Download or read book Self care Practices of Parents Caring for Their Child with Cerebral Palsy written by Kelly R. Gant and published by . This book was released on 2012 with total page 112 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Parents as Care Managers written by GILLIAN. BRIDGE and published by Routledge. This book was released on 2019-05-31 with total page 308 pages. Available in PDF, EPUB and Kindle. Book excerpt: First published in 1999, this volume examines the inclusion of disabled children as a category of children in need under the Children Act 1989 and as eligible for assessments of need under the NHS and Community Care Act 1990 has drawn renewed attention to the plight of these children and their families. This book presents the findings from a study of parents whose child has cerebral palsy. The research undertaken at the cost of social policy change focuses on the apparent gap between the well-argued proposals for community care and the experiences of carers. A bewildering picture emerges of inadequate services and treatments from the health, education and social services in the public, voluntary and private sectors. Parents experience isolation and stress as they explore ways to improve the quality of their children's lives by experimenting with unregulated and under-researched treatments for an incurable physical condition. The conclusion that there has been deterioration in provision for these families is a serious indictment on current social policy direction.
Download or read book Cerebral Palsy written by Freeman Miller and published by JHU Press. This book was released on 2006-05-08 with total page 537 pages. Available in PDF, EPUB and Kindle. Book excerpt: When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday. Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy. The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child. In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading.
Download or read book Empowering the Child with Cerebral Palsy written by A Mitra, MD and published by Independently Published. This book was released on 2024-05-13 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Empowering the Child with Cerebral Palsy: A Guide for Parents and Families" is an indispensable resource crafted with compassion and expertise to support families navigating the journey of raising a child with cerebral palsy. Written in accessible language devoid of unnecessary medical jargon, this comprehensive guide covers everything from understanding the condition's intricacies to practical strategies for daily living. With a focus on empowerment, this book equips parents and families with the knowledge, skills, and resources necessary to advocate effectively for their child's needs. Expertly curated information on diagnosis, treatment options, therapies, and educational resources empowers families to make informed decisions and navigate the healthcare system with confidence. Each page is infused with empathy and support, acknowledging the challenges while instilling hope and resilience. Real-life examples and practical advice offer tangible solutions for overcoming obstacles and maximizing their child's potential. Inclusivity is at the heart of this guide, recognizing and honoring the diverse experiences and backgrounds within the cerebral palsy community. Expert-reviewed content ensures accuracy and relevance, while interactive elements such as worksheets and reflection questions engage readers in active learning. Furthermore, a robust list of additional resources provides families with ongoing support beyond the pages of the book. With a positive outlook and a commitment to fostering inclusivity and empowerment, "Empowering the Child with Cerebral Palsy" is a beacon of guidance and support for families on their journey towards a brighter future for their child.
Download or read book Family Needs of Parents of Children and Youth with Cerebral Palsy written by Nihad A. Almasri and published by Universal-Publishers. This book was released on 2010-08-30 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: It is important for professionals who provide medical, rehabilitation, educational, and community services for children and youth with cerebral palsy to provide a quality medical home, family-centered, and needs-based services to address their needs and improve child and family well-being. Knowledge regarding determinants and unique profiles of needs for families of children and youth with cerebral palsy is limited. The aims of this research were to (1) test structural equation models of determinants of three types of family needs of parents of children and youth with cerebral palsy; (2) identify and describe unique profiles of family needs; and (3) examine whether profiles of needs are differentiated based on child, family, and service characteristics. Participants were 579 parents of children and youth with cerebral palsy. Children/youth and their parents completed a modified version of the Family Needs Survey, Family Environment Scale, Coping Inventory, Children's Assessment of Participation and Enjoyment, Measure of Processes of Care, and Services questionnaire. Research assistants determined the Gross Motor Function Classification System levels of the children. The structural models explained 23% of variance in needs related to child condition, 43% of variance in needs related to community and financial resources, and 33% of variance in needs related to family functioning. The determinants of the three models included different combinations of services (accessibility, coordination, processes), family (relationships, income), and child (gross motor function, adaptive behavior, communication problems) characteristics. K-means cluster analysis indicated four unique profiles of needs: Low Needs, Needs Related to Child Health Condition, Needs Related to Community and Financial Resources, and High Needs. Profile membership was differentiated based on child gross motor function and adaptive behavior, family relationships and income, and access to and coordination of services. Families who were included in the profile of low needs commonly reported accessible, coordinated, and family-centered care. The results emphasize the importance of providing medical and family-centered services to address the unique needs of families of children and youth with cerebral palsy. Service providers are encouraged to engage families in expressing their needs, collaborate with families in identifying resources to meet needs, and guide families in navigating complex service systems to address needs.
Download or read book Finnie s Handling the Young Child with Cerebral Palsy at Home E Book written by Eva Bower and published by Elsevier Health Sciences. This book was released on 2008-10-30 with total page 440 pages. Available in PDF, EPUB and Kindle. Book excerpt: The 4th edition of Finnie's Handling the Young Child with Cerebral Palsy at Home has been updated to reflect the current practices of today. It aims to help parents assist their child with cerebral palsy (CP) towards achieving the most comfortable independence in all activities. It is hoped to show how, by using typical parenting skills, which involve guiding and exposing a child to develop through challenging experiences, the child with CP will also develop. The book is also intended to help professionals and other carers new to this field understand, support and encourage young children with CP and their families.Over the years since the first edition of this book was written ideas on appropriate therapies have changed and developed. Similarly opinion on early intervention has changed and the method of delivery of service has in some places moved from centralisation to home-based or community provision. The emphasis of this new edition however remains on a holistic approach to the child's needs seeing the difficulties in relation to the overall development of the child as a unique person from childhood to adulthood. - Assessment procedures and prediction of future abilities - Management of problems (including medication if appropriate) such as epilepsy, constipation, eneurisis, nourishment, difficulty with sleeping, crying, temper tantrums, sensory deficits and deformity - Stimulation, fitness, problem solving, compensatory strategies and ease of management - New chapters include Neuroimaging, Epilepsy, Emotional health, Orthotics, Spasticity management, and Complementary and alternative medicine - Over 460 revised illustrations showing different pieces of equipment which may be helpful and ways of holding and moving a child with cerebral palsy - Chapters on Sleeping, Feeding, Lifting and Carrying, Toileting, Communication and Fine motor movement have been completely re-written by a professional specialising in the particular field
Download or read book Parenting Matters written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
Download or read book Enabling and Empowering Families written by Carl J. Dunst and published by . This book was released on 1988 with total page 248 pages. Available in PDF, EPUB and Kindle. Book excerpt: Blend of theory and practice, with pointers for applying the principles and case studies illustrating how to apply them.
Download or read book Good Practice in Caring for Young Children with Special Needs written by Angela Dare and published by Nelson Thornes. This book was released on 2002 with total page 420 pages. Available in PDF, EPUB and Kindle. Book excerpt: This text covers medical and social aspects of special needs and provides an indispensable guide to good working practice in the day-care and school setting.
Download or read book Parents as care managers the experiences of those caring for young children with cerebral palsy written by Gillian Ethel Marion Bridge and published by . This book was released on 1997 with total page 792 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Nursing Care of Children written by Susan Rowen James and published by Elsevier Health Sciences. This book was released on 2012-03-26 with total page 984 pages. Available in PDF, EPUB and Kindle. Book excerpt: - Safety Alert boxes highlight patient safety as part of the QSEN initiative for better outcomes of nursing care. - Updated Evidence-Based Practice boxes (formerly Using Research to Improve Practice) assist you in determining best practices in your future care of children. - Patient-Centered Care boxes guide you in teaching the parents and child about self-care in the home and follow-up care in community-based health care settings. - Streamlined Nursing Care Plans have been reformatted to make them easier to read and use. - Updated photos throughout the book keep the text up-to-date and visually appealing. - Key concepts are highlighted in the book and their definitions are provided in a glossary.
Download or read book Nurturing care practice guide written by World Health Organization and published by World Health Organization. This book was released on 2023-01-17 with total page 80 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book From Neurons to Neighborhoods written by National Research Council and published by National Academies Press. This book was released on 2000-11-13 with total page 610 pages. Available in PDF, EPUB and Kindle. Book excerpt: How we raise young children is one of today's most highly personalized and sharply politicized issues, in part because each of us can claim some level of "expertise." The debate has intensified as discoveries about our development-in the womb and in the first months and years-have reached the popular media. How can we use our burgeoning knowledge to assure the well-being of all young children, for their own sake as well as for the sake of our nation? Drawing from new findings, this book presents important conclusions about nature-versus-nurture, the impact of being born into a working family, the effect of politics on programs for children, the costs and benefits of intervention, and other issues. The committee issues a series of challenges to decision makers regarding the quality of child care, issues of racial and ethnic diversity, the integration of children's cognitive and emotional development, and more. Authoritative yet accessible, From Neurons to Neighborhoods presents the evidence about "brain wiring" and how kids learn to speak, think, and regulate their behavior. It examines the effect of the climate-family, child care, community-within which the child grows.
