Download or read book Social and Economic Issues Concerning Patients with Sickle Cell Disease written by Punita Khanna and published by . This book was released on 1986 with total page 50 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Sickle Cell Disease in Sub Saharan Africa Public Health Perspectives written by Baba Inusa and published by . This book was released on 2024 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This fascinating collection examines the socio-economic factors that impact the well-being of patients with Sickle-Cell Disease (SCD) in sub-Saharan Africa, and the critical importance of patient advocacy in the region. The book looks at a number of key issues, including the social determinants that influence the spread of the disease, the quality of life of children with SCD, the impact of stigma, and the broader psychosocial burden of such a prevalent condition. There are also chapters on policy and Public Health management, including collaborations with NGOs and global partners. The second in a two-volume set offering a multi-disciplinary perspective on SCD, this insightful collection highlights many of the hidden issues faced across the region. It will be important reading for students of both Public Health and Medicine, as well as practitioners working for governments or NGOs.
Download or read book Sickle Cell Disease in Sub Saharan Africa Public Health Perspectives written by Baba Inusa and published by . This book was released on 2024 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This fascinating collection examines the socio-economic factors that impact the well-being of patients with Sickle-Cell Disease (SCD) in sub-Saharan Africa, and the critical importance of patient advocacy in the region. The book looks at a number of key issues, including the social determinants that influence the spread of the disease, the quality of life of children with SCD, the impact of stigma, and the broader psychosocial burden of such a prevalent condition. There are also chapters on policy and Public Health management, including collaborations with NGOs and global partners. The second in a two-volume set offering a multi-disciplinary perspective on SCD, this insightful collection highlights many of the hidden issues faced across the region. It will be important reading for students of both Public Health and Medicine, as well as practitioners working for governments or NGOs"--
Download or read book Addressing Sickle Cell Disease written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2021-01-22 with total page 523 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle cell disease (SCD) is a genetic condition that affects approximately 100,000 people in the United States and millions more globally. Individuals with SCD endure the psychological and physiological toll of repetitive pain as well as side effects from the pain treatments they undergo. Some adults with SCD report reluctance to use health care services, unless as a last resort, due to the racism and discrimination they face in the health care system. Additionally, many aspects of SCD are inadequately studied, understood, and addressed. Addressing Sickle Cell Disease examines the epidemiology, health outcomes, genetic implications, and societal factors associated with SCD and sickle cell trait (SCT). This report explores the current guidelines and best practices for the care of patients with SCD and recommends priorities for programs, policies, and research. It also discusses limitations and opportunities for developing national SCD patient registries and surveillance systems, barriers in the healthcare sector associated with SCD and SCT, and the role of patient advocacy and community engagement groups.
Download or read book Legislative and Socio economic Aspects of Sickle Cell Disease written by Calvin H. Sinnette and published by . This book was released on 1973 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Sickle Cell Disease in Sub Saharan Africa written by Baba Inusa and published by Taylor & Francis. This book was released on 2024-04-30 with total page 169 pages. Available in PDF, EPUB and Kindle. Book excerpt: This fascinating collection examines the socio-economic factors that impact the well-being of patients with sickle cell disease (SCD) in Sub-Saharan Africa and the critical importance of patient advocacy in the region. The book looks at a number of key issues, including the social determinants that influence the spread of the disease, the quality of life of children with SCD, the impact of stigma and the broader psychosocial burden of such a prevalent condition. There are also chapters on policy and Public Health management, including collaborations with non-governmental organisations (NGOs) and global partners. The second in a two-volume set offering a multi-disciplinary perspective on SCD, this insightful collection highlights many of the hidden issues faced across the region. It will be important reading for students of both Public Health and Medicine, as well as practitioners working for governments or NGOs.
Download or read book Sickle Cell Pain written by Samir K. Ballas and published by Lippincott Williams & Wilkins. This book was released on 2015-06-01 with total page 1004 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle Cell Pain is a panoramic, in-depth exploration of every scientific, human, and social dimension of this cruel disease. This comprehensive, definitive work is unique in that it is the only book devoted to sickle cell pain, as opposed to general aspects of the disease. The 752-page book links sickle cell pain to basic, clinical, and translational research, addressing various aspects of sickle pain from molecular biology to the psychosocial aspects of the disease. Supplemented with patient narratives, case studies, and visual art, Sickle Cell Pain’s scientific rigor extends through its discussion of analgesic pharmacology, including abuse-deterrent formulations. The book also addresses in great detail inequities in access to care, stereotyping and stigmatization of patients, the implications of rapidly evolving models of care, and recent legislation and litigation and their consequences.
