Download or read book Online End of life Care Education in the Neonatal Intensive Care Unit written by Valerie Marie Wright and published by . This book was released on 2016 with total page 85 pages. Available in PDF, EPUB and Kindle. Book excerpt: Research exists regarding the need for providing training related to end-of-life care as well as the need to evaluate this type of training in the Neonatal Intensive Care Unit. One potential format for this training is online in nature. The following problem statement was addressed within this direct practice improvement project: It was not known if an online end-of-life training session with NICU Nurses in the Midwestern Level III NICU would have an impact on their level of comfort with providing end-of-life care. The clinical question addressed was: In NICU nurses who attend a voluntary end-of-life online training session, does their level of comfort increase with providing end-of-life care compared to their level of comfort prior to the end-of-life online training? The level of comfort was analyzed by comparing the NICU nurses responses to the BEACONNS survey assessing their level of comfort with providing of end-of-life care before and after the online end-of-life training. Prior to the online end-of-life training session, the mean BEACONNS score was 3.58 (SD = .81) and after the training, the mean BEACONNS score was 4.07 (SD = .77). There was a statistically significant increase in the BEACONNS score after the online end-of-life training session t(13) = 5.732, p = .000 (one-tailed). The mean increase in BEACONNS score was .48 with a 95% confidence interval ranging from .30 to .67. These results provide the data necessary to not only implement the BEACONNS tool into clinical practice, but also the online training option.

Download or read book Neonatal Palliative Care for Nurses written by Alexandra Mancini and published by Springer Nature. This book was released on 2020-01-22 with total page 407 pages. Available in PDF, EPUB and Kindle. Book excerpt: This textbook details the nursing care of babies with life limiting conditions and sets the context within the philosophy of internationally collaborative neonatal palliative care emphasising emotional and practical support for their families. Currently, increasing interest from nursing and medical fields regarding palliative care for babies in the antenatal and neonatal period is evident. This innovative and unique text provides experienced nurses and student nurses alike with realistic guidance in caring for babies with palliative care needs, alongside the crucial support for their families and identifies important strategies for professional self care. Nursing experts in this field collaborated to develop a reference book which supports holistic and integrated clinical practice. Parents’ experiences of what they consider helpful or not so helpful are interwoven throughout the chapter. There is currently no other textbook which offers the above information and guidance specifically for nurses and allied health professionals. As such this book will appeal to all nurses and health professionals working within the neonatal palliative care specialty in a global context.

Download or read book Why is End of Life Care Delivery Sporadic written by Valerie Wright and published by . This book was released on 2009 with total page 136 pages. Available in PDF, EPUB and Kindle. Book excerpt: According to the Center for Disease Control (CDC) Infant Mortality Statistics, 28,384 infants died in the United States in 2005. These 28,384 infants are most often given resuscitative measures in the delivery room and then brought to the Neonatal Intensive Care Unit (NICU) for further care and treatment; however, all infants do not survive, and it then becomes the responsibility of the NICU staff to provide end-of-life care for the infants and their families. The purpose of this research project was to evaluate the barriers to and facilitators of providing end-of-life care in order to gain a greater understanding of why end-of-life care is often sporadic. A convenience sample of 75 NICU nurses was utilized. There was a 66.7% response rate of nurses completing The Neonatal Palliative Care Attitude Scale questionnaire. This quantitative, descriptive study explored the barriers to and facilitators of neonatal nurses providing palliative care. This research study identified five barriers and eight facilitators to palliative care practice in the NICU. The five barriers were the inability to express opinions; values and beliefs regarding palliative care; less than ideal physical environment; technological imperatives; parental demands; and finally, lack of education. The eight facilitators were supportive medical staff; parental involvement of decisions; parents informed of options; support from medical team when palliative care; and available counseling. Upon review of these barriers and facilitators outlined in this study, the NICU can thoroughly evaluate palliative care practices and make needed changes based on the results. Further research is warranted regarding palliative care education implementation in the NICU.

Download or read book End of life Decisions in Dutch Neonatal Intensive Care Units written by Anton Albert Eduard Verhagen and published by Uitgeverij Paris. This book was released on 2008 with total page 135 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Pediatric Palliative Care written by Betty Ferrell and published by . This book was released on 2016 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.

Download or read book Exploring Neonatal Intensive Care Nurses Affective Responses to Providing End of life Care written by Stephanie Lynn Lewis and published by . This book was released on 2013 with total page 181 pages. Available in PDF, EPUB and Kindle. Book excerpt: Significance. The Joint Commission established standards to evaluate comprehensive end-of-life infant care and the positive outcomes of such care are well documented. However, findings from multiple studies conducted over the last decade indicate that end-of-life care in the neonatal intensive care unit is not provided consistently or holistically to all dying infants. Because nurses are the healthcare professionals most often responsible for providing this care, anything that detracts from their ability to provide it, including their own affective responses, needs to be addressed. Aim. The purpose of this study was to explore—through lived and told stories—the affective, interactional, and meaning-related responses that NICU nurses have while caring for dying infants and their families. Sample, Design, and Methods. Neonatal intensive care nurses were recruited through the online membership discussion boards of the National Association of Neonatal Nurses. Participants were asked to access an online survey link and provide a written narrative describing an end-of-life care situation in which they experienced strong emotions. Demographic data also were collected. Findings. Narrative analysis revealed many affective responses, but three were the most frequent: responsibility, moral distress, and identification. Feelings of responsibility included (a) a commitment to deliver the best end-of-life care possible, (b) professional inadequacy, (c) disbelief, and d) advocacy. Feelings associated with moral distress were quite common and often related to conflicts between nurses, physicians, and families. Nurses reported feelings of identification with families of dying infants through (a) sharing their grief, (b) forming excess attachments, and (c) experiencing survivor-like guilt. Implications. Nurse educators are encouraged to discuss more extensively and perhaps through the use of simulation, the positive and negative emotions that may be experienced by nurses who are involved in end-of-life care situations. Nurse leaders are encouraged to promote supportive environments in NICUs and ensure debriefing opportunities for nurses who have recently cared for a dying infant. Significant associations, such as NICU nurses not perceiving their EOLC education as being helpful in providing that care clinically and the percentage of NICU nurses reporting the presence of an end-of-life care policy in their units of employment, also merit further examination.

Download or read book Perinatal Palliative Care written by Erin M. Denney-Koelsch and published by Springer Nature. This book was released on 2020-02-05 with total page 443 pages. Available in PDF, EPUB and Kindle. Book excerpt: This unique book is a first-of-its-kind resource that comprehensively covers each facet and challenge of providing optimal perinatal palliative care. Designed for a wide and multi-disciplinary audience, the subjects covered range from theoretical to the clinical and the practically relevant, and all chapters include case studies that provide real-world scenarios as additional teaching tools for the reader. Perinatal Palliative Care: A Clinical Guide is divided into four sections. Part One provides the foundation, covering an overview of the field, key theories that guide the practice of perinatal palliative care, and includes a discussion of perinatal ethics and parental experiences and needs upon receiving a life-limiting fetal diagnosis. Part Two delves further into practical clinical care, guiding readers through issues of obstetrical management, genetic counseling, neonatal pain management, non-pain symptom management, spiritual care, and perinatal bereavement care. Part Three discusses models of perinatal palliative care, closely examining evidence for different types of PPC programs: from hospital-based programs, to community-based care, and examines issues of interdisciplinary PPC care coordination, birth planning, and team support. Finally, Part Four concludes the book with a close look at special considerations in the field. In this section, racial, ethnic, and cultural perspectives and implications for PPC are discussed, along with lessons in how to provide PPC for a wide-range of clinical and other healthcare workers. The book closes with a look to the future of the field of perinatal palliative care. Thorough and practical, Perinatal Palliative Care: A Clinical Guide is an ideal resource for any healthcare practitioner working with these vulnerable patient populations, from palliative care specialists, to obstetricians, midwifes, neonatologists, hospice providers, nurses, doulas, social workers, chaplains, therapists, ethicists, and child life specialists.

