Download or read book The Power of Rare written by Victoria Jackson and published by Simon and Schuster. This book was released on 2017-09-26 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: "The Power of Rare is equal parts science and inspiration. In her urgent drive to help her daughter, Victoria Jackson not only transformed the competitive world of biomedical research, but also created a new medical model for generations to come." —Arianna Huffington Victoria Jackson revolutionized the beauty industry in the 1980s and '90s with her "no make-up" approach to make-up and ultimately made Victoria Jackson Cosmetics into a billion-dollar global brand. But her greatest test of the power of rare didn't come until her daughter, Ali, was diagnosed with neuromyelitis optica, or NMO—a rare, life-threatening autoimmune disease—and Victoria, driven by a mother's love, set out to find a cure for her daughter. Within days of hearing Ali's diagnosis in 2008, Victoria began the Guthy-Jackson Charitable Foundation to fund medical research into this often misdiagnosed orphan disease. Her "blueprint" called for breaking down the so-called silos of traditional medical research and bringing together some of the greatest minds to collaborate and share their findings. She hadn't expected to galvanize how medical research works, but within only a few years, that's just what she did. By focusing on the "rare" in each of us, the foundation has catalyzed breakthroughs in NMO in record time. These advances are also opening new doors to solving MS, lupus, and other autoimmune diseases—plus diseases that are not so rare, including cancer, infection, aging, and more. It has been Victoria's guiding philosophy that if she can do it, anyone can. With The Power of Rare, she shares how the foundation harnessed the power of rare to speed discoveries that help patients. Through her business savvy, wit, and heart, she offers real-world advice and inspiration for others to tap into "rare" to empower their own breakthroughs.
Download or read book The Principles and Practice of Obstetrics written by Hugh Lenox Hodge and published by . This book was released on 1866 with total page 634 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Physical Signs in Medicine and Surgery written by Fred Ashley White and published by Museum Press Books. This book was released on 2009 with total page 819 pages. Available in PDF, EPUB and Kindle. Book excerpt: Physical Signs in Medicine and Surgery - An Atlas of Rare, Lost and Forgotten Physical Signs: The work for this text began over two decades ago as Dr. Ashley White was researching ancient diseases and their initial presentations for prevention of future pandemic plagues. This evidence based paleopathology research has granted Dr. White access to some of the world's most sensitive archaeological sites. These locations have been in England, Scotland, North and Central America, Nine additional countries in Europe, Asia - including Russia and China, the Middle East, North and Sub-Sahara Africa, and South America including the Amazon Basin. This comprehensive Atlas was originally conceived for doctors providing needed care in dangerous, rugged and remote situations often created by catastrophe, disasters, epidemics, and military conflicts. It is within these serious environments that this Atlas can assist practitioners find the most obscure and difficult diagnosis where access to x-rays and modern laboratory equipment are often impossible. Designed with a unique reference style of key words tagged to known medical systems the Atlas functions as an easy to use clinical field manual whether in use in an advanced medical care unit or in the harsh realm of the jungle. This extensive compendium of rare medical findings, together with an incredible group of landmark essays make this the most complete Atlas of physical signs ever published.
Download or read book World Population and Human Values written by Jonas Salk and published by HarperCollins Publishers. This book was released on 1981 with total page 200 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Stark Munro Letters written by Arthur Conan Doyle and published by 1st World Publishing. This book was released on 2004-09 with total page 278 pages. Available in PDF, EPUB and Kindle. Book excerpt: Purchase one of 1st World Library's Classic Books and help support our free internet library of downloadable eBooks. Visit us online at www.1stWorldLibrary.ORG - - The letters of my friend Mr. Stark Munro appear to me to form so connected a whole, and to give so plain an account of some of the troubles which a young man may be called upon to face right away at the outset of his career, that I have handed them over to the gentleman who is about to edit them. There are two of them, the fifth and the ninth, from which some excisions are necessary; but in the main I hope that they may be reproduced as they stand. I am sure that there is no privilege which my friend would value more highly than the thought that some other young man, harassed by the needs of this world and doubts of the next, should have gotten strength by reading how a brother had passed down the valley of shadow before him.
Download or read book The Thinking Body written by Mabel Elsworth Todd and published by . This book was released on 2024-03-29 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: 2024 Hardcover Reprint of the 1937 Edition. Full facsimile of the original edition, not reproduced with Optical Recognition software. Complete with all Illustrations from the 1937 edition. Mabel Elsworth Todd is considered the founder of what has come to be known as 'Ideokinesis', a form of somatic education that became popular in the 1930s amongst dancers and health professionals. Todd's ideas involved using anatomically based, creative visual imagery and consciously relaxed volition to create and refine neuromuscular coordination. Lulu Sweigard, who coined the term Ideokinesis, and Barbara Clark furthered Todd's work. Todd's work was published in her book The Thinking Body (1937), which is now considered by modern dance schools to be a classic study of physiology and the psychology of movement. Her work influenced many somatic awareness professionals of her day, and is often cited along with The Feldenkrais method for its focus on the subtle influence of unconscious intention and attention.
