Download or read book The Art of Caregiving in Fiction Film and Memoir written by Jeffrey Berman and published by Bloomsbury Publishing. This book was released on 2020-10-29 with total page 296 pages. Available in PDF, EPUB and Kindle. Book excerpt: Bringing together the human story of care with its representation in film, fiction and memoir, this book combines an analysis of care narratives to inform and inspire ideas about this major role in life. Alongside analysis of narratives drawn from literature and film, the author sensitively interweaves the story of his wife's illness and care to illuminate perspectives on dealing with human decline. Examining texts from a diverse range of authors such as Leo Tolstoy, Edith Wharton and Alice Munro, and filmmakers such as Ingmar Bergman and Michael Haneke, it addresses questions such as why caregiving is a dangerous activity, the ethical problems of writing about caregiving, the challenges of reading about caregiving, and why caregiving is so important. It serves as a fire starter on the subject of how we can gain insight into the challenges and opportunities of caregiving through the creative arts.

Download or read book Dementia s Unexpected Gifts written by Barbara Luebke and published by . This book was released on 2020-09-30 with total page 286 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Unexpected Gifts" is a mash-up memoir / cautionary tale / love story. It is the narrative of the author's unexpected journey that transformed her from "caregiving is not in my wheelhouse" to exhausted caregiver making difficult decisions and eventually finding a path to personal growth. Drawing on years of emails, photographs and thousands of words in detailed notes she wrote for herself along the way, the author offers a brutally honest portrayal of her life as caregiver for her longtime partner as she developed dementia. The author believes that the more individual stories are shared, the richer and more nuanced our understanding of caregiving becomes. The earlier one realizes there is no one "right" way to walk the path of caregiving, the easier life is. In the end, then, this is a book about reliance.

Download or read book Caregiving written by John Patterson and published by Inspiring Voices. This book was released on 2016-05-04 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caregiving: Our Labor of Love is the definitive caregiving experience. This experience took almost seven years to live through. This is a detailed account of that experience. In the next ten years, over 70 million souls will enter the caregiving experience for not only them but their families as well. This level of expectation is just within the United States alone. The United States government is pushing for in-home healthcare in these approaching years. For the numbers and figures that I've listed, you can go to this website for verification. http: //www.ncbi.nlm.nih.gov/books/NBK43619/ "Let me just say that you amaze me ... what a good writer you are! I really believe that God has anointed you to write this for such a time as this ... and is going to use it mightily to help others." -Mary Ann Gillespie of OurPrayer.org. Look for our company in late 2015 or early 2016 to be online. Google us by our logo. Our Company: We are a small but growing company with big plans for the future. We plan to not only help but empower the families that are going through their caregiving experiences. We have the knowledge, capability, and desire to encourage you to have the best possible caregiving experience you can have. No longer will you have to feel like you are struggling through your caregiving experience alone. We went through our experiences, and we know what is ahead of you in your experience. We know what worked for us and what didn't. Allow us to share our successes with you so that you and your family can benefit from our knowledge. We hope to bless and touch the lives of millions of families.

Download or read book Help for the Caring written by Brenda Parris Sibley and published by iUniverse. This book was released on 2002 with total page 129 pages. Available in PDF, EPUB and Kindle. Book excerpt: This much-needed bibliography and filmography brings together lists of books about Alzheimer's and caregiving, including biographies, poetry, and even fiction, as well as in instructional and dramatic films.

Download or read book The Accidental Caregiver written by Gregor Collins and published by Balboa Press. This book was released on 2020-04 with total page 380 pages. Available in PDF, EPUB and Kindle. Book excerpt: "From the most unlikely of unlikely romances comes a deeply felt, touching, humorous exploration of what love and age mean in today's world. I can't recommend this book highly enough." -- Stan Evans, Emmy-award winning writer, and author of Box of Mustaches When thirty-two-year-old actor Gregor Collins reluctantly interviewed for a job as a caregiver more out of a favor to a friend - he had no idea his life was about to change forever.Seconds into the chance meeting in 2008 with, it would turn out, a world-renowned Holocaust refugee named Maria Altmann, there was an unexplainable magic in the air - it felt as if they had already met. And Collins was suddenly thrown into a situation with which he had never before been confronted: caring for someone other than himself.Gregor offers us a personal and unprecedented look at Maria over the three intimate years he cared for her - her thrilling escape from the Nazis, her fight and subsequent win in the landmark Supreme Court Case to return original Gustav Klimt artwork that belonged to her family in Austria, and the extraordinary people she met along the way. But the real heart of the story transcends mere historical facts.Through a refreshingly raw portrayal of their unlikely and unbreakable bond, imbued with humorous, candid anecdotes about his mercurial relationship with Hollywood, Gregor takes us on a deeply emotional journey of how he opened up his heart to a 92-year-old woman in need - and in turn experienced the love he had been searching for his entire life.

