Download or read book Personal Data and Informed Consent in an Educational Context written by and published by . This book was released on 2020 with total page 172 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Narrative Approach to Informed Consent written by Fiona Mayne and published by Routledge. This book was released on 2021-11-15 with total page 182 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Narrative Approach to Informed Consent: Empowering Young Children’s Rights and Meaningful Participation is a practical guide for researchers who want to engage young children in rights-based, participatory research. This book presents the Narrative Approach, an original and innovative method to help children understand their participation in research. This approach moves away from traditional paper-based consent to tailor the informed consent process to the specific needs of young children. Through the Informing Story, which employs a combination of interaction, information and narrative, this method enables children to comprehend concepts through storytelling. Researchers are stepped through the development of an Informing Story so that they can deliver accurate information to young children about what their participation in research is likely to involve. To further inform practice, the book documents the implementation of the Narrative Approach in four case studies demonstrating the variety of settings in which the method can be applied. The Narrative Approach to Informed Consent addresses the rights of young children to be properly researched, expands opportunities for their active and engaged research participation, and creates a unique conceptual ethical space within which meaningful informed consent can occur. This book will be an invaluable tool for novice and experienced researchers and is applicable to a wide range of education and non-education contexts.
Download or read book Putting People on the Map written by National Research Council and published by National Academies Press. This book was released on 2007-02-22 with total page 176 pages. Available in PDF, EPUB and Kindle. Book excerpt: Precise, accurate spatial information linked to social and behavioral data is revolutionizing social science by opening new questions for investigation and improving understanding of human behavior in its environmental context. At the same time, precise spatial data make it more likely that individuals can be identified, breaching the promise of confidentiality made when the data were collected. Because norms of science and government agencies favor open access to all scientific data, the tension between the benefits of open access and the risks associated with potential breach of confidentiality pose significant challenges to researchers, research sponsors, scientific institutions, and data archivists. Putting People on the Map finds that several technical approaches for making data available while limiting risk have potential, but none is adequate on its own or in combination. This book offers recommendations for education, training, research, and practice to researchers, professional societies, federal agencies, institutional review boards, and data stewards.
Download or read book ADDRESSING EQUITY AND INCLUSION IN AI POWERED EDUCATIONAL TECHNOLOGIES OPPORTUNITIES AND CONCERNS written by and published by kitab writing publication. This book was released on 2024-03-09 with total page 78 pages. Available in PDF, EPUB and Kindle. Book excerpt: Artificial Intelligence (AI) has emerged as a transformative technology across various industries, including education. With its potential to revolutionize the learning process, AI is paving the way for personalized education, adaptive learning, and improved educational outcomes. This article delves into the background of AI in education, exploring its evolution, applications, benefits, and challenges. Ethical considerations and responsible AI use will gain prominence, ensuring equity, privacy, and transparency in AI-enabled learning environments.
Download or read book Minding the data written by UNESCO and published by UNESCO Publishing. This book was released on 2022-05-10 with total page 54 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Ethical Conduct of Clinical Research Involving Children written by Institute of Medicine and published by National Academies Press. This book was released on 2004-07-09 with total page 445 pages. Available in PDF, EPUB and Kindle. Book excerpt: In recent decades, advances in biomedical research have helped save or lengthen the lives of children around the world. With improved therapies, child and adolescent mortality rates have decreased significantly in the last half century. Despite these advances, pediatricians and others argue that children have not shared equally with adults in biomedical advances. Even though we want children to benefit from the dramatic and accelerating rate of progress in medical care that has been fueled by scientific research, we do not want to place children at risk of being harmed by participating in clinical studies. Ethical Conduct of Clinical Research Involving Children considers the necessities and challenges of this type of research and reviews the ethical and legal standards for conducting it. It also considers problems with the interpretation and application of these standards and conduct, concluding that while children should not be excluded from potentially beneficial clinical studies, some research that is ethically permissible for adults is not acceptable for children, who usually do not have the legal capacity or maturity to make informed decisions about research participation. The book looks at the need for appropriate pediatric expertise at all stages of the design, review, and conduct of a research project to effectively implement policies to protect children. It argues persuasively that a robust system for protecting human research participants in general is a necessary foundation for protecting child research participants in particular.
