Download or read book Research Involving Participants with Cognitive Disability and Differences written by M. Ariel Cascio and published by . This book was released on 2019 with total page 305 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This volume provides timely, multidisciplinary insights into the ethical aspects of research that includes participants with cognitive disability and differences. These include conditions such as intellectual disability, autism, mild cognitive impairment (MCI), and psychiatric diagnoses." - Provided by publisher.
Download or read book Research Involving Participants with Cognitive Disability and Differences written by M. Ariel Cascio and published by Oxford University Press. This book was released on 2019-09-05 with total page 305 pages. Available in PDF, EPUB and Kindle. Book excerpt: Research participants who have cognitive disabilities and differences may be considered a vulnerable population. At the same time, they should also be empowered to participate in research in order to foster the growth of knowledge and the improvement of practices. For research participants with cognitive disabilities or differences, participating in research that concerns them follows the Disability Rights Movement's call “Nothing About Us Without Us” and is a vital component of the principle of justice. However, cognitive disabilities and differences may pose challenges to ethical research, particularly with respect to the research ethics principle of autonomy, for a variety of reasons. Several alternative or modified strategies, for example when obtaining informed consent, have been used by researchers. This volume provides timely, multidisciplinary insights into the ethical aspects of research that includes participants with cognitive disability and differences. These include conditions such as intellectual disability, autism, mild cognitive impairment (MCI), and psychiatric diagnoses. The chapters in this volume describe situations where difficulties arise, explore strategies for empowerment and inclusion, drawing on both empirical and normative research to offer suggestions for research design, research ethics, and best practices that empower people with cognitive disabilities and differences to participate in research while respecting and managing potential coercion or undue influence. The book includes contributions from scholars in anthropology, sociology, ethics, child studies, health and rehabilitation sciences, philosophy, and law who address these issues in both clinical and social/behavioural research. The book will be valuable for anyone performing research involving these populations - from the fields of neuropsychology, neurology, psychiatry, and neuroscience.
Download or read book Handbook of Disability written by Marcia H. Rioux and published by Springer Nature. This book was released on with total page 1801 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Researching Ageing written by Maria Łuszczyńska and published by Routledge. This book was released on 2020-06-07 with total page 352 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book explores the diversity of methodological approaches to researching ageing, considering which methodological paradigm best captures the phenomenon. Interdisciplinary in scope, it brings together research from scholars from Austria, Canada, France, Hong Kong, Israel, Poland, UK and USA to uncover the conditions under which qualitative and quantitative approaches to research on ageing can best be reconciled and rendered complementary. Presenting international reflection on methods for studying old age from a variety of research backgrounds, Researching Ageing showcases the latest research in the field and will appeal to scholars across the social sciences, including sociology, demography, psychology, economics and geography, with interests in gerontology, ageing and later life.
Download or read book New Voices written by Gunnar Dybwad and published by . This book was released on 1996 with total page 292 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book portrays the origins, current status, and future course of the self-advocacy movement by persons with disabilities in the West.
Download or read book Inclusive Research written by Melanie Nind and published by Bloomsbury Publishing. This book was released on 2020-12-10 with total page 129 pages. Available in PDF, EPUB and Kindle. Book excerpt: First published Open Access under a Creative Commons license as What is Inclusive Research?, this title is now also available as part of the Bloomsbury Research Methods series. This book describes and defines inclusive research, outlining how to recognize it, understand it, do it, and know when it is done well. In doing so it addresses the areas of overlap and distinctiveness in relation to participatory, emancipatory, user-led and partnership research as well as exploring the various practices encompassed within each of these inclusive approaches. The author, Melanie Nind, focuses on how and why more inclusive approaches to research have evolved. She positions inclusive research within the key debates and shifts in policy, defines key ideas and terms, discusses the contested nature of inclusive research and illustrates a range of approaches using exemplars. The aim is to discuss the range of challenges involved and to examine the degree to which these challenges have so far been met.
