Download or read book More Than a Diagnosis written by Jessica Burdg and published by . This book was released on 2020 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: ""What do you want the world to know about your child?"" ""What is raising a child who is differently-abled like for you, as a parent?"" These are two of the many questions Jessica Burdg asked the families you'll meet in More Than a Diagnosis, a compilation of sixteen poignant profiles from her ongoing blog series, ""Stories of Hope."" Here, pare.
Download or read book More Than a Diagnosis Stories of Hurdles Hope and Possibility from Parents of Children Who Are Differently Abled written by Jessica Burdg Burdg and published by . This book was released on 2020-08-11 with total page 172 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book We ve Got This written by Eliza Hull and published by Black Inc.. This book was released on 2022-03-01 with total page 234 pages. Available in PDF, EPUB and Kindle. Book excerpt: How do two parents who are blind take their children to the park? How is a mother with dwarfism treated when she walks her child down the street? How do Deaf parents know when their baby cries in the night? When writer and musician Eliza Hull was pregnant with her first child, like most parents-to-be she was a mix of excited and nervous. But as a person with a disability, there were added complexities. She wondered: Will the pregnancy be too hard? Will people judge me? Will I cope with the demands of parenting? More than 15 per cent of Australian households have a parent with a disability, yet their stories are rarely shared, their experiences almost never reflected in parenting literature. In We’ve Got This, twenty-five parents who identify as Deaf, disabled or chronically ill discuss the highs and lows of their parenting journeys and reveal that the greatest obstacles lie in other people’s attitudes. The result is a moving, revelatory and empowering anthology. As Rebekah Taussig writes, ‘Parenthood can tangle with grief and loss. Disability can include joy and abundance. And goddammit – disabled parents exist.’ Contributors include Jacinta Parsons, Kristy Forbes, Graeme Innes, Jessica Smith, Jax Jacki Brown, Nicole Lee, Elly May Barnes, Neangok Chair, Renay Barker-Mulholland, Micheline Lee and Shakira Hussein. We’ve Got This will appeal to readers of Growing Up Disabled in Australia and other titles in the Growing Up series.
Download or read book Better Than OK written by Kelly Mantoan and published by Our Sunday Visitor. This book was released on 2021-08-26 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: “Every day is joyful. Every day is a gift. Every day I can thank God from the bottom of my heart.” Kelly Mantoan wasn’t always able to say these words. As a mother of five children, two with profound disabilities, all her energy and attention was focused on her children’s diagnoses and round the clock care. Drained and struggling, Kelly wondered if she had what it took to be the kind of parent they needed. She craved support as a Catholic mother with special-needs children, but felt lost and alone when she tried to rely on secular support groups or well-meaning friends and family who had no experience in the special-needs community. If you can relate to Kelly’s story, Better Than OK: Finding Joy with Special- Needs Children is the hope-filled book you need today. In her down-to-earth way, Kelly shares the steps parents need to take to shift their focus away from the negatives of a diagnosis and towards acceptance, renewed faith, and joy. This book is a must-read for special-needs parents, but I would recommend it to any parent who needs a dose of wisdom and encouragement. — Jen Fulwiler, bestselling author and standup comic Sometimes special-needs parents need practical tips. Sometimes we need prayers. And sometimes we just need to know that we're not alone. ... This engaging new book is a true gift to the parents of kids with special needs. — Bonnie L. Engstrom, mom of eight and author of 61 Minutes to a Miracle This book is a gem for all special-needs parents, by turns funny, poignant, and always honest. It's the book I wish my parents could've had when I was diagnosed with cystic fibrosis in the 90s. — Emily M. DeArdo, author of Living Memento Mori: My Journey Along the Way of the Cross A truly important book for Catholic parents of special-needs children, and for family members, friends, and members of parish communities who want to better understand and more effectively support them. — Kendra Tierney, author of The Catholic All Year Compendium ABOUT THE AUTHOR Kelly Mantoan is the founder of Accepting the Gift, an online apostolate that provides resources and support to Catholic special-needs parents. She also blogs at This Ain’t the Lyceum about homeschooling, special-needs parenting, and Catholic family life. She enjoys creating useful posts and resources for her followers and speaking to groups about how God’s plan for our lives is often much better than anything we can imagine.