Download or read book Research Methods in Education written by Louis Cohen and published by Routledge. This book was released on 2002-09-11 with total page 766 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is a new edition of one of our best-selling textbooks. The authors have thoroughly updated the fourth edition and included more text on current developments in research practice, action research, developments in ICT, questionnaire design, ethnographic research, conducting needs analysis, constructing and using tests, observational methods, reliability and validity, ethical issues and curriculum research. The entire text has been redesigned to cater for the increasingly sophisticated needs of the educational researcher. The new edition is more comprehensive, up-to-date and user-friendly, with increased accessibility. The authors, who are experienced teachers in the field, have produced a better written book (if that's possible) containing readable and realistic views of research and methodology, and show how to interpret the data.
Download or read book Registries for Evaluating Patient Outcomes written by Agency for Healthcare Research and Quality/AHRQ and published by Government Printing Office. This book was released on 2014-04-01 with total page 396 pages. Available in PDF, EPUB and Kindle. Book excerpt: This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
Download or read book Improving Access to and Confidentiality of Research Data written by National Research Council and published by National Academies Press. This book was released on 2000-09-11 with total page 75 pages. Available in PDF, EPUB and Kindle. Book excerpt: Improving Access to and Confidentiality of Research Data summarizes a workshop convened by the Committee on National Statistics (CNSTAT) to promote discussion about methods for advancing the often conflicting goals of exploiting the research potential of microdata and maintaining acceptable levels of confidentiality. This report outlines essential themes of the access versus confidentiality debate that emerged during the workshop. Among these themes are the tradeoffs and tensions between the needs of researchers and other data users on the one hand and confidentiality requirements on the other; the relative advantages and costs of data perturbation techniques (applied to facilitate public release) versus restricted access as tools for improving security; and the need to quantify disclosure risksâ€"both absolute and relativeâ€"created by researchers and research data, as well as by other data users and other types of data.
Download or read book Philosophy in Education written by KHRITISH SWARGIARY and published by LAP. This book was released on 2023-10-01 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Philosophy in Education: Shaping the 22nd Century Minds" offers a comprehensive exploration of the evolving landscape of education in the 22nd century. As society faces unprecedented challenges and opportunities, the philosophy of education remains a guiding force in nurturing the minds that will shape the future. This book provides insights into the philosophical underpinnings of 22nd-century education and encourages critical thinking about the role of education in shaping a better world for generations to come.
Download or read book Learning Analytics in Higher Education written by Jaime Lester and published by Routledge. This book was released on 2018-08-06 with total page 200 pages. Available in PDF, EPUB and Kindle. Book excerpt: Learning Analytics in Higher Education provides a foundational understanding of how learning analytics is defined, what barriers and opportunities exist, and how it can be used to improve practice, including strategic planning, course development, teaching pedagogy, and student assessment. Well-known contributors provide empirical, theoretical, and practical perspectives on the current use and future potential of learning analytics for student learning and data-driven decision-making, ways to effectively evaluate and research learning analytics, integration of learning analytics into practice, organizational barriers and opportunities for harnessing Big Data to create and support use of these tools, and ethical considerations related to privacy and consent. Designed to give readers a practical and theoretical foundation in learning analytics and how data can support student success in higher education, this book is a valuable resource for scholars and administrators.
Download or read book Teaching and Learning in Higher Education written by Elizabeth Cleaver and published by SAGE. This book was released on 2018-06-28 with total page 401 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book explores best practice approaches to undertaking enquiry into learning and teaching in higher education for staff from all academic disciplines. A general introduction to the methods most commonly used in undertaking enquiry in the field of education is complemented by chapters exploring how research methods from a range of disciplinary areas can be adapted and used for educational enquiry. New to this second edition: · Chapters on interdisciplinary educational enquiry in geography and using ethnographic methods for educational enquiry · New case studies and suggested activities · A reflective final chapter inviting readers and their institutions to develop and promote an organisational culture founded on critical enquiry This is essential reading for anyone undertaking HE qualifications in learning and teaching (including PGCTLHE and PGCAP) and for academics wishing to apply their skills of research and enquiry to their learning and teaching practice.
Download or read book Rethinking Informed Consent in the Big Data Age written by Adam Andreotta and published by . This book was released on 2025-02 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "In the "big data age", providing informed consent online has never been more challenging. Countless companies collect and share our personal data through devices, apps, and websites, fuelling a growing data economy and the emergence of surveillance capitalism. Few of us have the time to read the associated privacy policies and terms and conditions, and thus are often unaware of how our personal data are being used. This is a problem, as in the last few years, large tech companies have abused our personal data. As privacy self-management, through the mechanism of providing online consent, has become increasingly difficult, some have argued that surveillance capitalism, and the data economy more broadly, need to be overthrown. This book presents a different perspective. It departs from the concept of revolutionary change to focus on pragmatic, incremental solutions tailored to everyday contexts. It scrutinizes how consent is currently sought and provided online and offers suggestions about how online consent practices can be improved upon. These include: the possibility of subjecting consent-gathering practices to ethics committees for review; the creation of visual-based consent agreements and privacy policies, to help with transparency and engagement; the development of software to protect privacy; and the idea of automated consent functionalities that allow users to bypass the task of reading vast amounts of online consent agreements. The author suggests that these "small-scale" changes to online consent-obtaining procedures, could, if successfully implemented, provide us with a way of self-managing our privacy in a way that avoids a revolutionary dismantling of the data economy. In the process, readers are encouraged to rethink the very purpose of providing inform consent online. Rethinking Informed Consent in the Big Data Age will appeal to researchers in normative ethics, applied ethics, philosophy of law, and the philosophy of AI. It will also be of interest to business scholars, communication researchers, students, and those in industry"--
Download or read book Doing Qualitative Research in Education Settings Second Edition written by J. Amos Hatch and published by State University of New York Press. This book was released on 2023-09-01 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: Doing Qualitative Research in Education Settings, Second Edition is a methods book that speaks directly to qualitative researchers in the field of education, providing a step-by-step guide to the development of a research project. Written in accessible language, the book emphasizes learning how to do qualitative work. Specific examples from real studies, using real data and demonstrating real analyses, are provided throughout. The book is designed to guide doctoral candidates through the dissertation process, from unpacking assumptions and identifying research questions, through project design, data collection and analysis, to writing the final draft. Recommendations for publishing qualitative work are included. New to the second edition are a comprehensive updating of citations and references, new sections addressing the impact of computer-mediated communication (especially as related to data collection and analysis), an overview of the recent history of qualitative research, and an overall refresh that acknowledges the many changes that have occurred in society and academe since the original publication.
Download or read book The Ethics of Research Biobanking written by Jan Helge Solbakk and published by Springer Science & Business Media. This book was released on 2009-07-31 with total page 361 pages. Available in PDF, EPUB and Kindle. Book excerpt: Biobanking, i.e. storage of biological samples or data emerging from such samples for diagnostic, therapeutic or research purposes, has been going on for decades. However, it is only since the mid 1990s that these activities have become the subject of considerable public attention, concern and debate. This shift in climate is due to several factors. The purpose of this book is to investigate some of the ethical, legal and social challenges raised by research biobanking in its different modern forms and formats. The issues raised by research biobanking in its modern form can be divided into four main clusters: how biological materials are entered into the bank; research biobanks as institutions; under what conditions researchers can access materials in the bank, and problems concerning ownership of biological materials and of intellectual property arising from such materials; and how the information is collected and stored, e.g. access-rights, disclosure, confidentiality, data security and data protection.
Download or read book Privacy and Student Records written by Massachusetts. Governor's Commission on Privacy and Personal Data and published by . This book was released on 1974 with total page 100 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Learning Healthcare System written by Institute of Medicine and published by National Academies Press. This book was released on 2007-06-01 with total page 374 pages. Available in PDF, EPUB and Kindle. Book excerpt: As our nation enters a new era of medical science that offers the real prospect of personalized health care, we will be confronted by an increasingly complex array of health care options and decisions. The Learning Healthcare System considers how health care is structured to develop and to apply evidence-from health profession training and infrastructure development to advances in research methodology, patient engagement, payment schemes, and measurement-and highlights opportunities for the creation of a sustainable learning health care system that gets the right care to people when they need it and then captures the results for improvement. This book will be of primary interest to hospital and insurance industry administrators, health care providers, those who train and educate health workers, researchers, and policymakers. The Learning Healthcare System is the first in a series that will focus on issues important to improving the development and application of evidence in health care decision making. The Roundtable on Evidence-Based Medicine serves as a neutral venue for cooperative work among key stakeholders on several dimensions: to help transform the availability and use of the best evidence for the collaborative health care choices of each patient and provider; to drive the process of discovery as a natural outgrowth of patient care; and, ultimately, to ensure innovation, quality, safety, and value in health care.