Download or read book Managing Sickle Cell Disease written by Shirley Hill and published by Temple University Press. This book was released on 2003-04-09 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt: As many as 30,000 African Americans have sickle cell disease (SCD). Though the political activism of the 1960s and a major 1970s health campaign spurred demands for testing, treatment, and education programs, little attention has been given to how families cope with SCD. This first study to give SCD a social, economic, and cultural context documents the daily lives of families living with this threatening illness. Specifically, Shirley A. Hill examines how low-income African American mothers with children suffering from this hereditary, incurable, and chronically painful disease, react to the diagnosis and manage their family's health care.The 23 mostly single mothers Hill studies survive in an inner-city world of social inequality. Despite limited means, they actively participate, create, and define the social world they live in, their reality shaped by day-to-day caregiving. These women overcome obstacles by utilizing such viable alternatives as sharing child care with relatives within established kinship networks.Highlighting the role of class, race, and gender in the illness experience, Hill interprets how these women reject, redefine, or modify the objective scientific facts about SCD. She acknowledges and explains the relevance of child-bearing and motherhood to African American women's identity, revealing how the revelation of the SCD trait or the diagnosis of one child often does not affect a woman's interpretation of her reproductive rights.
Download or read book Psychosocial Aspects of Sickle Cell Disease written by Kermit B. Nash and published by Routledge. This book was released on 1994 with total page 289 pages. Available in PDF, EPUB and Kindle. Book excerpt: Psychosocial Aspects of Sickle Cell Disease presents the most current evaluations and research on biopsychosocial influence and interventions for persons with sickle cell disease. A major step forward in better understanding sickle cell and its ramifications, this innovative book is the first to use the biopsychosocial model as its frame of reference. This model takes into account the biological, psychological, and social influences on persons with sickle cell. The interdisciplinary research in this book begins the process of defining effective comprehensive care programs for those affected by sickle cell disease. This important book consolidates the available research on this topic for busy clinicians and for researchers doing further investigation in this area. This is the first interdisciplinary group effort to collaborate on a holistic approach to comprehensive care for the sickle cell population. Psychosocial Aspects of Sickle Cell Disease promotes team effort and systematically explores the quality of life issues confronting practitioners and service providers. This groundbreaking book answers practitioners'questions regarding service provision, program development, and further research in the psychosocial issues of sickle cell disease. Included among the chapters are examinations of such issues as: effects of sickle cell disease over the lifespan school adjustment family relations adolescents mutual support and self-help adult population emergency services policy issues future research directions and methodology for studying sickle cell disease All experts in the human services profession will find this comprehensive information on psychosocial issues invaluable when facing issues such as medical treatment for patients, education about sickle cell disease, counseling, pain management therapy, and occupational therapy, and support services such as housing, transportation, legal services, recreational services, and financial services. Health educators, guidance counselors, nurses, physicians, psychiatrists, psychologists, and social workers will find the information in Psychosocial Aspects of Sickle Cell Disease critical to a comprehensive understanding of the individual affected by sickle cell disease, and ultimately to the development of comprehensive care.
Download or read book Sickle Cell Disease in Clinical Practice written by Jo Howard and published by Springer. This book was released on 2015-02-12 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle Cell Disease is the most common genetic disease world wide and in the UK. It has marked geographical variation in its distribution in the UK, with a concentration in London and other major conurbations (Birmingham and Manchester). In these areas, specialist centres have become established offering expert, up to date care for both inpatients and out patients with Sickle Cell Disease. Although patient numbers are increasing outside these areas, the expertise of health professionals can be patchy. This book aims to provide a user friendly, accessible resource for areas with smaller numbers of patients, to allow them to provide equitable care with the larger well established centres. Sickle Cell Disease can be associated with acute life threatening complications, when clear, easily available advice is needed, and with chronic long term complications which may need liaison with other health professionals. Clear treatment protocols for all the common complications of sickle cell disease, are outlined here, with summaries of key evidence and references.
Download or read book The Enculturated Gene written by Duana Fullwiley and published by Princeton University Press. This book was released on 2011-11-07 with total page 369 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the 1980s, a research team led by Parisian scientists identified several unique DNA sequences, or haplotypes, linked to sickle cell anemia in African populations. After casual observations of how patients managed this painful blood disorder, the researchers in question postulated that the Senegalese type was less severe. The Enculturated Gene traces how this genetic discourse has blotted from view the roles that Senegalese patients and doctors have played in making sickle cell "mild" in a social setting where public health priorities and economic austerity programs have forced people to improvise informal strategies of care. Duana Fullwiley shows how geneticists, who were fixated on population differences, never investigated the various modalities of self-care that people developed in this context of biomedical scarcity, and how local doctors, confronted with dire cuts in Senegal's health sector, wittingly accepted the genetic prognosis of better-than-expected health outcomes. Unlike most genetic determinisms that highlight the absoluteness of disease, DNA haplotypes for sickle cell in Senegal did the opposite. As Fullwiley demonstrates, they allowed the condition to remain officially invisible, never to materialize as a health priority. At the same time, scientists' attribution of a less severe form of Senegalese sickle cell to isolated DNA sequences closed off other explanations of this population's measured biological success. The Enculturated Gene reveals how the notion of an advantageous form of sickle cell in this part of West Africa has defined--and obscured--the nature of this illness in Senegal today. Some images inside the book are unavailable due to digital copyright restrictions.
