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Book Sibling Caregivers

    Book Details:
  • Author : Ob Nwaogbe
  • Publisher :
  • Release : 2019-07-18
  • ISBN : 9781080129683
  • Pages : 142 pages

Download or read book Sibling Caregivers written by Ob Nwaogbe and published by . This book was released on 2019-07-18 with total page 142 pages. Available in PDF, EPUB and Kindle. Book excerpt: We hear about parents taking care of their child with a disability, but not much attention is paid to siblings who have the full time job of being a caregiver. Never fully prepared for a tremendous amount of responsibility, some siblings find themselves playing the role of caregiver sometimes starting at a very young age. The story about my brother and I will encourage other sibling caregivers, and bring the much needed awareness to the tremendous task sibling caregivers take on. This is a part memoir and tips on being a sibling caregiverAdditonally, the goal of this book is to draw attention to the magnitude of family caregivers in the U.S., which is about 65.7 million of U.S. adults who provide care to someone who is ill, disabled or aged (The National Alliance for Caregiving and AARP, 2009). Research also shows that the barriers family caregivers face in accessing ready information or a lack thereof leads to stress, anxiety, psychological problems, physical and mental breakdown. Affording family caregivers and people with disabilities services and resources to have a quality life is one factor, which makes a developed nation stand out from the rest. Unfortunately, state and local agencies in the U.S., and most countries around the world fall short in reaching this goal. During my research, I discovered that cultural differences played a role in why family caregivers of different groups, such as African American, Asian, Hispanic American and European Americans, accessed resources late in their caregiving experience or not at all. Given the findings of this issue, it is important for caregivers to be fully informed about what resources are out there, and it is imperative for state and local caregiver agencies to come up with better communication strategies to better disseminate information to its target audience. BY READING THIS BOOK, You will discover: oHow to live your life stress free.oHow to accomplish your personal goals.oHow to find resources available to assist you financially, mentally and physically.oHow to better help your sibling or loved one get through and deal with his/her disability. oHow to accept that this is one of the reasons you are here; YOUR PURPOSE.

Book Families Caring for an Aging America

    Book Details:
  • Author : National Academies of Sciences, Engineering, and Medicine
  • Publisher : National Academies Press
  • Release : 2016-11-08
  • ISBN : 0309448093
  • Pages : 367 pages

Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

Book Sibling Interaction Across Cultures

Download or read book Sibling Interaction Across Cultures written by Patricia G. Zukow and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 292 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sibling Interaction Across Cultures is a collection of studies focusing on the role siblings play in the social, emotional, and cognitive development of their younger siblings. Unlike much previous research on sibling relationships, these studies share the underlying assumption that social interaction plays a significant role in the acquisition and transmission of cultural knowledge and social understanding. The contributors evaluate the advantages as well as limitations of current methodological issues directly affecting sibling research and assess the various theoretical perspectives underpinning these methodologies. Drawing from empirical, cross- and infra-cultural research, this volume lays new groundwork for identifying universal, environmental, and culture-specific aspects of the role of siblings in child development.

Book Working Daughter

Download or read book Working Daughter written by Liz O'Donnell and published by Rowman & Littlefield. This book was released on 2019-07-31 with total page 190 pages. Available in PDF, EPUB and Kindle. Book excerpt: Working Daughter provides a roadmap for women trying to navigate caring for aging parents and their careers. Using the author’s own experiences as a prime example, it’s ideal for readers who want straight talk and real advice about the challenges and rewards of eldercare while managing a career and family.

Book They re Your Parents  Too

Download or read book They re Your Parents Too written by Francine Russo and published by Bantam. This book was released on 2010-01-26 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: Your parents are growing older and are getting forgetful, starting to slow down, or worse. Suddenly you find yourself at the cusp of one of the most important transitions in your life—and the life of your family. Your parents need you and your siblings to step up and take care of them, a little or a lot. To make the right things happen, you will all need to work together. And yet your siblings may have very different ideas from yours of what’s best for Mom and Dad. They may be completely uninterested in helping, leaving you with all the responsibility. Or they may take charge and not allow you to help, or criticize whatever help you do give. Will you and your siblings be able to reach an understanding and work together, or will the challenges you face tear you apart? Most of us enter this period of our lives unprepared for the difficult decisions and delicate negotiations that lie ahead. This is the first book that provides guidance on the transition from the “old” family to the “new” one, especially for adult siblings. Here you’ll find practical advice on a wide range of topics including • Who will make major medical decisions, manage finances, and enforce end-of-life choices if your parents cannot? And how will this be decided and carried out? • How will you negotiate caregiving issues and deal with unequal contributions or power struggles? • How can inheritance and the division of property, assets, and personal effects be handled to minimize hurt feelings and resentment? • How will you cope with the natural reemergence of unresolved childhood rivalries, hurts, and needs? • How can caring for your parents be an enriching experience rather than a thankless chore? • Most important, how can you ensure the best care for your parents while lessening conflict, guilt, anger, and angst? Written by a veteran journalist who chronicles life and how baby boomers live it, They’re Your Parents, Too! offers all the information, insight, and advice you’ll need to make productive choices as you and your siblings begin to assume your parents’ place as the decision-making generation of your family. Filled with expert guidance from gerontologists, family therapists, elder-care attorneys, financial planners, and health workers; resonant real-life stories; and helpful family negotiation techniques, this is an indispensable book for anyone whose parents are aging.

Book A Cast of Caregivers

Download or read book A Cast of Caregivers written by Sherri Snelling and published by BalboaPress. This book was released on 2013-01-01 with total page 550 pages. Available in PDF, EPUB and Kindle. Book excerpt: What caregiving role will you play? How will you avoid the caregiving cost drain? Are you prepared for the end? How will you overcome stress, burn-out, depression, guilt? How will you find happiness and support? How do you start the caregiving conversation with a loved one? Are you caring for yourself while caregiving? More than 65 million Americans are caring for a loved one yet most dont know what they are facing or where to get help. Caregiving expert Sherri Snelling shines a spotlight on the world of caregiving and interviews celebrities who have taken the caregiving journey and shared their lessons learned. This how-to guide also covers caregiving topics A to Z, self-care advice and more. Inside you will find numerous expert interviews and tips on how to have the C-A-R-E Conversation and how to find your Me Time Monday. Written to inspire and empower you, this is your screenplay for health and happiness while caregiving. As Dorothy said in The Wizard of Oz, Toto, I have a feeling were not in Kansas anymore. Welcome to the Cast of Caregivers.

Book Caring for the Caregiver

Download or read book Caring for the Caregiver written by Megan M. Seaman and published by . This book was released on 2015 with total page 448 pages. Available in PDF, EPUB and Kindle. Book excerpt: "There is a growing population of aging parents with dementia and subsequent obligations of adult children to provide care for them. Approaches to helping adult siblings care for their parents are centered on primary caregiver network models that overly focus on instrumental support and the integration of formal care into the system of dementia caregiving. Unfortunately, models that exist do not address the unique caregiving sibling connections or social support that are perceived and experienced in the dementia care system, which may prove more beneficial than instrumental assistance in helping family caregivers. To address the gaps in dementia care literature and practice, this dissertation study explored the perceptions and experiences of sibling connections and social support between adult siblings caring for their aging parents with dementia. The current study involved interviews with five sibling dyads of families living in the Midwest who were in the process of caring for a parent with dementia. Ten siblings (two from each family) completed demographic questionnaires and independently participated in semi-structured interviews about their experiences and perceptions of dementia care, including their perceived social support and sibling connection. In cross-family analysis, four superordinate clusters and 18 superordinate themes were found in participants' narratives. Results of this study confirm the importance of examining dementia concerns and providing assistance and resources from a systemic and contextual paradigm to adult siblings who are caregiving for a parent with dementia, rather than working from a primary caregiver network model. Additionally, instead of medical and instrumental tasks taking the forefront of support in dementia caregiving, providing different levels of mental and emotional social support seemed to be most important in balancing the dementia caregiving system. Moreover, cultural guides related to ethnicity, religion, and generational differences proved to be important in helping caregivers deal with and understand their parents' cognitive decline. Findings from this study support an expanded way of helping and understanding adult sibling dementia caregivers' experiences and perceptions of sibling connections and social support from a family systems/ecological model."--Abstract from author supplied metadata.

Book Future Families

    Book Details:
  • Author : Ross D. Parke
  • Publisher : John Wiley & Sons
  • Release : 2013-08-28
  • ISBN : 1118602358
  • Pages : 430 pages

Download or read book Future Families written by Ross D. Parke and published by John Wiley & Sons. This book was released on 2013-08-28 with total page 430 pages. Available in PDF, EPUB and Kindle. Book excerpt: Future Families explores the variety of family forms which characterize our contemporary culture, while addressing the implications of these increasingly diverse family units on child development. Reveals the diversity of new family forms based on the most current research on fathers, same-gender parents, new reproductive technologies, and immigrant families Illustrates that children and adults can thrive in a variety of non-traditional family forms Shows the interrelatedness of new trends in family organization through the common themes of embedded families and caregiving in community and cultural contexts Features an interdisciplinary approach, drawing from works in areas that include child development, family studies, sociology, cross-cultural scholarship, ethnic studies, biology, neuroscience, anthropology and even architecture Sets an agenda for future research in the area of families by identifying important gaps in our knowledge about families and parenting

Book Family Ties and Aging

Download or read book Family Ties and Aging written by Ingrid Arnet Connidis and published by SAGE Publications. This book was released on 2018-10-05 with total page 486 pages. Available in PDF, EPUB and Kindle. Book excerpt: Providing an integrated and thorough representation from current research and contemporary society, Family Ties and Aging shows how pressing issues of our time—an aging population, changing family structures, and new patterns of work-family balance—are negotiated in the family lives of middle-aged and older adults. Focusing on key questions such as "How do current trends and social arrangements affect family relationships?" and "What are the implications of what we know for future research, theory, practice, and policy?" authors Ingrid Arnet Connidis and Amanda E. Barnett explore groups and relationships that are typically overlooked, including the unique family situations of older single and childless persons, sibling ties, older lesbian and gay adults, and new forms of intimate relationships. The Third Edition is thoroughly updated to include the latest research and theoretical developments, recent media coverage of related issues, and new information on intimate relationships in later life and elder neglect/abuse.

Book Sisters and Brothers daughters and Sons

Download or read book Sisters and Brothers daughters and Sons written by Sarah H. Matthews and published by Unlimited Publishing LLC. This book was released on 2002 with total page 296 pages. Available in PDF, EPUB and Kindle. Book excerpt: Matthews asks 149 pairs of siblings with at least one parent over 75 about family interaction. Old parents are rarely portrayed as a privilege, this book presents a more realistic, positive picture. Academic but with minimal jargon. Fully returnable.

Book When Your Loved One Has Dementia

Download or read book When Your Loved One Has Dementia written by Joy A. Glenner and published by JHU Press. This book was released on 2005-06-17 with total page 152 pages. Available in PDF, EPUB and Kindle. Book excerpt: The result is a guide that integrates the practicalities of caregiving with the human emotions that accompany it.

Book Doing Qualitative Research

Download or read book Doing Qualitative Research written by Margaret Anzul and published by Routledge. This book was released on 2003-12-08 with total page 254 pages. Available in PDF, EPUB and Kindle. Book excerpt: First published in 1991. Routledge is an imprint of Taylor & Francis, an informa company.

Book Living with a Brother or Sister with Special Needs

Download or read book Living with a Brother or Sister with Special Needs written by Donald Meyer and published by University of Washington Press. This book was released on 2014-02-01 with total page 144 pages. Available in PDF, EPUB and Kindle. Book excerpt: Living with a Brother or Sister with Special Needs focuses on the intensity of emotions that brothers and sisters experience when they have a sibling with special needs, and the hard questions they ask: What caused my sibling�s disability? Could my own child have a disability as well? What will happen to my brother or sister if my parents die? Written for young readers, the book discusses specific disabilities in easy to understand terms. It talks about the good and not-so-good parts of having a brother or sister who has special needs, and offers suggestions for how to make life easier for everyone in the family. The book is a wonderful resource, not just for siblings and their parents but also for teachers and other professionals who work with children with special needs. This revised and updated edition includes new sections on attention deficit hyperactivity disorder, fetal alcohol syndrome, fragile X syndrome, traumatic brain injuries, ultrasound, speech therapy, recent legislation on disabilities, and an extensive bibliography.

Book Family Caregiving Across the Lifespan

Download or read book Family Caregiving Across the Lifespan written by Eva Kahana and published by SAGE Publications. This book was released on 1994-03-16 with total page 447 pages. Available in PDF, EPUB and Kindle. Book excerpt: Published in cooperation with the Center for Practice Innovations, Mandel School of Applied Social Sciences, Case Western Reserve University Increased life expectancy, the deinstitutionalization of persons with mental illness, the rise of home health care, and advances in medical technology have resulted in greater numbers of dependent people requiring care by family members. The frail elderly, the chronically mentally ill, and the physically disabled are examples of such groups who now receive their daily care in the community. How do families accept the burden of this care? What are the physical and emotional demands of such caregiving? Are the families prepared to assume this role? Family Caregiving Across the Lifespan considers the broad spectrum of chronic illnesses that necessitate family caregiving throughout the lifespan and expands the caregiving paradigm by including in its focus both members of the caregiving dyad and significant non-family caregivers. It also explores the social context in which care is provided--an entire section of the volume is devoted to discussions of the interface between informal and formal caregivers and society at large. Among the other subjects this volume addresses are the negative consequences of family caregiving, the value of providing support to caregivers, and caregivers of persons living with AIDS. Family Caregiving Across the Lifespan is important reading for those in social work, nursing, family medicine, and clinical psychology. "Family Caregiving Across the Lifespan represents a significant milestone in the continuing maturation of this vital area of long-term care. The title is an understatement of the authors′ accomplishments. . . .Rather than offering narrow boxes or labels, the book invites the reader to join in a broadened perspective on caregiving so that it can more fully reflect the richness of the lives of all involved. . . .For those who encounter Family Caregiving Across the Lifespan as part of their continuing study of caregiving, the book provides the integrating milestone of caregiving literature." --Journal of Case Management "This volume is a useful compendium of articles on family caregiving. The fourteen chapters in this volume address many important topics in family caregiving. One of the book′s major contributions is its clarification that family caregiving to frail or chronically ill people has no age limitation, although there are unique issues at different points in the development of individuals and families. The book has exceptional merit. It expands our understanding of family caregiving, provides important ideas for future research, offers research findings that enhance our understanding of family care, and presents a very useful review of the literature. This book would be a beneficial addition to the library of all researchers in the area of caregiving. They will discover worthwhile conceptualizations and gain new insights that can inform their research. Practitioners should also benefit from this collection. The chapters addressing interaction between forma land informal caregivers should give practitioners a deeper understanding of how to be more effective in dealing with informal caregivers and care recipients." -Ageing & Society "One paper [in this volume] deserves particular notice because it attempts to do what many of the authors feel is most critical in caregiving research but also most difficult, namely, to analyze the effectiveness of caregiving, the effect of provision of care on elder health outcomes. This is an important and original conceptualization of the problem..." -Steven M. Albert, Contemporary Gerontology "This book is both unique and valuable because it embraces Brody′s observation that family caregiving is not limited to a specific segment of the life span. Moreover, the book is not limited to filial caregiving, but entertains an impressive variety of contexts of family caregiving. . . . This book will be a valuable text in graduate-level courses." --Journal of Marriage and the Family

Book Handbook of Parenting  Being and becoming a parent

Download or read book Handbook of Parenting Being and becoming a parent written by Marc H. Bornstein and published by Psychology Press. This book was released on 2002 with total page 768 pages. Available in PDF, EPUB and Kindle. Book excerpt: Completely revised and expanded from four to five volumes, this new edition of the Handbook of Parenting appears at a time that is momentous in the history of parenting. Parenting and the family are today in a greater state of flux, question, and redefinition than perhaps ever before. We are witnessing the emergence of striking permutations on the theme of parenting: blended families, lesbian and gay parents, and teen versus fifties first-time moms and dads. One cannot but be awed on the biological front by technology that now not only renders postmenopausal women capable of childbearing, but also presents us with the possibility of designing babies. Similarly on the sociological front, single parenthood is a modern day fact of life, adult child dependency is on the rise, and parents are ever less certain of their own roles, even in the face of rising environmental and institutional demands that they take increasing responsibility for their offspring. The Handbook of Parenting concerns itself with: *different types of parents--mothers and fathers, single, adolescent, and adoptive parents; *basic characteristics of parenting--behaviors, knowledge, beliefs, and expectations about parenting; *forces that shape parenting--evolution, genetics, biology, employment, social class, culture, environment, and history; *problems faced by parents--handicap, marital difficulties, drug addiction; and *practical concerns of parenting--how to promote children's health, foster social adjustment and cognitive competence, and interact with school, legal, and public officials. Contributors to the Handbook of Parenting have worked in different ways toward understanding all these diverse aspects of parenting, and all look to the most recent research and thinking in the field to shed light on many topics every parent wonders about. Each chapter addresses a different but central topic in parenting; each is rooted in current thinking and theory, as well as classical and modern research in that topic; each has been written to be read and absorbed in a single sitting. In addition, each chapter follows a standard organization, including an introduction to the chapter as a whole, followed by historical considerations of the topic, a discussion of central issues and theory, a review of classical and modern research, forecasts of future directions of theory and research, and a set of conclusions. Of course, contributors' own convictions and research are considered, but contributions to this new edition present all major points of view and central lines of inquiry and interpret them broadly. The Handbook of Parenting is intended to be both comprehensive and state of the art. As the expanded scope of this second edition amply shows, parenting is naturally and closely allied with many other fields.

Book Ambiguous Loss

    Book Details:
  • Author : Pauline BOSS
  • Publisher : Harvard University Press
  • Release : 2009-06-30
  • ISBN : 0674028589
  • Pages : 166 pages

Download or read book Ambiguous Loss written by Pauline BOSS and published by Harvard University Press. This book was released on 2009-06-30 with total page 166 pages. Available in PDF, EPUB and Kindle. Book excerpt: When a loved one dies we mourn our loss. We take comfort in the rituals that mark the passing, and we turn to those around us for support. But what happens when there is no closure, when a family member or a friend who may be still alive is lost to us nonetheless? How, for example, does the mother whose soldier son is missing in action, or the family of an Alzheimer's patient who is suffering from severe dementia, deal with the uncertainty surrounding this kind of loss? In this sensitive and lucid account, Pauline Boss explains that, all too often, those confronted with such ambiguous loss fluctuate between hope and hopelessness. Suffered too long, these emotions can deaden feeling and make it impossible for people to move on with their lives. Yet the central message of this book is that they can move on. Drawing on her research and clinical experience, Boss suggests strategies that can cushion the pain and help families come to terms with their grief. Her work features the heartening narratives of those who cope with ambiguous loss and manage to leave their sadness behind, including those who have lost family members to divorce, immigration, adoption, chronic mental illness, and brain injury. With its message of hope, this eloquent book offers guidance and understanding to those struggling to regain their lives. Table of Contents: 1. Frozen Grief 2. Leaving without Goodbye 3. Goodbye without Leaving 4. Mixed Emotions 5. Ups and Downs 6. The Family Gamble 7. The Turning Point 8. Making Sense out of Ambiguity 9. The Benefit of a Doubt Notes Acknowledgments Reviews of this book: You will find yourself thinking about the issues discussed in this book long after you put it down and perhaps wishing you had extra copies for friends and family members who might benefit from knowing that their sorrows are not unique...This book's value lies in its giving a name to a force many of us will confront--sadly, more than once--and providing personal stories based on 20 years of interviews and research. --Pamela Gerhardt, Washington Post Reviews of this book: A compassionate exploration of the effects of ambiguous loss and how those experiencing it handle this most devastating of losses ... Boss's approach is to encourage families to talk together, to reach a consensus about how to mourn that which has been lost and how to celebrate that which remains. Her simple stories of families doing just that contain lessons for all. Insightful, practical, and refreshingly free of psychobabble. --Kirkus Review Reviews of this book: Engagingly written and richly rewarding, this title presents what Boss has learned from many years of treating individuals and families suffering from uncertain or incomplete loss...The obvious depth of the author's understanding of sufferers of ambiguous loss and the facility with which she communicates that understanding make this a book to be recommended. --R. R. Cornellius, Choice Reviews of this book: Written for a wide readership, the concepts of ambiguous loss take immediate form through the many provocative examples and stories Boss includes, All readers will find stories with which they will relate...Sensitive, grounded and practical, this book should, in my estimation, be required reading for family practitioners. --Ted Bowman, Family Forum Reviews of this book: Dr. Boss describes [the] all-too-common phenomenon [of unresolved grief] as resulting from either of two circumstances: when the lost person is still physically present but emotionally absent or when the lost person is physically absent but still emotionally present. In addition to senility, physical presence but psychological absence may result, for example, when a person is suffering from a serious mental disorder like schizophrenia or depression or debilitating neurological damage from an accident or severe stroke, when a person abuses drugs or alcohol, when a child is autistic or when a spouse is a workaholic who is not really 'there' even when he or she is at home...Cases of physical absence with continuing psychological presence typically occur when a soldier is missing in action, when a child disappears and is not found, when a former lover or spouse is still very much missed, when a child 'loses' a parent to divorce or when people are separated from their loved ones by immigration...Professionals familiar with Dr. Boss's work emphasised that people suffering from ambiguous loss were not mentally ill, but were just stuck and needed help getting past the barrier or unresolved grief so that they could get on with their lives. --Asian Age Combining her talents as a compassionate family therapist and a creative researcher, Pauline Boss eloquently shows the many and complex ways that people can cope with the inevitable losses in contemporary family life. A wise book, and certain to become a classic. --Constance R. Ahrons, author of The Good Divorce A powerful and healing book. Families experiencing ambiguous loss will find strategies for seeing what aspects of their loved ones remain, and for understanding and grieving what they have lost. Pauline Boss offers us both insight and clarity. --Kathy Weingarten, Ph.D, The Family Institute of Cambridge, Harvard Medical School

