Download or read book The Data Policy Roundtable written by United States. Indian Health Service and published by . This book was released on 1998 with total page 64 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Data Matters written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2019-01-28 with total page 103 pages. Available in PDF, EPUB and Kindle. Book excerpt: In an increasingly interconnected world, perhaps it should come as no surprise that international collaboration in science and technology research is growing at a remarkable rate. As science and technology capabilities grow around the world, U.S.-based organizations are finding that international collaborations and partnerships provide unique opportunities to enhance research and training. International research agreements can serve many purposes, but data are always involved in these collaborations. The kinds of data in play within international research agreements varies widely and may range from financial and consumer data, to Earth and space data, to population behavior and health data, to specific project-generated dataâ€"this is just a narrow set of examples of research data but illustrates the breadth of possibilities. The uses of these data are various and require accounting for the effects of data access, use, and sharing on many different parties. Cultural, legal, policy, and technical concerns are also important determinants of what can be done in the realms of maintaining privacy, confidentiality, and security, and ethics is a lens through which the issues of data, data sharing, and research agreements can be viewed as well. A workshop held on March 14-16, 2018, in Washington, DC explored the changing opportunities and risks of data management and use across disciplinary domains. The third workshop in a series, participants gathered to examine advisory principles for consideration when developing international research agreements, in the pursuit of highlighting promising practices for sustaining and enabling international research collaborations at the highest ethical level possible. The intent of the workshop was to explore, through an ethical lens, the changing opportunities and risks associated with data management and use across disciplinary domainsâ€"all within the context of international research agreements. This publication summarizes the presentations and discussions from the workshop.
Download or read book The Federal Privacy Regime Roundtable Series written by Michael Lister and published by . This book was released on 2008 with total page 28 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Made by Humans written by Ellen Broad and published by . This book was released on 2018-07-30 with total page 196 pages. Available in PDF, EPUB and Kindle. Book excerpt: Who is designing AI? A select, narrow group. How is their world view shaping our future? Artificial intelligence can be all too human- quick to judge, capable of error, vulnerable to bias. It's made by humans, after all. Humans make decisions about the laws and standards, the tools, the ethics in this new world. Who benefits. Who gets hurt. Made by Humansexplores our role and responsibilities in automation. Roaming from Australia to the UK and the US, elite data expert Ellen Broad talks to world leaders in AI about what we need to do next. It is a personal, thought-provoking examination of humans as data and humans as the designers of systems that are meant to help us.
Download or read book The Learning Healthcare System written by Institute of Medicine and published by National Academies Press. This book was released on 2007-06-01 with total page 374 pages. Available in PDF, EPUB and Kindle. Book excerpt: As our nation enters a new era of medical science that offers the real prospect of personalized health care, we will be confronted by an increasingly complex array of health care options and decisions. The Learning Healthcare System considers how health care is structured to develop and to apply evidence-from health profession training and infrastructure development to advances in research methodology, patient engagement, payment schemes, and measurement-and highlights opportunities for the creation of a sustainable learning health care system that gets the right care to people when they need it and then captures the results for improvement. This book will be of primary interest to hospital and insurance industry administrators, health care providers, those who train and educate health workers, researchers, and policymakers. The Learning Healthcare System is the first in a series that will focus on issues important to improving the development and application of evidence in health care decision making. The Roundtable on Evidence-Based Medicine serves as a neutral venue for cooperative work among key stakeholders on several dimensions: to help transform the availability and use of the best evidence for the collaborative health care choices of each patient and provider; to drive the process of discovery as a natural outgrowth of patient care; and, ultimately, to ensure innovation, quality, safety, and value in health care.
Download or read book Reflections on Sharing Clinical Trial Data written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2020-11-20 with total page 163 pages. Available in PDF, EPUB and Kindle. Book excerpt: On November 18 and 19, 2019, the National Academies of Sciences, Engineering, and Medicine hosted a public workshop in Washington, DC, titled Sharing Clinical Trial Data: Challenges and a Way Forward. The workshop followed the release of the 2015 Institute of Medicine (IOM) consensus study report Sharing Clinical Trial Data: Maximizing Benefits, Minimizing Risk, and was designed to examine the current state of clinical trial data sharing and reuse and to consider ways in which policy, technology, incentives, and governance could be leveraged to further encourage and enhance data sharing. This publication summarizes the presentations and discussions from the workshop.