Download or read book Dawn the Doorway written by J M Mody and published by Archway Publishing. This book was released on 2022-12-05 with total page 179 pages. Available in PDF, EPUB and Kindle. Book excerpt: DAWN, The Doorway, Parenting: Differently-abled Children is primarily on children born with congenital anomalies and develop life-threatening diseases after birth to whom we know as special needs children, as special children. Jash would like to know them as Differently-abled children, Distinctive Children. J M Mody, Jash lives in FL, USA, and writes nonfiction and memoir books. Visit him at www.jayeshmody.com It is natural for parents to feel discouraged and think of shattered dreams when they see a child born with congenital anomalies and develop life-threatening diseases after birth. They suddenly come into a predicament to accommodate the change in their priorities. The mother may vent deep anguish, breathe irresistibly, and accepts the challenge, trusting her motherhood. As such, once any woman becomes a mother, she gets the empowerment to deal with her child's eventualities. Jash has attempted to reach parents and other concerns with genuine, enthusiastic, and passionate understanding through convincing hypotheses not to feel dismayed and lose hope. They give parents and other caretakers an unspoken, implied, indirect invitation to plunge into their world of innocence and purity and to rise with selfless love and compassion. At the same time, they also remain catalysts for parents to grab opportunities to be humane and filled with human life values. Most of the time, they stay in a blissful and happy mood. It means they reciprocate the services rendered and the devotion offered by parents and caretakers. Otherwise, also their characteristics become catalysts to restore love, care, and compassion in parents, and they can feel reaffirmation and reassurance of being caring, compassionate human beings. Parenting a child with congenital anomalies makes a home practice compassion. Mody has hypothesized that these naturally phenomenal children come with unbelievably veiled, hidden powers and have the characteristics of differently-abled children. As such, they are born with distinct, unlike drives and influences with changed genetic programs, as differently-abled. They remain connected with autonomous, self-governing, self-operating source energy systems and their arranged networks. They take birth in the family to inspire parents and other dedicated souls to join as teammates to experience transformation and transcend from within for a better life, towards the doorway for the Dawn. Jash modestly appeals not to show gloomy dejection towards differently-abled children, inhibiting their unique characteristics of being catalysts and activating the heart-core emotions of their parents and other caretakers. It may disrupt their working as navigators. It is to get an endorsement of human beings' reaffirmation and reassurances of being humane. Trigging and enhancing the process is essential; otherwise, they will turn uninterested, downhearted, and apathetic. Consequently, the beautiful process of inspiring parents and other teammates to be humane through the autonomous, sovereign system will get repressed. The aim is to motivate and pursue parents to take special care without feeling discouraged, disheartened, and losing hope while parenting such children. It is essential for parents' minds and hearts to develop optimism by understanding the awaited purpose of a child taking birth in a family. It is to appropriately navigate and boost parents and steadfast immediate family members to have positive attitudes by reassuring their human values to alleviate the child's condition and to transpire, arise, and ensure a transformed life.
Download or read book My Special Story written by Ekaterina Dorozhkina and published by Createspace Independent Publishing Platform. This book was released on 2017-10-10 with total page 50 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is the book for children and parents who want to know more about what it means to grow up with special needs or be around someone with special needs. In an activity-book format, readers will experience a day in the life of Alex, a five-year-old boy who loves playing and listening music and also has epilepsy and is developmentally challenged. Readers will join in for meal time, physical therapy, and a park expedition with his friend Milana and mother, Maria. Through these everyday activities, readers will come to learn how to be a good friend to a child with special needs. The book also includes a special letter from Alex's real-life mom that will encourage all parents on the joyful and exhausting journey that is parenthood. All profit and royalties are donated to good causes, please visit www.MyChildStory.org to learn more and join the community of parents and Special children. MyChildStory.org, a nonprofit project that will allow parents to tell their child's story, and for their family and friends to support and fund it. This website will also be a resource that connects editors, illustrators, designers and publishers.
Download or read book You Will Dream New Dreams written by Stanley Klein and published by Kensington Books. This book was released on 2001-04-01 with total page 294 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book A Cup of Comfort for Parents of Children with Special Needs written by Colleen Sell and published by Cup of Comfort. This book was released on 2009-04-18 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: A diagnosis of a child’s special need can be extremely difficult for parents. However, every day, these children accomplish small victories and make great strides that improve their own lives—and brighten their parents’ days. This collection brings to life fifty stories of parents who have struggled with a child’s diagnosis only to embrace the differences that make their children that much more special—and even more loved. Following the success of A Cup of Comfort® for Parents of Children with Autism, this sensitive and joyful collection offers a poignant message of support, hope, and empathy. This touching volume is sure to find a welcome home wherever people are dealing with a challenging diagnosis.