Book The Road Ahead

    Book Details:
  • Author : Alpha 2 Omega
  • Publisher : Independently Published
  • Release : 2023-02-02
  • ISBN :
  • Pages : 0 pages

Download or read book The Road Ahead written by Alpha 2 Omega and published by Independently Published. This book was released on 2023-02-02 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Becoming a primary care provider for a sibling with special needs can be a challenging and emotional journey, but it doesn't have to be done alone. This comprehensive guide is written specifically for siblings who will become primary care providers for their brothers or sisters with special needs when their parents die. Comprehensive guide for siblings who will become primary care providers for their brothers or sisters with special needs when their parents die Covers various fears and concerns that siblings may have, including financial burden, emotional burden, lack of knowledge or experience, loss of independence, difficulty in balancing the needs of the sibling with their own, fear of the future and what will happen to the sibling with special needs, legal and administrative responsibilities, difficulty in finding appropriate care and support services, and navigating the healthcare system Provides practical advice, real-life examples and case studies, and resources to help siblings navigate these challenges and prepare for their role as primary care providers Aims to empower siblings to take control of their situation and make informed decisions for their sibling with special needs and their own well-being Written with compassion and understanding, it provides readers with the support, guidance and practical tools they need to navigate the journey of caregiving for a sibling with special needs Includes real-life examples and case studies from other siblings who have gone through the caregiving journey A must-read for anyone who is currently or will be in the position of primary care provider for a sibling with special needs Written with compassion and understanding, it will provide readers with the support, guidance, and practical tools they need to navigate the journey of caregiving for a sibling with special needs. The journey of caregiving for a sibling with special needs can be difficult, but it doesn't have to be faced alone. This book is a must-read for anyone who is currently or will be in the position of primary care provider for a sibling with special needs. Written with compassion and understanding, it provides readers with the support, guidance, and practical tools they need to navigate the journey of caregiving for a sibling with special needs. This book is a must-read for siblings of individuals with special needs who will be taking on the role of primary caregiver when their parents pass away. It provides practical advice and real-life examples from a fellow parent with a child with special needs on how to best manage caregiving responsibilities and make informed decisions that are in the best interest of both the sibling with special needs and themselves. Through this comprehensive guide, readers can develop a better understanding of their unique situation and gain the confidence needed to succeed as primary caregivers. It is filled with resources, tips, examples, discussions, and strategies from a parent who has experience caring for a child with special needs. This essential resource will empower siblings to take control of their situation, allowing them to provide meaningful care for their brother or sister while protecting their own well-being.