Download or read book Children with Cerebral Palsy written by Elaine Geralis and published by . This book was released on 1998 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The future is brighter then ever for children with cerebral palsy -- the most common developmental disability among young people today. With advances in medicine, early intervention, and therapy, these children can maximise their potential and lead healthy, rewarding lives. But perhaps the most important influence of all comes from parents who provide constant support and encouragement. This is essential reading for all parents who want to learn about cerebral palsy and how it will affect their child and family.
Download or read book Campbell s Physical Therapy for Children Expert Consult E Book written by Robert Palisano and published by Elsevier Health Sciences. This book was released on 2022-08-20 with total page 1051 pages. Available in PDF, EPUB and Kindle. Book excerpt: **Selected for Doody's Core Titles® 2024 with "Essential Purchase" designation in Physical Therapy** Gain a solid foundation in physical therapy for infants, children, and adolescents! Campbell's Physical Therapy for Children, 6th Edition provides essential information on pediatric physical therapy practice, management of children with musculoskeletal, neurological, and cardiopulmonary conditions, and special practice settings. Following the APTA's Guide to Physical Therapist Practice, this text describes how to examine and evaluate children, select evidence-based interventions, and measure outcomes to help children improve their body functions, activities, and participation. What also sets this book apart is its emphasis on clinical reasoning, decision making, and family-centered care. Written by a team of PT experts led by Robert J. Palisano, this book is ideal for use by students and by clinicians in daily practice. - Comprehensive coverage provides a thorough understanding of foundational knowledge for pediatric physical therapy, including social determinants of health, development, motor control, and motor learning, as well as physical therapy management of pediatric disorders, including examination, evaluation, goal setting, the plan of care, and outcomes evaluation. - Focus on the elements of patient/client management in the APTA's Guide to Physical Therapist Practice provides a framework for clinical decision making. - Focus on the International Classification of Functioning, Disability, and Health (ICF) of the World Health Organization (WHO) provides a standard language and framework for the description of health and health-related states, including levels of a person's capacity and performance. - Experienced, expert contributors help you prepare to become a Board-Certified Pediatric Clinical Specialist and to succeed on the job. - NEW! New chapter on social determinants of health and pediatric healthcare is added to this edition. - NEW! New chapter on Down syndrome is added. - NEW! 45 case scenarios in the ebook offer practice with clinical reasoning and decision making, and 123 video clips depict children's movements, examination procedures, and physical therapy interventions. - NEW! An ebook version is included with print purchase, providing access to all the text, figures, and references, plus the ability to search, customize content, make notes and highlights, and have content read aloud.
Download or read book Parents as Care Managers written by Gillian Bridge and published by Routledge. This book was released on 2019-07-23 with total page 474 pages. Available in PDF, EPUB and Kindle. Book excerpt: First published in 1999, this volume examines the inclusion of disabled children as a category of children in need under the Children Act 1989 and as eligible for assessments of need under the NHS and Community Care Act 1990 has drawn renewed attention to the plight of these children and their families. This book presents the findings from a study of parents whose child has cerebral palsy. The research undertaken at the cost of social policy change focuses on the apparent gap between the well-argued proposals for community care and the experiences of carers. A bewildering picture emerges of inadequate services and treatments from the health, education and social services in the public, voluntary and private sectors. Parents experience isolation and stress as they explore ways to improve the quality of their children’s lives by experimenting with unregulated and under-researched treatments for an incurable physical condition. The conclusion that there has been deterioration in provision for these families is a serious indictment on current social policy direction.
Download or read book Leifer s Introduction to Maternity Pediatric Nursing in Canada E Book written by Lisa Keenan-Lindsay and published by Elsevier Health Sciences. This book was released on 2023-09-23 with total page 889 pages. Available in PDF, EPUB and Kindle. Book excerpt: Gain a solid foundation in Canadian maternity and pediatric nursing! Written in a clear, concise, user-friendly style, Leifer's Introduction to Maternity and Pediatric Nursing in Canada, 2nd Edition, includes Canadian statistics, terminology, references, guidelines, resources, Canadian nursing best practices, assessments, and more! It's organized by developmental stages and includes discussions of pediatric disorders by body system from simple-to-complex and health-to-illness. With a rich focus on family health, this text contains review questions for certification exams, case studies, and numerous other helpful features to give you the tools you need to successfully care for patients within the Canadian social and institutional context.
