Download or read book Protecting Group Home Residents as Human Research Subjects written by Regine Dubono and published by Lulu.com. This book was released on 2015-05-07 with total page 364 pages. Available in PDF, EPUB and Kindle. Book excerpt: Residents of group homes have diminished autonomy and as such need protection by advocates outside the mental health system as they are being used in a Human Research Project without their understanding, (informed consent, ) a project which entails more than "minimal risk" and harm their overall health and prevents their recovery. Their diminished functioning is blamed on progression of the disease, when in fact it is the drugcocktails they have to swallow each day that causes that progression toward an early death. The prolonged use of the drugs is highly hazardous, as blogged by Thomas Insel. MD, director of NIMH. Yet the group homes continue to observe what they call "the law." As long as stigma is attached to any population group, their lives are precarious.
Download or read book Desiree s Rehabilitation written by Regine Dubono and published by Lulu.com. This book was released on with total page 286 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Stigma in the Age of Robotism written by Regine DUBONO and published by Lulu.com. This book was released on 2016-07-10 with total page 270 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dubono describes her daughter's mental illness and treatment. After 36 years of psychiatric drugs, her "tirades" were still fresh. In addition she had gained several physical illnesses, while her cognition and functioning had declined into severe disability.. In view of the absence of any health worker in the group home to monitor severe side effects, she concludes that lack of transparency and the fact that high school graduates staff only obeyed orders blind fully, constitutes an enormous violation of patients rights and is an illegal human research project. Radical change was greatly overdue, but would not happen until all legislation made it illegal. As well as demand a more active participation at work highlighting each worker's special skills and talents, and creativity. This fear driven mentality is a monster in the aisle and must be slain before it destroys the very fabric of humanity, progress and liberty. Perhaps this is what Senator Bernie Sanders was referring to.
Download or read book Weird written by Regine Dubono and published by Lulu.com. This book was released on 2015-12-10 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: An incident of discovering bedbugs on a resident's bed in a group home, that sends residents out for a few weeks, makes it possible for one of the residents to stop taking her meds. As a result, she is more awake and touch with reality, and anxious and eager to learn, amazingly inquisitive and eager to make up for her lack of schooling, and motivated to help others.
Download or read book Protection of Human Research Subjects written by D.M. Maloney and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 422 pages. Available in PDF, EPUB and Kindle. Book excerpt: Regulations on human subjects research have evolved over a 20-year period and now provide a formal set of requirements for the conduct of federally sponsored studies. Over time, government regulations, like taboos in primitive societies, develop a life of their own, seemingly dissociated from their origins and justifica tions. When the investigator suffers the burdens of trying to comply with com plex rules, it is easy for him or her to lapse into a frustration that can be eased by being informed or reminded of why the rules were created in the first place and what they were designed to accomplish. Dennis Maloney's work provides a handy historical record of the processes by which the regulations were created and modified. He also recounts his own experience with research at Boys Town and provides instructions on how to cope with the system. It is difficult to find in one place the current status and appropriate citations for regulations as well as the contacts and know-how to obtain more information on the subject. In this respect, by providing a history and guide to interpretation and compliance, "Protection of Human Subjects" is a reference of importance and utility to the investigator entering into or working in the field of biomedical or behavioral research involving human subjects.
