Download or read book National Survey of Family Support Services in Developmental Disabilities written by Glenn T. Fujira and published by . This book was released on 1990 with total page 74 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Building and Evaluating Family Support Initiatives written by Carl J. Dunst and published by Brookes Publishing Company. This book was released on 1993 with total page 340 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This enlightening reference details the results of an extensive national study of federal and local policies and practices for the families of persons with disabilities. Beginning with a description of the key elements of family support initiatives and the characteristics of support programs, this probing text defines the goal of family support initiatives and explores how the relationship between beliefs and practices effects the achievement of that goal" -- Back cover.
Download or read book Parenting Matters written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
Download or read book Emerging Issues in Family Support written by Valerie J. Bradley and published by American Association. This book was released on 1992 with total page 196 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Family Support and Family Caregiving across Disabilities written by George H.S. Singer and published by Routledge. This book was released on 2014-06-11 with total page 239 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family members provide the majority of care for individuals with disabilities in the United States. Recognition is growing that family caregiving deserves and may require societal support, and evidence-based practices have been established for reducing stress associated with caregiving. Despite the substantial research literature on family support that has developed, researchers, advocates and professionals have often worked in separate categorical domains such as family support for caregiving for the frail elderly, for individuals with mental illness, or for people with development disabilities. Family Support and Family Caregiving across Disabilities addresses this significant limitation through cross-categorical and lifespan analyses of family support and family caregiving from the perspectives of theory and conceptual frameworks, empirical research, and frameworks and recommendations for improvements in public policy. The book also examines children with disabilities, children with autism, adults with schizophrenia, and individuals with cancer across the life cycle. This book was published as a two-part special issue in the Journal of Family Social Work.
Download or read book Serving Children with Disabilities written by Laudan Y. Aron and published by The Urban Insitute. This book was released on 1996 with total page 212 pages. Available in PDF, EPUB and Kindle. Book excerpt: A revised version of the report submitted to the National Commission on Childhood Disability, which was established to review the assistance given to children with disabilities under the Supplemental Security Income (SSI). The commission was releasing its findings and recommendations as the book went to print. Overviews the programs generally and the principles behind them, then details specific programs such as SSI, Medicaid, special education, block grants, Head Start, and mental health and family support programs. Includes over 40 pages of data. No index. Annotation copyright by Book News, Inc., Portland, OR
Download or read book Supporting Families of Children with Developmental Disabilities written by Mian Wang and published by Oxford University Press. This book was released on 2016 with total page 377 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book reviews the intervention literature on practices for supporting families of children with intellectual disabilities or autism and evaluates their status as evidence-based. It meta-analyses group comparison design studies and reports on single subject design studies of major psycho-social programs to support families.
Download or read book Opportunities for Improving Programs and Services for Children with Disabilities written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2018-08-06 with total page 351 pages. Available in PDF, EPUB and Kindle. Book excerpt: Although the general public in the United States assumes children to be generally healthy and thriving, a substantial and growing number of children have at least one chronic health condition. Many of these conditions are associated with disabilities and interfere regularly with children's usual activities, such as play or leisure activities, attending school, and engaging in family or community activities. In their most severe forms, such disorders are serious lifelong threats to children's social, emotional well-being and quality of life, and anticipated adult outcomes such as for employment or independent living. However, pinpointing the prevalence of disability among children in the U.S. is difficult, as conceptual frameworks and definitions of disability vary among federal programs that provide services to this population and national surveys, the two primary sources for prevalence data. Opportunities for Improving Programs and Services for Children with Disabilities provides a comprehensive analysis of health outcomes for school-aged children with disabilities. This report reviews and assesses programs, services, and supports available to these children and their families. It also describes overarching program, service, and treatment goals; examines outreach efforts and utilization rates; identifies what outcomes are measured and how they are reported; and describes what is known about the effectiveness of these programs and services.
Download or read book Neurological Psychiatric and Developmental Disorders written by Institute of Medicine and published by National Academies Press. This book was released on 2001-01-01 with total page 458 pages. Available in PDF, EPUB and Kindle. Book excerpt: Brain disordersâ€"neurological, psychiatric, and developmentalâ€"now affect at least 250 million people in the developing world, and this number is expected to rise as life expectancy increases. Yet public and private health systems in developing countries have paid relatively little attention to brain disorders. The negative attitudes, prejudice, and stigma that often surround many of these disorders have contributed to this neglect. Lacking proper diagnosis and treatment, millions of individual lives are lost to disability and death. Such conditions exact both personal and economic costs on families, communities, and nations. The report describes the causes and risk factors associated with brain disorders. It focuses on six representative brain disorders that are prevalent in developing countries: developmental disabilities, epilepsy, schizophrenia, bipolar disorder, depression, and stroke. The report makes detailed recommendations of ways to reduce the toll exacted by these six disorders. In broader strokes, the report also proposes six major strategies toward reducing the overall burden of brain disorders in the developing world.
