Download or read book Pioneer Programs in Palliative Care written by and published by . This book was released on 2000 with total page 244 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Transforming the Culture of Dying written by David Clark and published by Oxford University Press. This book was released on 2013-05-02 with total page 292 pages. Available in PDF, EPUB and Kindle. Book excerpt: Over a period of almost 10 years, the work of the Project on Death in America (PDIA) played a formative role in the advancement of end of life care in the United States. The project concerned itself with adults and children, and with interests crossing boundaries between the clinical disciplines, the social sciences, arts and humanities. PDIA engaged with the problems of resources in poor communities and marginalized groups and settings, and it attempted to foster collaboration across a range of sectors and organizations. Authored by medical sociologist David Clark, whose research career has focused on mapping, archiving and analyzing the history and development of hospice, palliative care and related end of life issues, this book examines the broad, ambitious conception of PDIA - which sought to 'transform the culture of dying in America' - and assesses PDIA's contribution to the development of the palliative care field and to wider debates about end of life care within American society. Chapters consider key issues and topics tackled by PDIA grantees which include: explorations of the meanings of death in contemporary American culture; the varying experiences of care at the end of life (in different settings, among different social and ethnic groups); the innovations in service development and clinical practice that have occurred in the US in response to a growing awareness of and debate about end of life issues; the emerging evidence base for palliative and end of life care in the US; the maturation of a field of academic and clinical specialization; the policy and legal issues that have shaped development, including the ethical debate about assisted suicide and the Oregon experience; the opportunities and barriers that have been encountered; and the prospects for future development. A final chapter captures developments and milestones in the field since PDIA closed in 2003, and some of the challenges going forward.
Download or read book Sick To Death and Not Going to Take It Anymore written by Joanne Lynn and published by Univ of California Press. This book was released on 2004-10-11 with total page 218 pages. Available in PDF, EPUB and Kindle. Book excerpt: A manifesto arguing for changing the US health care system to provide better care for serious chronic illness and disability at the end of life.
Download or read book Palliative Care written by Diane E. Meier and published by John Wiley & Sons. This book was released on 2011-01-07 with total page 470 pages. Available in PDF, EPUB and Kindle. Book excerpt: Palliative Care is the first book to provide a comprehensive understanding of the new field that is transforming the way Americans deal with serious illness. Diane E. Meier, M.D., one of the field's leaders and a recipient of a MacArthur Foundation "genius award" in 2009, opens the volume with a sweeping overview of the field. In her essay, Dr. Meier examines the roots of palliative care, explores the key legal and ethical issues, discusses the development of palliative care, and presents ideas on policies that can improve access to palliative care. Dr. Meier's essay is followed by reprints of twenty-five of the most important articles in the field. They range from classic pieces by some of the field's pioneers, such as Eric Cassel, Balfour Mount, and Elizabeth Kübler-Ross, to influential newer articles on topics such as caregiving and cost savings of palliative care. The reprints cover a wide range of topics including: Why the care of the seriously ill is so important Efforts to cope with advanced illness Legal and ethical issues Pain management Cross-cultural issues Philosophical perspective The demand for palliative care has been nothing short of stunning largely because of palliative care's positive impact on both the quality and the cost of care provided to seriously ill individuals. By providing a wide-ranging perspective on this growing field, this book will serve as a guide for developing meaningful approaches that will lead to better health care for all Americans.
Download or read book Advanced Practice Palliative Nursing written by Constance Dahlin and published by Oxford University Press. This book was released on 2016-02-25 with total page 752 pages. Available in PDF, EPUB and Kindle. Book excerpt: Advanced Practice Palliative Nursing is the first text devoted to advanced practice nursing care of the seriously ill and dying. This comprehensive work addresses all aspects of palliative care including physical, psychological, social, and spiritual needs. Chapters include: symptoms common in serious illness, pediatric palliative care, spiritual and existential issues, issues around the role and function of the advanced practice nurse (APN), reimbursement, and nursing leadership on palliative care teams. Each chapter contains case examples and a strong evidence base to support the highest quality of care. The text is written by leaders in the field and includes authors who have pioneered the role of the advanced practice nurse in palliative care. This volume offers advanced practice content and practical resources for clinical practice across all settings of care and encompassing all ages, from pediatrics to geriatrics.
Download or read book The Pursuit of Life written by Robert Fine and published by Penn State Press. This book was released on 2023-01-06 with total page 277 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume examines crucial concerns in palliative care, including the proper balance between comfort and cure for the patient, the integration of spiritual well-being, and the challenges of providing care in the absence of basic medical services and supplies. In the first section, palliative-care pioneers Constance Dahlin, Eduardo Bruera, Neil MacDonald, and Declan Walsh recount the early history of the discipline. Part 2 discusses the role of poetry, prose, plays, and other aspects of the humanities in the practice of palliative care. Part 3 explores essential current issues in the field, including autonomy, the use of opioids, and the impact of artificial intelligence on the evolution of palliative care. The final section focuses on the spiritual dimensions of pain and suffering. Rich with anecdotes and personal stories and featuring contributions from pioneers and current practitioners, The Pursuit of Life is an essential assessment of the past, present, and future of palliative care. In addition to the editors, the contributors include W. Andrew Achenbaum, Stacy L. Auld, Elena Pagani Bagliacca, Costantino Benedetti, Courtenay Bruce, Eduardo Bruera, Joseph Calandrino, Jim Cleary, Constance Dahlin, Andrea Ferrari, Mauro Ferrari, Joseph J. Fins, Bettie Jo Tennon Hightower, Kathryn B. Kirkland, Robin W. Lovin, Neil MacDonald, Charles Millikan, Dominique J. Monlezun, Tullio Proserpio, Giovanna Sironi, Daniel P. Sulmasy, and Declan Walsh.
Download or read book Core Curriculum for the Generalist Hospice and Palliative Nurse written by and published by Kendall Hunt. This book was released on 2002 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book End of Life Care A Practical Guide Second Edition written by Barry M. Kinzbrunner and published by McGraw Hill Professional. This book was released on 2011-01-07 with total page 881 pages. Available in PDF, EPUB and Kindle. Book excerpt: The most thorough text available on providing patients and families with quality end-of-life care "The study/learning questions at the end of each chapter make this book an excellent resource for both faculty who wish to test knowledge, and individual learners who wish to assess their own learning....The book is well written and easy to read. 3 Stars."--Doody's Review Service End of Life Care: A Practical Guide offers solution-oriented coverage of the real-world issues and challenges that arise daily for clinicians caring for those with life-limiting illnesses and conditions. End of Life Care: A Practical Guide includes specific clinical guidance for pain management and other common end of life symptoms. The second edition has been made even more essential with the addition of chapter-ending Q&A for self assessment and board review, new coverage of multicultural medicine, an increased number of algorithms to assist decision making on complicated clinical, legal, and ethical issues. Six sections walk you through the complexities of caring for patients who are nearing the end of life: Preparing Patients for End of Life Management of Symptoms Diagnostic and Invasive Interventions Ethical Dilemmas Special Populations Diversity No other text better assists physicians and other clinicians in providing patients near the end of life with support, guidance, and hope in the face of “hopelessness” than End of Life Care: A Practical Guide.
Download or read book Palliative Care Nursing written by Marianne LaPorte Matzo and published by Springer Publishing Company. This book was released on 2010 with total page 595 pages. Available in PDF, EPUB and Kindle. Book excerpt: Print+CourseSmart
Download or read book Choices in Palliative Care written by Arthur Blank and published by Springer Science & Business Media. This book was released on 2007-07-21 with total page 249 pages. Available in PDF, EPUB and Kindle. Book excerpt: Choices in Palliative Care brings together leading experts to spotlight core issues in the field and identify ways PC can fill gaps in current care systems. This far-sighted volume redefines palliative care as interdisciplinary and integrative, bridging acute and long-term care to respond to clients’ evolving needs. Those teaching health service delivery courses will find this material especially useful.
Download or read book Medicare Matters written by Christine Cassel and published by Univ of California Press. This book was released on 2007-03-29 with total page 273 pages. Available in PDF, EPUB and Kindle. Book excerpt: “One of the great leaders of our time in American medicine tackles one of the great health-care issues of our generation: the design, fate, and principles of Medicare as a system. Care for our aging population and coverage through Medicare provide key testing grounds for our nation’s moral and technical capacity to extend health and relieve suffering. Dr. Cassel is unique in her ability to bridge the worlds of clinical science, health-care policy, and social ethics as she helps us think through how best to meet that test. This book is a welcome guide and a clear charter for a nation that cares—or ought to care—deeply about addressing the needs of its aging population.”—Donald M. Berwick, MD, MPP, President and CEO, Institute for Healthcare Improvement
Download or read book Conversations on Dying written by Phil Dwyer and published by Dundurn. This book was released on 2016-04-16 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: The story of the end-of-life experience of a palliative care physician who helped thousands of patients to die well. We all die. Most of us spend the majority of our lives ignoring this uncomfortable truth, but Dr. Larry Librach dedicated his life and his career to helping his patients navigate their final journey. Then, in April 2013, Larry was diagnosed with terminal pancreatic cancer. Unlike the majority of us, Larry knew the death he wanted. He wanted to die at home, surrounded by his family: his wife of forty years, his children, and his grandchildren. He did. He was peaceful and calm at the end. Larry proved that the “good death” isn’t a myth. It can be done, and he showed us how. Ever the teacher, Larry made his last journey a teachable moment on how to die the best death possible, even with a pernicious disease. As hard as it is to guide patients toward dying well, it is far harder to live those precepts day by day as the clock ticks down to one’s own death, but Larry, together with author Phil Dwyer, chronicled his final journey with courage and humour.
Download or read book Hospice and Palliative Care written by Stephen R. Connor and published by Taylor & Francis. This book was released on 2009-04-02 with total page 279 pages. Available in PDF, EPUB and Kindle. Book excerpt: Offers a comprehensive overview of the practice of hospice, as well as the challenges faced by and the direction of the hospice movement. This book provides chapters that address key topics such as the goals and importance of community involvement, outcome measurement, and the manner in which hospices address death, grief, and bereavement.
Download or read book Principles and Practice of Palliative Care and Supportive Oncology written by Ann M. Berger and published by Lippincott Williams & Wilkins. This book was released on 2007 with total page 960 pages. Available in PDF, EPUB and Kindle. Book excerpt: The first truly interdisciplinary book on supportive oncology and palliative care returns with a new edition that serves as a practical guide to the management of the myriad symptoms and quality-of-life issues that occur in patients with cancer—including newly diagnosed patients, patients undergoing treatment, cancer survivors, and patients whose disease is no longer curable. The interdisciplinary group of contributors includes leading experts in hospice care and palliative medicine, oncology, nursing, neurology, psychiatry, anesthesiology, and pharmacology. This completely revised edition features new chapters on caregiver stress, hepatic failure, pulmonary failure, research issues in palliative care, and beginning a palliative care program. Content has been aligned with the needs of today's palliative care fellowship programs and includes additional tables, algorithms, and flow charts.
Download or read book Models and Strategies to Integrate Palliative Care Principles into Care for People with Serious Illness written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2018-02-28 with total page 103 pages. Available in PDF, EPUB and Kindle. Book excerpt: Palliative care is the interdisciplinary specialty focused on improving quality of life for people with serious illness and their families. This interdisciplinary care is provided by doctors, nurses, social workers, chaplains and others who work together with the patient's other doctors to provide an extra layer of support. Such care is appropriate for people at any age and at any stage in a serious illness, and can be provided together with curative treatment to address clinical, emotional, psychosocial and spiritual concerns of the patient and their family. To better understand how the principles of palliative care can be integrated into the overall provision of care and services to those facing serious illness, the Roundtable on Quality Care for People with Serious Illness held a public workshop in April 2017. This publication summarizes the presentations and discussions from the workshop.
Download or read book Pediatric Palliative Care Global Perspectives written by Caprice Knapp and published by Springer Science & Business Media. This book was released on 2012-01-02 with total page 463 pages. Available in PDF, EPUB and Kindle. Book excerpt: The first of its kind, this book describes pediatric palliative care in more than 23 countries. Each region in the world is covered and countries included are both resource poor and rich. Authors are multidisciplinary and regarded nationally and internationally in their field. Clinicians, advocates, policymakers, funders, and researchers will learn how programs were developed and implemented in each country. Authors describe children for whom pediatric palliative care is needed and provided for in their country. When applicable, a brief history of pediatric palliative care is included noting especially policy changes and legislative acts. For example, the chapter on Poland describes how pediatric palliative care grew from the Catholic church into a national movement spearheaded by several health care workers. The Pole national spirit that brought them through a change in political regime has also been a driving force in the pediatric palliative care movement. The chapter on South Africa, for example, illustrates how a resource poor country has been able to leverage philanthropic and government funding to make its dream of having an infrastructure of pediatric palliative care a reality. These are just a few examples of the inspiring stories that are included in this book. Readers from countries who wish to start a pediatric palliative care program, or advance an existing program, will learn valuable lessons from others who have faced similar barriers. Introduction and concluding chapters highlight the strengths and weaknesses of the modern pediatric palliative care movement.
Download or read book When Children Die written by Institute of Medicine and published by National Academies Press. This book was released on 2003-02-09 with total page 713 pages. Available in PDF, EPUB and Kindle. Book excerpt: The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.
