Download or read book Reconsidering Dementia Narratives written by Rebecca Bitenc and published by Routledge. This book was released on 2019-07-05 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt: Reconsidering Dementia Narratives explores the role of narrative in developing new ways of understanding, interacting with, and caring for people with dementia. It asks how the stories we tell about dementia – in fiction, life writing and film – both reflect and shape the way we think about this important condition. Highlighting the need to attend to embodied and relational aspects of identity in dementia, the study further outlines ways in which narratives may contribute to dementia care, while disputing the idea that the modes of empathy fostered by narrative necessarily bring about more humane care practices. This cross-medial analysis represents an interdisciplinary approach to dementia narratives which range across auto/biography, graphic narrative, novel, film, documentary and collaborative storytelling practices. The book aims to clarify the limits and affordances of narrative, and narrative studies, in relation to an ethically driven medical humanities agenda through the use of case studies. Answering the key question of whether dementia narratives align with or run counter to the dominant discourse of dementia as ‘loss of self’, this innovative book will be of interest to anyone interested in dementia studies, ageing studies, narrative studies in health care, and critical medical humanities.
Download or read book Entangled Narratives written by Lars-Christer Hydén and published by Oxford University Press. This book was released on 2017-12 with total page 249 pages. Available in PDF, EPUB and Kindle. Book excerpt: As people are living longer on average than ever before, the number of those with dementia will increase. Because many will live a considerable time at home with their diagnosis, we need to know more about the ways people can adapt to and learn to live with dementia in their everyday lives. Lars-Christer Hydén argues in this book that to do so will involve re-imagining what dementia really is and what it can mean to the afflicted and their loved ones. One of the most important everyday opportunities for sharing experiences is the simple act of storytelling. But when someone close to you gradually loses the ability to tell stories and cherish the shared history you have together, this is seen as a threat to the relationship, to the feeling of belonging together, and to the identity of the person diagnosed. Therefore, learning about how people with dementia can participate in storytelling along with their families and friends helps to sustain those relationships and identities. In Entangled Narratives, Hydén not only emphasizes the possibilities that are inherent in collaborative storytelling, but instructs professionals and otherwise healthy relatives to learn how to effectively listen and, ultimately, re-imagine their patients and loved ones as collaborative meaning-makers in their lives.
Download or read book Dementia Reconsidered written by T. M. Kitwood and published by . This book was released on 1997 with total page 184 pages. Available in PDF, EPUB and Kindle. Book excerpt: Drawing on research evidence, logical analysis and his own experience, Tom Kitwood examines the subject of dementia. Breaking new ground, Kitwood scrutinises and reappraises many of the older ideas concerning dementia.
Download or read book Dementia Narrative and Performance written by Janet Gibson and published by Springer Nature. This book was released on 2020-09-29 with total page 301 pages. Available in PDF, EPUB and Kindle. Book excerpt: Focusing mainly on case studies from Australia and the United States of America, this book considers how people with dementia represent themselves and are represented in ‘theatre of the real’ productions and care home interventions, assessing the extent to which the ‘right kind’ of dementia story is being affirmed or challenged. It argues that this type of story — one of tragedy, loss of personhood, biomedical deficit, and socio-economic ‘crisis — produces dementia and the people living with it, as much as biology does. It proposes two novel ideas. One is that the ‘gaze’ of theatre and performance offers a reframing of some of the behaviours and actions of people with dementia, through which deficit views can be changed to ones of possibility. The other is that, conversely, dementia offers productive perspectives on ’theatre of the real’. Scanning contemporary critical studies about and practices of ‘theatre of the real’ performances and applied theatre interventions, the book probes what it means when certain ‘theatre of the real’ practices (specifically verbatim and autobiographical) interact with storytellers considered, culturally, to be ‘unreliable narrators’. It also explores whether autobiographical theatre is useful in reinforcing a sense of ‘self’ for those deemed no longer to have one. With a focus on the relationship between stories and selves, the book investigates how selves might be rethought so that they are not contingent on the production of lucid self-narratives, consistent language, and truthful memories.