Download or read book Exploring the Future of Indian Health Information Systems written by United States. Indian Health Service. Data Policy Roundtable and published by . This book was released on 1998 with total page 60 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Report from the Roundtable Privacy Sovereignty and Technology written by Geislerova, Marketa and published by . This book was released on 2001 with total page 14 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Sharing Clinical Research Data written by Forum on Drug Discovery, Development, and Translation and published by National Academies Press. This book was released on 2013-05-21 with total page 157 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pharmaceutical companies, academic researchers, and government agencies such as the Food and Drug Administration and the National Institutes of Health all possess large quantities of clinical research data. If these data were shared more widely within and across sectors, the resulting research advances derived from data pooling and analysis could improve public health, enhance patient safety, and spur drug development. Data sharing can also increase public trust in clinical trials and conclusions derived from them by lending transparency to the clinical research process. Much of this information, however, is never shared. Retention of clinical research data by investigators and within organizations may represent lost opportunities in biomedical research. Despite the potential benefits that could be accrued from pooling and analysis of shared data, barriers to data sharing faced by researchers in industry include concerns about data mining, erroneous secondary analyses of data, and unwarranted litigation, as well as a desire to protect confidential commercial information. Academic partners face significant cultural barriers to sharing data and participating in longer term collaborative efforts that stem from a desire to protect intellectual autonomy and a career advancement system built on priority of publication and citation requirements. Some barriers, like the need to protect patient privacy, pre- sent challenges for both sectors. Looking ahead, there are also a number of technical challenges to be faced in analyzing potentially large and heterogeneous datasets. This public workshop focused on strategies to facilitate sharing of clinical research data in order to advance scientific knowledge and public health. While the workshop focused on sharing of data from preplanned interventional studies of human subjects, models and projects involving sharing of other clinical data types were considered to the extent that they provided lessons learned and best practices. The workshop objectives were to examine the benefits of sharing of clinical research data from all sectors and among these sectors, including, for example: benefits to the research and development enterprise and benefits to the analysis of safety and efficacy. Sharing Clinical Research Data: Workshop Summary identifies barriers and challenges to sharing clinical research data, explores strategies to address these barriers and challenges, including identifying priority actions and "low-hanging fruit" opportunities, and discusses strategies for using these potentially large datasets to facilitate scientific and public health advances.
Download or read book King Arthur s Round Table written by David Perkins and published by John Wiley & Sons. This book was released on 2003-01-14 with total page 306 pages. Available in PDF, EPUB and Kindle. Book excerpt: Your organization functions and grows through conversations face-to-face and electronic, from the mailroom to the boardroom. The quality of those conversations determines how smart your organization is. This revelatory book shows you how the Round Table of Arthurian legend can help foster collaboration and transform today s world of business, nonprofits, and government. "When I want a group to work effectively, I turn immediately to my colleague of thirty-five years, David Perkins. This book is a distillation of his knowledge and wisdom." Howard Gardner author of Frames of Mind: The Theory of Multiple Intelligences and Intelligence Reframed "David Perkins applies his wit and inventive mind to create a fresh perspective on the world of collaboration in organizations. His archetypes and toolboxes offer valuable insights to anyone facing the challenges of collaborative problem solving." David Straus author of How to Make Collaboration Work
Download or read book Child Data Citizen written by Veronica Barassi and published by MIT Press. This book was released on 2020-12-22 with total page 233 pages. Available in PDF, EPUB and Kindle. Book excerpt: An examination of the datafication of family life--in particular, the construction of our children into data subjects. Our families are being turned into data, as the digital traces we leave are shared, sold, and commodified. Children are datafied even before birth, with pregnancy apps and social media postings, and then tracked through babyhood with learning apps, smart home devices, and medical records. If we want to understand the emergence of the datafied citizen, Veronica Barassi argues, we should look at the first generation of datafied natives: our children. In Child Data Citizen, she examines the construction of children into data subjects, describing how their personal information is collected, archived, sold, and aggregated into unique profiles that can follow them across a lifetime.