Download or read book From Neurons to Neighborhoods written by National Research Council and published by National Academies Press. This book was released on 2000-11-13 with total page 610 pages. Available in PDF, EPUB and Kindle. Book excerpt: How we raise young children is one of today's most highly personalized and sharply politicized issues, in part because each of us can claim some level of "expertise." The debate has intensified as discoveries about our development-in the womb and in the first months and years-have reached the popular media. How can we use our burgeoning knowledge to assure the well-being of all young children, for their own sake as well as for the sake of our nation? Drawing from new findings, this book presents important conclusions about nature-versus-nurture, the impact of being born into a working family, the effect of politics on programs for children, the costs and benefits of intervention, and other issues. The committee issues a series of challenges to decision makers regarding the quality of child care, issues of racial and ethnic diversity, the integration of children's cognitive and emotional development, and more. Authoritative yet accessible, From Neurons to Neighborhoods presents the evidence about "brain wiring" and how kids learn to speak, think, and regulate their behavior. It examines the effect of the climate-family, child care, community-within which the child grows.
Download or read book Supporting Family Care of Persons who are Developmentally Disabled written by Illinois. Governor's Planning Council on Developmental Disabilities and published by . This book was released on 1987 with total page 84 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Satisfaction Guaranteed Improving Developmental Disability Family Support Programs written by Amber Christine Gibbs and published by . This book was released on 2023 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: People with developmental disabilities (DD) overwhelmingly rely on family caregivers to provide the support they need at home and in the community, often because of limited funding, long waiting lists for paid services, and more recently a dangerous shortage of paid caregivers. Family caregivers experience physical, social, and psychological demands of the extended caregiving they provide and have poorer health outcomes, negative impacts on their financial well-being, and higher incidence of stress and depression than non-caregivers. Family Supports (FS) programs provide services and other resources designed to help individuals with disabilities remain living in their family homes (Freedman et al., 2000; Heller et. al., 1999). These programs often offer flexible but limited funding for services and are consumer-directed in that individuals with DD and their families can decide which services they want to access, and in which amounts within their funding allowance. Given the significant demands on family caregivers over the lifetime of a person with a developmental disability, FS programs must be considered a viable option to provide at least some support to people who may be waiting for other funding options. In some states, FS programs may not be available or may be underutilized. This study was designed to understand the factors that influence people to utilize (or not utilize) a FS program, and to measure how useful FS program services are to people with DD and their families. Research questions also asked if there were relationships between satisfaction and demographic characteristics or specific need factors of people served. Using both a phenomenological approach and Andersen's behavioral model (1995) as a framework, the study employed an explanatory sequential practical action research model, consisting of a quantitative survey followed by qualitative interviews to expand on the quantitative findings. Participants included family caregivers of individuals with DD currently and previously enrolled in a FS program administered by one agency in a large metropolitan area in a Midwestern state in the U.S. Both participants enrolled in the program and those previously enrolled gave similar ratings (helpful or very helpful) to program services, were satisfied or very satisfied with the FS program, and willing to recommend it to others. Participants did give overall higher ratings of service usefulness than non-participants, which may explain why non-participants are no longer enrolled in the program. Program participants specifically rated the services of camp and incontinence supplies as more useful than non-participants, which may have been related to the timing of the research post-COVID pandemic when these surveys were in high demand and low supply. Participants also provided helpful suggestions for FS program improvement to improve ease of access to services, allow for greater self-direction, and include ongoing feedback of caregivers and participants in future FS program decisions.