Download or read book Operative surgery written by Joseph-François Malgaigne and published by . This book was released on 1851 with total page 606 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book A System of Anatomical Plates Accompanied With Descriptions and Physiological Pathological and Surgical Observations written by John 1787?-1860 Lizars and published by Legare Street Press. This book was released on 2021-09-09 with total page 220 pages. Available in PDF, EPUB and Kindle. Book excerpt: This work has been selected by scholars as being culturally important and is part of the knowledge base of civilization as we know it. This work is in the public domain in the United States of America, and possibly other nations. Within the United States, you may freely copy and distribute this work, as no entity (individual or corporate) has a copyright on the body of the work. Scholars believe, and we concur, that this work is important enough to be preserved, reproduced, and made generally available to the public. To ensure a quality reading experience, this work has been proofread and republished using a format that seamlessly blends the original graphical elements with text in an easy-to-read typeface. We appreciate your support of the preservation process, and thank you for being an important part of keeping this knowledge alive and relevant.
Download or read book The Dancing Mouse written by Robert Mearns Yerkes and published by Wentworth Press. This book was released on 1907 with total page 326 pages. Available in PDF, EPUB and Kindle. Book excerpt: This work has been selected by scholars as being culturally important, and is part of the knowledge base of civilization as we know it. This work was reproduced from the original artifact, and remains as true to the original work as possible. Therefore, you will see the original copyright references, library stamps (as most of these works have been housed in our most important libraries around the world), and other notations in the work. This work is in the public domain in the United States of America, and possibly other nations. Within the United States, you may freely copy and distribute this work, as no entity (individual or corporate) has a copyright on the body of the work. As a reproduction of a historical artifact, this work may contain missing or blurred pages, poor pictures, errant marks, etc. Scholars believe, and we concur, that this work is important enough to be preserved, reproduced, and made generally available to the public. We appreciate your support of the preservation process, and thank you for being an important part of keeping this knowledge alive and relevant.
Download or read book Nicole Angemi s Anatomy Book written by Nicole Angemi and published by Abrams. This book was released on 2022-11-22 with total page 544 pages. Available in PDF, EPUB and Kindle. Book excerpt: Anatomy for all by “the Internet’s Most Famous Human Dissector” (Vice) From “A is for Anus” to “Z is for Zygomatic Bone,” Nicole Angemi’s My Anatomy Book offers a unique anatomical manual, accessible to all, that mixes a humorous tone with academic rigor. This guide, written by “the internet’s most famous human dissector” (Vice), features well-documented medical descriptions of all the pathologies, rare and common, that can worry, fascinate, or damage the bodies of people around the world, even in the age of modern medicine. Each case is accompanied by vintage anatomical drawings and stomach-churning descriptions that will be sure to both educate and delight!
Download or read book Rare Books Uncovered written by Rebecca Rego Barry and published by Voyageur Press (MN). This book was released on 2015-12 with total page 267 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Discoveries of rare and collectible books are chronicled in stories from both casual and die-hard book collectors"--
Download or read book Anomalies and Curiosities of Medicine written by George Milbry Gould and published by . This book was released on 1901 with total page 1008 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Anesthesia and Uncommon Diseases E Book written by Lee A Fleisher and published by Elsevier Health Sciences. This book was released on 2012-04-20 with total page 664 pages. Available in PDF, EPUB and Kindle. Book excerpt: Your awareness of uncommon diseases and possible complications is vital to successful anesthetic patient management. Anesthesia and Uncommon Diseases, 6th Edition, brings you up to date with new information on less commonly seen diseases and conditions, including the latest evidence and management guidelines. This unique medical reference book is essential for a complete understanding of today’s best options and potential difficulties in anesthesia. Improve your ability to successfully manage every patient, including those with rare diseases or conditions. Avoid complications with unique coverage of an important aspect of anesthetic management. Stay current with all-new chapters on adult congenital heart disease, rheumatic diseases, and the cancer patient, plus many more revisions throughout. Get outstanding visual guidance with hundreds of illustrations, now in full color.
Download or read book Rare Book Librarianship written by Steven K. Galbraith and published by Bloomsbury Publishing USA. This book was released on 2012-06-21 with total page 206 pages. Available in PDF, EPUB and Kindle. Book excerpt: Successfully managing rare book collections requires very specific knowledge and skills. This handbook provides that essential information in a single volume. Rare Book Librarianship for the 21st Century is the first new rare books handbook of practice in 25 years. Authored by two special collections experts with extensive field experience, this book is also the first to discuss the role of digital technologies in managing a rare book collection. After a fascinating discussion of the history and current state of rare book libraries, this handbook provides a comprehensive account of the core skills and knowledge needed to be a successful rare book librarian. Topics include best practices for handling, housing, and conserving rare materials; collection development techniques; and user education and outreach. This book will serve as a handbook for practitioners in academic settings, large public libraries, and special libraries, and as a textbook for students in MLIS courses on rare book librarianship and curatorship.
Download or read book Rare Disease Drug Development written by Raymond A. Huml and published by Springer Nature. This book was released on 2021-11-08 with total page 418 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a broad overview of rare disease drug development. It offers unique insights from various perspectives, including third-party capital providers, caregivers, patient advocacy groups, drug development professionals, marketing and commercial experts, and patients. A unique reference, the book begins with narratives on the many challenges faced by rare disease patient and their caregivers. Subsequent chapters underscore the critical, multidimensional role of patient advocacy groups and the novel approaches to related clinical trials, investment decisions, and the optimization of rare disease registries. The book addresses various rare disease drug development processes by disciplines such as oncology, hematology, pediatrics, and gene therapy. Chapters then address the operational aspects of drug development, including approval processes, development accelerations, and market access strategies. The book concludes with reflections on the authors' case for real-world data and evidence generation in orphan medicinal drug development. Rare Disease Drug Development is an expertly written text optimized for biopharmaceutical R&D experts, commercial experts, third-party capital providers, patient advocacy groups, patients, and caregivers.
Download or read book Rare Diseases written by Meral Özgüç and published by Springer. This book was released on 2014-09-08 with total page 219 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book focuses on predictive, preventative and personalized medicine (PPPM) and how it is related to the healthcare of rare diseases. Readers will discover how advanced rare diseases healthcare provides an excellent “proof-of-principles” for the personalisation of healthcare systems on a global scale. Chapters look at national plans for rare disease, at biobanking, gene identification, rare cancers, virus gene therapy , induced pluripotency for cell therapy amongst other topics. There is a chapter dedicated to personalized medicine for hereditary deafness and another exploring the complexity of genotype-phenotype correlations. Specific diseases such as Fabry's, Gauchers and mitochondrial cytopathies are highlighted and we look at enzyme replacement therapy in lysosomal storage diseases. This work is part of a series, produced with the involvement of the European Association for Predictive, Preventive and Personalised Medicine. The series focusses on the concept of an integrative medical approach by PPPM. This volume is dedicated to all aspects related to the prediction, prevention and personalised treatments of rare diseases, and in doing so it explores developments relevant to all medical branches. The authors cover ethical considerations, the creation of a robust platform for professional communication, synergies with patient organisations, “doctor-patient” collaboration and a new philosophy of integrative medicine by PPPM. This volume serves as a reference source for scientific and medical centres in the field and can be used both at medical curricula and graduate level in the life sciences. Those who place a special emphasis on healthcare promotion and innovations intended to combat rare diseases, save the affected lives and enhance life quality will all find this book of great value.
Download or read book Extraordinary A Book for Children with Rare Diseases Mandarin written by Evren And Kara Ayik and published by Kara Ayik. This book was released on 2022-03-03 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: 是什么让罕见病儿童非同寻常？ 聆听罕见病儿童埃夫伦自我成长的心路历程，探索问题答案！ 本书由母子联手创作，基于罕见病患者面临的挑战与机遇，就身份、包容与自我认知展开适合孩子的讨论。书中的经验全部是小作者作为超罕见病患者一路长大的亲身经历，旨在为小读者理解个人身份和罕见病对个人身份的正面影响提供指南。家庭成员和护理人员也可以积极参与孩子的探索过程，根据孩子的成长需求制定读书计划。 本书插图由获奖童书插画家伊恩-戴尔绘制。《非同寻常的你！》旨在通过其由衷的文字和敏感又真实的插画鼓舞、激励所有患有罕见病的孩子活出最美好的一生。 What makes a child with a rare disease extraordinary? Explore the answer to this question while sharing a conversation with Evren about what he has learned while growing up with his own rare disease. Written collaboratively by mother and son, this book opens up a child-friendly discussion about identity, inclusion, and self-concept in light of the challenges and silver linings of living with a rare disease. The gentle lessons draw on the co-author's first-hand experience of growing up with an ultra-rare disease and offer young readers a framework for understanding personal identity and how their rare diseases can help shape it in positive ways. Family members and caregivers are invited to share in this conversation and to customize the reading according to each young reader's developmental needs. Accompanied by sensitive yet realistic illustrations created by award-winning artist and children's book illustrator Ian Dale, the heartfelt messages introduced in Extraordinary! are intended to uplift and encourage any children living with rare diseases to live their very best lives.