Download or read book Combatting Corruption and Collusion in Public Procurement written by Robert D. Anderson and published by Oxford University Press. This book was released on 2024-03-06 with total page 385 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'Corruption' in public procurement typically involves procurement decisions taken in favour of preferred bidders in exchange for improper compensation (the acceptance of bribes, for example), while supplier collusion refers to a type of cartel activity, in which firms rig their bids in a tendering process. Although these practices are distinct, they frequently occur together in the public procurement context, reinforcing one another. Combatting Corruption and Collusion in Public Procurement: A Challenge for Governments Worldwide examines the causes of corruption and collusion in the public procurement sphere, its resulting harm, and how states can best try to combat these practices. This book provides a legal, economic, and practical analysis of issues concerning corruption and supplier collusion in public procurement, both generally and in seven diverse and representative jurisdictions: the United Kingdom, the United States, Brazil, Hungary and Poland, Ukraine, and Canada. It encompasses a discussion of both 'generic' cross-jurisdictional issues and specific proposals for individual jurisdictions. It offers practical guidance on building robust regimes for combatting corruption and collusion in public procurement and how to bolster and improve them when they are faltering. The book stresses the need for a multi-faceted and joined-up approach to the problems, emphasizing the importance both of enhanced investment in the effective enforcement of anti-corruption and cartel laws and of increasing the resilience of public procurement systems to corruption and collusion through a range of measures. The relevance of the topic to the social and economic well-being of citizens and the survival of democratic governance is highlighted throughout the book. Pioneering and comprehensive, Combatting Corruption and Collusion in Public Procurement provides a pathbreaking analysis of a range of global issues, making it an essential read for scholars, lawyers, government officials and representatives of international and non-governmental organizations around the world.
Download or read book Protecting Consumer Privacy in an Era of Rapid Change written by and published by DIANE Publishing. This book was released on 2010 with total page 122 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Rights and Responsibilities of Participants in Networked Communities written by National Research Council and published by National Academies Press. This book was released on 1994-02-01 with total page 173 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book describes a number of social and legal issues as they relate to various members of electronically networked communities. After a brief introduction to relevant legal precedents and to the manner in which societies develop norms for social behavior, the book explores right and responsibilities related to free speech, vandalism, property interests, and privacy.
Download or read book Establishing Precompetitive Collaborations to Stimulate Genomics Driven Product Development written by Institute of Medicine and published by National Academies Press. This book was released on 2011-02-17 with total page 90 pages. Available in PDF, EPUB and Kindle. Book excerpt: Despite the many basic research discoveries in genetics, relatively few gene-based treatments, drugs, or preventative measures have been developed. One way to bridge this gap may be for industry, academia, and government to develop partnerships that share resources while distributing risk. However, intellectual property protections and other barriers can inhibit collaborative efforts. The Institute of Medicine held a workshop on July 22, 2010, to explore these issues and develop solutions.
Download or read book Implementing and Evaluating Genomic Screening Programs in Health Care Systems written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2018-05-16 with total page 151 pages. Available in PDF, EPUB and Kindle. Book excerpt: Genomic applications are being integrated into a broad range of clinical and research activities at health care systems across the United States. This trend can be attributed to a variety of factors, including the declining cost of genome sequencing and the potential for improving health outcomes and cutting the costs of care. The goals of these genomics-based programs may be to identify individuals with clinically actionable variants as a way of preventing disease, providing diagnoses for patients with rare diseases, and advancing research on genetic contributions to health and disease. Of particular interest are genomics- based screening programs, which will, in this publication, be clinical screening programs that examine genes or variants in unselected populations in order to identify individuals who are at an increased risk for a particular health concern (e.g., diseases, adverse drug outcomes) and who might benefit from clinical interventions. On November 1, 2017, the National Academies of Sciences, Engineering, and Medicine hosted a public workshop to explore the challenges and opportunities associated with integrating genomics-based screening programs into health care systems. This workshop was developed as a way to explore the challenges and opportunities associated with integrating genomics-based programs in health care systems in the areas of evidence collection, sustainability, data sharing, infrastructure, and equity of access. This publication summarizes the presentations and discussions from the workshop.
Download or read book Private Industry Councils written by United States. National Commission for Employment Policy and published by . This book was released on 1993 with total page 180 pages. Available in PDF, EPUB and Kindle. Book excerpt:
