Download or read book Reframing Disability and Quality of Life written by Narelle Warren and published by Springer Science & Business Media. This book was released on 2013-03-12 with total page 253 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume brings together two parallel fields of interest. One is the understanding among psychologists and other social scientists of the limits to psychometric measurement, and the challenges in generating information about quality of life and wellbeing that enable comparison across time and place, at both individual and population levels. The second is the interest among anthropologists and others in the lived experience of chronic illness and disability, including the unpredictable fluctuations in perceived health and capability. Chronic conditions and physical impairments are assumed to impact negatively on people’s quality of life, affecting them psychologically, socially and economically. While some of these conditions have declined in prevalence, as a result of prenatal diagnosis, early successful interventions, and changes in medical technology and surgery, many of these conditions are on the increase as a consequence of improved life-saving medication and technology, and greater longevity. ‘Quality of life’ is often used as an indicator for successful and high quality health services, and good access to medical attention and surgery – for hip replacements or laser surgery to improve vision, for instance. But it is also used as an argument against interventions, when such interventions are seen to prolong life for its own sake. Yet we also know that people vary their idea of quality as a result of the context of fluctuations in their own health status, the presence or absence of pain or discomfort, and as a result of variations in social and economic contextual factors. In exploring these questions, this volume contributes to emerging debates related to individual health outcomes, but also to the social and other individual determinants that influence everyday life. Understanding these broader contextual factors will contribute to our knowledge of the kinds of services, support systems, and infrastructure that provide people with good ‘quality of life’ and a sense of wellbeing, regardless of their physical health, capability and functioning. The volume includes scholars from all continents who have been encouraged to think critically, and to engage with the descriptive, methodological, social, policy and clinical implications of their work.

Download or read book Philosophical Reflections on Disability written by D. Christopher Ralston and published by Springer Science & Business Media. This book was released on 2009-09-19 with total page 268 pages. Available in PDF, EPUB and Kindle. Book excerpt: This project draws together the diverse strands of the debate regarding disability in a way never before combined in a single volume. After providing a representative sampling of competing philosophical approaches to the conceptualization of disability as such, the volume goes on to address such themes as the complex interplay between disability and quality of life, questions of social justice as it relates to disability, and the personal dimensions of the disability experience. By explicitly locating the discussion of various applied ethical questions within the broader theoretical context of how disability is best conceptualized, the volume seeks to bridge the gap between abstract philosophical musings about the nature of disease, illness and disability found in much of the philosophy of medicine literature, on the one hand, and the comparatively concrete but less philosophical discourse frequently encountered in much of the disability studies literature. It also critically examines various claims advanced by disability advocates, as well as those of their critics. In bringing together leading scholars in the fields of moral theory, bioethics, and disability studies, this volume makes a unique contribution to the scholarly literature, while also offering a valuable resource to instructors and students interested in a text that critically examines and assesses various approaches to some of the most vexing problems in contemporary social and political philosophy.

Download or read book Quality of Life for People with Intellectual and Other Developmental Disabilities written by Robert L. Schalock and published by American Association. This book was released on 2007 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The concepts of quality of life and personal outcomes -- Quality domains and indicators -- Measuring personal outcomes: an information collection process -- Managerial strategies: opening the doors inward -- Personal outcome measures: values and metrics for an integrated management system -- Rationale for systems-level performance indicators that reflect personal outcomes -- Considerations in developing performance indicators at the macro level -- How do I use performance indicator data? -- Reframing quality and rethinking quality improvement -- Emerging challenges and opportunities.

Download or read book Quality of Life and Disability written by Roy Brown and published by Jessica Kingsley Publishers. This book was released on 2003-04-15 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: A refreshing book that can hold the reader's interest throughout. Quality of Life and Disability should be a compulsory text for all students in the disability field and would make a useful one for experienced practitioners including social workers.' - Australian Social Work 'Among the recent proliferation of books on quality of life, this is a standout! Not only is Quality of Life and Disability: An Approach for Community Practitioners placed squarely in the disability field, but it has an applied emphasis that is rare for a topic that so abounds in vague and often conflicting theories and terminologies. Rather than burdening the reader with the conceptual conundrums of a construct as ambitious as whole of life quality, Brown and Brown dive into the real life issues. This quality of life text will appeal to many practitioners in the disability field. A welcome addition to the bookshelves of many practitioners.' - Paul Bramston, University of Southern Queensland, Australia 'Excellent guide demonstrating to practitioners, not only what they have to do to increase the quality of life of the people they look after, but also how they should start doing it.' - Wspolne Tematy 'A remarkably rich mixture of experience, guidance and insight into the determination of people's quality of life, and into ways in which a wide variety of care staff, managers and policy-makers can understand and respond to disabled people's wants and needs.' - Care and Health magazine 'One of the most refreshing approaches in the contemporary literature on quality of life and disability. The authors are to be congratulated for the very user friendly way the book has been designed.' - Trevor R. Parmenter, University of Sydney 'This book reflects the authors' extensive experience and admirable insight as they bring quality of life ideas closest to those who are in the best position to apply them - the practitioners. Useful, stimulating and well written.' - Robert L. Schalock, Hastings College, Nebraska 'The authors weave their text seamlessly, reminding us at every turn that quality of life varies across individuals, cultures and time... tightly-structured and practical.' - Patricia Noonan Walsh, University College, Dublin 'This excellent book is a valuable contribution to training literature in the field of community rehabilitation.' - Mitchell Clark, Mount Royal College, Calgary, Canada Quality of life - physical, psychological and environmental well-being - is a crucial consideration for professionals working with people with a disability. The authors of this practical book apply ideas about quality of life to the field of disability to assist front-line professionals, managers and policy-makers in effective service provision. They examine the historical context of the concept of quality of life and discuss the application of quality of life in the daily lives of people who have disabilities. Using recent studies to show how the development of quality of life approaches have led to changes in rehabilitation, and how an understanding of the issue can inform practice in assessment, intervention, management and policy, this is an indispensable book for all practitioners and managers working with people with disabilities.

Download or read book Improving the Quality of Life written by David M. Romney and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 286 pages. Available in PDF, EPUB and Kindle. Book excerpt: The book is unique in two distinct ways. First, it focuses on improving quality of life in contrast to other books that have tended to focus more on its conceptualization and assessment. Second, it deals with improving quality of life in a variety of disabled populations, not just one, and includes chapters on people with chronic mental or physical conditions and those without disabilities at all (i.e. so-called normal people). The book outlines some of the challenges and controversies in the quality-of-life domain and attempts to synthesize the key issue and to draw generalizable conclusions. The book is mainly for university students and faculty and practitioners from various disciplines working in the field. It will also interest those members of the general public who wish to improve their own quality of life or that of their relatives or friends.

Download or read book Quality of Life and Intellectual Disability written by Roy I. Brown and published by . This book was released on 2018-02 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: We all long for a life of purpose and fulfillment. Striving for high quality of life for us and those we care for is a powerful motivator. Many busy people dream of being lazy by a pool fanned by a soft summer breeze, but this does not last. A short time of rest and replenishment is quickly replaced by boredom and a sense of purposelessness. Quality of life is much deeper than material comfort, though this has a role. Sadly in our world today, many people live lives lacking in meaning and value: the unemployed, the underemployed, those with disabilities who would like to contribute to society but are deprived the opportunity. Their quality of life is not what it could be. In this book, we have attempted to provide examples of how people face challenges, and the family members, professionals and care personnel who support them can be helped and supported through services working within a quality of life framework. The book provides a challenge to be addressed by the individual, their families, local communities, governments, international organizations and the society at large.

