Download or read book Perspectives on the Person with Dementia and Family Caregiving in Ireland written by Suzanne Cahill and published by Peter Lang Limited, International Academic Publishers. This book was released on 2021 with total page 148 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is all about dementia in Ireland and what has and has not been happening in a country where dementia has been a taboo topic for so long. In particular it examines the dementia landscape since late 2014, following the launch of Ireland's first National Dementia Strategy. A lot has happened in Ireland since that time but a lot more needs to happen for people to live well with dementia and have their human rights upheld. There are an estimated 55,000 Irish people living with dementia and these figures are set to triple by 2050. Although topics explored in the book, such as obtaining a diagnosis, accessing home care services and moving from home into a nursing home relate to Ireland, they are discussed against the backdrop of policy, practice and research developments in dementia in other parts of the world. In this way the book provides the reader with a wealth of information including research evidence, best practice guidelines and international expertise. The book has been dedicated to Mnánah 'Éireann, in recognition of the hard physical and emotional work, caregivers, mostly women do behind closed doors. Throughout the book, an appeal is made for more state support to be given to these formal and informal caregivers.
Download or read book Landscapes of Care written by Andrew Power and published by Routledge. This book was released on 2016-04-15 with total page 261 pages. Available in PDF, EPUB and Kindle. Book excerpt: Given the increasing shift of care from state residential services to community-based support, this book examines the complex geographies of family caregiving for young adults with intellectual disabilities. It traces how family ’carers’ are directly and indirectly affected by a broad array of law and policy, including family policy, disability legislation, and health and community care restructuring policy. Each of these has material and institutional effects and is premised on the discourses, ideologies, and interactions in the state over time. Focusing on the welfare models of England, the US and Ireland, this book compares the welfare ideologies in each country and examines how the specific historical, cultural, and political contexts give rise to different landscapes of care and disability. Further, the book explores the unique lifeworlds of family carers of young adults with intellectual disability within the broader landscape of care in which they are situated.
Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
Download or read book Dementia Care International Perspectives written by Alistair Burns and published by Oxford University Press. This book was released on 2019-02-14 with total page 384 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dementia is a challenge facing health and social care around the world. Due to factors such as growing elderly populations, improved recognition, and diagnosis, the number of people with the illness is set to double over the next two decades. As a result, improving the quality of life for dementia patients and carers is an international priority. Dementia Care: International Perspectives is a comprehensive resource offering a global view of the clinical management and resources offered to carers and patients. Featuring 47 country profiles across 5 continents, this resource offers invaluable insights into dementia care across borders and different cultures. Each country profile features a helpful summary of key points, and contains an up-to-date, concise discussion on the clinical management of dementia within the country. This unique compendium has been written in collaboration with the International Dementia Alliance (IDEAL) to develop understandings of clinical practice and services available around the world, hoping to unify ideas and ultimately improve quality of care. Written and edited by the world's leading experts, Dementia Care: International Perspectives is a useful tool for researchers, clinicians, policy makers, academics, and international commentators wishing to expand their knowledge of the subject.
Download or read book Critical Gerontology for Social Workers written by Sandra Torres and published by Policy Press. This book was released on 2023-10 with total page 212 pages. Available in PDF, EPUB and Kindle. Book excerpt: This original collection explores how critical gerontology can make sense of old age inequalities to inform social work research, policy and practice. Engaging with key debates on age-related human rights, the conceptual focus addresses the current challenges and opportunities facing those who work with older people.
Download or read book Exploring Communication Between Family Caregivers and People with Alzheimer s type Dementia written by and published by . This book was released on 2011 with total page 233 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Dementia and Human Rights written by Suzanne Cahill and published by Policy Press. This book was released on 2018-03-28 with total page 311 pages. Available in PDF, EPUB and Kindle. Book excerpt: The time has come to further challenge biomedical and clinical thinking about dementia, which has for so long underpinned policy and practice. Framing dementia as a disability, this book takes a rights-based approach to expand the debate. Applying a social constructionist lens, it builds on earlier critical perspectives by bringing together concepts including disability, social inclusion, personhood, equality, participation, dignity, empowerment, autonomy and solidarity. Launching the debate into new and exciting territory, the book argues that people living with dementia come within the UN Convention on the Rights of Persons with Disabilities and therefore have full entitlement to all the rights the Convention enshrines. A human rights-based approach has not to date been fully applied to interrogate the lived experience and policy response to dementia. With the fresh analytical tools provided in this book, policy makers and practitioners will will gain new insights into how this broader perspective can be used to further promote the quality of life and quality of care for all those affected by dementia.
