Download or read book Spouses Experiences of Living with a Partner with Alzheimer s Disease written by Christina Sällström and published by . This book was released on 1994 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Doing things together written by Therése Bielsten and published by Linköping University Electronic Press. This book was released on 2020-03-13 with total page 84 pages. Available in PDF, EPUB and Kindle. Book excerpt: Background: Most people with dementia live in their own homes, often together with their partners, who become informal caregivers. Relationship quality and sense of couplehood can be threatened as a result of the transition from a mutually interdependent relationship to a caregiver-care-receiver relationship. This, in turn, may lead to many negative consequences for both partners. Support provided for couples is often divided into different types for the person with dementia and for the partner without dementia and lacks couple-based support that targets the relationship, resources and the couple’s everyday life together. Aim: The overall aim of this thesis is to explore couple-centred interventions in dementia and to develop and test a salutogenic, resource-oriented and couple-based intervention among couples in which one partner has dementia living at home. Methods and findings: This thesis comprises three parts: The first part Exploring involves two linked reviews, one narrative review (study I A) and one scoping review (study I B) that aim to identify and describe what previous couple-centred interventions comprised and why they were conducted. The results of the reviews revealed a knowledge gap in and a need for easily accessible support that targets couple relationships, resources and everyday life. The second part Developing (study II) refers to the development of an easily accessible resource-oriented couple-management intervention. The first step was to identify priority topics for such an intervention through a co-researcher process with couples living with dementia. This included a comprehensive literature review, interviews with couples in which one partner has dementia, and consultation meetings with expert groups of people with dementia and partners in both Sweden and the UK. The co-researcher process and the expert meetings informed four main themes with corresponding sub-themes that couples with dementia considered as important to their wellbeing in their everyday lives: (1) Home and Neighbourhood, (2) Meaningful Activities and Relationships, (3) Approach and Empowerment, and (4) Couplehood. The themes were further developed and integrated into the multimedia application DemPower, which was developed for the delivery of the intervention. The third part Testing and Evaluating describes a feasibility study (study III) in which the DemPower application was tested for feasibility and acceptability among couples in Sweden and the UK. The results of the feasibility study indicated that the DemPower intervention was feasible and acceptable among couples in which one partner has dementia living at home. The testing and evaluating part also comprise a qualitative study (study IV) that explores the experiences of engaging with DemPower together as a couple living with dementia in Sweden. The findings resulted in the three themes: (1) Growth of the relationship, (2) We are not alone, and (3) Positive approach, which the couples appreciated and associated with the resource-oriented and salutogenic approach of DemPower. The overall findings of the thesis are presented in a concluding synthesis at the end of the thesis. The concluding synthesis, focused on “Meaningfulness”, “Empowering health promotion”, “Normalization” and “Transitions and couplehood”, represents the core findings of this thesis. What this thesis adds: This thesis contributes to research, healthcare and the public by highlighting the need for a salutogenic approach toward couples living with dementia. The DemPower application, with its focus on couples’ relationships, resource-orientation and everyday life, has proven feasibility and acceptability and has meaningfully addressed a gap in the literature and in practice. As researchers, healthcare professionals and the public, we need to support couples where one partner has dementia to continue to live as normal life as possible. This can best be achieved by focusing on what couples can do, by inclusion and by valuing them as the experts within dementia research and of their life experiences. Bakgrund: Majoriteten av personer med demens bor i sitt eget hem och ofta tillsammans med sin partner som blir en informell vårdgivare. Relationens kvalitet och känsla av parskap hotas ofta till följd av övergången från en ömsesidig beroenderelation till en vårdgivare-vårdtagar-relation allt eftersom demenssjukdomen fortskrider. Detta kan innebära många negativa konsekvenser. Stöd för par där ena partnern har demens delas ofta upp i olika former för personen med demens och för partnern utan demens, vilket innebär att det saknas parbaserat resursorienterat stöd med inriktning på att främja parrelationen och parets vardagliga liv. Syfte: Syftet med denna avhandling är att utforska parcentrerade interventioner inom demens