Download or read book On The Whole written by Ona Gritz and published by Shebooks. This book was released on 2014-03-12 with total page 41 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ona Gritz has had cerebral palsy all her life, but until she gave birth to her son, she didn’t really understand what it meant to be disabled. Her cerebral palsy affects her coordination and balance but not enough to have ever truly hindered her. “For the most part, I considered my disability a cosmetic issue,” she tells us in On the Whole. “Just how obvious is it? Do people see me as pretty despite the limp?” But now she’s got a new baby to care for, and no one has warned her what a physical job she has taken on. She can’t bathe her son by herself or carry him up or down a flight of stairs. Nor can she feed herself or even open a refrigerator with a baby in her arms. And her baby will settle for nothing less than being in her arms. With lyricism and candor, poet Ona Gritz shares her son’s first years with us, a time when she wanted nothing more than what all of us want—to be the perfect mother, only her imperfections kept getting in the way.
Download or read book One Miracle at a Time Getting Help for a Child with a Disability written by Irving Dickman and published by Simon and Schuster. This book was released on 1993-02 with total page 388 pages. Available in PDF, EPUB and Kindle. Book excerpt: One Miracle at a Time offers emotional and practical experiences of parents of disabled children come together in this inspiring, comprehensive handbook. Up-to-date information and detailed discussions cover coping with the initial diagnosis and long-term emotional impact, finding the right medical treatment and support services, and getting financial and legal support if necessary.
Download or read book Unexpected Blessings written by Sandra Peoples and published by Bethany House Publishers. This book was released on 2018-11-20 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Unexpected Blessings helps special-needs families move past the pain and confusion of their circumstances and slowly, firmly face the future with hope. Speaking honestly about struggles that accompany a variety of disabilities, Sandra Peoples shows readers how to · let go of false beliefs that hold them back · work through the cycles of grief · focus on self-care and healthy routines · understand disability based on what the Bible says · rebuild a strong faith foundation · create support systems for themselves and others Filled with real-life stories and hard-earned wisdom, this book shines a light on the possibilities and blessings that come when parents see their new purpose in life--which was God's purpose for them all along.
Download or read book The Story Of An Hour written by Kate Chopin and published by Harper Collins. This book was released on 2014-04-22 with total page 11 pages. Available in PDF, EPUB and Kindle. Book excerpt: Mrs. Louise Mallard, afflicted with a heart condition, reflects on the death of her husband from the safety of her locked room. Originally published in Vogue magazine, “The Story of an Hour” was retitled as “The Dream of an Hour,” when it was published amid much controversy under its new title a year later in St. Louis Life. “The Story of an Hour” was adapted to film in The Joy That Kills by director Tina Rathbone, which was part of a PBS anthology called American Playhouse. HarperPerennial Classics brings great works of literature to life in digital format, upholding the highest standards in ebook production and celebrating reading in all its forms. Look for more titles in the HarperPerennial Classics collection to build your digital library.
Download or read book Two for Joy written by James Melville-Ross and published by John Blake. This book was released on 2016-06 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Two for Joy is the heart-warming true story of disabled twins Thomas and Alice, and their desperate fight for life after being born four months prematurely. James Melville-Ross, their father, tells of how the twins not only survived--despite being given the last rites as babies--but also thrived. From the dramatic first few months of the twins' lives--when Alice suffered a heart attack when only a day old, and Thomas's lungs filled with blood, leaving him only 20 minutes away from death--Two for Joy reveals the path that James and his wife Georgie have followed as parents to two severely disabled children. After the initial anger came the sheer hard work: the sleepless nights; the hospital dashes; the curious stares and unwelcome comment from strangers. But slowly came acceptance and, eventually, celebration of the joy that the medical marvels Thomas and Alice--now happy and energetic ten year olds--have brought to their lives. Finally they understood that disability might have turned their world upside down, but that it has also provided rewards beyond anything they could have imagined. This story is for any parent experiencing the shock of having extremely premature babies or coming to terms with having a child diagnosed with a disability. More than that, this story will change people's attitudes to disability, and show that love and true happiness can be found in even the most challenging of circumstances.
Download or read book We ve Got This written by Eliza Hull and published by Scribe Us. This book was released on 2023-04-15 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The first major anthology by parents with disabilities. How does a father who is blind take his child to the park? How is a mother with dwarfism treated when she walks her child down the street? How do Deaf parents know when their baby cries in the night? When writer and musician Eliza Hull was pregnant with her first child, like most parents-to-be she was a mix of excited and nervous. But as a person with a disability, there were added complexities. She wondered: Will the pregnancy be too hard? Will people judge me? Will I cope with the demands of parenting? More than 15 percent of people worldwide live with a disability, and many of them are also parents. And yet their stories are rarely shared, their experiences almost never reflected in parenting literature. In We've Got This, parents around the world who identify as Deaf, disabled, or chronically ill discuss the highs and lows of their parenting journeys and reveal that the greatest obstacles lie in other people's attitudes. The result is a moving, revelatory, and empowering anthology that tackles ableism head-on. As Rebekah Taussig writes, 'Parenthood can tangle with grief and loss. Disability can include joy and abundance. And goddammit -- disabled parents exist.'
Download or read book Different But the Same written by Phyllis Leyden-Alexander and published by . This book was released on 2021-06-26 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: "Mommy" your little one whispers. "What's wrong with that kid over there?"This book provides a warm and wonderful tool for parents and teachers to use when talking to children about those who are different from themselves due to disabilities. Children and adults alike will see "different doesn't mean less than!". Through its pages you are welcomed into Noahland, a very real place where meals are received through a tube in the tummy, and homework consists of an almost daily line up of physical therapy, speech therapy, occupational therapy? . Yet pull back the curtain on what at first glance is just a boy with significant challenges and you'll discover a thoroughly likeable kid who enjoys playing with friends, painting, and doing the same things typical kids do, but in a different way. Written in rhyme, and letting the obvious speak for itself, the vibrant illustrations bring to life the everyday nuances between typical and differently-abled daily living in an engaging and enjoyable way."This is phenomenal and amazing. Just WOW! As an educator and administrator (principal) for 30 years this book meets so many educational standards (literature with the rhyme, science with the scenery, identification of primary colors, etc.) in a fun and creative way. This book is rich with possibilities and only limited by your imagination in how this can be used to teach kids in a traditional setting using authentic literature." Louella Simmons, Ed.D., M.Div., BCC It is my hope that the reading of this book will result in casual as well as in-depth discussions about this topic. I hope it will alleviate the awkwardness and discomfort many children (and adults) feel when in the presence of a person with disabilities. I hope that parents and others with special needs kids in their lives will be encouraged as they see Noah and his mom focus less on the limitations of what they cannot do and more on the endless possibilities of what they CAN DO. And that can make a world of difference.
Download or read book Lessons from My Child written by Cindy Dowling and published by . This book was released on 2013-10 with total page 442 pages. Available in PDF, EPUB and Kindle. Book excerpt: Every expectant parent dreams of having a healthy, perfect baby. But for some, those expectations are shattered forever with the arrival of a disabled child. Long-cherished hopes must now be set aside as these parents begin to deal with a new, unwelcome reality and take the first tentative steps on a long and challenging life journey. 'Lessons from my Child' is a collection of stories gathered from parents of special-needs children from around the world. In their own words, these parents speak openly and honestly about raising a child with intellectual or physical disabilities the sleepless nights, the long periods of sadness, the tiny triumphs and the ongoing battle to ensure that their child assumes his or her rightful place in the world. The stories are grouped into chapters that reflect the main stages of many parents journeys as they move from grief, denial and anger to a point where they can accept their situation, and perhaps see their child's disability as embodying a profound life lesson. Each chapter begins with an expert psychological commentary on what parents may be experiencing at that stage. These accounts from parents allow rare insights into the challenges of their world and reveal the extraordinary rollercoaster of emotions many face daily. What emerges is a testament to human determination and a powerful reaffirmation of the strength of love.
Download or read book Laughing Allegra written by Anne Ford and published by Harper Collins. This book was released on 2009-08-18 with total page 305 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Anne Ford, great-granddaughter of Henry Ford, learned that her four-year-old daughter Allegra’s “differences” were the result of severe learning disabilities, she faced a challenge that neither money nor position could ease. Desperate for answers, Anne sought out doctors, teachers, counselors, and others who could help her build a support network for herself and her daughter, while fighting the many common misconceptions and myths about learning disabilities. Now, in this fiercely honest and compelling memoir, Anne tells her story, writing movingly of her feelings as the mother of a learning disabled child. “I grew to accept that life is filled with uncertainty and that answers to the most simple, yet profound, questions such as ‘What is wrong with my daughter?’ can be elusive. I learned to be self-reliant in ways I never had before. I learned that every spark of optimism and hope was something to be nurtured and treasured because sometimes they were the only comfort available. And I learned that worry had entered my life.” In time, Anne Ford saw her daughter grow into a vibrant, loving, and independent adult with a passion for ice skating and a commitment to help other disabled children. Allegra Ford, now 32, lives independently and supported this book’s publication so “it could help other kids.” Anne’s experience led her to become a tireless activist on behalf of children and families faced with LD, including her service as Chairman of the Board of the National Center for Learning Disabilities from 1989 to 2001, and the writing of this book with John-Richard Thompson, an award-winning playwright and novelist. In addition to Anne’s personal story, Laughing Allegra includes four invaluable special sections: Answers to the most commonly asked questions about LD A resource guide on where to find help A discussion from a mother’s perspective on the challenges of homework, money, relationships, the work- place, and planning as the LD child and parents age A section on “Siblings and Secrets,” new in this paperback edition, inspired by Anne’s conversations with readers during her hardcover book tour.
