Download or read book Self Senility and Alzheimer s Disease in Modern America written by Jesse F. Ballenger and published by JHU Press. This book was released on 2006-03-31 with total page 270 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ballenger's work contributes to our understanding of the emergence and significance of dementia as a major health issue.
Download or read book Self Senility and Alzheimer s Disease in Modern America written by Jesse F. Ballenger and published by JHU Press. This book was released on 2006-03-31 with total page 257 pages. Available in PDF, EPUB and Kindle. Book excerpt: Historian Jesse F. Ballenger traces the emergence of senility as a cultural category from the late nineteenth century to the 1980s, a period in which Alzheimer's disease became increasingly associated with the terrifying prospect of losing one's self. Changes in American society and culture have complicated the notion of selfhood, Ballenger finds. No longer an ascribed status, selfhood must be carefully and willfully constructed. Thus, losing one's ability to sustain a coherent self-narrative is considered one of life's most dreadful losses. As Ballenger writes "senility haunts the landscape of the self-made man." Stereotypes of senility and Alzheimer's disease are related to anxiety about the coherence, stability, and agency of the self—stereotypes that are transforming perceptions of old age in modern America. Drawing on scientific, clinical, policy, and popular discourses on aging and dementia, Ballenger explores early twentieth-century concepts of aging and the emergence of gerontology to understand and distinguish normal aging from disease. In addition, he examines American psychiatry's approaches to the treatment of senility and scientific attempts to understand the brain pathology of dementia. Ballenger's work contributes to our understanding of the emergence and significance of dementia as a major health issue.
Download or read book The Problem of Alzheimer s written by Jason Karlawish and published by St. Martin's Press. This book was released on 2021-02-23 with total page 269 pages. Available in PDF, EPUB and Kindle. Book excerpt: A definitive and compelling book on one of today's most prevalent illnesses. In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2050. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's traces Alzheimer’s from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems’ failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer’s to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers’ support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center.
Download or read book Thinking about Dementia written by Annette Leibing and published by Rutgers University Press. This book was released on 2006 with total page 263 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cultural responses to most illnesses differ; dementia is no exception. These responses, together with a society's attitudes toward its elderly population, affect the frequency of dementia-related diagnoses and the nature of treatment. Bringing together essays by nineteen respected scholars, this unique volume approaches the subject from a variety of angles, exploring the historical, psychological, and philosophical implications of dementia. Based on solid ethnographic fieldwork, the essays employ a cross-cultural perspective and focus on questions of age, mind, voice, self, loss, temporality, memory, and affect. Taken together, the essays make four important and interrelated contributions to our understanding of the mental status of the elderly. First, cross-cultural data show the extent to which the aging process, while biologically influenced, is also very much culturally constructed. Second, detailed ethnographic reports raise questions about the behavioral criteria used by health care professionals and laymen for defining the elderly as demented. Third, case studies show how a diagnosis affects a patient's treatment in both clinical and familial settings.; Finally, the collection highlights the gap that separates current biological understandings of aging from its cultural meanings. As Alzheimer's disease and other forms of dementia continue to command an ever-increasing amount of attention in medicine and psychology, this book will be essential reading for anthropologists, social scientists, and health care professionals.
Download or read book Reducing the Impact of Dementia in America written by National Academies of Sciences Engineering and Medicine and published by . This book was released on 2022-04-26 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.
Download or read book On Vanishing written by Lynn Casteel Harper and published by Catapult. This book was released on 2020-04-14 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.
Download or read book The Myth of Alzheimer s written by Peter J. Whitehouse, M.D. and published by Macmillan. This book was released on 2008-12-09 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: Challenges conventional perceptions about Alzheimer's disease to offer readers alternative approaches to memory loss and aging that can be aided through simple nutritional and exercise strategies.