och att utveckla och testa ett parbaserat, salutogent och resursorienterat stöd för par där ena partnern har en demenssjukdom och som bor tillsammans i det egna hemmet. Metoder och fynd: Denna avhandling består av tre delar. Den första delen att utforska inkluderar två länkade litteraturöversikter, en narrativ översikt och en kartläggande översikt (studie I) som beskriver tidigare interventioner för par som lever med demens och varför de genomförts. Resultaten av översikterna visade ett kunskapsgap i, och ett behov av lättillgängligt stöd som riktar sig till parförhållanden, parens resurser och att främja det vardagliga livet. Den andra delen, att skapa (studie II) involverar utvecklingen av ett lättillgängligt resursorienterat och parbaserat stöd. Det första steget var att identifiera prioriterade ämnen för en sådan intervention tillsammans med par som lever med demens, genom en så kallad medforskarprocess. Detta inkluderade en omfattande litteraturgenomgång, intervjuer med par där ena partnern har demens, och konsultationsmöten med expertgrupper bestående av personer med demens och partners i Sverige och i Storbritannien. Medforskarprocessen och expertmötena resulterade i fyra huvudteman med motsvarande underteman vilka par med demens ansåg vara viktiga för deras relation och för välbefinnande i vardagen: (1) Hem och grannskap, (2) Meningsfulla aktiviteter och relationer, (3) Förhållningssätt och empowerment och (4) Parskap. Dessa teman vidareutvecklades och integrerades i multimedia-applikationen DemPower, som utvecklades i syfte att erbjuda interventionen till par som lever med demens. Den tredje delen att testa och att utvärdera beskriver genomförbarhetsstudien (studie III) där applikationen DemPower testades med avseende på genomförbarhet och acceptabilitet hos par där en partner har demens i Sverige och i Storbritannien. Resultaten av studien visade att DemPower-interventionen var genomförbar och acceptabel bland par där ena partnern har demens. Denna delen av avhandlingen inkluderar även en kvalitativ studie (studie IV) som undersökte parens erfarenheter av att testa DemPower tillsammans som ett par. De samlade upplevelserna resulterade i tre teman: (1) Utveckling av parrelationen, (2) Vi är inte ensamma och (3) Positivt förhållningssätt. De övergripande resultaten från avhandlingen presenteras även i en konkluderande syntes i slutet av avhandlingen. Den konkluderande syntesen med fokus på Meningsfullhet, Empowerment, Normalisering och Parskap representerar kärnan i denna avhandling. Avhandlingens slutsatser och kunskapsbidrag: DemPower-applikationen med fokus på parförhållanden, hälsofrämjande resurser och vardagen har bidragit med ett stöd som vilar på en genuin parbaserad grund tillämpad i det vardagliga livet för par som lever med demens. Denna avhandling bidrar även med kunskap till forskning, vård och allmänheten genom att lyfta fram ett salutogent förhållningssätt till par som lever med demens. Som forskare, vårdpersonal och allmänhet bör vi stödja par där ena partnern har demens för att de ska kunna fortsätta leva ett så normalt liv som möjligt. Detta kan bäst uppnås genom att fokusera på parens resurser, genom inkludering och genom att värdera dem som experter inom demensforskning och i deras livserfarenheter.
Download or read book Living and Loving written by HUAN. ZHAO and published by . This book was released on 2017-01-26 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: This dissertation, "Living and Loving: Adaptive Experiences of Caregiving to a Spouse With Alzheimer''s Disease in Shanghai, China" by Huan, Zhao, 赵环, was obtained from The University of Hong Kong (Pokfulam, Hong Kong) and is being sold pursuant to Creative Commons: Attribution 3.0 Hong Kong License. The content of this dissertation has not been altered in any way. We have altered the formatting in order to facilitate the ease of printing and reading of the dissertation. All rights not granted by the above license are retained by the author. Abstract: This qualitative study is an attempt to explore the adaptive experiences of elderly Chinese caregivers who have to take care of their spousal partners who are suffering from Alzheimer''s disease (AD). As the illness is known to be chronic and degenerative in nature, caregivers are thus faced with many stressful situations and adjustments are necessary. The purpose of this study is to examine how these caregivers in AD situations are interpreting the factors that might have influenced their adjustments. The sample consists of 26 participants aged 60 and above that have been a primary caregiver for not less than a year. Three in-depth interviews were conducted with each participant during the study period, which lasted for about two years. Findings show that most of them had to adjust to stressful situations in various aspects of life. They also developed many strategies for life adaption, which can be summarized in the following six adjustment themes. First, after hearing the AD diagnosis, they initially experienced a series of shocks and false hopes, and subsequent adjustments include eliminating uncertainty, establishing reasonable expectations toward both the disease and treatment, learning to take on the caregiver role, and finally, separating the disease from their partner''s personality. Second, these elderly caregivers gradually learned to attain inner peace through converting to various religions, searching for meanings within their stressful situations, and reconstructing rational explanations for their negative emotions. Third, in the area of spousal interaction, adaptive strategies included staying connected with their sick partners, reinforcing their caregiving motivations, completing the "familiar-strange-familiar" cycle, and re-establishing daily routines. Fourth, in situations involving other family members, such as adult children, the adjustment strategies included sharing economic burdens, re-allocating housework chores, delegating care responsibilities, and emotionally supporting one another. Fifth, in terms of social network, the main support that caregivers received usually came from informal sources; formal support is extremely limited. Findings further show a connection between the input and output of social support and personal capacity. Sixth, elderly spousal caregivers often possessed the ability to re-position and re-construct their self-confidence while adjusting to their new life rhythm. They were also able to achieve a balance between their private lives and their care responsibilities, which helps to maintain their well-being and neutralize their distresses. In summary, participants of the study often utilized more than one strategy in adjusting to their situations. The six aspects of adjustments are thus put together in this study as an integrated model of life adaptation and survival tactics adopted by elderly Chinese AD spousal caregivers. Also, whether these caregivers are successful in adapting depends on their abilities to accept changes in themselves and their environment, and achieve a compromise between the two. Based on the above findings, a culturally sensitive perspective is thus put forward to enhance the understanding of studied phenomenon within the contemporary Chinese context. Recomme
Download or read book Neither Married Nor Single written by Dr. David Kirkpatrick and published by Brush Education. This book was released on 2018-01-26 with total page 136 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Dr. David Kirkpatrick’s wife was diagnosed with Alzheimer’s disease in 2007, their lives—and their marriage—would change forever. In an honest, uplifting, and sometimes heartbreaking account of loving a partner with dementia, Dr. Kirkpatrick creates a clear guide for others in similar circumstances. He shares his perspective both as a loving and grief-stricken husband coping with a profound change in his marriage, and as a geriatric psychiatrist doing everything he can for his wife while continually learning throughout that experience. Dr. Kirkpatrick tackles the tough questions about caretaking, grief, loss, love, and sex for those whose partners have dementia. When is the right time to find or even to begin considering a care home for your loved one? How can you navigate the complexities of your changing sexual relationship with an Alzheimer’s partner? When is it appropriate for you to consider new relationships? With wisdom and compassion, Dr. Kirkpatrick reflects on these questions and more. Whether your partner has been recently diagnosed or has been living with dementia for many years, Neither Married Nor Single will help lead you to effective strategies for living and loving in an Alzheimer’s marriage, and for dealing with the changes ahead. And it will help you remember that you are not alone.
Download or read book LIVING WITH ALZHEIMER S DISEASE ONE COUPLE S JOURNEY written by Frances Siegel and published by Lulu.com. This book was released on 2013-02-01 with total page 86 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a guidepost for caregivers and families of Alzheimer's patients, an objective but emotion-filled assessment of how to handle life when the one you love the most begins gradually to lose memories and reason, and medical science cannot restore what is lost or offer any cure. The focus is the case of a prominent scholar with dementia and the impact of the illness on his marriage of 40 years. Frances Siegel kept track of her husband's symptoms, the behaviors that showed a slow but accelerating loss of cognitive function. The author offers her journey of adaptation and adjustment to the changes in their lives. Compassion and love alone become the guides of her existence as she grows in understanding. Readers will be moved and guided by her experiences. The foreword is by the Co-Director of the Neuropsychiatric and Memory Group of Johns Hopkins Hospital.
Download or read book Caregiver Confidential written by Cheri J. Bailly-Jacobs and published by . This book was released on 2020-03-24 with total page 286 pages. Available in PDF, EPUB and Kindle. Book excerpt: As the caregiver for your loved one with Alzheimer's disease, you may feel frustration, loneliness, and exhaustion. Cheri tells her personal experiences of caregiving for her husband with love, humor, and candor, She hopes her stories will encourage caregivers to reach out for help and to find compassion for themselves and their loved ones.
Download or read book Meeting the Challenge of Caring for Persons Living with Dementia and Their Care Partners and Caregivers written by National Academies of Sciences Engineering and Medicine and published by . This book was released on 2021-11-23 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Other Side of Alzheimer s written by Martha-Lee B. Ellis and published by BalboaPress. This book was released on 2012-03-07 with total page 204 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimers and marriage is a complex combination of emotions. You change, too, when your spouse has Alzheimers. This is a poignant collection of personal experiences, moving from confusion, loneliness, and fear to understanding and peace. Knowledge of resources and connecting with others who are, or have been, faced with this consuming task help you find your way through the maze of many unanticipated challenges. Finding the support of others is critical to achieving acceptance of this life-changing event. With a sprinkling of humor, this becomes a story of the power of love, allowing you to survive it. The Other Side of Alzheimers is written with honesty, sensitivity, and love. Every experience describes the physical, mental, and emotional challenges, while alluding to humor and hope. There are few published resources that deal with feelings of a spouse faced with a partners Alzheimers disease, and none I have read as good as this one. I found it to be a beautiful love story that any reader can appreciate. Carol Long, RN-BC Board Certified Gerontological Nurse Sozo Senior Wellness, Raleigh, North Carolina Ms. Ellis has written a beautiful, insightful account of the journey through Alzheimers. It reveals how love, understanding and the acceptance of change can overcome any adversity. It applies to us all as we navigate through the ebb and flow of a significant relationship. Karen Brisendine Retired Electronics Industry Business Manager Caregiver Martha-Lee Ellis has written a touching memoir that approaches Alzheimers from a wifes perspective of a scary and unpredictable course. The Other Side of Alzheimers offers a lifeline to others going through this experience, enabling them to see that they are not alone. This story has something to benefit anyone facing this disease with their spouse. Michelle S. Brovitz, MS PA American Society of Clinical Pathologists Former Pathologists Assistant for hospitals nationwide
Download or read book EBOOK Partnerships In Family Care written by Mike Nolan and published by McGraw-Hill Education (UK). This book was released on 2003-08-16 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: * What are the key features of partnerships between family and professional carers? * How do partnerships change over time? * What is needed to help create the best working partnerships? Forging partnerships between service users, family carers and service providers is a key theme in both the policy and academic literatures. However, what such partnerships mean and how they can be created and sustained while responding to change over time, is far from clear. This book considers how family and professional carers can work together more effectively in order to provide the highest quality of care to people who need support in order to remain in their own homes. It adopts a temporal perspective looking at key transitions in caregiving and suggests the most appropriate types of help at particular points in time. It draws on both empirical and theoretical sources emerging from several countries and relating to a number of differing caregiving contexts in order to illustrate the essential elements of 'relationship-centred' care. Partnerships in Family Care will be important reading for all health care students and professionals with an interest in community and home care for the ill, disabled, and elderly.
Download or read book Exploring Perceptions of Personhood of a Spouse in the Early Stage of Dementia written by Marina Vracevic and published by . This book was released on 2019 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: It is estimated that by the year 2050, one in three Americans 65 years and older will be living with some form of dementia, a group of symptoms that includes over 50 known types of diseases and conditions that currently affect over 6.7 million people in the United States. Because the psychological and physical decline associated with dementia impairs memory, judgment, communication, and other abilities that make independent daily functioning possible, it is important to care for the afflicted individuals in a way that takes care of their basic needs and preserves their sense of self, or their personhood. Many individuals in the early stage of dementia (ESD) live at home and are cared for by their spouses. How caregiving spouses perceive their partner with dementia and what meaning they give to the psychological and cognitive decline may be extremely important to knowing how they provide care for their partners. This knowledge also can improve targeted support for couples living with dementia. This study explored how eight caregiving wives perceived the personhood of their husbands in ESD. The three research questions were: (1) What meaning do caregiving wives give to the cognitive, behavioral, social, and physical changes in their husbands in the early stage of dementia? (2) What are caregiving wives' perceptions of personhood of their husband in the early stage of dementia? And, (3) What influences caregiving wives' perception of the personhood of their partner in the early stage of dementia? The participants were recruited through the Alzheimer's Association of Connecticut. A 3-phase interview process was employed in this qualitative, interpretative phenomenological analysis study, so that caregivers could narrate their experiences in their own words. This interview process afforded the exploration of the participant's experiences in the broader context of her life (1st and 2nd interviews) and invited the participant to reflect more deeply on the meaning of these experiences (3rd interview). Most wives felt that their husbands did not change in terms of personhood, despite the effects that dementia had on them by the early stages of the disease. The wives noticed the changes in their husbands' behavior prior to the husbands being diagnosed with dementia but did not seek support until these issues started affecting the husbands' daily functioning. Following the diagnosis, the wives worked to make adjustments to their daily lives and utilized social and medical support to provide the necessary care for their husbands. The findings suggest that the wives relied on their prior knowledge and exposure to dementia, as well as religion, friends, family, and supportive professionals to help them navigate and make meaning of their experiences of having a husband experiencing the early stages of dementia.
Download or read book Loving Someone Who Has Dementia written by Pauline Boss and published by John Wiley & Sons. This book was released on 2011-06-24 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt: Research-based advice for people who care for someone with dementia Nearly half of U.S. citizens over the age of 85 are suffering from some kind of dementia and require care. Loving Someone Who Has Dementia is a new kind of caregiving book. It's not about the usual techniques, but about how to manage on-going stress and grief. The book is for caregivers, family members, friends, neighbors as well as educators and professionals—anyone touched by the epidemic of dementia. Dr. Boss helps caregivers find hope in "ambiguous loss"—having a loved one both here and not here, physically present but psychologically absent. Outlines seven guidelines to stay resilient while caring for someone who has dementia Discusses the meaning of relationships with individuals who are cognitively impaired and no longer as they used to be Offers approaches to understand and cope with the emotional strain of care-giving Boss's book builds on research and clinical experience, yet the material is presented as a conversation. She shows you a way to embrace rather than resist the ambiguity in your relationship with someone who has dementia.
Download or read book The Emotional Journey of the Alzheimer s Family written by Robert B. Santulli, MD and published by Dartmouth College Press. This book was released on 2015-03-22 with total page 231 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer's disease is a growing public health crisis. According to the Alzheimer's Association, there are 5.4 million victims of this disease; by 2050, there will be close to 15 million people who suffer from this debilitating disorder of memory, thinking, personality, and functioning. The disease profoundly affects immediate family members, close friends, and neighbors. These people - the Alzheimer's family - undergo tremendous psychological and emotional change as they witness the cruel and relentless progression of the disease in their loved one. Incorporating over thirty years of experience with Alzheimer's patients and their families with current medical knowledge, the authors chart the complex emotional journey of the Alzheimer's family from the onset of the disease through the death of the loved one. They discuss the anger that rises in the face of discordant views of the disease, the defenses that emerge when family members are unwilling to accept a dementia diagnosis, and the common emotions of anxiety, guilt, anger, and shame. They focus especially on grief as the core response to losing a loved one to dementia, and describe the difficult processes of adaptation and acceptance, which lead to personal growth. Final chapters emphasize the importance of establishing a care community and how to understand and cope with personal stress. This volume will be useful to medical professionals and ordinary people close to or caring for a person with dementia.
Download or read book Alzheimer s Dementia from the Experiences of a Caregiver written by Rev. Frederick Trunk and published by Xulon Press. This book was released on 2012-02 with total page 64 pages. Available in PDF, EPUB and Kindle. Book excerpt: If you are a caregiver, or know someone who is, you owe it to yourself to read this book. It is very important to know the phases of Alzheimer's as well as the effects it has, not only on the patient, but on those who care for, or live with the patient. If you know someone who is struggling with the challenge you need to know how to help them. This book will give you insight into the challenges of dementia and Alzheimer's from the prospective of a caregiver who started attending caregivers meetings shortly after he realized that his wife was having unusual challenges and behaviors. Frederick and Marjorie were caregivers for about three years for a couple from their church. They were not able to get satisfactory help from family members or friends so they stepped in and got the appropriate legal Power of Attorney and helped them get into assisted living. We took care of their needs until they passed away. During this period we learned a lot about care giving. Frederick has been caregiver for his wife Marjorie for eleven years. His wish is that the book he has written will get into the hands of those who are just beginning to recognize there is a problem as well as those who may be experiencing many years as a caregiver. He also wants people to know that getting help early on is very important and makes the challenge of care giving much easier. For over forty years Frederick has served as Minister of Music/Organist in eleven churches in New Jersey, Massachusetts and Georgia. He attended Northeastern Bible College and Seminary in Essex Fells, New Jersey, and International Christian College and Seminary in Plymouth, Florida where he earned a Bachelor of Music and a Masters in Ministry.
Download or read book When Least Expected written by Adriana Noemi Shnall and published by . This book was released on 2015 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book In Love written by Amy Bloom and published by Random House. This book was released on 2022-03-08 with total page 241 pages. Available in PDF, EPUB and Kindle. Book excerpt: NEW YORK TIMES BESTSELLER • A powerful memoir of a love that leads two people to find a courageous way to part—and a woman’s struggle to go forward in the face of loss—that “enriches the reader’s life with urgency and gratitude” (The Washington Post) “A pleasure to read . . . Rarely has a memoir about death been so full of life. . . . Bloom has a talent for mixing the prosaic and profound, the slapstick and the serious.”—USA Today ONE OF THE BEST BOOKS OF THE YEAR: NPR Amy Bloom began to notice changes in her husband, Brian: He retired early from a new job he loved; he withdrew from close friendships; he talked mostly about the past. Suddenly, it seemed there was a glass wall between them, and their long walks and talks stopped. Their world was altered forever when an MRI confirmed what they could no longer ignore: Brian had Alzheimer’s disease. Forced to confront the truth of the diagnosis and its impact on the future he had envisioned, Brian was determined to die on his feet, not live on his knees. Supporting each other in their last journey together, Brian and Amy made the unimaginably difficult and painful decision to go to Dignitas, an organization based in Switzerland that empowers a person to end their own life with dignity and peace. In this heartbreaking and surprising memoir, Bloom sheds light on a part of life we so often shy away from discussing—its ending. Written in Bloom’s captivating, insightful voice and with her trademark wit and candor, In Love is an unforgettable portrait of a beautiful marriage, and a boundary-defying love.
Download or read book A Story of a Marriage Through Dementia and Beyond written by Laurel Richardson and published by Routledge. This book was released on 2022-02-09 with total page 146 pages. Available in PDF, EPUB and Kindle. Book excerpt: A Story of a Marriage Through Dementia and Beyond is the extraordinary, unflinching account from sociologist Laurel Richardson of her love and caregiving through the last period of her husband Ernest Lockridge's life - from his transient amnesia to his death from Lewy Body Dementia. Focusing on the lived experience of the caregiver through the loved one’s journey from mild cognitive impairment to death, the book gives the reader the experience of what the medical diagnoses mean and what has led up to the loss. It shows the complex, nuanced lives of a couple both living with the worst effects of a disease like Lewy Body Dementia, while maintaining, sometimes with hope and laughter, their loving connection nourished through a 40-year marriage. Dementia is a ‘silver tsunami’ - the third leading cause of death amongst senior populations. Richardson’s beautifully written book gives on-the-ground emotional support to those already in service as caregivers and helps prepare others for such service. Hospices, book clubs, and medical and allied professionals will find this book extraordinarily valuable. Weaving in autoethnographic and sociological methods and scholarship, as well as a list of reading and further resources for caregivers and scholars, this book will also appeal to courses in a wide range of disciplines and fields, including health communication, nursing and allied health, courses covering death and dying, end-of-life, and illness care, and, of course, scholars pursuing autoethnography, creative non-fiction, and qualitative methods.
Download or read book Brilliant Bob My Husband with Alzheimer s Disease written by Sue Lehr and published by FriesenPress. This book was released on 2017-04-20 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is about our life before and after Alzheimer's Disease invaded and how, over the subsequent ten years, we did our best to fight, learn, adjust and live with this heinous disease as it progressed. Using the Seven Stages of Alzheimer's Disease as the framework, I describe our experiences, some strategies we tried, what we learned from a variety of sources, our dilemmas, fears and honest feelings. Our story is about love and resilience, but also about the frustrations of finding appropriate services, financial constraints, the limits of Medicare and Medicaid, the ins-and-outs of the nursing home industry, and our search for what was right for Bob as the disease overtook him. Bob had a PhD in Experimental Psychology, but that didn't stop this disease from destroying his mind. I have a PhD in Special Education, but that didn't mean I knew what to do or how to do it. Through personal journal entries at various times, I share my thoughts, feelings and my anguish. I learned with Bob, and with the help of family and friends, how to support and care for him so that he knew that we would always love him. This was not an easy story to tell, but I hope it helps others.
