Download or read book Research Involving Human Biological Materials Commissioned papers Privacy and the analysis of stored tissues written by United States. National Bioethics Advisory Commission and published by . This book was released on 1999 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Research Involving Human Biological Materials Commissioned papers Privacy and the analysis of stored tissues written by and published by . This book was released on 1999 with total page 266 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Research Involving Human Biological Materials Commissioned papers Privacy and the analysis of stored tissues written by United States. National Bioethics Advisory Commission and published by . This book was released on 1999 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Research Involving Human Biological Materials Commissioned papers written by United States. National Bioethics Advisory Commission and published by . This book was released on 1999 with total page 262 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Research Involving Human Biological Materials Commissioned papers written by United States. National Bioethics Advisory Commission and published by . This book was released on 1999 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Research Involving Human Biological Materials Commissioned papers written by United States. National Bioethics Advisory Commission and published by . This book was released on 1999 with total page 264 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Populations and Genetics written by Bartha Maria Knoppers and published by Martinus Nijhoff Publishers. This book was released on 2003-01-01 with total page 674 pages. Available in PDF, EPUB and Kindle. Book excerpt: Thirty-five papers from the third International DNA Sampling Conference, held in Montreal in September 2002, provide a critical discussion of the socio-ethical and legal issues surrounding DNA sampling in communities and populations around the globe. Contributors address topics related to biobanks and databases; community engagement; confidentialit.
Download or read book Governing Biobanks written by Jane Kaye and published by Bloomsbury Publishing. This book was released on 2012-02-03 with total page 380 pages. Available in PDF, EPUB and Kindle. Book excerpt: Biobanks are proliferating rapidly worldwide because they are powerful tools and organisational structures for undertaking medical research. By linking samples to data on the health of individuals, it is anticipated that biobanks will be used to explore the relationship between genes, environment and lifestyle for many diseases, as well as the potential of individually-tailored drug treatments based on genetic predisposition. However, they also raise considerable challenges for existing legal frameworks and research governance structures. This book critically examines the current governance structures in place for biobanks in England and Wales. It shows that the technologies, techniques and practices involved in biobanking do not always conform neatly to existing legal principles and frameworks that apply to other areas of medical research. Using a socio-legal approach, including interview data gathered from the scientific community, this book provides unique insights and makes recommendations about appropriate governance mechanisms for biobanking in the future. It also explores the issues around the secondary use of information, such as consent and how to protect privacy, when biobanks are accessed by a number of different third parties. These issues have relevance both within England and Wales and to a wide international audience, as well as for other areas where large datasets are used.
Download or read book Research Involving Human Biological Materials written by United States. National Bioethics Advisory Commission and published by . This book was released on 1999 with total page 264 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Concepts and Cases in Nursing Ethics Third Edition written by Michael Yeo and published by Broadview Press. This book was released on 2010-09-08 with total page 419 pages. Available in PDF, EPUB and Kindle. Book excerpt: Concepts and Cases in Nursing Ethics is a case-based exploration of the core principles of health care ethics applied to nursing. The book is a collaboration between philosopher-ethicist Michael Yeo and nurse-ethicist and educators Anne Moorhouse, Pamela Khan, and Patricia Rodney. It thus combines philosophical and ethical analysis with extensive knowledge and experience in nursing and health care. The book is organized around six main concepts in health care ethics: beneficence, autonomy, truthfulness, confidentiality, justice, and integrity. A chapter is devoted to the elucidation of each of these concepts. In each chapter, historical background and conceptual analysis are supplemented by case studies that exemplify issues and show how the concept applies in health care and nursing practice. In this new edition, the conceptual analysis throughout has been updated and reworked in view of changes in the health care system. In addition, there is a new chapter specifically devoted to recent developments affecting nursing and other health professions. Previous case studies have been modified and new ones added to address current and emerging issues. Although the text focuses mainly on the social and political situation of nursing, the analysis has relevance also for medicine and the allied health professions, and indeed for anyone working in the health system.