Download or read book Forget Memory written by Anne Davis Basting and published by JHU Press. This book was released on 2009-07-01 with total page 220 pages. Available in PDF, EPUB and Kindle. Book excerpt: Memory loss can be one of the most terrifying aspects of a diagnosis of dementia. Yet the fear and dread of losing our memory make the experience of the disease worse than it needs to be, according to cultural critic and playwright Anne Davis Basting. She says, Forget memory. Basting emphasizes the importance of activities that focus on the present to improve the lives of persons with Alzheimer's disease and other dementias. Based on ten years of practice and research in the field, Basting’s study includes specific examples of innovative programs that stimulate growth, humor, and emotional connection; translates into accessible language a wide range of provocative academic works on memory; and addresses how advances in medical research and clinical practice are already pushing radical changes in care for persons with dementia. Bold, optimistic, and innovative, Basting's cultural critique of dementia care offers a vision for how we can change the way we think about and care for people with memory loss.
Download or read book Alzheimer s Disease and Dementia written by Steven R. Sabat and published by Oxford University Press. This book was released on 2018-01-02 with total page 273 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer's is swiftly on the rise: it is estimated that every 67 seconds, someone develops the disease. For many, the words "Alzheimer's disease" or "dementia" immediately denote severe mental loss and, perhaps, madness. Indeed, the vast majority of media coverage of Alzheimer's disease (AD) and other types of dementia focuses primarily on the losses experienced by people diagnosed and the terrible burden felt by care partners yearning for a "magic bullet" drug cure. Providing an accessible, question-and-answer-format primer on what touches so many lives, and yet so few of us understand, Alzheimer's Disease and Dementia: What Everyone Needs to Know® contributes what is urgently missing from public knowledge: unsparing investigation of their causes and manifestations, and focus on the strengths possessed by people diagnosed. Steven R. Sabat mines a large body of research to convey the genetic and biological aspects of Alzheimer's disease, its clinical history, and, most significantly, to reveal the subjective experience of those with Alzheimer's or dementia. By clarifying the terms surrounding dementia and Alzheimer's, which are two distinct conditions, Sabat corrects dangerous misconceptions that plague our understanding of memory dysfunction and many other significant abilities that people with AD and dementia possess even in the moderate to severe stages. People diagnosed with AD retain awareness, thinking ability, and sense of self; crucially, Sabat demonstrates that there are ways to facilitate communication even when the person with AD has great difficulty finding the words he or she wants to use. From years spent exploring and observing the points of view and experiences of people diagnosed, Sabat strives to inform as well as to remind readers of the respect and empathy owed to those diagnosed and living with dementia. Alzheimer's Disease and Dementia conveys this type of information and more, which, when applied by family and professional caregivers, will help improve the quality of life of those diagnosed as well as of those who provide support and care.
Download or read book American Dementia written by Daniel R. George and published by JHU Press. This book was released on 2021-09-14 with total page 425 pages. Available in PDF, EPUB and Kindle. Book excerpt: Have the social safety nets, environmental protections, and policies to redress wealth and income inequality enacted after World War II contributed to declining rates of dementia today—and how do we improve brain health in the future? Winner of the American Book Fest Health: Aging/50+ by the American Book Fest, Living Now Book Award: Mature Living/Aging by the Living Now Book Awards For decades, researchers have chased a pharmaceutical cure for memory loss. But despite the fact that no disease-modifying biotech treatments have emerged, new research suggests that dementia rates have actually declined in the United States and Western Europe over the last decade. Why is this happening? And what does it mean for brain health in the future? In American Dementia, Daniel R. George, PhD, MSc, and Peter J. Whitehouse, MD, PhD, argue that the current decline of dementia may be strongly linked to mid–twentieth century policies that reduced inequality, provided widespread access to education and healthcare, and brought about cleaner air, soil, and water. They also • explain why Alzheimer's disease, an obscure clinical label until the 1970s, is the hallmark illness of our current hyper-capitalist era; • reveal how the soaring inequalities of the twenty-first century—which are sowing poverty, barriers to healthcare and education, loneliness, lack of sleep, stressful life events, environmental exposures, and climate change—are reversing the gains of the twentieth century and damaging our brains; • tackle the ageist tendencies in our culture, which disadvantage both vulnerable youth and elders; • make an evidence-based argument that policies like single-payer healthcare, a living wage, and universal access to free higher education and technical training programs will build collective resilience to dementia; • promote strategies that show how local communities can rise above the disconnection and loneliness that define our present moment and come together to care for our struggling neighbors. Ultimately, American Dementia asserts that actively remembering lessons from the twentieth century which help us become a healthier, wiser, and more compassionate society represents our most powerful intervention for preventing Alzheimer's and protecting human dignity. Exposing the inconvenient truths that confound market-based approaches to memory enhancement as well as broader social organization, the book imagines how we can act as citizens to protect our brains, build the cognitive resilience of younger generations, and rise to the moral challenge of caring for the cognitively frail.