Download or read book Dementia and Ethics Reconsidered written by Julian Hughes and published by McGraw-Hill Education (UK). This book was released on 2023-05-30 with total page 312 pages. Available in PDF, EPUB and Kindle. Book excerpt: “In this masterful book, Julian Hughes makes a convincing case that many acts in clinical and care practice are ethical matters. Hughes takes us gently through a jungle of philosophical ideas and explores a series of ethical issues in dementia care, such as diagnosis, covert medication and end of life care. His humanity shines through as he favours a values-based approach to care, and concludes by declaring (in the spirit of Tom Kitwood) that the person must be placed first in order to do what is right and good for people living with dementia. A must-have volume for practitioners, social scientists and enlightened general readers.” Tom Dening, Professor of Dementia Research, School of Medicine, University of Nottingham, UK “This book is totally brilliant. The outstanding author Dr. Julian Hughes must now be considered the foremost ethicist of his generation when it comes to caring for individuals with dementia … This is now the book that everyone who cares about dementia and ethics must read, discuss, and implement. It is a huge contribution.” Stephen G. Post PhD, Director, Center for Medical Humanities, Compassionate Care & Bioethics Stony Brook University School of Medicine, USA “This book should be an essential read for all of us who support and navigate the ethical issues relating to people with dementia and their families.” Paul Edwards, Director of Clinical Services, Dementia UK Ethical issues are involved in every decision that is made in connection with someone living with dementia – from decisions about care and treatment to decisions about research and funding. This book encourages the reader to reconsider ethics in dementia care with the use of ‘patterns of practice’, an innovative idea developed by the author. The book highlights the importance of understanding the person’s narrative, of good communication, high quality care, and expert interpretation of the meaning of situations for people living with dementia. This book: • Reviews ethical theories and approaches in connection with dementia care • Considers issues such as such as stigma, quality of life, personhood, and citizenship in relation to dementia • Looks at issues relevant to research ethics • Presents case vignettes to highlight a complete spectrum of ethical issues that arise in dementia care • Is accessibly written for multiple audiences – from people living with dementia to practitioners Dementia and Ethics Reconsidered is a comprehensive account of thought and practice in relation to ethical issues that arise in the context of dementia care, which seeks to show how ethical thinking can be put into practice and prove relevant to day-to-day experience. The Reconsidering Dementia Series is an interdisciplinary series published by Open University Press that covers contemporary issues to challenge and engage readers in thinking deeply about the topic. The dementia fi eld has developed rapidly in its scope and practice over the past ten years and books in this series will unpack not only what this means for the student, academic and practitioner, but also for all those affected by dementia. Series Editors: Dr Keith Oliver and Professor Dawn Brooker MBE. Julian C. Hughes was a consultant in old age psychiatry. Having trained in both philosophy and medicine, he was appointed honorary professor of philosophy of ageing at Newcastle University, UK and subsequently professor of old age psychiatry at the University of Bristol, UK. He was deputy chair of the Nuffield Council on Bioethics, UK.
Download or read book The Story of Dementia written by John Killick and published by Luath Press Ltd. This book was released on 2017-09-16 with total page 114 pages. Available in PDF, EPUB and Kindle. Book excerpt: The story of dementia as I present it in these pages is the alternative narrative which has been occupying the shadowlands of the subject, and which is much in need of bringing into the light. So far as we are aware, there has never been a book before with this title or aim. This may be because no-one has been foolhardy enough to attempt one! And it is true that this is a story in mid-flow, even perhaps still near the beginning. But the subject is so complex, and surrounded with so many misconceptions that, even in a truncated form, it needs to be told. John Killick has chosen a simple but effective format. Each of the nine main chapters focuses on an individual or individuals (twelve in number) who, in his view, have made significant contributions to our knowledge. The message is one of hope. Although the medical model has yielded little in the way of advances, that is not true of psychosocial initiatives. This little book tells the hidden story of positive approaches, and those who have devoted their lives to finding alternative creative solutions to one of today's great challenges. If your life is at all touched by dementia, you should be reading it.