Download or read book Research Methods in Human Computer Interaction written by Jonathan Lazar and published by Morgan Kaufmann. This book was released on 2017-04-28 with total page 562 pages. Available in PDF, EPUB and Kindle. Book excerpt: Research Methods in Human-Computer Interaction is a comprehensive guide to performing research and is essential reading for both quantitative and qualitative methods. Since the first edition was published in 2009, the book has been adopted for use at leading universities around the world, including Harvard University, Carnegie-Mellon University, the University of Washington, the University of Toronto, HiOA (Norway), KTH (Sweden), Tel Aviv University (Israel), and many others. Chapters cover a broad range of topics relevant to the collection and analysis of HCI data, going beyond experimental design and surveys, to cover ethnography, diaries, physiological measurements, case studies, crowdsourcing, and other essential elements in the well-informed HCI researcher's toolkit. Continual technological evolution has led to an explosion of new techniques and a need for this updated 2nd edition, to reflect the most recent research in the field and newer trends in research methodology. This Research Methods in HCI revision contains updates throughout, including more detail on statistical tests, coding qualitative data, and data collection via mobile devices and sensors. Other new material covers performing research with children, older adults, and people with cognitive impairments. - Comprehensive and updated guide to the latest research methodologies and approaches, and now available in EPUB3 format (choose any of the ePub or Mobi formats after purchase of the eBook) - Expanded discussions of online datasets, crowdsourcing, statistical tests, coding qualitative data, laws and regulations relating to the use of human participants, and data collection via mobile devices and sensors - New material on performing research with children, older adults, and people with cognitive impairments, two new case studies from Google and Yahoo!, and techniques for expanding the influence of your research to reach non-researcher audiences, including software developers and policymakers
Download or read book Preventing Cognitive Decline and Dementia written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2017-10-05 with total page 181 pages. Available in PDF, EPUB and Kindle. Book excerpt: Societies around the world are concerned about dementia and the other forms of cognitive impairment that affect many older adults. We now know that brain changes typically begin years before people show symptoms, which suggests a window of opportunity to prevent or delay the onset of these conditions. Emerging evidence that the prevalence of dementia is declining in high-income countries offers hope that public health interventions will be effective in preventing or delaying cognitive impairments. Until recently, the research and clinical communities have focused primarily on understanding and treating these conditions after they have developed. Thus, the evidence base on how to prevent or delay these conditions has been limited at best, despite the many claims of success made in popular media and advertising. Today, however, a growing body of prevention research is emerging. Preventing Cognitive Decline and Dementia: A Way Forward assesses the current state of knowledge on interventions to prevent cognitive decline and dementia, and informs future research in this area. This report provides recommendations of appropriate content for inclusion in public health messages from the National Institute on Aging.
Download or read book Wayfinding and Navigation Strengths and Weaknesses in Atypical and Clinical Populations written by Chiara Meneghetti and published by Frontiers Media SA. This book was released on 2020-12-09 with total page 188 pages. Available in PDF, EPUB and Kindle. Book excerpt: This eBook is a collection of articles from a Frontiers Research Topic. Frontiers Research Topics are very popular trademarks of the Frontiers Journals Series: they are collections of at least ten articles, all centered on a particular subject. With their unique mix of varied contributions from Original Research to Review Articles, Frontiers Research Topics unify the most influential researchers, the latest key findings and historical advances in a hot research area! Find out more on how to host your own Frontiers Research Topic or contribute to one as an author by contacting the Frontiers Editorial Office: frontiersin.org/about/contact.
Download or read book The Future of Disability in America written by Institute of Medicine and published by National Academies Press. This book was released on 2007-10-24 with total page 619 pages. Available in PDF, EPUB and Kindle. Book excerpt: The future of disability in America will depend on how well the U.S. prepares for and manages the demographic, fiscal, and technological developments that will unfold during the next two to three decades. Building upon two prior studies from the Institute of Medicine (the 1991 Institute of Medicine's report Disability in America and the 1997 report Enabling America), The Future of Disability in America examines both progress and concerns about continuing barriers that limit the independence, productivity, and participation in community life of people with disabilities. This book offers a comprehensive look at a wide range of issues, including the prevalence of disability across the lifespan; disability trends the role of assistive technology; barriers posed by health care and other facilities with inaccessible buildings, equipment, and information formats; the needs of young people moving from pediatric to adult health care and of adults experiencing premature aging and secondary health problems; selected issues in health care financing (e.g., risk adjusting payments to health plans, coverage of assistive technology); and the organizing and financing of disability-related research. The Future of Disability in America is an assessment of both principles and scientific evidence for disability policies and services. This book's recommendations propose steps to eliminate barriers and strengthen the evidence base for future public and private actions to reduce the impact of disability on individuals, families, and society.
Download or read book Frailty Risks and management written by Leonardo Bencivenga and published by Frontiers Media SA. This book was released on 2023-02-24 with total page 129 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Supported Decision Making written by Karrie A. Shogren and published by Cambridge University Press. This book was released on 2019 with total page 323 pages. Available in PDF, EPUB and Kindle. Book excerpt: Integrates research, theory, and practice in supported decision-making and describes implications for supports provision in the disability field.
Download or read book Adults with Childhood Onset Disabilities A Lifespan Approach written by Elisabet Rodby-Bousquet and published by Frontiers Media SA. This book was released on 2022-10-12 with total page 249 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Profound Intellectual and Multiple Disabilities written by Jillian Pawlyn and published by John Wiley & Sons. This book was released on 2009-01-28 with total page 376 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children and adults with profound and multiple learningdisabilities (PMLD) are among the most marginalised people insociety. They have some of the highest support needs and are mostreliant on services. This accessible text presents and promotescurrent best practice regarding interventions to meet the complexhealth needs of a person with profound & multiple learningdisabilities. Practical in focus, this text provides evidence-basedguidance on meeting the complex needs of a person with PMLD. The text presents a range of complex health needs that apractitioner may face, such as communication, nutrition, epilepsy,vision and mobility. Each practice-focused chapter provides cleardefinitions of the condition, with current evidence-basedbest-practice supporting the intervention. Written by a team of professionals who have wide experience andinterest in this subject area, this text will be invaluable for allthose working with, and caring for those with profound and multiplelearning disabilities.