Download or read book Neonatal Intensive Care Nursing written by Glenys Boxwell (Connolly) and published by Routledge. This book was released on 2019-11-01 with total page 691 pages. Available in PDF, EPUB and Kindle. Book excerpt: Thoroughly revised and updated, this new edition of Neonatal Intensive Care Nursing is a comprehensive, evidence-based text for nurses and allied health professionals caring for sick newborn infants. This user-friendly text focuses on the common problems and related care occurring within the neonatal specialty. All previous chapters have been thoroughly updated and new content includes chapters on, for example, organisation of neonatal care, assessment of the neonate, the premature and low birth weight neonate as well as palliative care. In addition, the book now includes a broad and in-depth web-based companion comprising online resources, case studies with answer guides and learning activities. This accessible and interactive approach enables nurses to recognise, rationalise and understand clinical problems using an evidence-based approach. Divided into four parts, the book provides an overview of neonatal care, and a detailed look at the physical and emotional wellbeing of neonate and family, a range of clinical aspects of neonatal care, and key practices and procedures. Neonatal Intensive Care Nursing will be essential reading for both new and experienced nurses, allied health professionals and students learning about neonatal care including those undertaking qualifications in the neonatal specialism and pre-registration students taking relevant modules or placements.

Download or read book Handbook of Perinatal and Neonatal Palliative Care written by Rana Limbo, PhD, RN, CPLC, FAAN and published by Springer Publishing Company. This book was released on 2019-11-11 with total page 440 pages. Available in PDF, EPUB and Kindle. Book excerpt: The first resource of its kind, this authoritative handbook holistically addresses the multidimensional aspects of perinatal and neonatal palliative care. Written by an interprofessional team of renowned specialists, it is both a text and an evidencebased reference for all members of the palliative care team. This book helps individual team members forge interdisciplinary approaches to care, assess current programs, improve the quality of care, and tailor new models of care. Encompassing the perspectives of numerous multidisciplinary healthcare providers, the book underscores the unique aspects of perinatal and neonatal palliative care, with a focus on improving quality of life, as well as comfort at the end of life. It describes healthcare for neonates and pregnant mothers, care and support of the family, planning and decision-making, and effective support for grief and bereavement, addressing all palliative and neonatal care settings. Other chapters focus on the prenatal period after diagnosis of the expected baby's life-threatening condition. These include such topics as care of the mother, delivering devastating news, and advance care planning. Each chapter contains photos, figures, and/or tables and case studies with clinical implications and critical thinking questions. Also included is an extensive listing of relevant palliative care organizations. Paintings and poetry provide an artistic backdrop to the authors' inspiring words. Key Features: Addresses a growing need for specific provider resources in neonatal palliative care Covers the clinical and emotional aspects of palliative care for babies and their families Abundant resources for effective and compassionate family-centered care Case studies with critical thinking questions Accompanying video clips of healthcare and family interactions Supplemental image bank included

Download or read book Textbook of Interdisciplinary Pediatric Palliative Care written by Joanne Wolfe and published by Elsevier Health Sciences. This book was released on 2011-01-26 with total page 514 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Textbook of Interdisciplinary Pediatric Palliative Care, by Drs. Joanne Wolfe, Pamela Hinds, and Barbara Sourkes, aims to inform interdisciplinary teams about palliative care of children with life-threatening illness. It addresses critical domains such as language and communication, symptoms and quality of life, and the spectrum of life-threatening illnesses in great depth. This comprehensive product takes a first-of-its-kind team approach to the unique needs of critically ill children. It shows how a collaborative, interdisciplinary care strategy benefits patients and their families. If you deal with the complex care of critically ill children, this reference provides a uniquely integrated perspective on complete and effective care. Respect interdisciplinary perspectives, and provide the most comprehensive care. Use an integrated approach to address the physical, psychological, social, and spiritual needs of children and their families. Understand and heed your strengths and vulnerabilities in order to provide the best care for your patients. Recognize the necessity of linking hospital-based palliative care with community resources. Implement consistent terminology for use by the entire palliative care team. Access the full text online with regular updates and supplemental text and image resources.

Download or read book Perspectives on Palliative Care written by and published by . This book was released on 2002 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 470 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Download or read book A Guide to Neonatal Care written by Julia Petty and published by Critical Publishing. This book was released on 2024-03-18 with total page 295 pages. Available in PDF, EPUB and Kindle. Book excerpt: A key text for all those involved in the care of neonates, including nurses, midwives and nursing students, providing a single source of valuable, accessible and fully up-to-date information about neonatal care. This book will better equip those working in the neonatal field with the knowledge and skills they need to care for neonates in their first year of life. Integrated learning tools, including algorithms, flow charts, summary tables, bulleted checklists and reflective questions, encourage critical thinking and aid understanding. These are accompanied by clear supporting text in line with relevant and recent evidence and research. Other helpful features include Stop and Think boxes and alerts for Standard Precautions and Local Variations Neonatal care is a speciality that often requires health professionals new to the field to acquire a discipline-specific set of skills. Care practices covered include working out drug dosages, fluid rates and calculations, looking up normal blood ranges and understanding the mode of ventilation a neonate is receiving, to name just a few. Overall, this book will empower neonatal carers as they improve their skills and achieve the best results for those in their care.

Download or read book Oxford Textbook of Palliative Nursing written by Betty Rolling Ferrell and published by Oxford University Press. This book was released on 2019-03-04 with total page 935 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Oxford Textbook of Palliative Nursing remains the most comprehensive treatise on the art and science of palliative care nursing available. Dr. Betty Rolling Ferrell and Dr. Judith A. Paice have invited 162 nursing experts to contribute 76 chapters addressing the physical, psychological, social, and spiritual needs pertinent to the successful palliative care team. Organized within 7 Sections, this new edition covers the gamut of principles of care: from the time of initial diagnosis of a serious illness to the end of a patient's life and beyond. This fifth edition features several new chapters, including chapters on advance care planning, organ donation, self-care, global palliative care, and the ethos of palliative nursing. Each chapter is rich with tables and figures, case examples for improved learning, and a strong evidence-based practice to support the highest quality of care. The book offers a valuable and practical resource for students and clinicians across all settings of care. The content is relevant for specialty hospice agencies and palliative care programs, as well as generalist knowledge for schools of nursing, oncology, critical care, and pediatric. Developed with the intention of emphasizing the need to extend palliative care beyond the specialty to be integrated in all settings and by all clinicians caring for the seriously ill, this new edition will continue to serve as the cornerstone of palliative care education.

Download or read book When Children Die written by Institute of Medicine and published by National Academies Press. This book was released on 2003-02-09 with total page 713 pages. Available in PDF, EPUB and Kindle. Book excerpt: The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.

Download or read book Neuropalliative Care written by Claire J. Creutzfeldt and published by Springer. This book was released on 2018-10-01 with total page 312 pages. Available in PDF, EPUB and Kindle. Book excerpt: This comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas.

Download or read book The Oxford Textbook of Palliative Social Work written by Terry Altilio and published by Oxford University Press. This book was released on 2022 with total page 1009 pages. Available in PDF, EPUB and Kindle. Book excerpt: "It is so important to advocate for things that may not always seem possible. Getting to work with patients/families at the end of their life is the ultimate honor." - Lauren G Markham, MSW, LCSW, APHSW-C "In this work, one witnesses both depths of human suffering and heights of human transcendence that can inspire both awe and fear. At those times, I have found that surrendering my need to be "an expert" and instead, allow myself to simply be a "human" is the wisest action." - Kerry Irish, LCSW, OSW-C, FAOSW"--