Download or read book Dementia Care written by Mala Kapur Shankardass and published by Springer Nature. This book was released on 2021-09-03 with total page 412 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book discusses the contemporary medico-social, psychological, legal, and therapeutic concerns related to people affected by dementia as a patient or as a caregiver. It provides global emerging responses to dementia. It highlights different dimensions of dementia in terms of issues, concerns, policies, and strategies all around the globe. The contributing authors present issues from cross-cultural education visible in dementia studies and discuss the power of music, art therapy, artistic collaborations, and many innovative practices in dealing with dementia. Written by international specialists from various disciplines, the chapters include challenges and emerging issues related to the role of family caregivers, the concern with vulnerability to elder abuse and neglect, and the role of technology in dementia care. The book provides a diverse perspective to dementia care not covered in such a broad way by any other books on the topic. This book is intended for academics from a wide range of fields such as sociology, geriatrics, community medicine, public health, clinical psychology, social work all of which, collectively, bear on the problem and the solutions for better dementia care.
Download or read book Perspective Taking by Dementia Family Caregivers written by Patricia Egan and published by . This book was released on 2020 with total page 119 pages. Available in PDF, EPUB and Kindle. Book excerpt: Objective: Dementia care prioritizes quality of life (QOL) as a key outcome. As dementia progresses, family caregivers are routinely called upon to proxy assess QOL of their family member with dementia. Proxy assessment is not ideal because proxy- and self-reports differ systematically. Previous research has focused on factors associated with proxy bias, but little is understood about how the empathetic, cognitive, and affective processes used by proxy reporters contribute to proxy difference. This mixed methods study explored the empathetic, cognitive, and affective processes used during proxy assessment and examined how affect and QOL scores changed when caregivers were instructed in their empathetic process of perspective taking. Method: Mixed method interviews were conducted with 37 family caregivers of community-dwelling people experiencing dementia. Caregivers completed the Quality of Life-Alzheimer's Disease (QOL-AD), Caregiver Version, following standard instructions and then again following instructions to assess as they imagined their care recipient would. Interviews explored caregivers' empathetic, cognitive, and affective processes. Transcripts were analyzed using directed content analysis. QOL scores were analyzed using t-tests. Results: First, QOL-AD domain scores changed in both directions after perspective was directed, though domain scores primarily improved after directed to take the perspective of the care recipient. Mean changes were statistically significant except for the QOL-AD domains of marriage and family. Second, caregivers' empathetic process included use of the first-, second-, and third person perspectives. Some caregivers demonstrated blocked perspective, uncertain how their care recipient might respond. Third, caregivers used two cognitive processes, integration and interpretation. Using integration, caregivers considered the interaction of the caregiving dyad, the mutuality of the dyad, and the caregiver's individual experience. Using interpretation, caregivers considered dimensions of the person, the environment, time, and comparison making. Fourth, caregivers reported more positive affect when assessing as they believed their care recipient would as compared to assessing under standard QOL-AD instructions. Implications: Routine use of proxy reported numeric QOL scores makes sense with aggregated data because family caregivers provide well informed and comprehensive reports. Reliance on proxy reported numeric QOL scores in care planning, however, seems best if scores are explored for meaning (e.g., brief interview).
Download or read book Care Giving In Dementia 2 written by Gemma Jones and published by Routledge. This book was released on 2013-11-19 with total page 393 pages. Available in PDF, EPUB and Kindle. Book excerpt: Care-giving in dementia is a new speciality with its own rapidly growing body of knowledge. This second volume of contributions from leading practitioners and researchers around the world is a handbook for all those involved in hands on caring, or in planning care, for persons with dementia. Volume 2 of Care-Giving in Dementia provides a rich source of information on most recent thinking about individualised long-term care of both dementia sufferers and their families. Key themes in Volume 2 are: the subjective experience of dementia the provision of care for family carers differing cultural perspectives of dementia the crucial importance of life-history information for understanding a person's reaction to their illness. Chapters on the search for an ethical framework and the best environment within which to provide care are particularly timely.
Download or read book Involving Families in Care Homes written by John Keady and published by Jessica Kingsley Publishers. This book was released on 2007-09-15 with total page 147 pages. Available in PDF, EPUB and Kindle. Book excerpt: Families often wrestle with the decision to move a person with dementia into a care home. The decision can be highly charged and emotional, involving feelings of loss, sadness and guilt. Moreover, developing a good relationship between the family and the care home is not an easy matter. In this accessible guide the authors take person-centred dementia care a step forward by outlining ways in which care homes can help families to become partners in the caring process. Using case examples, quotations and research-based evidence, the authors offer practical advice and good practice guidelines for supporting relatives who choose to be involved in the care of people with dementia living in a care home, as well as highlighting the value of this involvement. The book is written in an easy-to-read style and incorporates useful features such as checklists for reviewing current practices and summaries of key points for each chapter. An invaluable resource for care home managers and staff, this book will also be helpful for families of people with dementia, as well as for students and researchers interested in dementia care practice.
Download or read book Partnerships In Community Mental Health Nursing And Dementia Care Practice Perspectives written by Keady, John and published by McGraw-Hill Education (UK). This book was released on 2007-08-01 with total page 369 pages. Available in PDF, EPUB and Kindle. Book excerpt: A companion volume to 'Community Mental Health Nursing and Dementia Care'. Taken together the two volumes provide a rounded and evidence-based account of the complexity, breadth and diversity of community mental health nursing practice in this specialist field of care delivery.
Download or read book Perspectives on Palliative and End of Life Care written by Rebecca S Allen and published by Routledge. This book was released on 2018-06-13 with total page 188 pages. Available in PDF, EPUB and Kindle. Book excerpt: Individuals and families face challenges at the end of life that can vary significantly depending on social and cultural contexts, yet more than ever is now known about the needs that cut across the great diversity of experiences in the face of dying and death. A number of behavioural interventions and clinical approaches to addressing these needs have been developed and are available to help providers care for clients and assist them in achieving their goals. Perspectives on Palliative and End-of-Life Care: Disease, Social and Cultural Contexts explores how these interventions can be used to address a range of issues across social and cultural contexts for those in need of end of life care. With perspectives from experienced clinicians, providers, and caregivers from around the world, the book offers a strong foundation in contemporary evidence-based practice alongside seasoned practice insights from the field and explores interventions for people as diverse as HIV caregivers in Africa and individuals dying with dementia. In addition, readers will learn about the process of caring for individuals with chronic illnesses including severe mental illness; weigh the impact of policy regulations on the availability of and access to palliative care and interventions; and be able to compare the different issues experienced by family caregivers and formal caregivers. As the companion volume to Perspectives on Behavioural Interventions in Palliative and End-of-Life Care, this book will be of interest to a wide variety of individuals, such as academics, researchers and postgraduates in the fields of mental health, medicine, psychology and social work. It will also be essential reading for healthcare providers and trainees from psychosocial and palliative medicine, social work and nursing.
Download or read book The Perspectives of People with Dementia written by Heather Wilkinson and published by Jessica Kingsley Publishers. This book was released on 2002 with total page 260 pages. Available in PDF, EPUB and Kindle. Book excerpt: The text focuses on projects which have taken different approaches to working with people with dementia in research, including examining the process of interviewing people with dementia whose first language is not English and encouraging people with dementia to participate in the research analysis.
Download or read book Meeting the Challenge of Caring for Persons Living with Dementia and Their Care Partners and Caregivers written by National Academies of Sciences Engineering and Medicine and published by . This book was released on 2021-11-23 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book At the Coalface written by Máire O’Dwyer and published by Orpen Press. This book was released on 2021-04-14 with total page 178 pages. Available in PDF, EPUB and Kindle. Book excerpt: A comprehensive guide for Irish families caring for older relatives Life is all about transitions and learning how to cope with them, and recent decades have brought about a new phase of life for many people – the caring phase – during which they care for one or more parents or older relatives. Caring has proved a challenge for both society and individuals, with many people experiencing a steep and testing learning curve. At the Coalface is for families entering or experiencing a period of caring for an older relative, providing an ‘A to Z’ of family caring. Extensive practical information is combined with guidance on family relationships and the impacts of caring on emotional and physical health. The book is arranged around six core areas: An introduction to caring Everyday caring and working with the health system Finances, managing the home and legal issues Getting help, including applying for financial aid and grants Relationships and the emotional impact of caring Coping and self-care Written by an author with a decade of family caring experience and who has worked with leading carers organisation Care Alliance Ireland, At the Coalface provides Irish families with the know-how to confidently navigate the caring situation and to provide the best possible home care for their older relatives. Aimed specifically at Irish carers, and including contact details for organisations that can provide help in specific areas, At the Coalface is essential reading for anyone caring for an older relative and for those supporting carers. Máire O’Dwyer is a writer, editor and trainer who previously worked as a solicitor and software developer. Máire has many years’ experience in the area of family caring through her work with leading carers organisation Care Alliance Ireland. She wrote this book to pass on the knowledge gained from that work and during a decade of caring with her family for their parents.
Download or read book Caring for People with Dementia written by Christine Brown Wilson and published by SAGE. This book was released on 2017-03-27 with total page 217 pages. Available in PDF, EPUB and Kindle. Book excerpt: Skills in caring for people with dementia are increasingly demanded of all health care practitioners as the numbers of diagnosed increase. Caring for People with Dementia presents Christine Brown Wilson’s latest research into improving dementia care for both non-expert students and junior staff as well as more senior managers. The text first guides the reader through the underpinning theory behind the different approaches to person centred and relationship centred care and provides case scenarios with a range of practical strategies staff and students have developed and implemented. It then presents the different levels of the organisational change using practical strategies adopting a person centred and relationship centred approach involving the person with dementia and their families. This book will be indispensable reading for all nursing and healthcare students and practitioners who want to improve the quality of life for people with dementia. Christine Brown Wilson is Associate Professor at the University of Queensland, Australia.