Download or read book The Routledge Handbook of Medical Anthropology written by Lenore Manderson and published by Routledge. This book was released on 2016-05-12 with total page 620 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Routledge Handbook of Medical Anthropology provides a contemporary overview of the key themes in medical anthropology. In this exciting departure from conventional handbooks, compendia and encyclopedias, the three editors have written the core chapters of the volume, and in so doing, invite the reader to reflect on the ethnographic richness and theoretical contributions of research on the clinic and the field, bioscience and medical research, infectious and non-communicable diseases, biomedicine, complementary and alternative modalities, structural violence and vulnerability, gender and ageing, reproduction and sexuality. As a way of illustrating the themes, a rich variety of case studies are included, presented by over 60 authors from around the world, reflecting the diverse cultural contexts in which people experience health, illness, and healing. Each chapter and its case studies are introduced by a photograph, reflecting medical and visual anthropological responses to inequality and vulnerability. An indispensible reference in this fastest growing area of anthropological study, The Routledge Handbook of Medical Anthropology is a unique and innovative contribution to the field.

Download or read book High Performance Disability Sport Coaching written by Geoffery Z. Kohe and published by Taylor & Francis. This book was released on 2016-08-25 with total page 229 pages. Available in PDF, EPUB and Kindle. Book excerpt: As the profile of disability sport has risen, so has the emphasis grown beyond participation to include the development of a high performance environment. This book is the first to take an in-depth look at the role of coaches and coaching in facilitating the professionalisation of disability sport, in raising performance standards, and as an important vector for the implementation of significant political, socio-cultural and technological change. Using in-depth case studies of elite disability sport coaches from around the world, the book offers a framework for critical reflection on coaching practice as well as the reader’s own experiences of disability sport. The book also evaluates the vital role of the coach in raising the bar of performance in a variety of elite level disability sports, including athletics, basketball, boccia, equestrian sport, rowing, soccer, skiing, swimming and volleyball. Providing a valuable evidence-based learning resource to support coaches and students in developing their own practice, High Performance Disability Sport Coaching is essential reading for all those interested in disability sport, coaching practice, elite sport development and the Paralympic Games.

Download or read book Handbook of Disability Sport and Exercise Psychology written by Jeffrey J. Martin and published by Oxford University Press. This book was released on 2018 with total page 481 pages. Available in PDF, EPUB and Kindle. Book excerpt: Historically, very few sport and exercise psychologists and professionals from related fields such as disability and rehabilitation have conducted thorough research on individuals with disabilities engaged in sport and exercise. The tide is turning, however, as growing media attention and familiarity with the Paralympics and the Wounded Warrior Project begins capturing the attention of researchers everywhere. By addressing this gap, Jeffrey J. Martin's compelling Handbook of Disability Sport and Exercise Psychology is one of the first comprehensive overviews of this important and emerging field of study. In this volume, Martin, an accomplished professor of sport and exercise psychology, shines a light on a variety of topics ranging from philosophy, athletic identity, participation motivation, quality of life, social and environmental barriers, body image, and intellectual impairments among many other issues. Based on the author's own experience and insight, a majority of these topic discussions in this volume are accompanied by thoughtful directions for future research and exploration. Designed to spark conversation and initiate new avenues of research, the Handbook of Disability Sport and Exercise Psychology will allow for readers to look outside the traditional literature focusing largely on able-bodied individuals and, instead, develop a much greater perspective on sport and exercise psychology today.

Download or read book Reframing Disability in Manga written by Yoshiko Okuyama and published by University of Hawaii Press. This book was released on 2020-05-31 with total page 241 pages. Available in PDF, EPUB and Kindle. Book excerpt: Reframing Disability in Manga analyzes popular Japanese manga published from the 1990s to the present that portray the everyday lives of adults and children with disabilities in an ableist society. It focuses on five representative conditions currently classified as shōgai (disabilities) in Japan—deafness, blindness, paraplegia, autism, and gender identity disorder—and explores the complexities and sociocultural issues surrounding each. Author Yoshiko Okuyama begins by looking at preindustrial understandings of difference in Japanese myths and legends before moving on to an overview of contemporary representations of disability in popular culture, uncovering sociohistorical attitudes toward the physically, neurologically, or intellectually marked Other. She critiques how characters with disabilities have been represented in mass media, which has reinforced ableism in society and negatively influenced our understanding of human diversity in the past. Okuyama then presents fifteen case studies, each centered on a manga or manga series, that showcase how careful depictions of such characters as differently abled, rather than disabled or impaired, can influence cultural constructions of shōgai and promote social change. Informed by numerous interviews with manga authors and disability activists, Okuyama reveals positive messages of diversity embedded in manga and argues that greater awareness of disability in Japan in the last two decades is due in part to the popularity of these works, the accessibility of the medium, and the authentic stories they tell. Scholars and students in disability studies will find this book an invaluable resource as well as those with interests in Japanese cultural and media studies in general and manga and queer narrative and anti-normative discourse in Japan in particular.

Download or read book Ethnographies and Health written by Emma Garnett and published by Springer. This book was released on 2018-06-26 with total page 280 pages. Available in PDF, EPUB and Kindle. Book excerpt: This edited collection explores the multiple ways in which ethnography and health emerge and take form through the research process. There is now a plethora of disciplinary engagements with ethnography around the topic of health, including anthropology, sociology, geography, science and technology studies, and in health care professions such as nursing and occupational therapy. This dynamic and evolving landscape means ethnography and health are entangled in new and different ways, providing a timely opportunity to explore what these entanglements do and affect in the social production of knowledge. Rather than discussing the strengths (and limitations) of ethnography for engaging with health, the book asks: what does ethnography enable, make visible and possible for knowing and doing health in contemporary research settings and beyond?

Download or read book Disability Normalcy and the Everyday written by Gareth M. Thomas and published by Routledge. This book was released on 2018-03-09 with total page 333 pages. Available in PDF, EPUB and Kindle. Book excerpt: Many critical analyses of disability address important ‘macro’ concerns, but are often far removed from an interactional and micro-level focus. Written by leading scholars in the field, and containing a range of theoretical and empirical contributions from around the world, this book focuses on the taken-for-granted, mundane human activities at the heart of how social life is reproduced, and how this impacts on the lives of those with a disability, family members, and other allies. It departs from earlier accounts by making sense of how disability is lived, mobilised, and enacted in everyday lives. Although broad in focus and navigating diverse social contexts, chapters are united by a concern with foregrounding micro, mundane moments for making sense of powerful discourses, practices, affects, relations, and world-making for disabled people and their allies. Using different examples – including learning disabilities, cerebral palsy, dementia, polio, and Parkinson’s disease – contributions move beyond a simplified narrow classification of disability which creates rigid categories of existence and denies bodily variation. Disability, Normalcy, and the Everyday should be considered essential reading for disability studies students and academics, as well as professionals involved in health and social care. With contributions located within new and familiar debates around embodiment, stigma, gender, identity, inequality, care, ethics, choice, materiality, youth, and representation, this book will be of interest to academics from different disciplinary backgrounds including sociology, anthropology, humanities, public health, allied health professions, science and technology studies, social work, and social policy.

Download or read book Disability and the Media written by Katie Ellis and published by Bloomsbury Publishing. This book was released on 2017-09-16 with total page 168 pages. Available in PDF, EPUB and Kindle. Book excerpt: This concise, integrated introduction to the complex relationship between disability and the media offers a roadmap to the key areas of participation, access and representation. Bringing together international theoretical work and research on disability, with analysis and examples across a diverse range of media forms – from radio, to news, popular television and new digital technologies – this unique text explores the potential for establishing a more diverse, rich and just media. Providing an approachable but critical introduction to the field, Katie Ellis and Gerard Goggin show how disability – like the closely connected areas of race and gender – is a pervasive issue in how the media represent society. Engaging and accessible, this is an invaluable resource for students of Media and Communication Studies, Cultural Studies and Disability Studies, as well as teachers, researchers, media professionals, policy makers, and anyone interested in the intersections of disability and media.