Download or read book Handbook of Models for Human Aging written by P. Michael Conn and published by Elsevier. This book was released on 2011-04-28 with total page 1103 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Handbook of Models for Human Aging is designed as the only comprehensive work available that covers the diversity of aging models currently available. For each animal model, it presents key aspects of biology, nutrition, factors affecting life span, methods of age determination, use in research, and disadvantages/advantes of use. Chapters on comparative models take a broad sweep of age-related diseases, from Alzheimer's to joint disease, cataracts, cancer, and obesity. In addition, there is an historical overview and discussion of model availability, key methods, and ethical issues. Utilizes a multidisciplinary approach Shows tricks and approaches not available in primary publications First volume of its kind to combine both methods of study for human aging and animal models Over 200 illustrations
Download or read book Ethics Law And Aging Review Volume 8 written by Marshall B. Kapp, JD, MPH, FCLM and published by Springer Publishing Company. This book was released on 2002-07-31 with total page 184 pages. Available in PDF, EPUB and Kindle. Book excerpt: Perplexing ethical questions emerge when conducting research involving older adult participants. Fundamental ethical concerns often grappled with include the ability to obtain truly voluntary and competent informed consent, the proper role of surrogate decision making in the research context, and the equitable selection of research subjects. This volume brings to the forefront a discussion of how to encourage essential research specifically designed to benefit older persons while protecting the legal and ethical rights of actual and potential older research participants. Highly qualified and diverse contributors analyze and explain some of the most salient and legal conundrums implicated in the design, conduct, interpretation, and application of research protocols that touch on these problems of aging and the aged.
Download or read book National Criminal Justice Thesaurus written by and published by . This book was released on 1989 with total page 516 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Dementias written by Charles Duyckaerts and published by Elsevier. This book was released on 2008-06-09 with total page 936 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume provides a comprehensive understanding of the biology of dementias, including information on advancements in the way these disorders are perceived and studied. From earlier assumptions that cognitive deficits were simply age related, this handbook progresses into complex discussions of the diseases that affect the cortex of the human brain. Clinicians will find extensive diagnostic and research perspectives on a variety of interesting topics, including neuropathology, physiopathology, biology, clinics, and imaging information on all, or most, of the dementing disorders currently known. In addition, chapters devoted to legal and ethical issues give practitioners and health care workers an informative view on complex dementias and the way these disorders affect patients and families. Clinicians in all levels of expertise will find useful and synthetic information. * Comprehensive information on advancements in the study and diagnosis of dementias * Complex discussions of the diseases that affect the cortex of the human brain * Extensive diagnostic and research perspectives on topics including, but not limited to, neuropathology, physiopathology, and groundbreaking imaging techniques * A reference guide that is appropriate for clinicians in all levels of expertise, from researchers to basic health care providers
Download or read book Human Resources Code written by Texas and published by . This book was released on 2007 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Responsible Conduct of Research written by Adil E. Shamoo and published by Oxford University Press. This book was released on 2009-02-12 with total page 441 pages. Available in PDF, EPUB and Kindle. Book excerpt: Recent scandals and controversies, such as data fabrication in federally funded science, data manipulation and distortion in private industry, and human embryonic stem cell research, illustrate the importance of ethics in science. Responsible Conduct of Research, now in a completely updated second edition, provides an introduction to the social, ethical, and legal issues facing scientists today.
Download or read book The Belmont Report written by United States. National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research and published by . This book was released on 1978 with total page 614 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Pediatric Psychopharmacology written by Lawrence Scahill and published by OUP USA. This book was released on 2010-12-14 with total page 837 pages. Available in PDF, EPUB and Kindle. Book excerpt: When the first edition of Pediatric Psychopharmacology published in 2002, it filled a void in child and adolescent psychiatry and quickly establishing itself as the definitive text-reference in pediatric psychopharmacology. While numerous short, clinically focused paperbacks have been published since then, no competitors with the scholarly breadth, depth, and luster of this volume have emerged. In the second edition, Christopher Kratochvil, MD, a highly respected expert in pediatric psychopharmacology, joins the outstanding editorial team led by Dr. Martin and Dr. Scahill. In the new edition, the editors streamline the flow of information to reflect the growth in scientific data since the first edition appeared. The overall structure of the book remains the same, with major sections on underlying biology; somatic interventions; assessment and treatment; and special considerations.