Download or read book Dementia Reconsidered Revisited The Person Still Comes First written by Tom Kitwood and published by McGraw-Hill Education (UK). This book was released on 2019-01-07 with total page 234 pages. Available in PDF, EPUB and Kindle. Book excerpt: The original Dementia Reconsidered: The Person Comes First by Tom Kitwood was published by Open University Press in 1997. It was a seminal text in the field of dementia studies and is still cited and referenced as core reading on person-centred dementia care. Tom died unexpectedly, just 12 months after the book was published. This book continues to inspire many people to challenge simplistic paradigms about dementia. Since the original book was written, however, there have been many changes in our understanding of dementia. The editor of this new edition, Dawn Brooker was mentored by Tom Kitwood. She has drawn together a remarkable group of writers to provide a commentary on Kitwood’s work. This new edition reproduces the original chapters but provides extra content from subject experts to update the book to a contemporary level. Dementia Reconsidered Re-visited is an ideal main text or supplementary text for all those studying or working in nursing, medicine, psychiatry, psychology, occupational therapy, social work, adult education, gerontology and health and social care more generally. “This important book does three things. It brings to a new generation the insight and vision of Tom Kitwood. It highlights the remarkable progress we have made in recent years. But most important of all it reminds us what still needs to be done if we are to fully respect the rights of people with dementia and their family care-givers. Kitwood inspired Alzheimer’s Society to knit together research, care, and societal change. We are now re-inspired to make sure all progress is evidenced and evaluated for its impact. We must realise the enormous opportunities the digital age offers people affected by dementia but in doing so constantly listen to and learn from their many and varied voices across nations and cultures.” Jeremy Hughes CBE, Chief Executive, Alzheimer's Society, UK
Download or read book Contemporary Narratives of Ageing Illness Care written by Katsura Sako and published by Routledge. This book was released on 2021-12-24 with total page 192 pages. Available in PDF, EPUB and Kindle. Book excerpt: This collection of essays explores cultural narratives of care in the contexts of ageing and illness. It includes both text-based and practice-based contributions by leading and emerging scholars in humanistic studies of ageing. The authors consider care not only in film (feature and documentary) and literature (novel, short story, children’s picturebook) but also in the fields of theatre performance, photography and music. The collection has a broad geographical scope, with case studies and primary texts from Europe and North America but also from Hong Kong, Japan, Australia, Argentina and Mexico. The volume asks what care, autonomy and dependence may mean and how these may be inflected by social and cultural specificities. Ultimately, it invites us to reflect on our relations to others as we face the global and local challenges of care in ageing societies.
Download or read book Rethinking Pain in Person Centred Health Care written by Stephen Buetow and published by Routledge. This book was released on 2020-12-30 with total page 128 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book explores how person-centred health care could be refined to help persons alleviate pain-related distress and construct pain as a potentially positive experience. Rethinking Pain in Person-Centred Health Care is a fascinating contribution to the multidisciplinary literature on person-centred health care, pain and ethics. Traditionally, Western intellectual culture has downplayed the intuitive and emotional, promoting instead rational, natural-scientific perspectives. Applied to pain, an instrumental approach promotes the immediate and effective relief of pain, due to the widespread suffering and expense it can cause. However, different persons experience pain in different ways and Buetow moves beyond a commitment to eliminate pain to exploring how benefits of pain could include creating and managing meaning from pain. Rather than always looking to put pain behind them, persons may flourish by moving around pain, through pain, into pain and above pain. Buetow argues that this model depends on adopting a person-centred approach to health care, focusing less on the condition of pain and more on mobilizing the persons who present with, and manage, pain. This book will be of interest to professionals and academics/researchers in the fields of psychology and psychiatry who have a special interest in people with persistent pain conditions. It will also be an invaluable resource for physiotherapists, chronic pain consultants in secondary care and GPs.