Download or read book Policy Program Evaluation and Research in Disability written by Julie Ann Racino and published by Taylor & Francis. This book was released on 2023-07-28 with total page 510 pages. Available in PDF, EPUB and Kindle. Book excerpt: Explore case studies from the 1980s and 1990s that highlight the progress of community programs for people with disabilities! Policy, Program Evaluation, and Research in Disability: Community Support for All is an essential research reference on how community support systems can greatly assist people with diverse disabilities to live fuller lives outside of institutions. Based on qualitative research methods, Policy, Program Evaluation, and Research in Disability reflects over a decade of technical assistance and research in state, regional, and local communities throughout the United States. Community service managers, policy makers, researchers, activists, individuals with disabilities, and their families will benefit from the numerous studies that promote a better quality of life for those living with disabilities. Structured around the support and empowerment paradigm, which strives to enhance the independence of people with disabilities, Policy, Program Evaluation, and Research in Disability offers studies that combine in-depth, qualitative research approaches for use with field practicums, research internships, and professional development. You will examine studies that cover several different types of community support systems, in the fields of mental health, mental retardation, brain injury, physical and multiple disabilities.In Policy, Program Evaluation, and Research in Disability, some of the topics you will read about include: public policies to support changes in communities and governmental programs advocating for statewide changes in housing andcommunity support programs national, regional, and local studies of organizations and innovations supporting people with disabilities working for the inclusion of individuals with disabilities in public schools and communities agencies as supporters and funders of personal choice, self-advocacy, and services to families case studies on community integration that show people with disabilities living successful lives personal assistance services as described by leading consumer experts and advocates maximizing the personal futures of people with disabilities through supported employment, housing and community living With Policy, Program Evaluation, and Research in Disability, you will gain an in-depth look at the programs and policies available to people with disabilities and the emerging trends, directions, and recommendations for these programs. An excellent guide and research tool, this book challenges you to reach to another level of advocacy and not to settle for the status quo when it comes to bringing interdependence to everyone.
Download or read book Prevention of Developmental Disabilities written by Siegfried M. Pueschel and published by . This book was released on 1990 with total page 392 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Parents with Intellectual Disabilities written by Gwynnyth Llewellyn and published by John Wiley & Sons. This book was released on 2010-02-18 with total page 290 pages. Available in PDF, EPUB and Kindle. Book excerpt: The first international, cross-disciplinary book to explore and understand the lives of parents with intellectual disabilities, their children, and the systems and services they encounter Presents a unique, pan-disciplinary overview of this growing field of study Offers a human rights approach to disability and family life Informed by the newly adopted UN Convention on the Rights of Persons with Disabilities (2006) Provides comprehensive research-based knowledge from leading figures in the field of intellectual disability
Download or read book Mental Disorders and Disabilities Among Low Income Children written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2015-10-28 with total page 397 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children living in poverty are more likely to have mental health problems, and their conditions are more likely to be severe. Of the approximately 1.3 million children who were recipients of Supplemental Security Income (SSI) disability benefits in 2013, about 50% were disabled primarily due to a mental disorder. An increase in the number of children who are recipients of SSI benefits due to mental disorders has been observed through several decades of the program beginning in 1985 and continuing through 2010. Nevertheless, less than 1% of children in the United States are recipients of SSI disability benefits for a mental disorder. At the request of the Social Security Administration, Mental Disorders and Disability Among Low-Income Children compares national trends in the number of children with mental disorders with the trends in the number of children receiving benefits from the SSI program, and describes the possible factors that may contribute to any differences between the two groups. This report provides an overview of the current status of the diagnosis and treatment of mental disorders, and the levels of impairment in the U.S. population under age 18. The report focuses on 6 mental disorders, chosen due to their prevalence and the severity of disability attributed to those disorders within the SSI disability program: attention-deficit/hyperactivity disorder, oppositional defiant disorder/conduct disorder, autism spectrum disorder, intellectual disability, learning disabilities, and mood disorders. While this report is not a comprehensive discussion of these disorders, Mental Disorders and Disability Among Low-Income Children provides the best currently available information regarding demographics, diagnosis, treatment, and expectations for the disorder time course - both the natural course and under treatment.
Download or read book Information Services for People with Developmental Disabilities written by Marilyn M. Irwin and published by Bloomsbury Publishing USA. This book was released on 1995-04-30 with total page 369 pages. Available in PDF, EPUB and Kindle. Book excerpt: Developmental disabilities are the most numerous of disabilities, and they are exceptionally complex. This professional reference overviews developmental disabilities, discusses the information needs of people with developmental disabilities, and provides practical guidance to librarians and information professionals who serve them. Particular attention is given to the ramifications of the Americans with Disabilities Act for librarians. The first part of the book defines and describes developmental disabilities from perspectives relevant to librarians and information professionals. The second part examines key life issues that have a major impact on people with developmental disabilities. This section emphasizes the current trend toward the inclusion of people with developmental disabilities in mainstream society. References to related information sources are included throughout. The third part looks at disabilities from the perspective of the library or other information agency. An appendix lists organizations, agencies, businesses, and libraries that provide additional materials.
