Download or read book Navigating Life with Dementia written by James M. Noble and published by Oxford University Press. This book was released on 2022 with total page 305 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Since you have opened this book, you or a close friend or family member have likely been impacted by the upsetting and frightening diagnosis of dementia. You may have been told about this diagnosis in a number of different ways. Either the term dementia was used, or other words associated with or more specific than dementia, such as Alzheimer's disease, vascular dementia, Lewy Body disease, frontotemporal dementia, or Pick's disease, were used. You may even have been misinformed at first and told that you were simply facing the normal changes of aging, such as forgetfulness or mild depression. Sometimes these terms are relatable based on others we know who have been affected by them. But they can be shocking to hear and hard to understand when talking about yourself or a loved one. Even more difficult is that none of the most common forms of dementia currently have treatments that can cure or slow the disease"--

Download or read book Navigating Life with Dementia written by James M. Noble and published by Oxford University Press. This book was released on 2022-05-02 with total page 305 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caregiving for a loved one with Alzheimer's disease or dementia is hard but with this book, you and your family will successfully face the challenges that these diseases present. Dementia is a very common neurological disease of aging affecting millions of people in complex ways. There are multiple forms of the dementia, including Alzheimer's Disease, Lewy Body Dementia, Frontotemporal Dementia, and vascular dementia, among others, and many share features of slowly progressive and profound changes affecting memory, thinking, behavior, and personality. The disease often introduces personal and even financial strains, which can be at times hard to understand. Unfortunately, most forms of dementia have no definitive treatments to prevent, slow, or stop the progression, but there is a concerted effort in the scientific community to change this. There is a consistent hope that there will soon be a new era of scientific breakthroughs impacting dementia. Now, and in the future, patients with dementia, their friends, and their families need resources to successfully face the challenges introduced by the disease. Navigating Life with Dementia is designed as a handbook including tools to manage both day-to-day issues and to anticipate the long-term impact of the disease for dementia patients as well as their friends and families. This volume will help families in all stages of dementia care, beginning with the earliest hints of cognitive problems through advanced stages. In easily understood language, the book thoroughly covers the complexities of the dementias, the establishment of a diagnosis, what to expect throughout the stages of disease, and how to best anticipate and manage common problems.

Download or read book I Know You by Heart written by Angie Swetland and published by . This book was released on 2020-06-30 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: In the U.S. today, over 5.8 million Americans are living with Alzheimer's Disease or related dementia. Each of these individuals has a story. And each one has caregivers, with stories of their own.You have questions - so many questions about what is happening now, and what is to come. How do I cope with this new manifestation of the disease? How do I prepare for an uncertain future?This is especially true when just navigating your way through each day can be overwhelming.Contained within these pages are answers to some of your questions as well as strategies for your future. In navigating this journey, it is important to remember two essential truths. The first is that the body may fail, and the mind may wander, but the spirit - the person inside - remains intact. The caregiver's role is to maximize the remaining strengths of the person they care for.The second is that you are not alone. Caregiving is often an isolating experience.Stories from the lives of others let us know that our experiences are not unique. Be assured that many have gone before, and others are walking the same road today.This is "I Know You by Heart: Navigating the Dementia Journey"

Download or read book American Dementia written by Daniel R. George and published by JHU Press. This book was released on 2021-09-14 with total page 425 pages. Available in PDF, EPUB and Kindle. Book excerpt: "The authors argue for a strong connection between public health and social policies that have boosted access to education; quality health care; cleaner air, soil, and water; and a reduction in Alzheimer's disease and dementia. They question the assumption of many that developing a pharmaceutical cure is the best hope for addressing Alzheimer's"--

Download or read book Navigating Life with Multiple Sclerosis written by Kathleen Costello and published by Brain and Life Books. This book was released on 2015 with total page 209 pages. Available in PDF, EPUB and Kindle. Book excerpt: Navigating Life with Multiple Sclerosis will serve as a practical guide for meeting the challenges of this life-long disease. MS may cause a myriad of symptoms and varies greatly from person to person. The authors demystify MS and offer practical solutions and guidance based upon their extensive combined clinical and research experience. The book tackles many of the common symptoms experienced by the person with MS and looks into the future to explore where research is headed. If you are newly diagnosed or have been living with MS for years, this book is an invaluable guide.

Download or read book New Every Day written by Dave Meurer and published by Revell. This book was released on 2018-11-20 with total page 240 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer's. It barges into your life, breaks your heart, bewilders your mind, disrupts your plans, impacts your finances, and consumes enormous amounts of time and energy. When someone you love has Alzheimer's, you need more than just information on the disease--you need a break. You need a laugh. You need a friend by your side who knows exactly what you're going through. Award-winning humorist Dave M. Meurer is that friend. Packed with practical information--like how to get the DMV to take away the car keys or how you shouldn't insist on correcting your loved one's misperceptions--and plenty of true stories from his own experiences navigating life with a loved one who suffers from Alzheimer's, New Every Day offers hard-earned wisdom and even some badly needed comic relief for readers journeying down this difficult road. With compassion born of experience, Meurer helps caregivers develop the ability to relax, adapt, and even sometimes laugh again.