Download or read book The Soul of Care written by Arthur Kleinman and published by Penguin. This book was released on 2019-09-17 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: A moving memoir and an extraordinary love story that shows how an expert physician became a family caregiver and learned why care is so central to all our lives and yet is at risk in today's world. When Dr. Arthur Kleinman, an eminent Harvard psychiatrist and social anthropologist, began caring for his wife, Joan, after she was diagnosed with early-onset Alzheimer's disease, he found just how far the act of caregiving extended beyond the boundaries of medicine. In The Soul of Care: The Moral Education of a Husband and a Doctor, Kleinman delivers a deeply humane and inspiring story of his life in medicine and his marriage to Joan, and he describes the practical, emotional and moral aspects of caretaking. He also writes about the problems our society faces as medical technology advances and the cost of health care soars but caring for patients no longer seems important. Caregiving is long, hard, unglamorous work--at moments joyous, more often tedious, sometimes agonizing, but it is always rich in meaning. In the face of our current political indifference and the challenge to the health care system, he emphasizes how we must ask uncomfortable questions of ourselves, and of our doctors. To give care, to be "present" for someone who needs us, and to feel and show kindness are deep emotional and moral experiences, enactments of our core values. The practice of caregiving teaches us what is most important in life, and reveals the very heart of what it is to be human.

Download or read book My Lovely Wife written by Mark Lukach and published by Bluebird. This book was released on 2018-06-26 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: Mark and Giulia's life together began as a storybook romance. They fell in love at eighteen, married at twenty-four, and were living their dream life in San Francisco. When Giulia was twenty-seven, she suffered a terrifying and unexpected psychotic break that landed her in the psych ward for nearly a month. One day she was vibrant and well-adjusted; the next she was delusional and suicidal, convinced that she was the devil and that her loved ones were not safe. All she wanted was to die. Eventually, Giulia fully recovered, and the couple had a son. But, soon after Jonas was born, Giulia had another breakdown, and then a third a few years after that. pushed to the edge of the abyss, everything the couple had once taken for granted was upended. A story of the fragility of the mind, and the tenacity of the human spirit, My Lovely Wife is, above all, a love story that raises profound questions: How do we care for the people we love? What and who do we live for? Breathtaking in its candor, radiant with compassion, and written with dazzling lyricism, Lukach's is an intensely personal odyssey through the harrowing years of his wife's mental illness, anchored by an abiding devotion to family that will affirm readers' faith in the power of love.

Download or read book Self Portrait written by Celia Paul and published by New York Review of Books. This book was released on 2020-11-10 with total page 225 pages. Available in PDF, EPUB and Kindle. Book excerpt: A rich, penetrating memoir about the author's relationship with a flawed but influential figure—the painter Lucian Freud—and the satisfactions and struggles of a life lived through art. One of Britain's most important contemporary painters, Celia Paul has written a reflective, intimate memoir of her life as an artist. Self-Portrait tells the artist's story in her own words, drawn from early journal entries as well as memory, of her childhood in India and her days as a art student at London's Slade School of Fine Art; of her intense decades-long relationship with the older esteemed painter Lucian Freud and the birth of their son; of the challenges of motherhood, the unresolvable conflict between caring for a child and remaining commited to art; of the "invisible skeins between people," the profound familial connections Paul communicates through her paintings of her mother and sisters; and finally, of the mystical presence in her own solitary vision of the world around her. Self-Portrait is a powerful, liberating evocation of a life and of a life-long dedication to art.

Download or read book Can t We Talk about Something More Pleasant written by Roz Chast and published by Bloomsbury Publishing USA. This book was released on 2014-05-06 with total page 240 pages. Available in PDF, EPUB and Kindle. Book excerpt: #1 New York Times Bestseller 2014 NATIONAL BOOK AWARD FINALIST In her first memoir, New Yorker cartoonist Roz Chast brings her signature wit to the topic of aging parents. Spanning the last several years of their lives and told through four-color cartoons, family photos, and documents, and a narrative as rife with laughs as it is with tears, Chast's memoir is both comfort and comic relief for anyone experiencing the life-altering loss of elderly parents. When it came to her elderly mother and father, Roz held to the practices of denial, avoidance, and distraction. But when Elizabeth Chast climbed a ladder to locate an old souvenir from the “crazy closet”-with predictable results-the tools that had served Roz well through her parents' seventies, eighties, and into their early nineties could no longer be deployed. While the particulars are Chast-ian in their idiosyncrasies-an anxious father who had relied heavily on his wife for stability as he slipped into dementia and a former assistant principal mother whose overbearing personality had sidelined Roz for decades-the themes are universal: adult children accepting a parental role; aging and unstable parents leaving a family home for an institution; dealing with uncomfortable physical intimacies; managing logistics; and hiring strangers to provide the most personal care. An amazing portrait of two lives at their end and an only child coping as best she can, Can't We Talk about Something More Pleasant will show the full range of Roz Chast's talent as cartoonist and storyteller.

Download or read book In the Quick written by Kate Hope Day and published by Random House Trade Paperbacks. This book was released on 2022-06-21 with total page 273 pages. Available in PDF, EPUB and Kindle. Book excerpt: GOOD MORNING AMERICA BUZZ PICK • A young, ambitious female astronaut’s life is upended by a love affair that threatens the rescue of a lost crew in this brilliantly imagined novel “with echoes of Station Eleven, The Martian, and, yes, Jane Eyre” (Observer). NAMED ONE OF THE BEST BOOKS OF THE YEAR BY VULTURE AND SHE READS • “The female astronaut novel we never knew we needed.”—Entertainment Weekly June is a brilliant but difficult girl with a gift for mechanical invention who leaves home to begin grueling astronaut training at the National Space Program. Younger by two years than her classmates at Peter Reed, the school on campus named for her uncle, she flourishes in her classes but struggles to make friends and find true intellectual peers. Six years later, she has gained a coveted post as an engineer on a space station—and a hard-won sense of belonging—but is haunted by the mystery of Inquiry, a revolutionary spacecraft powered by her beloved late uncle’s fuel cells. The spacecraft went missing when June was twelve years old, and while the rest of the world seems to have forgotten the crew, June alone has evidence that makes her believe they are still alive. She seeks out James, her uncle’s former protégé, also brilliant, also difficult, who has been trying to discover why Inquiry’s fuel cells failed. James and June forge an intense intellectual bond that becomes an electric attraction. But the relationship that develops between them as they work to solve the fuel cell’s fatal flaw threatens to destroy everything they’ve worked so hard to create—and any chance of bringing the Inquiry crew home alive. A propulsive narrative of one woman’s persistence and journey to self-discovery, In the Quick is an exploration of the strengths and limits of human ability in the face of hardship, and the costs of human ingenuity. This edition includes a bonus chapter.

Download or read book Blow Your House Down written by Gina Frangello and published by Catapult. This book was released on 2022-04-12 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: A Good Morning America Recommended Book • A BuzzFeed Most Anticipated Book of the Year • A Lit Hub Most Anticipated Book of the Year • A Rumpus Most Anticipated Book of the Year • A Bustle Most Anticipated Book of the Month "A pathbreaking feminist manifesto, impossible to put down or dismiss. Gina Frangello tells the morally complex story of her adulterous relationship with a lover and her shortcomings as a mother, and in doing so, highlights the forces that shaped, silenced, and shamed her: everyday misogyny, puritanical expectations regarding female sexuality and maternal sacrifice, and male oppression." —Adrienne Brodeur, author of Wild Game Gina Frangello spent her early adulthood trying to outrun a youth marked by poverty and violence. Now a long-married wife and devoted mother, the better life she carefully built is emotionally upended by the death of her closest friend. Soon, awakened to fault lines in her troubled marriage, Frangello is caught up in a recklessly passionate affair, leading a double life while continuing to project the image of the perfect family. When her secrets are finally uncovered, both her home and her identity will implode, testing the limits of desire, responsibility, love, and forgiveness. Blow Your House Down is a powerful testimony about the ways our culture seeks to cage women in traditional narratives of self-sacrifice and erasure. Frangello uses her personal story to examine the place of women in contemporary society: the violence they experience, the rage they suppress, the ways their bodies often reveal what they cannot say aloud, and finally, what it means to transgress "being good" in order to reclaim your own life.

Download or read book On Vanishing written by Lynn Casteel Harper and published by Catapult. This book was released on 2020-04-14 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.

Download or read book Elder Rage written by Jacqueline Marcell and published by . This book was released on 2001 with total page 370 pages. Available in PDF, EPUB and Kindle. Book excerpt: Elder Rage, or Take My Father... Please: How to Survive Caring for Aging Parents--is a riveting true story as well as an extensive self-help book, with solutions for effective management, medically and behaviorally, of challenging elders who resist care. Jacqueline Marcell's poignant and often-humorous story of caring for her challenging elderly father and sweet but frail mother, addresses issues like how to get an obstinate elder to: give up driving, accept a caregiver, see a different doctor, take medication, go to adult day care, move to a new residence, etc. Includes: Behavior Modification Guidelines, 25 Q&A's=How Do I Handle My Elderly Loved One Who...?, Long-Term Care Insurance, Ten Warning Signs of Alzheimer's, How is Alzheimer's Diagnosed, Three Stages of Alzheimer's, Startling Statistics, Other Diseases That Act Like Alzheimer's, Jacqueline's Top Ten Recommendations, Hope For The Future, The Search for the Cure, Valuable Resources, Recommended Reading. Internationally known dementia specialist, Rodman Shankle, MS MD, contributes the Addendum: A Physician's Guide to Treating Dementia. Over 50 endorsements include: Hugh Downs, Regis Philbin, Dr. Dean Edell, Duke University Center for Aging, Dr. Nancy Snyderman/ABC News, Leeza Gibbons, Senator John D. Rockefeller IV, Rudy Tanzi/Harvard Medical School, and The Johns Hopkins Memory Clinic. http://www.elderrage.com

Download or read book MOTHERCARE written by Lynne Tillman and published by Catapult. This book was released on 2023-11-07 with total page 177 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Mothercare represents an investigation of the question of duty, or conscience, what we owe or want to provide to the people in our lives. . . For a reader, there’s something bracing about Tillman’s honesty, which transforms “Mothercare” from a record or a logbook into a work of art." —David Ulin, Los Angeles Times From the brilliantly original novelist and cultural critic Lynne Tillman comes MOTHERCARE, an honest and beautifully written account of a sudden, drastically changed relationship to one’s mother, and of the time and labor spent navigating the American healthcare system. When a mother’s unusual health condition, normal pressure hydrocephalus, renders her entirely dependent on you, your sisters, caregivers, and companions, the unthinkable becomes daily life. In MOTHERCARE, Tillman describes doing what seems impossible: handling her mother as if she were a child and coping with a longtime ambivalence toward her. In Tillman’s celebrated style and as a “rich noticer of strange things” (Colm Tóibín), she describes, without flinching, the unexpected, heartbreaking, and anxious eleven years of caring for a sick parent. MOTHERCARE is both a cautionary tale and sympathetic guidance for anyone who suddenly becomes a caregiver. This story may be helpful, informative, consoling, or upsetting, but it never fails to underscore how impossible it is to get the job done completely right.

Download or read book Living with the Dying written by Amanda Neveu and published by . This book was released on 2021-06-15 with total page 152 pages. Available in PDF, EPUB and Kindle. Book excerpt: Have you thought about your future end-of-life journey? What does it look like, feel like, what are your desires and concerns? Join the Executive Director of the Schenectady Community Home Inc., Amanda Neveu, as she sheds light on the dynamic and groundbreaking mission of a non-profit comfort home and urges us all to consider our end-of-life wishes through compelling, powerful testimonies and insightful journaling. Living with the Dying explores the journey of a not-for-profit comfort home in Scotia, New York designed to support those most in need at the end of life while challenging the current end-of-life healthcare system and end-of-life perspectives. This moving and inspiring book will change the way you view death and dying and spark a newfound motivation to give back to your community.

Download or read book Already Toast written by Kate Washington and published by Beacon Press. This book was released on 2021-03-16 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.

Download or read book Last Things written by Marissa Moss and published by Red Wheel/Weiser. This book was released on 2017-05-01 with total page 184 pages. Available in PDF, EPUB and Kindle. Book excerpt: Last Things is the true and intensely personal story of how one woman coped with the devastating effects of a catastrophic illness in her family. Using her trademark mix of words and pictures to sharp effect, Marissa Moss presents the story of how she, her husband, and her three young sons struggled to maintain their sense of selves and wholeness as a family and how they continued on with everyday life when the earth shifted beneath their feet. After returning home from a year abroad, Marissa's husband, Harvey, was diagnosed with ALS. The disease progressed quickly, and Marissa was soon consumed with caring for Harvey while trying to keep life as normal as possible for her young children. ALS stole the man who was her husband, the father of her children, and her best friend in less than 7 months. This is not a story about the redemptive power of a terminal illness. It is a story of resilience - of how a family managed to survive a terrible loss and grow in spite of it. Although it's a sad story, it's powerfully told and ultimately uplifting as a guide to strength and perseverance, to staying connected to those who matter most in the midst of a bleak upheaval. If you've ever wondered how you would cope with a dire diagnosis, this book can provide a powerful example of what it feels like and how to come through the darkness into the light. Last Things is one of the most amazingly poignant and honest memoirs - graphic or otherwise -- I've ever encountered. This book - which I read in one insatiable sitting -- tore my heart in two. Moss handles the material with such a delicate sensibility, both with her drawings and her text, I couldn't help but let her carry me along on her journey of love and loss. ---Katie Hafner, contributing writer to The New York Times and author of Mother, Daughter, Me: A Memoir