Download or read book The Rights of Patients written by George J. Annas and published by NYU Press. This book was released on 2004-11-15 with total page 413 pages. Available in PDF, EPUB and Kindle. Book excerpt: A washed-up director (Joe Piscopo) agrees to stage a musical in order to clear his debts to a powerful gangster (Paul Sorvino). Michael Paré and Erika Christensen co-star. ~ Jason Buchanan, Rovi
Download or read book Nursing Home Ethics written by Bethel Ann Powers, RN, PhD and published by Springer Publishing Company. This book was released on 2003-09-09 with total page 241 pages. Available in PDF, EPUB and Kindle. Book excerpt: Designated a Doody's Core Title! Winner of an AJN Book of the Year Award! p>Bethel Ann Powers gives a comprehensive and thoughtful examination of the ethical issues that arise in long-term care. The first two chapters set the stage by exploring the pre-nursing home experiences of families living with dementia and, in contrast, how residents and family members experience life in the nursing home. The following chapters contain detailed hypothetical cases that include questions, possible actions, and insightful commentary to illustrate practical approaches to understanding common ethical issues affecting nursing home residents.
Download or read book International Ethical Guidelines for Health Related Research Involving Humans written by Council for International Organizations of Medical Sciences (CIOMS) and published by World Health Organization. This book was released on 2017-01-31 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "In the new 2016 version of the ethical guidelines, CIOMS provides answers to a number of pressing issues in research ethics. The Council does so by stressing the need for research having scientific and social value, by providing special guidelines for health-related research in low-resource settings, by detailing the provisions for involving vulnerable groups in research and for describing under what conditions biological samples and health-related data can be used for research."--Page 4 de la couverture.
Download or read book The Immortal Life of Henrietta Lacks written by Rebecca Skloot and published by Crown. This book was released on 2010-02-02 with total page 386 pages. Available in PDF, EPUB and Kindle. Book excerpt: #1 NEW YORK TIMES BESTSELLER • “The story of modern medicine and bioethics—and, indeed, race relations—is refracted beautifully, and movingly.”—Entertainment Weekly NOW A MAJOR MOTION PICTURE FROM HBO® STARRING OPRAH WINFREY AND ROSE BYRNE • ONE OF THE “MOST INFLUENTIAL” (CNN), “DEFINING” (LITHUB), AND “BEST” (THE PHILADELPHIA INQUIRER) BOOKS OF THE DECADE • ONE OF ESSENCE’S 50 MOST IMPACTFUL BLACK BOOKS OF THE PAST 50 YEARS • WINNER OF THE CHICAGO TRIBUNE HEARTLAND PRIZE FOR NONFICTION NAMED ONE OF THE BEST BOOKS OF THE YEAR BY The New York Times Book Review • Entertainment Weekly • O: The Oprah Magazine • NPR • Financial Times • New York • Independent (U.K.) • Times (U.K.) • Publishers Weekly • Library Journal • Kirkus Reviews • Booklist • Globe and Mail Her name was Henrietta Lacks, but scientists know her as HeLa. She was a poor Southern tobacco farmer who worked the same land as her slave ancestors, yet her cells—taken without her knowledge—became one of the most important tools in medicine: The first “immortal” human cells grown in culture, which are still alive today, though she has been dead for more than sixty years. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer, viruses, and the atom bomb’s effects; helped lead to important advances like in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions. Yet Henrietta Lacks remains virtually unknown, buried in an unmarked grave. Henrietta’s family did not learn of her “immortality” until more than twenty years after her death, when scientists investigating HeLa began using her husband and children in research without informed consent. And though the cells had launched a multimillion-dollar industry that sells human biological materials, her family never saw any of the profits. As Rebecca Skloot so brilliantly shows, the story of the Lacks family—past and present—is inextricably connected to the dark history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of. Over the decade it took to uncover this story, Rebecca became enmeshed in the lives of the Lacks family—especially Henrietta’s daughter Deborah. Deborah was consumed with questions: Had scientists cloned her mother? Had they killed her to harvest her cells? And if her mother was so important to medicine, why couldn’t her children afford health insurance? Intimate in feeling, astonishing in scope, and impossible to put down, The Immortal Life of Henrietta Lacks captures the beauty and drama of scientific discovery, as well as its human consequences.
