt: Possibly the best rescue plan you've ever read.If you are caring for someone with Alzheimers Disease or Related Dementias,PathwaysPathwaysPathways"You have straightened out the curves and turns and false roads of the family caregiver maze. Accurate, useful, dependable, relevant, and reliable. You have done a yeoman's job and all of us who care for a person with dementia will be better for your efforts. PathwaysContact Us:For more information or immediate assistance, contact us at (877) 699-3456 or visit www.dementiahelpcenter.com
Download or read book Losing Mother Twice written by Regina Olson and published by Createspace Independent Publishing Platform. This book was released on 2016-12-09 with total page 184 pages. Available in PDF, EPUB and Kindle. Book excerpt: The authors of Losing Mother Twice know how incredibly difficult it is to watch a loved one lose herself. They watched their mother navigate the treacherous path of Alzheimer's disease for almost ten years. It was a journey set in place by plaques and tangles in her brain, and it lasted until she could no longer find her way through the brambled path. Others who also watch aging parents, failing spouses, or declining siblings struggle with dementia are not alone on the journey. This story of loss may be their story as well. The nature of the disease a family is up against becomes clearer once they face the enormity of the problem. Clarity, however, is not so easy to achieve when in the thick of it . . . as the disease is taking a mother away from them in slow motion . . . even while her physical body survives . . . even though she no longer knows who they are . . . even when she can no longer say, "I'm ready. I don't know why the good Lord doesn't take me." What the authors have learned about facing Alzheimer's disease results not only from their lived experience but also from their study of dementia. The authors share answers to important questions: What is the difference between dementia and Alzheimer's? How does one deal with a loved one when dementia causes behavior changes. What are the children's chances of inheriting the disease? Why does a person with Alzheimer's remember words to her favorite hymns and yet does not remember her children's names? This engaging story about family makes complex information accessible by placing discussion of dementia within the context of their mother's life-one person among the millions afflicted by the common tragedy that is Alzheimer's disease. A discussion guide for book clubs is included.