Download or read book Understanding Racial and Ethnic Differences in Health in Late Life written by National Research Council and published by National Academies Press. This book was released on 2004-09-08 with total page 184 pages. Available in PDF, EPUB and Kindle. Book excerpt: As the population of older Americans grows, it is becoming more racially and ethnically diverse. Differences in health by racial and ethnic status could be increasingly consequential for health policy and programs. Such differences are not simply a matter of education or ability to pay for health care. For instance, Asian Americans and Hispanics appear to be in better health, on a number of indicators, than White Americans, despite, on average, lower socioeconomic status. The reasons are complex, including possible roles for such factors as selective migration, risk behaviors, exposure to various stressors, patient attitudes, and geographic variation in health care. This volume, produced by a multidisciplinary panel, considers such possible explanations for racial and ethnic health differentials within an integrated framework. It provides a concise summary of available research and lays out a research agenda to address the many uncertainties in current knowledge. It recommends, for instance, looking at health differentials across the life course and deciphering the links between factors presumably producing differentials and biopsychosocial mechanisms that lead to impaired health.
Download or read book Evidence Based Management of Sickle Cell Disease written by M D George R Buchanan and published by Createspace Independent Publishing Platform. This book was released on 2014-09-09 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle cell disease can be severe and disabling. When properly treated, patients live longer and with better quality life. This is a US government publication intended to provide evidence-based guidelines for the care of these patients for the use of all concerned providers as well as patients and family members. This book is available in print here for convenience.
Download or read book Guide to the Inpatient Pain Consult written by Alaa Abd-Elsayed and published by Springer Nature. This book was released on 2020-05-21 with total page 625 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a practically applicable guide on the management of patients with pain in the inpatient setting in a variety of populations.Chapters are focused on how to treat patients with a particular condition including multiple sclerosis, liver failure, sickle cell anemia, organ related pain, and autoimmune diseases. Therefore, enabling the reader to develop a thorough understanding of how to appropriately analyse the condition and put together a suitable treatment plan for a variety of pain related conditions. Guide to the Inpatient Pain Consult comprehensively covers how to manage patients with pain in the inpatient setting, and is of use to trainees and practising internists, hospitalists, surgeons, and anaesthesiologists.
Download or read book Medical and Surgical Complications of Sickle Cell Anemia written by Ahmed Al-Salem and published by Springer. This book was released on 2015-12-14 with total page 352 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a wide-ranging guide to the diagnosis and management of the numerous medical and surgical complications that may arise in patients with sickle cell anemia. After introductory chapters on the genetics, pathophysiology, clinical features, and variants of sickle cell anemia, the complications observed in different parts of the body are addressed in a series of well-illustrated chapters. The coverage includes splenic, hepatobiliary, musculoskeletal, gastrointestinal, ophthalmological, cardio- and cerebrovascular, and renal complications, as well as acute chest syndrome, leg ulcers, hand and foot syndrome, acute appendicitis, and priapism. Treatment-oriented chapters consider perioperative management, blood transfusion therapy, hydroxyurea treatment, hematopoietic stem cell transplantation, and emerging strategies. The book is clearly written in a distinctive bullet point format for ease of reference and emphasizes especially aspects of practical significance. It will be of value for hematologists, general surgeons, internists, pediatricians, pediatric surgeons, fellows, residents, medical students, and nurses.
Download or read book Dying in the City of the Blues written by Keith Wailoo and published by UNC Press Books. This book was released on 2014-06-30 with total page 352 pages. Available in PDF, EPUB and Kindle. Book excerpt: This groundbreaking book chronicles the history of sickle cell anemia in the United States, tracing its transformation from an "invisible" malady to a powerful, yet contested, cultural symbol of African American pain and suffering. Set in Memphis, home of one of the nation's first sickle cell clinics, Dying in the City of the Blues reveals how the recognition, treatment, social understanding, and symbolism of the disease evolved in the twentieth century, shaped by the politics of race, region, health care, and biomedicine. Using medical journals, patients' accounts, black newspapers, blues lyrics, and many other sources, Keith Wailoo follows the disease and its sufferers from the early days of obscurity before sickle cell's "discovery" by Western medicine; through its rise to clinical, scientific, and social prominence in the 1950s; to its politicization in the 1970s and 1980s. Looking forward, he considers the consequences of managed care on the politics of disease in the twenty-first century. A rich and multilayered narrative, Dying in the City of the Blues offers valuable new insight into the African American experience, the impact of race relations and ideologies on health care, and the politics of science, medicine, and disease.
Download or read book Assessing Genetic Risks written by Institute of Medicine and published by National Academies Press. This book was released on 1994-01-01 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening. Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered: Quality control in genetic testing. Appropriate roles for public agencies, private health practitioners, and laboratories. Value-neutral education and counseling for persons considering testing. Use of test results in insurance, employment, and other settings.