Download or read book Public Health Informatics and Information Systems written by Patrick W. O'Carroll and published by Springer Science & Business Media. This book was released on 2006-05-07 with total page 814 pages. Available in PDF, EPUB and Kindle. Book excerpt: Let us not go over the old ground, let us rather prepare for what is to come. —Marcus Tullius Cicero Improvements in the health status of communities depend on effective public health and healthcare infrastructures. These infrastructures are increasingly electronic and tied to the Internet. Incorporating emerging technologies into the service of the community has become a required task for every public health leader. The revolution in information technology challenges every sector of the health enterprise. Individuals, care providers, and public health agencies can all benefit as we reshape public health through the adoption of new infor- tion systems, use of electronic methods for disease surveillance, and refor- tion of outmoded processes. However, realizing the benefits will be neither easy nor inexpensive. Technological innovation brings the promise of new ways of improving health. Individuals have become more involved in knowing about, and managing and improving, their own health through Internet access. Similarly, healthcare p- viders are transforming the ways in which they assess, treat, and document - tient care through their use of new technologies. For example, point-of-care and palm-type devices will soon be capable of uniquely identifying patients, s- porting patient care, and documenting treatment simply and efficiently.
Download or read book Institutional Review Board written by Elizabeth A. Bankert and published by Jones & Bartlett Learning. This book was released on 2006 with total page 568 pages. Available in PDF, EPUB and Kindle. Book excerpt: This comprehensive reference covers three separate areas related to IRBs: administration, daily management; and ethical issues. This instructional manual provides IRB members and administrators with the information they need to run an efficient and effective system of protecting human research subjects, while remaining in compliance with federal research regulations. The text includes case studies, sample forms, and sample policy documents. The updated Second Edition includes seven new chapters: IRB Closure of Study Files, Internet Research, Research in Public Schools, Phase I Clinical Trials in Healthy Volunteers, Vulnerability in Research, Balancing the Risks and Potential Benefits,and HIPAA.
Download or read book Encyclopedia of Ethical Legal and Policy Issues in Biotechnology written by Thomas H. Murray and published by Wiley-Interscience. This book was released on 2000-10-10 with total page 580 pages. Available in PDF, EPUB and Kindle. Book excerpt: This set is comprehensive and technically literate and more informative on regulation and policy issues. Thomas Murray is a world-renowned leader in this field.
Download or read book Beyond the HIPAA Privacy Rule written by Institute of Medicine and published by National Academies Press. This book was released on 2009-03-24 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.
Download or read book International Ethical Guidelines for Health Related Research Involving Humans written by Council for International Organizations of Medical Sciences (CIOMS) and published by World Health Organization. This book was released on 2017-01-31 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "In the new 2016 version of the ethical guidelines, CIOMS provides answers to a number of pressing issues in research ethics. The Council does so by stressing the need for research having scientific and social value, by providing special guidelines for health-related research in low-resource settings, by detailing the provisions for involving vulnerable groups in research and for describing under what conditions biological samples and health-related data can be used for research."--Page 4 de la couverture.
Download or read book Ethical Issues of Human Genetic Databases written by Bernice Elger and published by Routledge. This book was released on 2016-05-13 with total page 382 pages. Available in PDF, EPUB and Kindle. Book excerpt: Following the boom in population databases in recent years there has been sustained and intense international debate about political processes and legal and ethical issues surrounding the protection and use of genetic data. As a result, several national and international organizations and committees have published widely differing guidelines and statements concerning genetic databases and biobanks. Ethical Issues of Human Genetic Databases compares the new area of biobanking with the tradition of ethically accepted classical research and highlights the distinctive features of existing databases and guidelines. The volume identifies areas of consensus and controversy while investigating the challenges posed to classical health research ethics by the existence of genetic databases, analyzing the reasons for such varying guidelines. The book will be essential to academics, biobankers, policy-makers and researchers in the field of medical ethics.
Download or read book Open Consent written by Ants Nõmper and published by . This book was released on 2005 with total page 266 pages. Available in PDF, EPUB and Kindle. Book excerpt:
