Download or read book Quality of Life in Children and Adolescents with Chronic Diseases Neurological Disorders epilepsy and Cerebral Palsy and Diabetes Mellitus written by Katharina Schiller and published by . This book was released on 2021 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Measuring Health Related Quality of Life in Children and Adolescents written by Dennis Drotar and published by Psychology Press. This book was released on 2014-06-03 with total page 387 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume's purpose is to describe concepts and methods concerning assessment of health-related quality of life (HRQOL) in children and adolescents with a special focus on chronic health conditions. The impetus for this book came from a recognition of the increasing importance of HRQOL assessments in the evaluation of treatment outcomes and the need to increase the utilization of HRQOL assessments in research and clinical applications with a range of pediatric populations. The need to develop a volume that describes new research and clinical applications concerning this topic stemmed from several recent developments. There is a continuing need for evaluations of the efficacy of medical treatments for children and adolescents, including those with chronic health conditions. To address these critical unmet needs in the field of HRQOL assessment, and to advance scientific methods and clinical applications in this field, a conference was held at Case Western Reserve University. The conference set out to summarize current information concerning the development and implementation of measures of HRQOL assessment, to identify and consider key conceptual and methodological issues in research concerning the measurement of HRQOL, and to recommend priorities to advance the state-of-the-art in research and clinical applications of QOL assessment in children and adolescents with chronic health conditions. This volume summarizes and synthesizes the information that was presented by the conference participants in a series of lively discussions and chapters that were based on the presentations.
Download or read book Quality of Life in Child and Adolescent Illness written by Hans Koot and published by Routledge. This book was released on 2014-01-14 with total page 480 pages. Available in PDF, EPUB and Kindle. Book excerpt: How can we measure the quality of life in children and adolescents with chronic disease? Major progress in the diagnosis and treatment of severe and chronic disease has led to an increased number of children and their families having to adapt and cope with the impact of disease, survival, and the cost of treatment. Health professionals have responded to this by developing a diversity of instruments for measuring quality of life for use in paediatrics, psychology and public health. This book introduces the reader to the emerging field of quality of life assessment and provides a comprehensive overview of the conceptual and methodological issues concerning quality of life in child and adolescent illness. Particular emphasis is provided on current efforts to measure the impact of specific chronic conditions on different domains of child functioning. Future directions are outlined for the development of appropriate instruments for measuring quality of life in children and adolescents. Quality of Life in Child and Adolescent Illness is intended for psychologists, paediatricians, paediatric nurses, child psychiatrists, public health professionals, researchers and other interested readers from the undergraduate to the working professional.
Download or read book Health related Quality of Life Among Children Aged 8 to 12 Years with Type 1 Diabetes and Their Parents written by Vidal Melina and published by . This book was released on 2017 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Categoru00eda: Living with DiabetesHealth-related quality of life among children aged 8 to 12 years with type 1 diabetes and their parentsAuthors: Suarez, Andrea- Vidal, Melina. Facultad de Psicologu00eda-Universidad Nacional de Cu00f3rdobaBackground: Varni, Limbers and Burwinkle1 developed an investigation in which patients with diabetes and their parents reported a lower Health Related Quality of Life (HRQL) compared to healthy groups. In the work developed by Kalyva et al.2, it has been found that parents value a lower perception of health-related quality of life than that perceived by children. The research of Roizen, Figueroa and Salvia3 found the marked differences in the emotional block from the evaluation of the patients and their parents.Objectives: To know the perception of the quality of life related to the health of children between 8 and 12 years with type 1 diabetes and also the perception that parents have about their children. Associate and correlate HRQOL with Diabetologic Education Cycle, Medical Social Coverage and disease evolution time.Method: descriptive and analytical, cross-sectional study. The generic Pediatric Quality of Life 4.0 instrument was administered through a closed interview. Data were processed using Stata software, version 14.Results: There are no significant differences for the total scores in the perception of HRQoL between the patients and their parents. However, the marked differences in block analysis are appreciated, since in terms of emotional functioning since parents score less than children. In the school block and in the physical, there were significant differences in which the children scored lower than their parents. Regarding the social block, there were no significant differences. It is observed that there is no association between the variable of assistance to the Diabetic Education Cycle and the perception of HRQoL. There is a strong association between private medical social coverage and a better perception of HRQoL. There is a decrease in the quality of life in children over time.Discussion: In general, patients and parents evaluated a very similar health-related quality of life. However, the interventions in the emotional field since it is the dimension that more differences present. Also, hay that takes into account factors that deteriorate the quality of life as the lack of private medical coverage and the evolution of disease time.Bibliography:1.Varni J.W., Limbers C.A. Y Burwinkle T.M. Alteration of health-related quality of life in chronically ill children and adolescents: a comparative analysis of 10 disease groups and 33 categories / disease severity using the PedsQL u2122 4.0 General Generic Scales. BioMed. 2007; 5 (43).2. Health-related quality of life (HRQoL) of children with type 1 diabetes mellitus (T1DM): perception of self and parents. Pediatric Diabetes. 2011; (12): 34-40.3.Roizen M., Figueroa C., and Salvia L. Health-related quality of life in children with chronic diseases: comparison of the vision of children, their parents and their physicians. Argentine archives of pediatrics. 2007; 105 (4): 305-313.
Download or read book The Physician s Guide to Caring for Children with Disabilities and Chronic Conditions written by Robert E. Nickel and published by . This book was released on 2000 with total page 704 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children and adolescents with ongoing health conditions need primary care that makes sure their preventive, acute and specialised needs are met and treatments coordinated. This is a comprehensive reference for their health professionals.
Download or read book Chronic Disorders in Children and Adolescents written by and published by . This book was released on 2011-08-26 with total page 298 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Social Adjustment and Functioning of Chronically Ill and Impared Children and Adolescents written by Matti Sillanpää and published by . This book was released on 1987 with total page 88 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Children on Medication Volume II written by Kenneth D. Gadow and published by Routledge. This book was released on 2018-09-03 with total page 305 pages. Available in PDF, EPUB and Kindle. Book excerpt: First published in 1986. The primary purpose of this book is to provide information about the use of medication for several childhood disorders that require long-term treatment. It is the author’s expectation that this information will allow caregivers to make better decisions about the use of medication. This title also examines the importance of evaluating various aspects when medicating a child, including their characteristics, their family situation, and school setting.
Download or read book Quality of Life in Child and Adolescent Illness written by Hans Koot and published by Harwood Academic Publishers. This book was released on 2001-10 with total page 398 pages. Available in PDF, EPUB and Kindle. Book excerpt: How can we measure the quality of life in children and adolescents with chronic disease? Major progress in the diagnosis and treatment of severe and chronic disease has led to an increased number of children and their families having to adapt and cope with the impact of disease, survival, and the cost of treatment. Health professionals have responded to this by developing a diversity of instruments for measuring quality of life for use in paediatrics, psychology and public health. This book introduces the reader to the emerging field of quality of life assessment and provides a comprehensive overview of the conceptual and methodological issues concerning quality of life in child and adolescent illness. Particular emphasis is provided on current efforts to measure the impact of specific chronic conditions on different domains of child functioning. Future directions are outlined for the development of appropriate instruments for measuring quality of life in children and adolescents. Quality of Life in Child and Adolescent Illness is intended for psychologists, paediatricians, paediatric nurses, child psychiatrists, public health professionals, researchers and other interested readers from the undergraduate to the working professional.
Download or read book Life Quality Outcomes in Children and Young People with Neurological and Developmental Conditions written by Gabriel M. Ronen and published by Mac Keith Press. This book was released on 2013-05-20 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Clinics in Developmental Medicine Health care professionals need to understand their patients’ views of their condition and its effects on their health and well-being. This book builds on the World Health Organization's concepts of 'health', 'functioning' and 'quality of life' for young people with neurodisabilities: it emphasises the importance of engaging with patients in the identification of both treatment goals and their evaluation. Uniquely, it enables health care professionals to find critically reviewed outcomes-related information. The authors are leaders in their respective research fields and discuss theory, concepts, and evidence, and how these are applied in clinical settings and research applications. Readership: Health care professionals working with children and youth with neurological and developmental conditions, wanting to expand their clinical or research horizons. Frontline service providers, health services and social science researchers, clinical program managers and policy makers concerned with ensuring that their clinical or programmatic services are addressing contemporary issues as effectively as possible. Students in the health professions and others in related fields (such as social work).
Download or read book Quality of Life in Children with Cerebral Palsy written by Ozlem Cinar Ozdemir and published by . This book was released on 2017 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Cerebral palsy is a complex and serious disease that can affect all age groups around the world. There is no prevalence differentiation between developed and developing countries. Preeclampsia, maternal trauma, low birth weight, gestational age, birth asphyxia, intrauterine infection, et cetera can also be included in the list of risk factors. Functional limitations, self-care difficulties, behavioral problems, seizures, cognitive, sensory, social and emotional impairments and difficulties of daily life activities can affect health-related quality of life in children and adolescents with cerebral palsy. So, it is important to evaluate health-related quality of life in cerebral palsy. It is stated that there are many generic instruments to evaluate health-related quality of life. However, using specific instruments for cerebral palsy is more sensitive than generic instruments to evaluate effect of cerebral palsy in children's health-related quality of life. The aim of this chapter is to investigate health-related quality of life instruments in children and adolescents with cerebral palsy.
Download or read book Cerebral Visual Impairment in Children written by Josef Zihl and published by Springer. This book was released on 2014-10-24 with total page 347 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cerebral visual disorders have far-reaching consequences for child development. These have profound adverse effects on children’s education and success in school and also in later life, but, unfortunately, cerebral visual disorders often remain undiagnosed and untreated in the pediatric population. This book provides a state-of-the-art account of what is known about the development and disorders of visual perception in children. It covers the development and disorders of visual perception in children, their assessment, early intervention and management in an interdisciplinary context, both from a scientific as well as clinical perspective. Case studies illustrate the recommended assessment and rehabilitation procedures; synopses, boxes and check-lists complement the presentation of our recommendations for clinical practice.
Download or read book Health related Quality of Life of Children and Adolescents with Chronic Conditions written by Kathrin Fischer and published by . This book was released on 2021 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Children and Adolescents with Type 1 Diabetes Mellitus written by and published by . This book was released on 2015 with total page 65 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Diabetes Mellitus in Children written by Mark A. Sperling and published by . This book was released on 2005 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Sleep Disorders and Sleep Deprivation written by Institute of Medicine and published by National Academies Press. This book was released on 2006-10-13 with total page 425 pages. Available in PDF, EPUB and Kindle. Book excerpt: Clinical practice related to sleep problems and sleep disorders has been expanding rapidly in the last few years, but scientific research is not keeping pace. Sleep apnea, insomnia, and restless legs syndrome are three examples of very common disorders for which we have little biological information. This new book cuts across a variety of medical disciplines such as neurology, pulmonology, pediatrics, internal medicine, psychiatry, psychology, otolaryngology, and nursing, as well as other medical practices with an interest in the management of sleep pathology. This area of research is not limited to very young and old patientsâ€"sleep disorders reach across all ages and ethnicities. Sleep Disorders and Sleep Deprivation presents a structured analysis that explores the following: Improving awareness among the general public and health care professionals. Increasing investment in interdisciplinary somnology and sleep medicine research training and mentoring activities. Validating and developing new and existing technologies for diagnosis and treatment. This book will be of interest to those looking to learn more about the enormous public health burden of sleep disorders and sleep deprivation and the strikingly limited capacity of the health care enterprise to identify and treat the majority of individuals suffering from sleep problems.
Download or read book Preterm Birth written by Institute of Medicine and published by National Academies Press. This book was released on 2007-05-23 with total page 791 pages. Available in PDF, EPUB and Kindle. Book excerpt: The increasing prevalence of preterm birth in the United States is a complex public health problem that requires multifaceted solutions. Preterm birth is a cluster of problems with a set of overlapping factors of influence. Its causes may include individual-level behavioral and psychosocial factors, sociodemographic and neighborhood characteristics, environmental exposure, medical conditions, infertility treatments, and biological factors. Many of these factors co-occur, particularly in those who are socioeconomically disadvantaged or who are members of racial and ethnic minority groups. While advances in perinatal and neonatal care have improved survival for preterm infants, those infants who do survive have a greater risk than infants born at term for developmental disabilities, health problems, and poor growth. The birth of a preterm infant can also bring considerable emotional and economic costs to families and have implications for public-sector services, such as health insurance, educational, and other social support systems. Preterm Birth assesses the problem with respect to both its causes and outcomes. This book addresses the need for research involving clinical, basic, behavioral, and social science disciplines. By defining and addressing the health and economic consequences of premature birth, this book will be of particular interest to health care professionals, public health officials, policy makers, professional associations and clinical, basic, behavioral, and social science researchers.