Download or read book Alzheimer s Disease in Contemporary U S Fiction written by Cristina Garrigós and published by Routledge. This book was released on 2021-07-28 with total page 205 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume seeks to bring readers to a deeper understanding of contemporary cultural and social configurations of Alzheimer’s disease by analyzing 21st-century U.S. novels in which the disease plays a key narrative role. Via analysis of selected works, Garrigós considers how the erasure of memory in a person with Alzheimer’s affects our idea of the identity of that person and their sense of belonging to a group. Starting out from three different types of memory (individual, social and cultural), the study focuses on the narrative strategies that authors use to configure how the disease is perceived and represented. This study is significant not only because of what the texts reveal about those with Alzheimer’s, but also for what they say about us - about the authors and readers who are producing and consuming these texts, about how we see this disease, and what our attitudes to it say about contemporary U.S. society.
Download or read book The Loss of Small White Clouds written by Morgan Batch and published by Taylor & Francis. This book was released on 2023-08-09 with total page 175 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume seeks to instigate a discussion about dementia in theatre. The discussions in this book borrow from the literature on dementia’s representation in other artforms, while reflecting on theatre’s unique capacity to incorporate multiple artforms in a live context (hypermediacy). The author examines constructions of diegesis and the use of various performance tools, including physical theatre, puppetry, and postdramatic performance. She discusses stage representations of interior experiences of dementia; selfhood in dementia; the demarcation of those with dementia from those without; endings, erasure, and the pursuit of catharsis; placelessness and disruptions of traditional dramatic constructions of time; and ultimately, performances creatively led by people with dementia. The book traces patterns of narrativisation on the stage—including common dramaturgical forms, settings, and character relationships—as well as examples that transcend mainstream representation. This book is important reading for theatre and performance students, scholars, and practitioners, as well as cultural studies writers engaged in research about narratives of dementia.
Download or read book Global Perspectives on Probing Narratives in Healthcare written by Casal, Teresa and published by IGI Global. This book was released on 2023-06-01 with total page 385 pages. Available in PDF, EPUB and Kindle. Book excerpt: There is often a communication disconnect between medical caregivers, including doctors, nurses, therapists, and other assistive medical personnel, and the patient. While medical staff usually understand a patient’s symptoms, causes, and treatments, communicating this understanding to a patient using industry terminologies can lead to confusion and misunderstanding, and similarly, patients may lack the vocabulary to effectively communicate their experiences back to their caregivers. A new approach to communication must be bridged between these groups by individuals who have experience on both sides of the conversation. Previous studies of doctors who end up in the role of the patient reveal how these individuals have a dual perspective on illness, combining their medical knowledge with their own personal medical experiences. Narratives, including autobiographical accounts and fictional stories, can help bridge the gap between experiential and academic knowledge of illness by expanding one’s limited perspective and accessing others’ points of view. Autobiographical and fictional narratives can both play a role in developing a more comprehensive understanding of illness beyond simply treating the disease. It is necessary to further examine the ethical and methodological underpinnings of narrative-based interventions in the education of healthcare professionals, practitioners, and patients. Global Perspectives on Probing Narratives in Healthcare offers a multidisciplinary examination of theoretical and methodological uses of narratives in healthcare by bringing together medical aspects of healthcare and the study of arts and humanities. This illustrates specific applications of narratives in healthcare settings, including improvement of clinical skills, performance of the caring role, and self-efficacy for building a true partnership in the patient’s health journey through varied approaches, up-to-date tools, and resources that can be transferred and adapted to specific educational and healthcare contexts. This diverse collection of expert knowledge and experience is led by editors with over 20 years of teaching experience: Dr. Teresa Casal of the University of Lisbon, Portugal and Dr. Maria de Jesus Cabral of the University of Minho, Portugal. Expertise featured in this book includes contributions from some of the most prestigious academic institutions, including Columbia University in the United States, King’s College in the United Kingdom, University of Padua in Italy, and more. It is an essential resource for healthcare and social science researchers, academics, advanced healthcare students, health training and education departments, healthcare practitioners and patients’ associations, and policymakers in healthcare who are looking to broaden their scope of understanding of the patient experience.
Download or read book Literature and Ageing written by Elizabeth Barry and published by Boydell & Brewer. This book was released on 2020 with total page 233 pages. Available in PDF, EPUB and Kindle. Book excerpt: New approaches to the topics of old age and becoming old depicted in a range of texts from modern literature.
Download or read book Reader s Block written by Matthew Rubery and published by Stanford University Press. This book was released on 2022-10-04 with total page 359 pages. Available in PDF, EPUB and Kindle. Book excerpt: What does the term "reading" mean? Matthew Rubery's exploration of the influence neurodivergence has on the ways individuals read asks us to consider that there may be no one definition. This alternative history of reading tells the stories of "atypical" readers and the impact had on their lives by neurological conditions affecting their ability to make sense of the printed word: from dyslexia, hyperlexia, and alexia to synesthesia, hallucinations, and dementia. Rubery's focus on neurodiversity aims to transform our understanding of the very concept of reading. Drawing on personal testimonies gathered from literature, film, life writing, social media, medical case studies, and other sources to express how cognitive differences have shaped people's experiences both on and off the page, Rubery contends that there is no single activity known as reading. Instead, there are multiple ways of reading (and, for that matter, not reading) despite the ease with which we use the term. Pushing us to rethink what it means to read, Reader's Block moves toward an understanding of reading as a spectrum that is capacious enough to accommodate the full range of activities documented in this fascinating and highly original book. Read it from cover to cover, out of sequence, or piecemeal. Read it upside down, sideways, or in a mirror. For just as there is no right way to read, there is no right way to read this book. What matters is that you are doing something with it—something that Rubery proposes should be called "reading."
Download or read book The Bloomsbury Handbook to Ageing in Contemporary Literature and Film written by Sarah Falcus and published by Bloomsbury Publishing. This book was released on 2023-06-29 with total page 475 pages. Available in PDF, EPUB and Kindle. Book excerpt: Across more than 30 chapters spanning migration, queerness, and climate change, this handbook captures how the interdisciplinary and intersectional endeavor of Age(ing) studies has shaped contemporary literary and film studies. In the early 21st century, the literary study of age and ageing in its cultural context has 'come of age': it has come to supplement and challenge a public discourse on ageing seen mainly as a political and demographic 'problem' in many countries of the world. Following a tripartite structure, it looks first at literary and film genres and how they have been shaped by knowledge about age and ageing, incorporating both narrative genres as well as poetry, drama and imagery. The second section includes chapters on key themes and concepts in Age(ing) Studies with examples from film and literature. The third section brings together case studies focussing on individual artists, national traditions and global ageing. Containing original contributions by pioneers in the field as well as new scholars from across the globe, it brings together current scholarship on ageing in literary and film studies, and offers new directions and perspectives.
Download or read book Literature and Medicine written by Anna M. Elsner and published by Cambridge University Press. This book was released on 2024-01-18 with total page 713 pages. Available in PDF, EPUB and Kindle. Book excerpt: The experiences of health and illness, death and dying, the normal and the pathological have always been an integral part of literary texts. This volume considers how the two dynamic fields of medicine and literature have crossed over, and how they have developed alongside one another. It asks how medicine, as both science and practice, shapes the representation of illness and transforms literary form. It considers how literary texts across genres and languages of disease have put forward specific conceptions of medicine and impacted its practice. Taking into account the global, multilingual and multicultural contexts, this volume systematically outlines and addresses this double-sidedness of the literature-medicine connection. Literature and Medicine covers a broad spectrum of conceptual, thematic, theoretical, and methodological approaches that provide a solid foundation for understanding a vibrant interdisciplinary field.
Download or read book Losing It written by Dorothy Chansky and published by Springer Nature. This book was released on with total page 329 pages. Available in PDF, EPUB and Kindle. Book excerpt:
