Download or read book Patient and Public Involvement in Health and Social Care Research written by Jurgen Grotz and published by Palgrave Macmillan. This book was released on 2021-11-19 with total page 163 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a comprehensive overview of the latest theory and practice on Patient and Public Involvement (PPI) in research. Its seven chapters cover the historical and conceptual background; the various ways implementation can be approached and how they are put into practice; ethical considerations and critical perspectives, including on the potentially negative impacts of PPI; approaches to meaningful evaluation; a step by-step guide to planning PPI and conclusions with considerations for future research. Drawing on current literature, this book provides an essential reference work for research students and all who want to better understand PPI in practice. It offers exercises to address key questions, case examples and a checklist for planning PPI and includes a valuable glossary of terms.
Download or read book Achieving Person Centred Health Systems written by Ellen Nolte and published by Cambridge University Press. This book was released on 2020-08-06 with total page 421 pages. Available in PDF, EPUB and Kindle. Book excerpt: The idea of person-centred health systems is widely advocated in political and policy declarations to better address health system challenges. A person-centred approach is advocated on political, ethical and instrumental grounds and believed to benefit service users, health professionals and the health system more broadly. However, there is continuing debate about the strategies that are available and effective to promote and implement 'person-centred' approaches. This book brings together the world's leading experts in the field to present the evidence base and analyse current challenges and issues. It examines 'person-centredness' from the different roles people take in health systems, as individual service users, care managers, taxpayers or active citizens. The evidence presented will not only provide invaluable policy advice to practitioners and policymakers working on the design and implementation of person-centred health systems but will also be an excellent resource for academics and graduate students researching health systems in Europe. This title is available as Open Access on Cambridge Core.
Download or read book Beyond the HIPAA Privacy Rule written by Institute of Medicine and published by National Academies Press. This book was released on 2009-03-24 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.
Download or read book Patient and Public Involvement Toolkit written by Julia Cartwright and published by John Wiley & Sons. This book was released on 2011-07-05 with total page 117 pages. Available in PDF, EPUB and Kindle. Book excerpt: Providing information to implement a new core healthcare requirement – patient involvement Including real case scenarios to illustrate the principles of effective PPI Following the unique Toolkit series format of flowcharts and layouts that guide the reader through each section
Download or read book Equity and excellence written by Great Britain: Department of Health and published by The Stationery Office. This book was released on 2010-07-12 with total page 64 pages. Available in PDF, EPUB and Kindle. Book excerpt: Equity and Excellence : Liberating the NHS: Presented to Parliament by the Secretary of State for Health by Command of Her Majesty
Download or read book Patient Involvement in Health Technology Assessment written by Karen M. Facey and published by Springer. This book was released on 2017-05-15 with total page 431 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is the first book to offer a comprehensive guide to involving patients in health technology assessment (HTA). Defining patient involvement as patient participation in the HTA process and research into patient aspects, this book includes detailed explanations of approaches to participation and research, as well as case studies. Patient Involvement in HTA enables researchers, postgraduate students, HTA professionals and experts in the HTA community to study these complementary ways of taking account of patients’ knowledge, experiences, needs and preferences. Part I includes chapters discussing the ethical rationale, terminology, patient-based evidence, participation and patient input. Part II sets out methodology including: Qualitative Evidence Synthesis, Discrete Choice Experiments, Analytical Hierarchy Processes, Ethnographic Fieldwork, Deliberative Methods, Social Media Analysis, Patient-Reported Outcome Measures, patients as collaborative research partners and evaluation. Part III contains 15 case studies setting out current activities by HTA bodies on five continents, health technology developers and patient organisations. Each part includes discussion chapters from leading experts in patient involvement. A final chapter reflects on the need to clearly define the goals for patient involvement within the context of the HTA to identify the optimal approach. With cohesive contributions from more than 80 authors from a variety of disciplines around the globe, it is hoped this book will serve as a catalyst for collaboration to further develop patient involvement to improve HTA. "If you’re not involving patients, you're not doing HTA!" - Dr. Brian O’Rourke, President and CEO of CADTH, Chair of INAHTA
Download or read book Patient and Public Involvement in Health and Social Care Research written by and published by . This book was released on 2011* with total page 44 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Palgrave Handbook of Volunteering Civic Participation and Nonprofit Associations written by David Horton Smith and published by Springer. This book was released on 2017-01-18 with total page 1505 pages. Available in PDF, EPUB and Kindle. Book excerpt: Written by over 200 leading experts from over seventy countries, this handbook provides a comprehensive, state-of-the-art overview of the latest theory and research on volunteering, civic participation and nonprofit membership associations. The first handbook on the subject to be truly multinational and interdisciplinary in its authorship, it represents a major milestone for the discipline. Each chapter follows a rigorous theoretical structure examining definitions, historical background, key analytical issues, usable knowledge, and future trends and required research. The nine parts of the handbook cover the historical and conceptual background of the discipline; special types of volunteering; the major activity areas of volunteering and associations; influences on volunteering and association participation; the internal structures of associations; the internal processes of associations; the external environments of associations; the scope and impacts of volunteering and associations; and conclusions and future prospects. This handbook provides an essential reference work for third-sector research and practice, including a valuable glossary of terms defining over eighty key concepts. Sponsored by the International Council of Voluntarism, Civil Society, and Social Economy Researcher Associations (ICSERA; www.icsera.org), it will appeal to scholars, policymakers and practitioners, and helps to define the emergent academic discipline of voluntaristics.
Download or read book Participatory Health Research written by Michael T. Wright and published by Springer. This book was released on 2018-10-10 with total page 279 pages. Available in PDF, EPUB and Kindle. Book excerpt: This groundbreaking resource explores core issues in participatory health research (PHR) and traces its global emergence as a force for improving health and well-being, healthcare services, and quality of life. The PHR approach is defined as including community members, health practitioners, and decision-makers as co-researchers, using local knowledge to reduce disparities in care, advocate for responsive health policy, and accelerate positive change in society as a whole. The book’s first half surveys themes essential to the development of the field, including evaluating PHR projects, training professionals in conducting PHR, and the ambitious work of the International Collaboration for Participatory Health Research. International perspectives showcase the varied roles of PHR in addressing urgent local health problems in their specific public health and sociocultural contexts. Among the topics covered: Demonstrating impact in participatory health research Reviewing the effectiveness of participatory health research: challenges and possible solutions Kids in Action—participatory health research with children Participatory health research: an Indian perspective Participatory health research in Latin America: scientific production on chronic diseases Participatory health research in North America: from community engagement to evidence-informed practice Participatory Health Research benefits those teaching and learning about participatory health research at institutions of higher education and in community settings, addressing diverse fields including health promotion and disease prevention, medicine and public health, quality of life, social work, and community development.
Download or read book A research handbook for patient and public involvement researchers written by Penny Bee and published by Manchester University Press. This book was released on 2018-10-01 with total page 145 pages. Available in PDF, EPUB and Kindle. Book excerpt: This electronic version has been made available under a Creative Commons (BY-NC-ND) open access license. This book is written for patients and members of the public who want to understand more about the approaches, methods and language used by health-services researchers. Patient and public involvement (PPI) in research is now a requirement of most major health-research programmes, and this book is designed to equip these individuals with the knowledge and skills necessary for meaningful participation. Edited by award-winning mental-health researchers, the book has been produced in partnership with mental-health-service users and carers with experience of research involvement. It includes personal reflections from these individuals alongside detailed information on quantitative, qualitative and health-economics research methods.
Download or read book Improving Healthcare Quality in Europe Characteristics Effectiveness and Implementation of Different Strategies written by OECD and published by OECD Publishing. This book was released on 2019-10-17 with total page 447 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume, developed by the Observatory together with OECD, provides an overall conceptual framework for understanding and applying strategies aimed at improving quality of care. Crucially, it summarizes available evidence on different quality strategies and provides recommendations for their implementation. This book is intended to help policy-makers to understand concepts of quality and to support them to evaluate single strategies and combinations of strategies.
Download or read book Service User Research in Health and Social Care written by Hugh McLaughlin and published by SAGE Publications. This book was released on 2009-06-04 with total page 185 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book represents a major contribution to the development and increasingly accepted importance of involving service users in research. It argues that this development is neither a fad nor a cure-all, and highlights the strengths, weaknesses, benefits, and costs of the approach. Using reflexive questions and practical examples to challenge the reader to consider their own position in relation to these issues, this book should occupy a central place on the shelves of all undergraduate health and social welfare students.
Download or read book Researching the People s Health written by Jenny Popay and published by Routledge. This book was released on 2005-08-18 with total page 237 pages. Available in PDF, EPUB and Kindle. Book excerpt: Researching the People's Health examines the different ways in which needs are assessed and health care is organized, prioritized and delivered in circumstances of rapid change in patterns of health and illness. The book also addresses the issue of relationships between lay and expert knowledge.
Download or read book Community Psychology and Community Mental Health written by Geoffrey Nelson and published by Oxford University Press. This book was released on 2014-08-13 with total page 433 pages. Available in PDF, EPUB and Kindle. Book excerpt: Mental health practices and programs around the world face growing criticism from policymakers, consumers, and service providers for being ineffective, overly reliant on treatment by professionals, and overly focused on symptoms. Many have called for new paradigms of mental health and new practices that can better support recovery, community integration, and adaptive functioning for persons diagnosed with psychiatric disabilities. While there has recently been much discourse about transformation and recovery, there has yet to be a critical and systematic review that unpacks the concept of mental health systems transformation or that examines strategies for how to create transformative change in mental health. Community Psychology and Community Mental Health provides empirical justification and a conceptual foundation for transformative change in mental health, based on community psychology values and principles of ecology, collaboration, empowerment, and social justice. Chapters provide strategies for making changes at the level of society, policy, organizations, community settings, and mental health practices. The editors and authors draw from experience in different countries in recognition of the need to tailor change strategies to different contexts. The common experiences of the international perspectives represented underscore the importance and the need for a new paradigm while demonstrating that there are many alternatives and opportunities for pursuing transformative change. This book will be of interest to community mental health professionals, researchers, and students, as well as policymakers, administrators, and those with lived experience of mental health issues.
Download or read book Critical Perspectives on User Involvement written by Marian Barnes and published by Policy Press. This book was released on 2012 with total page 297 pages. Available in PDF, EPUB and Kindle. Book excerpt: User involvement is now official policy throughout the health and social care system. Does this mean that user involvement practices are unproblematic? Has it lost its radical edge as it has become an accepted part of service delivery, research and policy making? This important text offers a critical stocktake of the state of user involvement, comprising contributions from both user activists and leading academics. The contributors consider different contexts in which involvement is taking place, both in the groups involved and the activities they are engaged in, and includes different and sometimes conflicting perspectives on issues such as whether we should measure the impact of involvement. This valuable collection will be a crucial resource for students in health and social care and in social work, for researchers developing participative research practice, and for user activists seeking to learn how others have developed distinctive ways of challenging professional perspectives. Book jacket.
Download or read book This is Survivor Research written by Angela Sweeney and published by Pccs Books. This book was released on 2009 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: There has been a major development in social science research: it is now being carried out by people who had previously only been seen as its subjects. At the forefront are people with experience as mental health service users/survivors who have taken a lead in pioneering a new approach to research which is now commanding increasing attention and respect. "This is Survivor Research" for the first time details this important new approach to research. Written and edited by leaders in the field, the book explores the theory and practice of survivor research, provides practical examples of survivor research and offers guidance for people wishing to carry out such research themselves. This is a groundbreaking book for policy makers, researchers, educators, students, service users and practitioners in the mental health field and beyond, many of whom must address user involvement in their research.
Download or read book Evidence Based Medicine and the Changing Nature of Health Care written by Institute of Medicine and published by National Academies Press. This book was released on 2008-09-06 with total page 202 pages. Available in PDF, EPUB and Kindle. Book excerpt: Drawing on the work of the Roundtable on Evidence-Based Medicine, the 2007 IOM Annual Meeting assessed some of the rapidly occurring changes in health care related to new diagnostic and treatment tools, emerging genetic insights, the developments in information technology, and healthcare costs, and discussed the need for a stronger focus on evidence to ensure that the promise of scientific discovery and technological innovation is efficiently captured to provide the right care for the right patient at the right time. As new discoveries continue to expand the universe of medical interventions, treatments, and methods of care, the need for a more systematic approach to evidence development and application becomes increasingly critical. Without better information about the effectiveness of different treatment options, the resulting uncertainty can lead to the delivery of services that may be unnecessary, unproven, or even harmful. Improving the evidence-base for medicine holds great potential to increase the quality and efficiency of medical care. The Annual Meeting, held on October 8, 2007, brought together many of the nation's leading authorities on various aspects of the issues - both challenges and opportunities - to present their perspectives and engage in discussion with the IOM membership.