Download or read book Integrating the Participants Perspective in the Study of Language and Communication Disorders written by Charlotte Marie Bisgaard Klemmensen and published by Springer. This book was released on 2018-04-10 with total page 162 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book presents a new analytical approach that will advance the establishment of a new discourse within the study of language and communication disorders. Instances of recurring aphasia and acquired brain injury are discussed in an empirical observation study through a theoretical lens that combines Integrational Linguistics, ethnomethodology, Conversation Analysis and practice theory. In doing so, this interdisciplinary analysis adds a person-centered perspective to existing ethnographic approaches. It addresses a significant gap in our understanding of the social/communicative/interactional consequences of brain injury for everyday life by focusing on the practical problems that individuals with communication difficulties and acquired brain damage - and their care-takers, family and friends - have to solve in everyday life, and how they solve them. This innovative work will appeal to health and social care practitioners and care-givers, in addition to scholars of health communication, cognitive, psycho- and sociolinguistics.

Download or read book Communicating Across Cultures and Languages in the Health Care Setting written by Claire Penn and published by Springer. This book was released on 2017-12-16 with total page 375 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book offers a novel approach to understanding the complexities of communication in culturally and linguistically diverse health care contexts. It marks the culmination of two decades of research in South Africa, a context that has obvious application in a wider international climate given current globalization and migration trends. The authors draw from a large body of evidence based across different sites and illnesses, scrutinising both the language dynamics of intercultural health interactions and the perceptions and narratives of multiple participants. Including a range of theoretical, methodological and empirical considerations, the volume sheds light upon qualitative research methods and their application in the intercultural context. This book will be a valuable resource for health professionals, medical educators and language practitioners as well as students and scholars of discourse analysis and the medical humanities.

Download or read book Promoting Successful Integration written by Rory A. Cooper and published by Government Printing Office. This book was released on 2018-08-01 with total page 396 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook is intended to be a source of information for the broad military community, including uniformed military personnel, family members, civilian personnel of federal agencies, veterans, and all people who contribute to the success of wounded, injured, and ill service members. When service members return from a deployment with visible or hidden impairments or challenges, it is important for the entire community to provide support to ameliorate the long-term impact of wounds, injuries, and illnesses that can manifest into permanent disabilities. The information contained in this book should help the reader understand and implement the steps necessary for helping wounded, injured, or ill service members and their families to successfully continue their military careers or to become successful as veterans within civilian communities. A multifaceted approach will be presented, and there is no one single solution that will work for all service members. However, the information contained within this handbook should provide insight into the options available and the many pathways that lead to success.

Download or read book Bioethics written by Stephen Holland and published by John Wiley & Sons. This book was released on 2016-12-27 with total page 214 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a clear and comprehensive introduction to contemporary bioethics. It also presents provocative, philosophically informed arguments on current bioethical issues. Holland engages with debates ranging from the more familiar such as euthanasia, advance decisions to refuse treatment, and new reproductive technologies to the philosophical implications of recent developments in genetics, including prenatal genetic therapy, genetic enhancement and human cloning. The book is built around four crucial themes. The first is moral status: what are the implications of the moral status of human embryos or animals for our biomedical practices? The second theme life, death and killing looks at the ethics of ending, or failing to lengthen, human life. Holland then explores various questions of personal identity raised in contemporary bioethical debates. Finally, he presents and develops a version of the argument from nature which continues to be influential in bioethics in order to make sense of the objection that some biomedical innovations are unnatural. Structuring the discussions in this way creates an engaging introduction to bioethics that is an ideal textbook for students, whilst offering much to stimulate colleagues in the field. This second edition has been thoroughly and comprehensively updated to reflect the most recent advances in bioethics, and includes an entirely new chapter on the ethical treatment of patients in the minimally conscious state.