Download or read book The Adventures of Miss Messy Suzie McGoo and The Cuff Cough Crew written by Nicholas Kelly and published by Define Your Success LLC. This book was released on 2021-04-06 with total page 47 pages. Available in PDF, EPUB and Kindle. Book excerpt: Meet Miss Messy Suzie McGoo, a delightful little girl who lives for adventure. Follow her as she embarks on her latest adventure – a trip through the jungle – where she and you will meet beautiful animals, see fantastic sights, and learn a thing or two about her and just how extraordinary and brave she is. This book will delight parents and children alike and will teach both about what it’s like to live and thrive with cystic fibrosis and the special lung therapy that makes her life easier and helps her remain healthy and strong. Subject matter •This book is designed to teach children with Cystic Fibrosis how to complete the lung therapy, the "Huff Cough". We have renamed it the "Cuff" Cough as the "C" alliteration more easily achieves the desired results, without in person training. Theme• A lighthearted and whimsical book, designed to act as an educational tool, while also helping normalize having to complete lung therapy. Target audience• Families affected by Cystic Fibrosis and Children age 5 -10 Main characters' names for children's books• Miss Messy Suzie McGoo Problem it will solve or lesson it will teach• The “Cuff Cough” lung therapy

Download or read book The Adventures of Miss Messy Suzie Mcgoo and Her Respiratory Zoo written by Nicholas Kelly and published by . This book was released on 2023-08-31 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: After the amazing trip through the jungle, Miss Messy Suzie McGoo is ready to invite you and the cuff cough crew to her secret magical tea party! This time, the awesome Mama McGoo is helping her, and so are the four wise animals. Suzie would love it if you could join her for a tea party full of surprises, while you discover the great secret of AHDA together!Whimsical and educational both, this book will show children and their parents it's perfectly possible to have fun and thrive with cystic fibrosis, teach them how respiratory medications (Albuterol, hypertonic solution, Dornase, and antibiotics} help Suzie live a fulfilling life and show them the exact order to take them in, in a way they will easily remember.

Download or read book Breath from Salt written by Bijal P. Trivedi and published by BenBella Books. This book was released on 2020-09-08 with total page 744 pages. Available in PDF, EPUB and Kindle. Book excerpt: Recommended by Bill Gates and included in GatesNotes "Elaborating on the science as well as the business behind the fight against cystic fibrosis, Trivedi captures the emotions of the families, doctors, and scientists involved in the clinical trials and their 'weeping with joy' as new drugs are approved, and shows how cystic fibrosis, once a 'death sentence,' became, for many, a manageable condition. This is a rewarding and challenging work." —Publishers Weekly Cystic fibrosis was once a mysterious disease that killed infants and children. Now it could be the key to healing millions with genetic diseases of every type—from Alzheimer's and Parkinson's to diabetes and sickle cell anemia. In 1974, Joey O'Donnell was born with strange symptoms. His insatiable appetite, incessant vomiting, and a relentless cough—which shook his tiny, fragile body and made it difficult to draw breath—confounded doctors and caused his parents agonizing, sleepless nights. After six sickly months, his salty skin provided the critical clue: he was one of thousands of Americans with cystic fibrosis, an inherited lung disorder that would most likely kill him before his first birthday. The gene and mutation responsible for CF were found in 1989—discoveries that promised to lead to a cure for kids like Joey. But treatments unexpectedly failed and CF was deemed incurable. It was only after the Cystic Fibrosis Foundation, a grassroots organization founded by parents, formed an unprecedented partnership with a fledgling biotech company that transformative leaps in drug development were harnessed to produce groundbreaking new treatments: pills that could fix the crippled protein at the root of this deadly disease. From science writer Bijal P. Trivedi, Breath from Salt chronicles the riveting saga of cystic fibrosis, from its ancient origins to its identification in the dank autopsy room of a hospital basement, and from the CF gene's celebrated status as one of the first human disease genes ever discovered to the groundbreaking targeted genetic therapies that now promise to cure it. Told from the perspectives of the patients, families, physicians, scientists, and philanthropists fighting on the front lines, Breath from Salt is a remarkable story of unlikely scientific and medical firsts, of setbacks and successes, and of people who refused to give up hope—and a fascinating peek into the future of genetics and medicine.

Download or read book Guy Lalibert written by Ian Halperin and published by Transit Publishing. This book was released on 2009 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Laliberte means freedom in French, but Laliberte gives freedom new meaning. This title takes you inside Laliberte's world, followed by over-the-top partying by night. It lets you experience relentless drive of this visionary, his passion for life, the Cirque, and women.

Download or read book Spectral Sea written by Stephen G. Nichols and published by Peter Lang Incorporated, International Academic Publishers. This book was released on 2017 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The essays in this book lay bare the dynamics of cultural confrontation between Europe and the Mediterranean world from medieval to modern times.