Download or read book Dementia with Dignity written by Judy Cornish and published by Createspace Independent Publishing Platform. This book was released on 2019-01-22 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: The revolutionary how-to guidebook that details ways to make it easier to provide dementia home care for people experiencing Alzheimer's or dementia. Alzheimer's home care is possible! Dementia with Dignity explains the groundbreaking new approach: the DAWN Method(R), designed so families and caregivers can provide home care. It outlines practical tools and techniques to help your loved one feel happier and more comfortable so that you can postpone the expense of long-term care. In this book you'll learn: -The basic facts about Alzheimer's and dementia, plus the skills lost and those not lost; -How to recognize and respond to the emotions caused by Alzheimer's or dementia, and avoid dementia-related behaviors; -Tools for working with an impaired person's moods and changing sense of reality; -Home care techniques for dealing with hygiene, safety, nutrition and exercise issues; -A greater understanding and appreciation of what someone with Alzheimer's or dementia is experiencing, and how your home care can increase home their emotional wellbeing. Wouldn't dementia home care be easier if you could get on the same page as your loved one? When we understand what someone experiencing Alzheimer's or dementia is going through, we can truly help them enjoy more peace and security at home. This book will help you recognize the unmet emotional needs that are causing problems, giving you a better understanding and ability to address them. The good news about dementia is that home care is possible. There are infinitely more happy times and experiences to be shared together. Be a part of caring for, honoring, and upholding the life of someone you love by helping them experience Alzheimer's or dementia with dignity. Judy Cornish is the author of The Dementia Handbook-How to Provide Dementia Care at Home, founder of the Dementia & Alzheimer's Wellbeing Network(R) (DAWN), and creator of the DAWN Method. She is also a geriatric care manager and elder law attorney, member of the National Association of Elder Law Attorneys (NAELA) and the American Society on Aging (ASA).

Download or read book Navigating Life with Amyotrophic Lateral Sclerosis written by Mark B. Bromberg and published by Oxford University Press. This book was released on 2017 with total page 281 pages. Available in PDF, EPUB and Kindle. Book excerpt: Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS, a disease that affects approximately 5,600 Americans every year, with as many as 30,000 people managing the disease at any given time. ALS is a difficult disease for the patient and is also challenging for the caregiver and family as there are many questions, issues relating to care, and problems to manage. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Navigating Life with Amyotrophic Lateral Sclerosis is unique because it covers two perspectives: one author is a neurologist with 30 years of experience treating ALS patients, and the other author experienced first-hand the issues in providing care for a parent with ALS. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.

Download or read book Living in the Moment written by Elizabeth Landsverk and published by Citadel. This book was released on 2022-05-31 with total page 290 pages. Available in PDF, EPUB and Kindle. Book excerpt: A renowned geriatrician shares tips on how families and individuals can live happy, engaged lives after a dementia diagnosis.

Download or read book Dementia Reimagined written by Tia Powell and published by Penguin. This book was released on 2020-09-01 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: Now in paperback, the cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to care. Despite being a physician and a bioethicist, Tia Powell wasn't prepared to address the challenges she faced when her grandmother, and then her mother, were diagnosed with dementia--not to mention confronting the hard truth that her own odds aren't great. In the U.S., 10,000 baby boomers turn 65 every day; by the time a person reaches 85, their chances of having dementia approach 50 percent. And the truth is, there is no cure, and none coming soon, despite the perpetual promises by pharmaceutical companies that they are just one more expensive study away from a pill. Dr. Powell's goal is to move the conversation away from an exclusive focus on cure to a genuine appreciation of care--what we can do for those who have dementia, and how to keep life meaningful and even joyful. Reimagining Dementia is a moving combination of medicine and memoir, peeling back the untold history of dementia, from the story of Solomon Fuller, a black doctor whose research at the turn of the twentieth century anticipated important aspects of what we know about dementia today, to what has been gained and lost with the recent bonanza of funding for Alzheimer's at the expense of other forms of the disease. In demystifying dementia, Dr. Powell helps us understand it with clearer eyes, from the point of view of both physician and caregiver. Ultimately, she wants us all to know that dementia is not only about loss--it's also about the preservation of dignity and hope.

Download or read book When Waves Rise written by Sarah Viola and published by Sv Grace LLC. This book was released on 2021-04-05 with total page 116 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Waves Rise is a must read for care providers taking care of a loved one at home, direct services providers who want to be more effective with patients, and professionals who wish to support the care providers they serve. Sarah handles a difficult topic with care as she condenses 11 years of experience serving those living with dementia. Her experience has helped care providers, both personal and professional, better understand the "why" behind difficult moments. The ever-present changes that dementia creates lead to challenges that are not easily understood. When Waves Rise helps to explain these changes and challenges with practical examples that provide technical explanations and takeaways. Care providers can use the tools in this book for day-to-day support and ongoing as the disease progresses. Readers have stated that When Waves Rise "offers insight on how to react to changes in behavior" and "does excellent job of explaining the progression of dementia and how it is viewed from the dementia sufferer and the caregiver." Further stating "excellent, practical and useful book filled with picture language to make a complicated subject understandable."

Download or read book I Will Never Forget written by Elaine C. Pereira and published by iUniverse. This book was released on 2014 with total page 283 pages. Available in PDF, EPUB and Kindle. Book excerpt: It is painfully difficult to watch a loved one decline as dementia ravages their mind, destroying memories, rational thinking, and judgment. In her touching memoir, I Will Never Forget, Elaine Pereira shares the heartbreaking and humorous story of her mother’s incredible journey through dementia. Pereira begins with entertaining glimpses into her own childhood and feisty teenage years, demonstrating her mother’s strength of character. Years later, as Betty Ward started to exhibit bizarre behaviors and paranoia, Pereira was mystified by her mom’s amazing ability to mask the truth. Not until a revealing incident over an innocuous drapery rod did Pereira recognize the extent of her mother’s Alzheimer’s. As their roles shifted and a new paradigm emerged, Pereira transformed into a caregiver blindly navigating dementia’s unpredictable haze. But before Betty’s passing, she orchestrated a stunning rally to control her own destiny via a masterful, Houdini-like escape. I Will Never Forget is a powerful heartwarming story that helps others know that they are not alone in their journey. “Poignant, shocking, and honest … far more than just words on paper. If you or someone you know is living through the hell of dementia, you need this book!” —Ionia Martin, developer of Readful Things Reviews and Alzheimer’s caregiver

Download or read book Reducing the Impact of Dementia in America written by National Academies of Sciences Engineering and Medicine and published by . This book was released on 2022-04-26 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.

Download or read book Did I Remember to Tell You written by Pam Kovacs Johnson and published by AuthorHouse. This book was released on 2020-08-31 with total page 196 pages. Available in PDF, EPUB and Kindle. Book excerpt: While there is an abundance of information about dementia for family caregivers to learn symptoms, skills, do’s and don’ts, there is little to help them comprehend why it is so important to do everything differently than before this disease. And to fully understand the consequences when they don’t. From the book Did I Remember To Tell You? caregivers gain insight into the difficulty of doing and saying the right things for the right reasons, in accordance with best care practices and are guided towards being the “perfect” caregiver. It is based on Pam Johnson’s professional experience, spanning over forty years working with older adults in a variety of health care settings, coupled with the invaluable personal knowledge she gained while caring for her father. Learning about the disease and daily challenges from real-life stories effectively shows rather than tells caregivers what they need to know to make it from one day to the next. The stories create a powerful understanding of the tremendous impact this disease has on a loved one and remind us that Alzheimer’s and other dementias are about much more than mere forgetfulness. With a casual conversational tone, Johnson teaches caregivers to speak compassionately, cope more effectively, and expect the unexpected.

Download or read book Navigating Life with Migraine and Other Headaches written by William B. Young and published by Oxford University Press. This book was released on 2018 with total page 217 pages. Available in PDF, EPUB and Kindle. Book excerpt: The book is geared toward the patient and their families and is written in a style that is easily understood; Provide advice on how to select a doctor and what information to provide to the doctor; Provides specific examples of all types of headaches and a real feeling for the condition; Takes a systematic approach to alternative treatments and provides evidence to support how these treatments can help alleviate headache symptoms. Table of Contents Section 1: Managing Your Headaches 1- Introduction: Why Is Headache So Important? 2- Pain, Disability, and Stigma in Persons with Headache 3- The History of Headache 4- Headaches Requiring Urgent Medical Attention 5- Managing Headaches, an Overview Section 2: Primary Headache Disorders 6- Migraine: Causes and Triggers 7- Treating Migraine with Medication 8- Alternative and Behavioral Treatments for Migraine 9- Migraine in Kids 10- Managing the Conditions That Often Coexist with Migraine 11- Tension-Type Headache 12- Cluster Headache 13- Unusual Primary Headaches Section 3: Secondary Headaches and Neuralgias 14- Sinus Headache and Nasal Disease 15- Disorders of the Neck 16- Post-Traumatic Headache 17- Atypical Facial Pain 18- Trigeminal Neuralgia Glossary Appendix - Resources for Patients with Headache Disorders Index.

Download or read book On Vanishing written by Lynn Casteel Harper and published by Catapult. This book was released on 2020-04-14 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.

Download or read book Thoughtful Dementia Care written by Jennifer Ghent-Fuller and published by Createspace Independent Publishing Platform. This book was released on 2012-04-03 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ghent-Fuller offers insights into emotional reactions and practical suggestions based on deep understanding of the way people with dementia view many situations. She explains the loss of various types of memory and other thinking processes, and describes how these losses affect the day to day life of people with dementia, their understanding of the world around them and their personal situations.