Download or read book Excellence In Dementia Care Research Into Practice written by Downs, Murna and published by McGraw-Hill Education (UK). This book was released on 2014-09-01 with total page 492 pages. Available in PDF, EPUB and Kindle. Book excerpt: A comprehensive text on dementia care, drawn from research evidence, practice and the experience of people with dementia.
Download or read book Dementia written by Julian C. Hughes and published by Oxford University Press, USA. This book was released on 2006 with total page 326 pages. Available in PDF, EPUB and Kindle. Book excerpt: This study juxtaposes philosophical analysis and clinical experience to present an overview of the issues surrounding dementia. It conveys a strong ethical message, arguing in favour of treating people with dementia with all the dignity they deserve as human beings.
Download or read book The Inheritance written by Niki Kapsambelis and published by Simon and Schuster. This book was released on 2017-03-07 with total page 407 pages. Available in PDF, EPUB and Kindle. Book excerpt: This gripping story of the doctors at the forefront of Alzheimer’s research and the courageous North Dakota family whose rare genetic code is helping to understand our most feared diseases is “excellent, accessible...A science text that reads like a mystery and treats its subjects with humanity and sympathy” (Library Journal, starred review). Every sixty-nine seconds, someone is diagnosed with Alzheimer’s disease. Of the top ten killers, it is the only disease for which there is no cure or treatment. For most people, there is nothing that they can do to fight back. But one family is doing all they can. The DeMoe family has the most devastating form of the disease that there is: early onset Alzheimer’s, an inherited genetic mutation that causes the disease in one hundred percent of cases, and has a fifty percent chance of being passed onto the next generation. Of the six DeMoe children whose father had it, five have inherited the gene; the sixth, daughter Karla, has inherited responsibility for all of them. But rather than give up in the face of such news, the DeMoes have agreed to spend their precious, abbreviated years as part of a worldwide study that could utterly change the landscape of Alzheimer’s research and offers the brightest hope for future treatments—and possibly a cure. Drawing from several years of in-depth research with this charming and upbeat family, journalist Niki Kapsambelis tells the story of Alzheimer’s through the humanizing lens of these ordinary people made extraordinary by both their terrible circumstances and their bravery. “A compelling narrative…and an educational and emotional chronicle” (Kirkus Reviews, starred review), their tale is intertwined with the dramatic narrative history of the disease, the cutting-edge research that brings us ever closer to a possible cure, and the accounts of the extraordinary doctors spearheading these groundbreaking studies. From the oil fields of North Dakota to the jungles of Colombia, this inspiring race against time redefines courage in the face of this most pervasive and mysterious disease.
Download or read book Future Directions for the Demography of Aging written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2018-07-21 with total page 409 pages. Available in PDF, EPUB and Kindle. Book excerpt: Almost 25 years have passed since the Demography of Aging (1994) was published by the National Research Council. Future Directions for the Demography of Aging is, in many ways, the successor to that original volume. The Division of Behavioral and Social Research at the National Institute on Aging (NIA) asked the National Academies of Sciences, Engineering, and Medicine to produce an authoritative guide to new directions in demography of aging. The papers published in this report were originally presented and discussed at a public workshop held in Washington, D.C., August 17-18, 2017. The workshop discussion made evident that major new advances had been made in the last two decades, but also that new trends and research directions have emerged that call for innovative conceptual, design, and measurement approaches. The report reviews these recent trends and also discusses future directions for research on a range of topics that are central to current research in the demography of aging. Looking back over the past two decades of demography of aging research shows remarkable advances in our understanding of the health and well-being of the older population. Equally exciting is that this report sets the stage for the next two decades of innovative researchâ€"a period of rapid growth in the older American population.
Download or read book Racial and Ethnic Differences in the Health of Older Americans written by National Research Council and published by National Academies Press. This book was released on 1997-09-23 with total page 312 pages. Available in PDF, EPUB and Kindle. Book excerpt: Older Americans, even the oldest, can now expect to live years longer than those who reached the same ages even a few decades ago. Although survival has improved for all racial and ethnic groups, strong differences persist, both in life expectancy and in the causes of disability and death at older ages. This book examines trends in mortality rates and selected causes of disability (cardiovascular disease, dementia) for older people of different racial and ethnic groups. The determinants of these trends and differences are also investigated, including differences in access to health care and experiences in early life, diet, health behaviors, genetic background, social class, wealth and income. Groups often neglected in analyses of national data, such as the elderly Hispanic and Asian Americans of different origin and immigrant generations, are compared. The volume provides understanding of research bearing on the health status and survival of the fastest-growing segment of the American population.
Download or read book Learning to Speak Alzheimer s written by Joanne Koenig Coste and published by Houghton Mifflin Harcourt. This book was released on 2004-09-08 with total page 184 pages. Available in PDF, EPUB and Kindle. Book excerpt: A guide to more successful communication for the millions of Americans caring for someone with dementia: “Offers a fresh approach and hope.”—NPR Revolutionizing the way we perceive and live with Alzheimer’s, Joanne Koenig Coste offers a practical approach to the emotional well-being of both patients and caregivers that emphasizes relating to patients in their own reality. Her accessible and comprehensive method, which she calls habilitation, works to enhance communication between care partners and patients and has proven successful with thousands of people living with dementia. Learning to Speak Alzheimer’s also offers hundreds of practical tips, including how to: · cope with the diagnosis and adjust to the disease’s progression · help the patient talk about the illness · face the issue of driving · make meals and bath times as pleasant as possible · adjust room design for the patient’s comfort · deal with wandering, paranoia, and aggression “A fine addition to Alzheimer's and caregiving collections.”—Library Journal (starred review) “Promises to transform not only the lives of patients but those of care providers…This book is a gift.”—Sue Levkoff, coauthor of Aging Well
Download or read book Dementia Reimagined written by Tia Powell and published by Penguin. This book was released on 2020-09-01 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: Now in paperback, the cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to care. Despite being a physician and a bioethicist, Tia Powell wasn't prepared to address the challenges she faced when her grandmother, and then her mother, were diagnosed with dementia--not to mention confronting the hard truth that her own odds aren't great. In the U.S., 10,000 baby boomers turn 65 every day; by the time a person reaches 85, their chances of having dementia approach 50 percent. And the truth is, there is no cure, and none coming soon, despite the perpetual promises by pharmaceutical companies that they are just one more expensive study away from a pill. Dr. Powell's goal is to move the conversation away from an exclusive focus on cure to a genuine appreciation of care--what we can do for those who have dementia, and how to keep life meaningful and even joyful. Reimagining Dementia is a moving combination of medicine and memoir, peeling back the untold history of dementia, from the story of Solomon Fuller, a black doctor whose research at the turn of the twentieth century anticipated important aspects of what we know about dementia today, to what has been gained and lost with the recent bonanza of funding for Alzheimer's at the expense of other forms of the disease. In demystifying dementia, Dr. Powell helps us understand it with clearer eyes, from the point of view of both physician and caregiver. Ultimately, she wants us all to know that dementia is not only about loss--it's also about the preservation of dignity and hope.