Download or read book Prevention Science and Research in Intellectual and Developmental Disabilities written by and published by Academic Press. This book was released on 2021-11-22 with total page 314 pages. Available in PDF, EPUB and Kindle. Book excerpt: Prevention Science and Research in Intellectual and Developmental Disabilities, Volume 61 highlights the WHOs emphasis on the importance of adopting a public health approach. Chapters in the book include A Prevention Science Approach to Promoting Health for Those with Developmental Disabilities, From Surviving to Thriving: A New Conceptual Model to Advance Interventions to Support People with FASD Across the Lifespan, Disability-related Abuse in People with Intellectual and Developmental Disabilities: Considerations Across the Lifespan, Two Sides of the Same Coin: A Qualitative Study of Multiple Stakeholder Perspectives on Factors Affecting Implementation of Evidence-Based Practices for Children with Autism in Elementary Schools, and more. Other topics discussed include Family-Focused Interventions as Prevention and Early Intervention of Behavioral Problems in Children with Autism Spectrum Disorder, Body weight improvements associated with nutritional intervention for adults with IDD living in group homes: A randomized controlled trial, Lifestyle Intervention Adaptation to Promote Healthy Eating and Physical Activity of Youth with Intellectual and Developmental Disability, Cultural Adaptations of the Parents Taking Action Program for Youth with Autism Spectrum Disorder, and more. - Includes a framework for integrating a prevention science approach into IDD research - Provides examples of prevention science research with IDD populations - Illustrates how some are implementing and adapting preventive interventions for those with IDD
Download or read book Neurological Psychiatric and Developmental Disorders written by Institute of Medicine and published by National Academies Press. This book was released on 2001-01-01 with total page 458 pages. Available in PDF, EPUB and Kindle. Book excerpt: Brain disordersâ€"neurological, psychiatric, and developmentalâ€"now affect at least 250 million people in the developing world, and this number is expected to rise as life expectancy increases. Yet public and private health systems in developing countries have paid relatively little attention to brain disorders. The negative attitudes, prejudice, and stigma that often surround many of these disorders have contributed to this neglect. Lacking proper diagnosis and treatment, millions of individual lives are lost to disability and death. Such conditions exact both personal and economic costs on families, communities, and nations. The report describes the causes and risk factors associated with brain disorders. It focuses on six representative brain disorders that are prevalent in developing countries: developmental disabilities, epilepsy, schizophrenia, bipolar disorder, depression, and stroke. The report makes detailed recommendations of ways to reduce the toll exacted by these six disorders. In broader strokes, the report also proposes six major strategies toward reducing the overall burden of brain disorders in the developing world.
Download or read book What Matters for Health and Happiness Among the Older Adults in Asia written by Nai Peng Tey and published by Frontiers Media SA. This book was released on 2024-03-11 with total page 278 pages. Available in PDF, EPUB and Kindle. Book excerpt: People want to live a healthy and happy later life. A large body of literature shows the close association between health status and happiness and between health and active engagement (in work, exercise, and social and religious activities). However, the causation between the two can run both ways, and it is difficult to determine the causal effect with cross-sectional data. Various authors have shown the significant influence of socioeconomic factors and human needs on older people’s health status and happiness. A better understanding of the factors affecting healthy and happy aging is essential for policymaking to improve the well-being of older people. The availability of data from HRS-family studies in several Asian countries (CHARLS in China, LASI in India, JSTAR in Japan, KLoSA in Korea, IFLS in Indonesia, HART in Thailand, MARS in Malaysia, and Longitudinal Study of Ageing and Health in Viet Nam) (see Gateway to Global Aging Data) provides an excellent opportunity for researchers to examine factors affecting health and happiness among older adults within and across Asian countries. This research topic aims to gather papers that investigate the socioeconomic, attitudinal, and behavioural factors affecting the health status and happiness/life satisfaction of older adults in Asia. The dependent variables may include physical health, mental health, disability (ADL/IADL), cognitive functioning), self-rated health, health expenditure, feeling of happiness and life satisfaction. The independent variables may be age, gender, marital status, place of residence, educational level, active engagement (work, exercise, social and religious activities), family and social relationship and support, outlook in life, smoking, drinking, and access to and utilization of healthcare services, etc. Manuscripts can be based on individual countries or cross-country analysis, preferably using the panel data to establish the causal effects of the independent variables on the dependent variables.
